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Nightmare with(out) flecainide. Cannot get help from NHS.
This is a follow-up to a post I made earlier this week, trying to figure out whether to take a previously unused flecainide prescription as a PIP. I was diagnosed with lone paroxysmal AF 10+ years ago (I was not quite 50) but it has not been a regular problem -- I didn't need regular meds. Due to the
This is a follow-up to a post I made earlier this week, trying to figure out whether to take a previously unused flecainide prescription as a PIP. I was diagnosed with lone paroxysmal AF 10+ years ago (I was not quite 50) but it has not been a regular problem -- I didn't need regular meds. Due to the
Redactrice
in
Atrial Fibrillation Support
9 months ago
Three month post second ablation
hi I had my three month check up this week and my consultant is very pleased with how I am now doing I came off of the flecanide six weeks ago and he now says I can go down to 2.5 bisoprolol which he has said he will probably keep me on that and I can come off of my Apixaban in December. Not sure I
hi I had my three month check up this week and my consultant is very pleased with how I am now doing I came off of the flecanide six weeks ago and he now says I can go down to 2.5 bisoprolol which he has said he will probably keep me on that and I can come off of my Apixaban in December. Not sure I
Bell50
in
AF Association
9 months ago
bnp level high, breathlessness and fluid in lungs. What does this mean?
hello everyone. I have posted relatively frequently, most recently because my weight loss surgery was cancelled due to high heart rate(120-130) in persistent af and breathlessness. The gp gave me additional bisoprolol which brought hr down to about 90. Breathlessness has continued, possibly due to
hello everyone. I have posted relatively frequently, most recently because my weight loss surgery was cancelled due to high heart rate(120-130) in persistent af and breathlessness. The gp gave me additional bisoprolol which brought hr down to about 90. Breathlessness has continued, possibly due to
Rhiannonimity1
in
AF Association
9 months ago
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Am suffering misery as unable to sleep because of over active bladder
Does anyone else have this problem? Have been given medication for this problem but it doesn’t really work . The medication itself becomes an irritant ! I have so many visits to the loo at night and have been on the bladder /bowel website which is excellent. However I wonder if any of you have this
Does anyone else have this problem? Have been given medication for this problem but it doesn’t really work . The medication itself becomes an irritant ! I have so many visits to the loo at night and have been on the bladder /bowel website which is excellent. However I wonder if any of you have this
Pollypuss
in
British Heart Foundation
9 months ago
Decreased keft ventricul ejection fraction
Hi all, went for my annual echocardiogram and was told my left ventricular ejection fraction is 50% and it is 5 % lower than last year. It normally stays at 55 % . Has appointment with my dr next weekWant to ask my friends here is it something concerning. Just want to get the opinion from people who
Hi all, went for my annual echocardiogram and was told my left ventricular ejection fraction is 50% and it is 5 % lower than last year. It normally stays at 55 % . Has appointment with my dr next weekWant to ask my friends here is it something concerning. Just want to get the opinion from people who
Poluneeru
in
AF Association
9 months ago
Shock diagnosis and 4 week wait for follow up at rapid-access Heart Failure clinic. Is my anxiety justified?
