Hypertrophic cardiomyopathy

[coop61]

Hi I am new on here I am just looking trying to get some info on ICD,s as I am waiting to have one . Just seeing what to expect as it was a comp.ete shock to me .

[Enonykasper]

Hi I like you have hypertrophic cardiomyopathy I’ve had it a long time

But like you out of the blue on the 26th April 2021

I had a Icd fitted

So that’s almost 1 year

I keep forgetting I have one

I just got a phone call from the hospital saying I needed one

And had it fitted within three weeks

The doctors called it my very own guardian Angel on my shoulder 😃

I have found it very reassuring and truly forget I have it

I live in England

My two sisters live in Scotland and they to are now waiting for a Icd

Anything else you need to know 👍🏻

[ph5019]

Hi,I had 2 fitted last year at different times, they were fitted due to low EF caused by heart attack in May 2020.

In brief, the first one ( subcutaneous) fitted in March 2021, involved a general anesthetic and an overnight stay in hospital. This one fired inappropriately in August last year, so after many tests it was decided that this one one couldn't be adjusted to prevent it happening again.

Had another type fitted late last year, local anesthetic and some sedation, came out of hospital the same day.

I prefer this one , although an older model it is less bulky. Have had no problems with this type, fitted on my left side just under my collar bone. I have a home monitor which sends information to the hospital when required.

Well worth having done.

Regards- Paul

[coop61 in reply to ph5019]

Glad to hear you got it all sorted it just shows you sometimes stick with what they know instead of updating things ! Keep well and safe.

[RufusScamp]

I had one fitted 18 months ago, and am pleased to be doing so much better. There is lots of information about the various types on the main BHF website, which I found very helpful. It is difficult to be more specific as we know little about you or you condition - and do not wish to pry!

I would say if your cardiologist thinks you should have one, go ahead. It's no bother, just a remote reading taken every 6 months or so.

[Charlesthru]

HI, coop, I'm in the exact same situation, I had my MI back in September last year which reduced my hear function down to 32% so been told I need an ICD, of course at first the thought of surgery scared the hell out of me but after doing a bit of research and watching a few video's I'm quite relaxed about it now and looking forward to having that reassurance that if what we all dread does happen it's their to do it's job, from what I've read they literally are life savers. I found this video from BHF very reassuring youtu.be/DHJT9eJXHLI(Not working as expected?)

[coop61 in reply to Charlesthru]

Thakyou

[Hart23]

Hi Coop, I was wondering whether you’ve now had the ICD fitted and what your experience was? I (like you were previously) have been told I need an ICD and am now awaiting a date. I also have HCM and am so scared.