Search
Search
About
Log in
Join
Experiences with
Hydroxycarbamide
Posts
Communities
1,134 public posts
Filter results
small lump/bruise on neck
I take six
Hydroxycarbamide
capsules weekly, and an aspirin. I noticed this small bruise on my neck about six weeks ago, but didn’t bother about. I got a photograph taken and on the photo the bruise looks like a lump.
I take six
Hydroxycarbamide
capsules weekly, and an aspirin. I noticed this small bruise on my neck about six weeks ago, but didn’t bother about. I got a photograph taken and on the photo the bruise looks like a lump.
Hannah2308
in
MPN Voice
1 month ago
Pegasys for MF transitioning from hydroxycarbamide
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
My darling wife, had her appointment today, and her blood is well below par her Hgb is 82 hematocrit 0.27, platelets 213 which is good, white cells 45. The hematologist was talking about introducing pegasys interferon injections, after her 3 bags of red cells and a ferinject. She is worried about losing
jointpain
in
MPN Voice
4 months ago
ET and Eylea injections for macular degeneration
Normally my platelets are around 350 - 430,000 level but yesterday were 550,000 and my
hydroxycarbamide
is being increased to deal with this.
Normally my platelets are around 350 - 430,000 level but yesterday were 550,000 and my
hydroxycarbamide
is being increased to deal with this.
Jelbea
in
MPN Voice
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
ET and Hydroxycarbamide
I took my first
hydroxycarbamide
about an hour ago just had appointment with haematologist yesterday. She was excellent and explained the condition ET. Difficult to realise something wrong with you when you have no symptoms. Condition picked up in annual routine BP and blood test.
I took my first
hydroxycarbamide
about an hour ago just had appointment with haematologist yesterday. She was excellent and explained the condition ET. Difficult to realise something wrong with you when you have no symptoms. Condition picked up in annual routine BP and blood test.
Maxpenny
in
MPN Voice
7 months ago
Persistant cough.
Hi I have been on Ruxilinitib for past two years after being on
Hydroxycarbamide
for 16 years. Diagnosed with Jac 2 PV in 2005. I had numerous side effects from a higher dose of Ruxi have been on Ruxi and Hydra combined for short time but that caused problems.
Hi I have been on Ruxilinitib for past two years after being on
Hydroxycarbamide
for 16 years. Diagnosed with Jac 2 PV in 2005. I had numerous side effects from a higher dose of Ruxi have been on Ruxi and Hydra combined for short time but that caused problems.
Mudmaker
in
MPN Voice
4 months ago
ET JAK2neg and Nucleated rbc’s
The early years were difficult as the platelet count was in the very very high hundreds and medication was three tabs of
hydroxycarbamide
per day.
The early years were difficult as the platelet count was in the very very high hundreds and medication was three tabs of
hydroxycarbamide
per day.
Richinspirit
in
MPN Voice
6 months ago
Polycythemia
On
Hydroxycarbamide
daily and other tablets for high blood pressure.
On
Hydroxycarbamide
daily and other tablets for high blood pressure.
Hidden
in
MPN Voice
4 months ago
Polycythemia Vera Leg Cramps
I have PV for last 2 years and on Daily Multiple
Hydroxycarbamide
. Last 6 weeks get Leg Cramps in bed every night. Amy advice please as next Consultant Appt October.
I have PV for last 2 years and on Daily Multiple
Hydroxycarbamide
. Last 6 weeks get Leg Cramps in bed every night. Amy advice please as next Consultant Appt October.
Paraic2021
in
MPN Voice
8 months ago
white capsules vs pink/green capsules Hydroxycarbamide
Hi all Have any of you had the plain white capsules of
Hydroxycarbamide
instead of the Pink/Green capsules ? I’ve been taking the pink/green capsules made by Bristol Myers Squibb for several years with increased doses from time to time.
Hi all Have any of you had the plain white capsules of
Hydroxycarbamide
instead of the Pink/Green capsules ? I’ve been taking the pink/green capsules made by Bristol Myers Squibb for several years with increased doses from time to time.
130396
in
MPN Voice
5 months ago
Need your advice please
I have researched and am looking for a change of medication from
hydroxycarbamide
(which I understand to be a chemo drug) to the non- chemo and immune stimulant drug Peginterferon Alfa-2A. It could be that this medication will suit my needs better.
I have researched and am looking for a change of medication from
hydroxycarbamide
(which I understand to be a chemo drug) to the non- chemo and immune stimulant drug Peginterferon Alfa-2A. It could be that this medication will suit my needs better.
