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Experiences with
Hydroxycarbamide
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side effects of hydroxycarbamide
I am soon to start this drug, does it impact on physical activity; I do a lot of cycling and swimming at the moment. Also, has anyone experienced problems with immunity?
I am soon to start this drug, does it impact on physical activity; I do a lot of cycling and swimming at the moment. Also, has anyone experienced problems with immunity?
waterloveryippee
in
MPN Voice
3 months ago
Itching!
My
hydroxycarbamide
was stopped in February ( after 11 years use) even if I brush my skin now the itch, prickling starts. I take fexofenadine daily , cold showers, natural. Unperfumed products.Does anyone have any personal advice please? I'm at my wits end. Thanks in advance, sue x
My
hydroxycarbamide
was stopped in February ( after 11 years use) even if I brush my skin now the itch, prickling starts. I take fexofenadine daily , cold showers, natural. Unperfumed products.Does anyone have any personal advice please? I'm at my wits end. Thanks in advance, sue x
soomoo
in
MPN Voice
23 days ago
Alternative to Domperidone tablets?
I've joined here because I'm interested to find out what tips others have on helping nausea/vomiting which I'd likely to be caused by the
hydroxycarbamide
even though it's a low dosage.
I've joined here because I'm interested to find out what tips others have on helping nausea/vomiting which I'd likely to be caused by the
hydroxycarbamide
even though it's a low dosage.
Eagles52
in
MPN Voice
3 months ago
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Taking Antibiotics while on Hydroxycarbamide for ET
Has anyone taken a break from
Hydroxycarbamide
.. if they have a chest infection and need antibiotics ..
Has anyone taken a break from
Hydroxycarbamide
.. if they have a chest infection and need antibiotics ..
Kilmichael
in
MPN Voice
6 months ago
Modbury 123
I have ET plus Jak2 medication 500
Hydroxycarbamide
75 aspirin I wonder if anyone else has any experience of this and I am thinking could the infection of affected the platelets or antibiotics. Appreciate any advice . Best wishes Modbury 123
I have ET plus Jak2 medication 500
Hydroxycarbamide
75 aspirin I wonder if anyone else has any experience of this and I am thinking could the infection of affected the platelets or antibiotics. Appreciate any advice . Best wishes Modbury 123
Modbury123
in
MPN Voice
2 months ago
heart arteries heavily calcified
with chest pain after MRI and CT angiogram I was diagnosed with heavily calcified LAD artery and diagonal artery both severe They started me on high intensity statins and propanol My stress test didn’t achieve the required heart rate of 160 only reaching 120 so was inconclusive I’m on 1500 mg of
hydroxycarbamide
with chest pain after MRI and CT angiogram I was diagnosed with heavily calcified LAD artery and diagonal artery both severe They started me on high intensity statins and propanol My stress test didn’t achieve the required heart rate of 160 only reaching 120 so was inconclusive I’m on 1500 mg of
hydroxycarbamide
Phil1955
in
MPN Voice
2 months ago
Blood
My hematocric is low and I have had my
hydroxycarbamide
reduced ,now a blood test shows i am low in iron and have to have an iron infusion,has anyone else experience this any comments will help
My hematocric is low and I have had my
hydroxycarbamide
reduced ,now a blood test shows i am low in iron and have to have an iron infusion,has anyone else experience this any comments will help
ChillyAsh34
in
MPN Voice
5 months ago
Hydroxycarbamide
Hello, I was diagnosed with ET and JAK2+ last week. Have started aspirin and given information re Hydroxy. I’m not sure whether I want to start Hydroxy as I have no risks, apart from high cholesterol which Haematologist did mention. Just wondering if anyone has delayed starting Hydroxy. My Platelet
Hello, I was diagnosed with ET and JAK2+ last week. Have started aspirin and given information re Hydroxy. I’m not sure whether I want to start Hydroxy as I have no risks, apart from high cholesterol which Haematologist did mention. Just wondering if anyone has delayed starting Hydroxy. My Platelet
Carol0925
in
MPN Voice
7 months ago
What time to take hydroxycarbamide
Yesterday there was a post about what time to take
hydroxycarbamide
. I have ET jak2 positive and I have been taking 500 mg hydroxy daily for two-and-a-half years very successfully from the point of view of blood levels.
Yesterday there was a post about what time to take
hydroxycarbamide
. I have ET jak2 positive and I have been taking 500 mg hydroxy daily for two-and-a-half years very successfully from the point of view of blood levels.
Jelbea
in
MPN Voice
3 months ago
shingles vaccination
Has anyone had the shingles vaccination, I have PV and on
Hydroxycarbamide
. Wondering if to have it or not. take care x
Has anyone had the shingles vaccination, I have PV and on
Hydroxycarbamide
. Wondering if to have it or not. take care x
Maisie10
in
MPN Voice
6 months ago
Itching for answers.... thankyou!
