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Experiences with
Hypertrophic cardiomyopathy
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Help! New Symptoms after recent cardioversion.
Last summer I was also diagnosed with
hypertrophic
cardiomyopathy
… Bristol weren’t prepared to do an ablation so have been referred to St Barts in London where a discussion about an ablation and possibly pace and ablate will happen (also a chat about an AED) That’s the background… Anyway since my
Last summer I was also diagnosed with
hypertrophic
cardiomyopathy
… Bristol weren’t prepared to do an ablation so have been referred to St Barts in London where a discussion about an ablation and possibly pace and ablate will happen (also a chat about an AED) That’s the background… Anyway since my
Slidingdoors99
in
Atrial Fibrillation Support
1 year ago
Cardiff University School of Medicine are conducting a Study
We are looking for adults in the UK, aged 18+, who have had genetic testing that confirms a genetic diagnosis of either: • Long QT Syndrome (LQTS) • Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant) • Huntington’s Disease (HD) •
Hypertrophic
Cardiomyopathy
(HCM) We would like
We are looking for adults in the UK, aged 18+, who have had genetic testing that confirms a genetic diagnosis of either: • Long QT Syndrome (LQTS) • Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant) • Huntington’s Disease (HD) •
Hypertrophic
Cardiomyopathy
(HCM) We would like
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
1 year ago
Is there such a thing as ‘slow AFib?’
Taunton referred me to Bristol but they were unwilling because I also have
hypertrophic
cardiomyopathy
and they didn’t have a good success rate for people like me.☹️ I was then referred to St Barts and they have said they’ll give it a go.
Taunton referred me to Bristol but they were unwilling because I also have
hypertrophic
cardiomyopathy
and they didn’t have a good success rate for people like me.☹️ I was then referred to St Barts and they have said they’ll give it a go.
Slidingdoors99
in
Atrial Fibrillation Support
1 year ago
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Cardiff University School of Medicine are conducting a Study
We are looking for adults in the UK, aged 18+, who have had genetic testing that confirms a genetic diagnosis of either: • Long QT Syndrome (LQTS) • Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant) • Huntington’s Disease (HD) •
Hypertrophic
Cardiomyopathy
(HCM) We would like
We are looking for adults in the UK, aged 18+, who have had genetic testing that confirms a genetic diagnosis of either: • Long QT Syndrome (LQTS) • Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant) • Huntington’s Disease (HD) •
Hypertrophic
Cardiomyopathy
(HCM) We would like
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
pvcs!
I have
hypertrophic
cardiomyopathy
with paradoxal a fib. Over the last couple of days I have been experiencing loads and loads of pvcs. 2/3k a day. I am so anxious. I have emailed my cardiologist and she doesn’t seem bothered. I don’t understand. Anyone else experienced this ?
I have
hypertrophic
cardiomyopathy
with paradoxal a fib. Over the last couple of days I have been experiencing loads and loads of pvcs. 2/3k a day. I am so anxious. I have emailed my cardiologist and she doesn’t seem bothered. I don’t understand. Anyone else experienced this ?
DLS25
in
AF Association
2 years ago
Travel Insurance
I am taking a 4-day trip to New York in December for my 60th birthday I have had
Hypertrophic
Cardiomyopathy
which has been successfully treated for 4 years, but I am now having tests for typical atrial flutter. I am looking to get travel insurance, is this possible and at what cost?
I am taking a 4-day trip to New York in December for my 60th birthday I have had
Hypertrophic
Cardiomyopathy
which has been successfully treated for 4 years, but I am now having tests for typical atrial flutter. I am looking to get travel insurance, is this possible and at what cost?
canarysmith
in
British Heart Foundation
2 years ago
Never ending atrial flutter/afib
My son also has
hypertrophic
cardiomyopathy
and has a defibrillator is this what will happen to him also? Will they ever manage to control it. seems nothing works for long?. Anybody else had the same? Thank you for listening/reading. I am finding all this so hard the constant worry I mean
My son also has
hypertrophic
cardiomyopathy
and has a defibrillator is this what will happen to him also? Will they ever manage to control it. seems nothing works for long?. Anybody else had the same? Thank you for listening/reading. I am finding all this so hard the constant worry I mean
Debfro34
in
AF Association
1 year ago
Cardiff University School of Medicine are conducting a Study
We are looking for adults in the UK, aged 18+, who have had genetic testing that confirms a genetic diagnosis of either: • Long QT Syndrome (LQTS) • Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant) • Huntington’s Disease (HD) •
Hypertrophic
Cardiomyopathy
(HCM) We would like
We are looking for adults in the UK, aged 18+, who have had genetic testing that confirms a genetic diagnosis of either: • Long QT Syndrome (LQTS) • Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant) • Huntington’s Disease (HD) •
Hypertrophic
Cardiomyopathy
(HCM) We would like
Hidden
Partner
in
Arrhythmia Alliance
1 year ago
Weight concerns
Good morning My son is 15 and has
hypertrophic
cardiomyopathy
and aortic root dilatation. Over the summer ive been concerned about him losing weight.
Good morning My son is 15 and has
hypertrophic
cardiomyopathy
and aortic root dilatation. Over the summer ive been concerned about him losing weight.
