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Hydroxyurea
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Hydroxyurea and activity
I read in the warning for
Hydroxyurea
that you should avoid contact sports and activities that cause bruising. I plan to ask my doctor during my next visit but I’m hoping someone can help. I have ET with CALR and started HU this week.
I read in the warning for
Hydroxyurea
that you should avoid contact sports and activities that cause bruising. I plan to ask my doctor during my next visit but I’m hoping someone can help. I have ET with CALR and started HU this week.
MJL1977
in
MPN Voice
5 years ago
Hydroxyurea and tongue problems
I am dealing with PV and am on
Hydroxyurea
500 mg per day. Problem is that though after a month of HU , I now have good blood reports, My tongue is extremely painful and there is a severe burning sensation. This is yo the extent that I cannot even eat anything with salt.
I am dealing with PV and am on
Hydroxyurea
500 mg per day. Problem is that though after a month of HU , I now have good blood reports, My tongue is extremely painful and there is a severe burning sensation. This is yo the extent that I cannot even eat anything with salt.
Iwillwin123
in
MPN Voice
5 years ago
Hi New to posting on the site
I have only had
hydroxyurea
treatment with dose changes. Really knocked me taking 3 capsules daily for a year. Great platelet count down to 300s but hb dropped other probs over done the Hy. The joys eh. Reduced dose platelets too high climbing 900s aahhhh.
I have only had
hydroxyurea
treatment with dose changes. Really knocked me taking 3 capsules daily for a year. Great platelet count down to 300s but hb dropped other probs over done the Hy. The joys eh. Reduced dose platelets too high climbing 900s aahhhh.
Hidden
in
MPN Voice
5 years ago
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Hydroxyurea with iron supplements
Hi everyone, is it okay to take
Hydroxyurea
together with iron supplements? Thanks
Hi everyone, is it okay to take
Hydroxyurea
together with iron supplements? Thanks
Gringz_
in
MPN Voice
5 years ago
Hydroxyurea induced pneumonia
He is now off the tablets again and showing all good signs of recovery, med consultant is adamant that its
Hydroxyurea
induced pneumonia. We have found the below case and it seems this is so rare. With this post I am asking if anyone has any experience or heard of this?
He is now off the tablets again and showing all good signs of recovery, med consultant is adamant that its
Hydroxyurea
induced pneumonia. We have found the below case and it seems this is so rare. With this post I am asking if anyone has any experience or heard of this?
Sian64
in
MPN Voice
5 years ago
Ginseng & hydroxyurea
It's been over a month since I started taking Ginseng and it seems to be helping with the fatigue a little and every bit counts. 1,000 mg of Panax quinquefolius in the am. This is a ginseng that is grown locally and is also known as American ginseng. It was recommended over the Siberian ginseng because
It's been over a month since I started taking Ginseng and it seems to be helping with the fatigue a little and every bit counts. 1,000 mg of Panax quinquefolius in the am. This is a ginseng that is grown locally and is also known as American ginseng. It was recommended over the Siberian ginseng because
h2ogal
in
MPN Voice
5 years ago
Discontinue Hydroxyurea
Based on my profile, he recommends discontinuing
hydroxyurea
and going with phlebotomy only. I am having troublesome side effects and the new doc says risks (mutagenic) of HU in my case outweigh the benefits. Not currently suggesting a change to any other meds.
Based on my profile, he recommends discontinuing
hydroxyurea
and going with phlebotomy only. I am having troublesome side effects and the new doc says risks (mutagenic) of HU in my case outweigh the benefits. Not currently suggesting a change to any other meds.
hunter5582
in
MPN Voice
5 years ago
Hydroxyurea break
I was on HU for many years and had it stop working. Switched to Anagrelide but having nasty side effects. Just wondering if anyone has had HU stop working and gone back on it after six months or a year break and had it be effective again. I asked my doctor but he didn’t know if that was a possibility
I was on HU for many years and had it stop working. Switched to Anagrelide but having nasty side effects. Just wondering if anyone has had HU stop working and gone back on it after six months or a year break and had it be effective again. I asked my doctor but he didn’t know if that was a possibility
Ladygolf
in
MPN Voice
5 years ago
Sometimes feel good and sometimes not
I have been on on 500 mg
hydroxyurea
for 5weeks. I wondered if anyone else sometimes felt really good and sometimes felt bad... weak and head goofy? I don’t know if it from
hydroxyurea
or from ET. I enjoy everyone’s sharing their experiences on this web site . Thank you.
I have been on on 500 mg
hydroxyurea
for 5weeks. I wondered if anyone else sometimes felt really good and sometimes felt bad... weak and head goofy? I don’t know if it from
hydroxyurea
or from ET. I enjoy everyone’s sharing their experiences on this web site . Thank you.