(Me = 80/JAK2 /ET/
Hydroxycarbamide
for 13years) I am very grateful to everyone that has replied to my list of queries about itching/pruritis.
(Me = 80/JAK2 /ET/
Hydroxycarbamide
for 13years) I am very grateful to everyone that has replied to my list of queries about itching/pruritis.
quanglewangle
in
MPN Voice
4 months ago
Medication
hydroxycarbamide
for 5 days and none on weekend and next appointment in 6 weeks and if it's still low but platelets increase then I may have to change from
hydroxycarbamide
I am concerned if they offer me Anagrelide as I have read not very good reports on it any input would be appreciated
hydroxycarbamide
for 5 days and none on weekend and next appointment in 6 weeks and if it's still low but platelets increase then I may have to change from
hydroxycarbamide
I am concerned if they offer me Anagrelide as I have read not very good reports on it any input would be appreciated
ChillyAsh34
in
MPN Voice
7 months ago
platelets on rise
Hello , I’m 71 and really worried been on
hydroxycarbamide
for 8 years now and last year my platelets started to rise and 2 days ago I had bloods done at my surgery and gone from 370 390 410 now 458 !! I got to upset !! My dose is 0ne pill for 4 days then 2 on Friday sat n Sunday !!
Hello , I’m 71 and really worried been on
hydroxycarbamide
for 8 years now and last year my platelets started to rise and 2 days ago I had bloods done at my surgery and gone from 370 390 410 now 458 !! I got to upset !! My dose is 0ne pill for 4 days then 2 on Friday sat n Sunday !!
Birdlady2021
in
MPN Voice
2 months ago
Effect of Covid on Platelets
I’ve had thrombocythaemia for many years and it’s been well controlled initially by
Hydroxycarbamide
and in more recent years by
Hydroxycarbamide
and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days.
I’ve had thrombocythaemia for many years and it’s been well controlled initially by
Hydroxycarbamide
and in more recent years by
Hydroxycarbamide
and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days.
AnneMargaretMary
in
MPN Voice
6 months ago
Body twitches
Had 3 Vinesections prior to diagnosis,but then prescribed
Hydroxycarbamide
. After 5visits adjusting his dosage, finally got bloods/platelets under control 3wks ago, & dosage is 500mg each day, said she would see him in 10wks. He has remained as fit & well as he was 30yrs ago (SO thankful).
Had 3 Vinesections prior to diagnosis,but then prescribed
Hydroxycarbamide
. After 5visits adjusting his dosage, finally got bloods/platelets under control 3wks ago, & dosage is 500mg each day, said she would see him in 10wks. He has remained as fit & well as he was 30yrs ago (SO thankful).
Luvlyhubby
in
MPN Voice
20 days ago
Advice about Hydroxycarbamide/ Anagrelide please
He said they may need to overlap with
hydroxycarbamide
or Anagrelide . Has anyone else not responded to interferon ? I don't want to take
hydroxycarbamide
because I'm scared of the side effects and I really am not good with tablets.
He said they may need to overlap with
hydroxycarbamide
or Anagrelide . Has anyone else not responded to interferon ? I don't want to take
hydroxycarbamide
because I'm scared of the side effects and I really am not good with tablets.
Blonde25
in
MPN Voice
4 months ago
follow up appointment
I have been on
hydroxycarbamide
for six weeks and had a follow up appointment today. My platelet count was 456 but now up to 476. My medication was one 500mg mon to fri. This has now been increased to 1 every day I suppose I was too optimistic, the good thing is so far have felt reasonably well.
I have been on
hydroxycarbamide
for six weeks and had a follow up appointment today. My platelet count was 456 but now up to 476. My medication was one 500mg mon to fri. This has now been increased to 1 every day I suppose I was too optimistic, the good thing is so far have felt reasonably well.
Maxpenny
in
MPN Voice
5 months ago
Worries about side effects of hydroxycarbamide - hair loss in particular
My consultant recommended I start taking
hydroxycarbamide
but I have resisted so far as I'm concerned about the side effects (particularly hair loss!), though I take daily aspirin as prescribed.
My consultant recommended I start taking
hydroxycarbamide
but I have resisted so far as I'm concerned about the side effects (particularly hair loss!), though I take daily aspirin as prescribed.
gardner99
in
MPN Voice
3 months ago
Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
4 months ago
small lump/bruise on neck
I take six
Hydroxycarbamide
capsules weekly, and an aspirin. I noticed this small bruise on my neck about six weeks ago, but didn’t bother about. I got a photograph taken and on the photo the bruise looks like a lump.
I take six
Hydroxycarbamide
capsules weekly, and an aspirin. I noticed this small bruise on my neck about six weeks ago, but didn’t bother about. I got a photograph taken and on the photo the bruise looks like a lump.
Hannah2308
in
MPN Voice
26 days ago
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