Experiences with

Hypopituitarism

I've been reading about hypopituitarism with both low F4 and TSH. But are my numbers actually OK and should I just accept my symptoms are not thyroid related?

[i]Graves' Disease in Due to Pituitary Apoplexy[/i] [i]In Press, (this is not the final "Version of Record").

I asked to have a short synacten test to see if my pituitary is failing ( hypopituitarism) , as one of my big symptoms is low motivation, tiredness, hypothyroidism and zero libido for years despite being on hrt for 12 months now.

A nil or suppressed response may be seen in adrenal insufficiency, hypopituitarism, or prolonged steroid therapy“ Here are my results, full report below (with personal details redacted) for reference. 0 minutes cortisol - 422.9 nmol/L 30 minute cortisol - 511.2 nmol/L Now, evidently my 30 minute

A nil or suppressed response may be seen in adrenal insufficiency, hypopituitarism, or prolonged steroid therapy“ Here are my results, full report below (with personal details redacted) for reference. 0 minutes cortisol - 422.9 nmol/L 30 minute cortisol - 511.2 nmol/L Now, evidently my 30 minute

Hi Does any one know if there is a link between hypopituitarism and below range red blood count 4.21 haemoglobin 1.33 haematocrit 0.381 had this condition over 3 years and these are my latest blood tests to me this looks anaemic but docs keep looking for something else feel terrible Thanks

The hospital they are asking for advice from is one who I’ve already seen for hypoglycaemia who have falsely excluded hypopituitarism based on a morning cortisol blood test so I will be complaining to pals about negligence anyway.

Does anyone have any recommendations or positive experiences of specialists that have dealt with secondary hypothyroidism or hypopituitarism? Preferrably in North-West England but open to any suggestions within the UK.

A very quick recap on my situation first: Established partial idiopathic hypopituitarism with growth hormone deficiency diagnosed and treated since Nov 2020, which gave huge improvements. But not all symptoms relented, and those remaining all look like hypothyroidism.

I have hypopituitarism and this seems to have affected my thyroid as well as hormone levels. Is it right to increase my T3 or is it ok at this range?

So, should I be mentioning hypopituitarism to endo? Could it be an issue? I suppose it's niggling in my mind after a session with a brilliant reflexologist a couple of years ago. The only area that she found any issue with was - you guessed it - my pituitary!

Hi, anyone diagnosed with hypopituitarism and doing IVF?

Hi Does any more know if hypopituitarism causes chronic fatigue , I am taking levothyroxine, hydrocortisone, testosterone

As her females hormones and IGF-1 have come back as normal she doesn't think she has hypopituitarism but she seems very unwilling to offer any other suggestions as to what else might be causing her chronic fatigue and other problems.

Researching hypopituitarism, I am finding that it could be the answer to both problems, and wonder if anyone else has had this issue.

Hi - my latest results are; TSH 0.02 mIU/L (Range: 0.27 - 4.2) Free T3 6 pmol/L (Range: 3.1 - 6.8) Free Thyroxine X 16.9 pmol/l (Range: 12 - 22) I am on 100mg of Levothyroxine and have hypopituitarism.

HOWEVER, THE FREE T4 AND T3 LEVELS ARE ALSO LOW, WHICH RAISES THE POSSIBILITY OF HYPOPITUITARISM (UNDERACTIVE PITUITARY GLAND, WHICH WOULD LEAD TO AN UNDERACTIVE THYROID GLAND INSTEAD) - FURTHER TESTING WOULD BE ADVISABLE IF THIS IS SUSPECTED.

I am awaiting an appointment date for my "day curve" for the hypopituitarism that I also have. I am now awaiting all my printed results in the post and it is on my record that every time my Endo writes to me about my results the test results themselves will be enclosed.

After extensive research I keep coming back to pituitary/ adrenal issues (hypopituitarism) central hypothyroidism (pituitary) and Cushing’s. My hormones all seem to be very low in the ‘normal’ range and my cortisol is at the high end of ‘normal’ range.

To give some context I have been poorly for around 2 years and I have recently (finally) been diagnosed with partial empty sella, hypopituitarism which has caused adrenal insufficiency and hypothyroidism and the medication I have been given is Hydrocortisone and Levothyroxine which I have been taking