Livelovelife56
in
British Heart Foundation
2 years ago
Would you like to assist in a research Study?
o Long QT Syndrome o Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant) o Huntington’s Disease o
Hypertrophic
Cardiomyopathy
If you have received genetic counselling from a GCRB registered genetic counsellor? or someone who is training to be a certified genetic counsellor?
o Long QT Syndrome o Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant) o Huntington’s Disease o
Hypertrophic
Cardiomyopathy
If you have received genetic counselling from a GCRB registered genetic counsellor? or someone who is training to be a certified genetic counsellor?
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
Would you like to assist in a research?
o Long QT Syndrome o Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant) o Huntington’s Disease o
Hypertrophic
Cardiomyopathy
If you have received genetic counselling from a GCRB registered genetic counsellor? or someone who is training to be a certified genetic counsellor?
o Long QT Syndrome o Hereditary Breast and Ovarian Cancer predisposition (BRCA1/2 variant) o Huntington’s Disease o
Hypertrophic
Cardiomyopathy
If you have received genetic counselling from a GCRB registered genetic counsellor? or someone who is training to be a certified genetic counsellor?
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
2 years ago
Still trying to process the news…
Yesterday I was diagnosed with
hypertrophic
cardiomyopathy
and since then I have just felt sick to my stomach. I now realise why I went into AFib out of the blue in 2020. I have a family history of heart problems and my mum died of cardiomyopathy at just 48.
Yesterday I was diagnosed with
hypertrophic
cardiomyopathy
and since then I have just felt sick to my stomach. I now realise why I went into AFib out of the blue in 2020. I have a family history of heart problems and my mum died of cardiomyopathy at just 48.
Slidingdoors99
in
British Heart Foundation
2 years ago
MRI results yesterday. Anybody in a similar awful position please?
Yesterday I was diagnosed with
hypertrophic
cardiomyopathy
and since then I have just stayed in my bedroom feeling very queasy. My consultant thinks that this is why my AFib started.
Yesterday I was diagnosed with
hypertrophic
cardiomyopathy
and since then I have just stayed in my bedroom feeling very queasy. My consultant thinks that this is why my AFib started.
Slidingdoors99
in
Atrial Fibrillation Support
2 years ago
Icd recovery
hello everyone I am 58 years old have just been diagnosed with
hypertrophic
obstructive
cardiomyopathy
. I had an ICD implanted 2 days ago. I was wondering if anyone has any experiences with this , very sore and very tired , feels like a lead weight on my chest.
hello everyone I am 58 years old have just been diagnosed with
hypertrophic
obstructive
cardiomyopathy
. I had an ICD implanted 2 days ago. I was wondering if anyone has any experiences with this , very sore and very tired , feels like a lead weight on my chest.
Marking
in
British Heart Foundation
2 years ago
Hypertrophic cardiomyopathy
Does anyone have
hypertrophic
cardiomyopathy
with LV systolic Dysfunction and if so what meds can I expect? Does anyone know ?
Does anyone have
hypertrophic
cardiomyopathy
with LV systolic Dysfunction and if so what meds can I expect? Does anyone know ?
coop61
in
AF Association
2 years ago
surprise surprise!
Hypertrophic
Cardiomyopathy
Hi there, New to here and to anything heart related Strong family history of heart issues on my dad's side....bypasses at 42 years old etc. Absolutely no heart or associated issues ( that I'm aware of ) in 53 years. Boom ....
Hypertrophic
Cardiomyopathy
Hi there, New to here and to anything heart related Strong family history of heart issues on my dad's side....bypasses at 42 years old etc. Absolutely no heart or associated issues ( that I'm aware of ) in 53 years. Boom ....
Sunnygirl007
in
British Heart Foundation
2 years ago
At risk?
I'm not sure if my
Hypertrophic
Cardiomyopathy
, preliminary diagnosis, places me in that group now?
I'm not sure if my
Hypertrophic
Cardiomyopathy
, preliminary diagnosis, places me in that group now?
Toasty-McToast-Face
in
British Heart Foundation
2 years ago
HOCM hypertrophic obstructive cardiomyopathy
it would be good to communicate with others who have HOCM. I’ve just had my pacemaker replaced and the second scar is twice as long as the first as it seemed difficult to remove the original. Has anyone else had this happen.?
it would be good to communicate with others who have HOCM. I’ve just had my pacemaker replaced and the second scar is twice as long as the first as it seemed difficult to remove the original. Has anyone else had this happen.?
Golfgirl22
in
British Heart Foundation
2 years ago
Hypertrophic cardiomyopathy
Hi I am new on here I am just looking trying to get some info on ICD,s as I am waiting to have one . Just seeing what to expect as it was a comp.ete shock to me .
Hi I am new on here I am just looking trying to get some info on ICD,s as I am waiting to have one . Just seeing what to expect as it was a comp.ete shock to me .
coop61
in
British Heart Foundation
2 years ago
HYPERTROPHIC CARDIOMYOPATHY
Hi just been told the heart pump is slowing down has anyone been through this or know what happens next?
Hi just been told the heart pump is slowing down has anyone been through this or know what happens next?
Pjjmhaa
in
British Heart Foundation
2 years ago
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