Two weeks ago I went for a stress echo test. It was a real shock that after a preliminary echo the test was abandoned. Serious faces and mutterings all round ensued, and a cardiologist came in, studied the screen and told me I had heart failure! She advised me not to go on my planned holiday till
Two weeks ago I went for a stress echo test. It was a real shock that after a preliminary echo the test was abandoned. Serious faces and mutterings all round ensued, and a cardiologist came in, studied the screen and told me I had heart failure! She advised me not to go on my planned holiday till
Coco51
in
Atrial Fibrillation Support
9 months ago
Multiple arrhythmias
I have now been told by EP that I have a number of different arrhythmias which probably explains why various rhythm control meds have caused other arrhythmias and not been effective . The ablation I had earlier this year helped and i am mostly in sinus rhythm. Only taking blood thinner and sotolol PIP
I have now been told by EP that I have a number of different arrhythmias which probably explains why various rhythm control meds have caused other arrhythmias and not been effective . The ablation I had earlier this year helped and i am mostly in sinus rhythm. Only taking blood thinner and sotolol PIP
Cassag
in
AF Association
9 months ago
AF and stroke
I was diagnosed in 2018 with AF and prescribed bisoprolol and flecanide. Then I had a stroke in July 23. After 2 months I was finally allowed home. I had an episode of AF and was admitted for a 1 night stay where I was told I wasn't given apixaban due to y age of 38 at the time and being low risk. At
I was diagnosed in 2018 with AF and prescribed bisoprolol and flecanide. Then I had a stroke in July 23. After 2 months I was finally allowed home. I had an episode of AF and was admitted for a 1 night stay where I was told I wasn't given apixaban due to y age of 38 at the time and being low risk. At
Af8b_futter
in
AF Association
7 months ago
anterior wall afib ablation update from April 28th
I am super excited, I had a follow up with my EP Dr. Here in Arkansas, they did tests including my pacemaker interrogation… Whooo Hooo, it showed NSR 99+%, less than 1% out, but NOT afib! Never give up, I wish I had followed Cleveland Clinic DR advice 4 years ago, following up with a 3rd ablation after
I am super excited, I had a follow up with my EP Dr. Here in Arkansas, they did tests including my pacemaker interrogation… Whooo Hooo, it showed NSR 99+%, less than 1% out, but NOT afib! Never give up, I wish I had followed Cleveland Clinic DR advice 4 years ago, following up with a 3rd ablation after
Spoiler
in
AF Association
9 months ago
paroxysmal AF and flying
hi. Can anyone here give me some advice and hopefully some reassurance please. I’ve had AF since being diagnosed August 2022. First episode on the night coming home from a very strenuous and incident filled 2 week motor home ‘holiday’ in Scotland. Our first and probably our last. Not very restful!
hi. Can anyone here give me some advice and hopefully some reassurance please. I’ve had AF since being diagnosed August 2022. First episode on the night coming home from a very strenuous and incident filled 2 week motor home ‘holiday’ in Scotland. Our first and probably our last. Not very restful!
Talking45
in
AF Association
7 months ago
Metoprolol, flecainide and prevention?
Age 59, lone paroxysmal AF for 12+ years which I have largely ignored because it wasn't that bad. It's been 4yrs since the last major episode but I suspect I am now in low-level AF a lot. I'm guessing at this because I don't have an AF app and due to the pandemic it's been nearly four years since my
Age 59, lone paroxysmal AF for 12+ years which I have largely ignored because it wasn't that bad. It's been 4yrs since the last major episode but I suspect I am now in low-level AF a lot. I'm guessing at this because I don't have an AF app and due to the pandemic it's been nearly four years since my
Redactrice
in
Atrial Fibrillation Support
10 months ago
Update on meds.