Cookiebaker
in
MPN Voice
5 years ago
PV: should I go to hydroxurea or not?Age : 62
Should I keep going with the venesections ( maybe every three weeks) or take the
hydroxyurea
.? It is an age thing.... I could never afford Jakofi out here. It is $14,000 a month !!! Feel pleased to have found this site...
Should I keep going with the venesections ( maybe every three weeks) or take the
hydroxyurea
.? It is an age thing.... I could never afford Jakofi out here. It is $14,000 a month !!! Feel pleased to have found this site...
Innessant
in
MPN Voice
5 years ago
Anyone with a Primary Immune Deficiency or fatigue affected by Hydroxyurea?
I’m also on
Hydroxyurea
for my MPN which was diagnosed 5 years ago. I just learned that my immune problems may be causing or contributing to my fatigue, a common problem in those with PI’s. When I recently increased my dose of Hydrea it lead to worsening fatigue.
I’m also on
Hydroxyurea
for my MPN which was diagnosed 5 years ago. I just learned that my immune problems may be causing or contributing to my fatigue, a common problem in those with PI’s. When I recently increased my dose of Hydrea it lead to worsening fatigue.
katiewalsh
in
MPN Voice
5 years ago
hydroxyurea side effects?
I I was recently diagnosed with polycythemia vera and I would like to know what side effects have been experienced by others taking
hydroxyurea
. Any comment will be welcome!
I I was recently diagnosed with polycythemia vera and I would like to know what side effects have been experienced by others taking
hydroxyurea
. Any comment will be welcome!
IsabelPV
in
MPN Voice
5 years ago
Tamarin study update and a new study now recruiting
In PART A, patients must be resistant or intolerant to
Hydroxyurea
(Hydroxycarbamide) or have undergone treatment with interferon. In PART B, patients must be resistant or intolerant to
Hydroxyurea
(Hydroxycarbamide).
In PART A, patients must be resistant or intolerant to
Hydroxyurea
(Hydroxycarbamide) or have undergone treatment with interferon. In PART B, patients must be resistant or intolerant to
Hydroxyurea
(Hydroxycarbamide).
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Blood levels other than platelets
I’m interested in others’ experiences - do your blood levels show lower counts overall when taking
hydroxyurea
?
I’m interested in others’ experiences - do your blood levels show lower counts overall when taking
hydroxyurea
?
WileyFrench
in
MPN Voice
5 years ago
Still High platelets on meds
Has anyone been on
hydroxyurea
2 pills a day and still have platelets high? I’ve been on it a year and half and my platelets are 999,000 ! Starting 3 pills today but seems too much. all the other numbers are in order with the two pills .
Has anyone been on
hydroxyurea
2 pills a day and still have platelets high? I’ve been on it a year and half and my platelets are 999,000 ! Starting 3 pills today but seems too much. all the other numbers are in order with the two pills .
ggrana
in
MPN Voice
5 years ago
I'm new to Essential Thrombocythemia
I'm a CALR mutation and taking hydroxycarbamide/
hydroxyurea
. I find researching it really interesting and so is the way I find myself thinking about my new situation.
I'm a CALR mutation and taking hydroxycarbamide/
hydroxyurea
. I find researching it really interesting and so is the way I find myself thinking about my new situation.
Jdogs
in
MPN Voice
5 years ago
Treatment not working
Hello everyone, I was on
Hydroxyurea
for a couple of months after my platelets reached 900 and it helped at first but after a while my platelets count kept raising again to 750 and during that period I suffered from horrible vertigo and nasuea and nothing helped.
Hello everyone, I was on
Hydroxyurea
for a couple of months after my platelets reached 900 and it helped at first but after a while my platelets count kept raising again to 750 and during that period I suffered from horrible vertigo and nasuea and nothing helped.
Wadz
in
MPN Voice
5 years ago
Cold without fever.
Hi I am on
Hydroxyurea
500mg a day and have a cold for some days runny nose and eyes and some chest pain when coughing (not often). What antibiotics are we allowed if needed? I found that DEPON was very good for me whilst soluble aspirin not at all. Any advice?
Hi I am on
Hydroxyurea
500mg a day and have a cold for some days runny nose and eyes and some chest pain when coughing (not often). What antibiotics are we allowed if needed? I found that DEPON was very good for me whilst soluble aspirin not at all. Any advice?
Kelly2
in
MPN Voice
5 years ago
How soon does HU give results ?
How soon does
hydroxyurea
start showing results in reducing the platelet count ?
How soon does
hydroxyurea
start showing results in reducing the platelet count ?
Iwillwin123
in
MPN Voice
6 years ago
Hydroxyurea and sun
WHY is it so important to wear sunscreen and sunglasses while taking
hydroxyurea
???
WHY is it so important to wear sunscreen and sunglasses while taking
hydroxyurea
???
ChattyPanda
in
MPN Voice
6 years ago
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