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Ibrutinib
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starting Ibrutinib today
I'm about to start
Ibrutinib
today (3 tablets x 140mg) I'm hoping my haematologist will reduce that after a while? I've read through the pamphlets etc but thought I would ask this lovely community what to expect and any tips with food, drink, exercise I (see weight gain is pretty common).
I'm about to start
Ibrutinib
today (3 tablets x 140mg) I'm hoping my haematologist will reduce that after a while? I've read through the pamphlets etc but thought I would ask this lovely community what to expect and any tips with food, drink, exercise I (see weight gain is pretty common).
fugazi
in
CLL Support
2 years ago
Cardiotoxicity in patients treated with acalabrutinib
[i]"In conclusion, [/i][u][i]it is vital that patients and caregivers be aware of the severe cardiotoxicity associated with
ibrutinib
and also with the second-generation BTKi acalabrutinib.
[i]"In conclusion, [/i][u][i]it is vital that patients and caregivers be aware of the severe cardiotoxicity associated with
ibrutinib
and also with the second-generation BTKi acalabrutinib.
CLLerinOz
Volunteer
in
CLL Support
1 year ago
Itchy skin on Ibrutinib
Has anyone had good luck with terrible itchy skin outbreak: Does triamcinolone acetonide help?
Has anyone had good luck with terrible itchy skin outbreak: Does triamcinolone acetonide help?
Tapps
in
CLL Support
1 year ago
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Skin Bruising: Itching
Doctor said
Ibrutinib
was causing the bruising. This is the same Doctor that wouldn’t OK the six month shots of Evusheld? Wondering about him? Any suggestions on the itching? Thanks
Doctor said
Ibrutinib
was causing the bruising. This is the same Doctor that wouldn’t OK the six month shots of Evusheld? Wondering about him? Any suggestions on the itching? Thanks
Tapps
in
CLL Support
2 years ago
Interaction of ibrutinib with pantoprazole…. ????
Hi,, I have been taking
ibrutinib
for about 40 days, I have had stomach reflux and indigestion for about a week. The next visit with my oncologist hematologist is in two weeks.. Can I take pentoprazole and it does not interfere with
ibrutinib
?
Hi,, I have been taking
ibrutinib
for about 40 days, I have had stomach reflux and indigestion for about a week. The next visit with my oncologist hematologist is in two weeks.. Can I take pentoprazole and it does not interfere with
ibrutinib
?
ava1967ir
in
CLL Support
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Some treatments, such as
ibrutinib
, can raise T cell numbers. - Are all patients with CLL/SLL immune deficient? Yes, even patients who have just been diagnosed and never received treatment have some degree of immune dysfunction.
Some treatments, such as
ibrutinib
, can raise T cell numbers. - Are all patients with CLL/SLL immune deficient? Yes, even patients who have just been diagnosed and never received treatment have some degree of immune dysfunction.
lankisterguy
Volunteer
in
CLL Support
1 year ago
Immuncompromised after Fixed Duration Therapy?
I am currently four years into
Ibrutinib
with successful results and only a few nagging side effects.
I am currently four years into
Ibrutinib
with successful results and only a few nagging side effects.
hhk50
in
CLL Support
1 year ago
NUREX - 2127 ONE YEAR ANNIVERSARY STARTING CYCLE 14
Ibrutinib
3 years developed C-481 resistance 3. Venetoclax 18 months never really worked for me, didn't like hospital ramp-up 4. Loxo-305 20 months CR then I developed a mutation that worked it's way around the drug. My favorite treatment. 5. NX-2127 12 months and counting.
Ibrutinib
3 years developed C-481 resistance 3. Venetoclax 18 months never really worked for me, didn't like hospital ramp-up 4. Loxo-305 20 months CR then I developed a mutation that worked it's way around the drug. My favorite treatment. 5. NX-2127 12 months and counting.
steve5441
in
CLL Support
1 year ago
Is anyone with cll on daily total 140mg ibrutinib & what are your concerns?
I presently take 240mg total
ibrutinib
daily for past 3 years & my doctor is considering lowering it to 140mg daily? Is anyone here with cll on just a daily total 140mg
ibrutinib
and what are your concerns?
I presently take 240mg total
ibrutinib
daily for past 3 years & my doctor is considering lowering it to 140mg daily? Is anyone here with cll on just a daily total 140mg
ibrutinib
and what are your concerns?
Bobsterguy
in
CLL Support
2 years ago
What is next if Acalabrutinib AFIB wont stop?
My heart wasn't in the best of shape (2 valves replaced) to start with when I started on
Ibrutinib
.
Ibrutinib
really exacerbated my AFIB, but after a year of Ibruitinb, I was off all medication for almost 3 years......until the CLL started to get more aggressive.
My heart wasn't in the best of shape (2 valves replaced) to start with when I started on
Ibrutinib
.