Hi, Finally, off the Bisoprolol (great to feel energetic again). Now taking Nebivolol (1,25 mg ) per day….This particular BB is stabilising my heart rate between low to mid 60’s Amlodipine (5mg) for BP which is stabilising around 122/73 At the moment, all is well. Fingers crossed 🤞 it continues…
Hi, Finally, off the Bisoprolol (great to feel energetic again). Now taking Nebivolol (1,25 mg ) per day….This particular BB is stabilising my heart rate between low to mid 60’s Amlodipine (5mg) for BP which is stabilising around 122/73 At the moment, all is well. Fingers crossed 🤞 it continues…
Fight-the-good-fight
in
Atrial Fibrillation Support
10 months ago
comments and why is body super bloated water retention
hi I asked my endo to test reverse t3 which is pointless it seems . here is the info replied Also since being on t3 - pleaee has anyone experienced kidney issues ? my face is super swollen and changed and legs blowing up again Hi Sarah, I cannot do reverse T3 as this is not a test that is
hi I asked my endo to test reverse t3 which is pointless it seems . here is the info replied Also since being on t3 - pleaee has anyone experienced kidney issues ? my face is super swollen and changed and legs blowing up again Hi Sarah, I cannot do reverse T3 as this is not a test that is
Chouchou1234
in
Thyroid UK
10 months ago
Knowing when I am ready to drive again post-op
Hi everyone. So I’m 2-weeks past open heart surgery to replace aortic valve. Which is just wild. Did the usual requirements of advising who I need to about me not driving, and in my case I need to go to see a doctor 6 weeks after the op to discuss being fit to drive, for them to write a letter etc
Hi everyone. So I’m 2-weeks past open heart surgery to replace aortic valve. Which is just wild. Did the usual requirements of advising who I need to about me not driving, and in my case I need to go to see a doctor 6 weeks after the op to discuss being fit to drive, for them to write a letter etc
HeartwithMatchingHat
in
British Heart Foundation
10 months ago
microbleeds
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA
chelb29
in
Hughes Syndrome APS Forum
7 months ago
low Heart rate
I had a second ablation nov 22 for tachycardia paroxymol AF, it went very well and now off all medication except apixaban. In the last few months I have had incidents where I feel very wiped out for an hour or two and my Apple Watch records heart rates as low as 41. My resting heart rate is down from
I had a second ablation nov 22 for tachycardia paroxymol AF, it went very well and now off all medication except apixaban. In the last few months I have had incidents where I feel very wiped out for an hour or two and my Apple Watch records heart rates as low as 41. My resting heart rate is down from
Linkj
in
AF Association
10 months ago
Any advice for travel insurance with previous Pulmonary Embolisms?
Hello all. After a bad bout of pneumonia/pleurisy 18 months ago had a crisis and diagnosed with non acute pulmonary embolisms. I haven't really improved and appear to have some heart failure etc since. Now I wondered if anyone with similar has managed to get health insurance for flying to Spain for
Hello all. After a bad bout of pneumonia/pleurisy 18 months ago had a crisis and diagnosed with non acute pulmonary embolisms. I haven't really improved and appear to have some heart failure etc since. Now I wondered if anyone with similar has managed to get health insurance for flying to Spain for
jib70
in
Lung Conditions Community Forum
10 months ago
Holiday,abroad one month after AF ablation.
My partner who has PAF,is having an ablation four weeks before we go on holiday to Egypt . This will be a relaxing holiday.We have taken out the required travel insurance and Linda will be taking it easy after the ablation . The trip is only for a week,we will make sure we take all medications with
My partner who has PAF,is having an ablation four weeks before we go on holiday to Egypt . This will be a relaxing holiday.We have taken out the required travel insurance and Linda will be taking it easy after the ablation . The trip is only for a week,we will make sure we take all medications with
Elephantlydia
in
AF Association
10 months ago
Can Sodium or Calcium Channel Blockers Worsen SVT?
Okay, so I have a new med that I am trying, Propafenone. I have failed Norpace and also Flecainide. The problem I am having is that it seems that these medicines are making the SVT worse. I have Atrial Tachycardia. I cannot find any information about this. Where can I get more information? My doctor
Okay, so I have a new med that I am trying, Propafenone. I have failed Norpace and also Flecainide. The problem I am having is that it seems that these medicines are making the SVT worse. I have Atrial Tachycardia. I cannot find any information about this. Where can I get more information? My doctor
MeganMN
in
AF Association
10 months ago
Pacemaker
Good morning so for months I have had feelings of fainting and hardly left my home. Anyway I finally had ecg echocardigram and R test. Saw my cardiologist yesterday and he said that I am now bracycardic as well as having Af so will need a pace maker. Bit of a shock. Also to immediately cut my propanalol
Good morning so for months I have had feelings of fainting and hardly left my home. Anyway I finally had ecg echocardigram and R test. Saw my cardiologist yesterday and he said that I am now bracycardic as well as having Af so will need a pace maker. Bit of a shock. Also to immediately cut my propanalol
CHRISAF18
in
AF Association
10 months ago
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