High altitude issues if you have ET: I have ET JAK... - MPN Voice

MPN Voice

10,440 members14,389 posts

High altitude issues if you have ET

nightshadow profile image
10 Replies

I have ET JAK2, on hydroxyurea with platelets and other blood cells well within normal parameters.

I wish to travel to Machu Picchu. I have asked my Hematologist several weeks ago if high altitude would be a problem and haven't heard back.

Has anyone had experience with high altitudes with an MPN while taking HU?

Written by
nightshadow profile image
nightshadow
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Trueblue8 profile image
Trueblue8

Hi, so I've posted about this on here before and the general consensus was that it's ok at altitude.I'm climbing Kilimanjaro next February, which is 20000 feet, I've spoken to my consultant he said I'm ok to go but he wants to see me just before I go.

I'm ET JAK2 Pos and take 500/1000 hydroxycarbamide on alternate days

I hope this helps?

Ian

nightshadow profile image
nightshadow in reply to Trueblue8

Very much so and thanks for the quick reply. I hope you have a fantastic trip.

Dovme profile image
Dovme

Hi

I just got back from Peru a week ago. Yes l visited Machu Picchu. Was amazing! I had some altitude sickness in Cusco which is 3400m. After two days we relocated to Ollantaytambo in the Valley which is 2700m and l was fine. You also get the tourist trains from Ollantaytambo to Machu Picchu. I did my bloods a day after flying back and they were all good.

nightshadow profile image
nightshadow

Thanks you, I will go ahead and start planning my trip!

NewBloom profile image
NewBloom

Hi, I have PV and travelled to the Canadian Rockies. My Heamotologist said I could take anti sickness tablets and chat to my GP pharmacist. I don't recall the names but I took one tablet 3 times a day and the second I needed to take should I start feeling nauseous. They worked well for me and would donit again. Good luck and enjoy your trip. X

hunter5582 profile image
hunter5582

I have not heard of any issues with altitude and ET. It will drive up erythropoiesis as your body needs more red blood cells at altitude. this might be an issue for people with PV.

Hope you enjoy your trip.

AndyT profile image
AndyT

I can’t comment on HU but have ET and when I was on aspirin only I visited Machu Picchu and some slightly higher locations with no problems at all. I was no more out of breath than the rest of the group and didn’t get any altitude sickness - just a horrendous stomach bug - my fault for not taking care with ice and salads..!

catkinspolymer profile image
catkinspolymer

I have been up on the Alps momt blanc by cable car and the Pyrennes without prioblems

FJOS profile image
FJOS in reply to catkinspolymer

My Consultant advised me not to take long-haul flights of over 3 to 4 hours in view of the danger of clotting and recommended moving about the aircraft even for those shorter flights to avoid clotting. I have ET+Calr for the last 7 years.

catkinspolymer profile image
catkinspolymer in reply to FJOS

I avoid long haul now but for years before I knew i had ET i regularly did London San Francisco and nothing happened fortunately.

You may also like...

ET/PV and going to high altitude

doctors. Just wondering you that have had a MPN for years what you have been told.

ET and altitude sickness

likelihood of contracting altitude sickness more or not. I am a bit anaemic now as well so this...

PV and high altitudes.

aclimate ok. I, on the other hand did not acclimate well and continued to have headached,...

Should HRT be taken if you have ET?

HRT is not a good idea if you have ET. Does anyone have any experience or advice on this? Thank you,

Holidaying at altitude

appointment and I was thinking of asking my Haematologist about holidaying at altitude. Can anyone...