Hi New to posting on the site

I have had ET for around 8 yrs now. Thankfully I have great family support as it has caused me lots of anxiety in life. And times where I have felt unwell which affects family life and work too. I have only had hydroxyurea treatment with dose changes. Really knocked me taking 3 capsules daily for a year. Great platelet count down to 300s but hb dropped other probs over done the Hy. The joys eh. Reduced dose platelets too high climbing 900s aahhhh. Now having heart problems research shows this can happen. Anyone else having heart issues. Just curious

[Nickthedevil]

Hi, I have ET Jak2 pos, diagnosed end of 2012, though believe I had it some time before that. I also have heart issues and had 2 stents fitted in 2015.

Karen

[rjw1]

Hi Abbamania

I've PV and take 17 hydroxy a week and have done for 18 months...about a year ago I started getting palpatations...was given a heart monitor to wear for 48 hours...now I take bisoprolol daily..I asked my GP if the HU was causing heart flutter but he was unsure!!

Best wishes

Richard

[hunter5582]

I developed atrial tachycardia last year. I could not tolerate being on Diltiazem (especially while also on hydroxyurea), so I opted for a catheter ablation. No more tachycardia! The docs believe that the PV and the tachycardia are unrelated. While many secondary issues are associated with MPNs, apparently heart arrhythmias are not related. Hope all works out well for you.

[Wyebird]

Hi oh dear I was going to suggest switching to or adding anagrelide but if you are now having heart issues I don’t think you can. Might be worth discussing.