Goosebumps52
in
MPN Voice
3 months ago
kennel cough and hydroxycarbamide
can anyone tell me if it’s ok for my dog to have kennel cough vaccine with me being on hydroxy?
can anyone tell me if it’s ok for my dog to have kennel cough vaccine with me being on hydroxy?
Cokopops
in
MPN Voice
7 months ago
Quick Question re. Taking Hydroxycarbamide.
Telephone appointment yesterday with Haematologist has resulted in her advice to take 2
Hydroxycarbamide
on Saturdays and Sundays till next telephone consult to hopefully reduce platelets but I forgot to ask if I should take them together or not. Thought I’d just ask what you all do.
Telephone appointment yesterday with Haematologist has resulted in her advice to take 2
Hydroxycarbamide
on Saturdays and Sundays till next telephone consult to hopefully reduce platelets but I forgot to ask if I should take them together or not. Thought I’d just ask what you all do.
azaelea
in
MPN Voice
7 months ago
antibiotics while on Hydroxycarbamide
Has anyone taken Antibiotics while on
Hydroxycarbamide
… Would appreciate any information ..
Has anyone taken Antibiotics while on
Hydroxycarbamide
… Would appreciate any information ..
Kilmichael
in
MPN Voice
9 months ago
Bloods
Some input needed please I am on
hydroxycarbamide
all was well now my hematocric is dropping and my platelets have risen to 457 in 6 weeks I am now just to take 2 x 500 pills a week till next bloodtest for iron etc then may have to change medication I am worried about anagrelide but was told interferon
Some input needed please I am on
hydroxycarbamide
all was well now my hematocric is dropping and my platelets have risen to 457 in 6 weeks I am now just to take 2 x 500 pills a week till next bloodtest for iron etc then may have to change medication I am worried about anagrelide but was told interferon
ChillyAsh34
in
MPN Voice
6 months ago
Dry achey eyes
I have ET Calr diagnosed 5 years ago on
Hydroxycarbamide
. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
I have ET Calr diagnosed 5 years ago on
Hydroxycarbamide
. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
Pippapot
in
MPN Voice
8 months ago
Increase platelets
Hi everyone never posted before but regularly on here getting comfort from other people's experiences was diagnosed 2 years ago with et Jack positive currently take 10
hydroxycarbamide
week my platelets usually hover around the 550 mark but recent blood test reveals they jumped 100 had a sickness
Hi everyone never posted before but regularly on here getting comfort from other people's experiences was diagnosed 2 years ago with et Jack positive currently take 10
hydroxycarbamide
week my platelets usually hover around the 550 mark but recent blood test reveals they jumped 100 had a sickness
Annma
in
MPN Voice
8 months ago
Peginterferon alfa 2a or Hydroxycarbamide for PV?
My consultant has said I need to start treatment for PV and has asked me to choose between them. I'd really welcome any recommendations. I am new to this site, apologies uf this has been asked before.
My consultant has said I need to start treatment for PV and has asked me to choose between them. I'd really welcome any recommendations. I am new to this site, apologies uf this has been asked before.
Lyndjs
in
MPN Voice
7 months ago
Modbury123
I have ET plus JAK2 I take 500gm
Hydroxycarbamide
plus Aspirin.
I have ET plus JAK2 I take 500gm
Hydroxycarbamide
plus Aspirin.
Modbury123
in
MPN Voice
5 months ago
NICE Final Guidance on Ruxolitinib for the treatment of Polycythaemia Vera
We therefore welcome the approval of Ruxolitinib as an additional treatment option for those PV patients in England who are either intolerant of or unresponsive to treatment with
Hydroxycarbamide
.
We therefore welcome the approval of Ruxolitinib as an additional treatment option for those PV patients in England who are either intolerant of or unresponsive to treatment with
Hydroxycarbamide
.
Mazcd
MPNVoice
in
MPN Voice
7 months ago
Sore finger tips
I was diagnosed with PV almost 7 years ago and have been taking
hydroxycarbamide
( approximately 1000mg daily) and 75mg aspirin daily. I enjoy doing craft work so sore finger tips are particularly annoying. Many thanks in anticipation of replies. Turfbeg
I was diagnosed with PV almost 7 years ago and have been taking
hydroxycarbamide
( approximately 1000mg daily) and 75mg aspirin daily. I enjoy doing craft work so sore finger tips are particularly annoying. Many thanks in anticipation of replies. Turfbeg
Turfbeg
in
MPN Voice
8 months ago
1
2
3
4
...
57
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
1081 results
Leukaemia CARE
11 results
Sickle Cell Society
10 results
View top 10 communities
Sort by
Most Relevant
Newest