Ibrutinib
really exacerbated my AFIB, but after a year of Ibruitinb, I was off all medication for almost 3 years......until the CLL started to get more aggressive.
barger1951
in
CLL Support
2 years ago
Results from Phase 2 study of nivolumab plus ibrutinib in patients with diffuse large b-cell Richter Transformation of CLL
Wierda; A Phase 2 Study of Nivolumab Combined with
Ibrutinib
in Patients with Diffuse Large B-cell Richter Transformation of CLL.
Wierda; A Phase 2 Study of Nivolumab Combined with
Ibrutinib
in Patients with Diffuse Large B-cell Richter Transformation of CLL.
CLLerinOz
Volunteer
in
CLL Support
2 years ago
Chest Infection with Blood
I am on
Ibrutinib
and have contemplated discontinuing this for a few days (not discussed with my Heam team). I had a similar episode of this some 5 years ago and that was one of the actions.
I am on
Ibrutinib
and have contemplated discontinuing this for a few days (not discussed with my Heam team). I had a similar episode of this some 5 years ago and that was one of the actions.
RobertCLL
in
CLL Support
1 year ago
Five-year results for the iFCG regimen: first-line treatment of CLL patients with mutated IGHV and without del(17p)/TP53 mutation
The 5-year PFS is 97.7%; this is favorable compared to 5-year PFS of ≈65% with FCR (CLL10), ≈70% with
ibrutinib
(A041202 trial), and 81% with
ibrutinib
(RESONATE-2) for IGHV-M CLL. Not unexpectedly, MRD recurrence during follow-up correlated with MRD positivity by NGS during therapy.
The 5-year PFS is 97.7%; this is favorable compared to 5-year PFS of ≈65% with FCR (CLL10), ≈70% with
ibrutinib
(A041202 trial), and 81% with
ibrutinib
(RESONATE-2) for IGHV-M CLL. Not unexpectedly, MRD recurrence during follow-up correlated with MRD positivity by NGS during therapy.
bennevisplace
in
CLL Support
2 years ago
Infection and sore throat with swollen neck lymph nodes
Hi ,please share your experience with sore throat and swelling of neck lymph nodes during treatment with
ibrutinib
, and in case of throat infection, what antibiotic does the doctor prescribe that has the least interference with
ibrutinib
?
Hi ,please share your experience with sore throat and swelling of neck lymph nodes during treatment with
ibrutinib
, and in case of throat infection, what antibiotic does the doctor prescribe that has the least interference with
ibrutinib
?
ava1967ir
in
CLL Support
2 years ago
Recent test results related to current Covid-19
Was on
ibrutinib
during all vaccines Had full dose Evusheld March 1st, seven weeks later had 740 antibodies Infected with covid July 21, got Bebtelovimab July 22nd. Took 80 days to rapid test negative. Got Moderna bivalent vaccine Oct 10, had low grade fever and felt achy for two days post.
Was on
ibrutinib
during all vaccines Had full dose Evusheld March 1st, seven weeks later had 740 antibodies Infected with covid July 21, got Bebtelovimab July 22nd. Took 80 days to rapid test negative. Got Moderna bivalent vaccine Oct 10, had low grade fever and felt achy for two days post.
Davidcara
in
CLL Support
1 year ago
Treatment of Richter's syndrome - ASH 2022 Education Program
DLBCL-RS tumor cells frequently express programmed cell death 1 protein (PD-1), and several studies have demonstrated activity for PD-1 inhibitors, especially in combination with
ibrutinib
.
DLBCL-RS tumor cells frequently express programmed cell death 1 protein (PD-1), and several studies have demonstrated activity for PD-1 inhibitors, especially in combination with
ibrutinib
.
CLLerinOz
Volunteer
in
CLL Support
1 year ago
Another 6 month checkup done
I'm so thankful that the
Ibrutinib
is still doing it's thing after nearly 4 years and I can get on with living life. Yes I still get tired, joint ache and a couple of other things but I work past it and enjoy life and try and keep a very positive outlook on things.
I'm so thankful that the
Ibrutinib
is still doing it's thing after nearly 4 years and I can get on with living life. Yes I still get tired, joint ache and a couple of other things but I work past it and enjoy life and try and keep a very positive outlook on things.
Dragonspen
in
CLL Support
2 years ago
4 years on Ibrutinib and now seeing elevated BP
Hi all, As per title I've been on
Ibrutinib
for a little over 4 years (reduced dose of 140mg/day last 37 months), no major side effects and bloods all normal.
Hi all, As per title I've been on
Ibrutinib
for a little over 4 years (reduced dose of 140mg/day last 37 months), no major side effects and bloods all normal.
Redlion
in
CLL Support
2 years ago
Evusheld not foolproof...be cautious still
Note..stop
Ibrutinib
if you take Paxlovid...don't take at the same time.
Note..stop
Ibrutinib
if you take Paxlovid...don't take at the same time.
newyork8
in
CLL Support
2 years ago
STATIC Ibrutinib trial (FLAIR follow on) update for UK members
In brief, there will be no patient choice arm so patients cannot elect to continue
Ibrutinib
.
In brief, there will be no patient choice arm so patients cannot elect to continue
Ibrutinib
.
Jm954
Administrator
in
CLL Support
2 years ago
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