Am suffering misery as unable to sleep because of over active bladder

[Pollypuss]

Does anyone else have this problem? Have been given medication for this problem but it doesn’t really work . The medication itself becomes an irritant ! I have so many visits to the loo at night and have been on the bladder /bowel website which is excellent. However I wonder if any of you have this problem and how you cope with it. I am fine in the daytime but as soon as I am lying horizontally it starts .female with heart bypass .

[BridBoy]

I spent a day at an excellent NHS urology clinic, after lots of tests they concluded that I had a sensitive bladder.....I was prescribed Tolterodine and Tamsulosin, worked very well and now some 3 or 4 years later I only have to get up once and occasionally twice a night.

[Qualipop in reply to BridBoy]

Wow you're lucky. I've now been waiting over a year to see bladder/bowel dept. Got a phone call last week just saying they will send a district nurse but no idea when. I'm the same as soon as I lie down or bend over and it's so urgent I often don't get there in time. During the day, when I'm upright, I often can't go at all. My last urology appt was cancelled because I'd just been in hospital with arrhythmia but the bladder problems are caused by spinal damage. Urologist suggested stretching the urethra but that would make already slight incontinence worse. The only thing I wanted from Bladder/bowel was a few catheters to use occasionally when I couldn't go during the day- a year's wait for that! You used to be able to self refer and see them within a week of so.

[Dogloverxthree]

Same here we’re the same age, same bypass + pacemaker I have severe insomnia but if I manage to drop off about 10 wake about 12 then some nights I go about 5 /6 times but I find stress over being awake makes it worse but during the day I go from about 9 until 4 or 5 without a visit !!!!

[Dogloverxthree]

Hello coming back to you again , I bought some camomile tea and put a teaspoon of honey in and neve spent a penny till5 am this morning even though I was awake from 2.30

[ETHEL103]

My friend had a b otox injection in her bladder and has it done every year.At a hospital I may add.

[WardijaWardija in reply to ETHEL103]

Yes, but did it work ?

[ETHEL103 in reply to WardijaWardija]

Yes but she has to have it repeated every year.She was going every half hour during night before.

[WardijaWardija in reply to ETHEL103]

Thank you, that's helpful to know

[ETHEL103 in reply to WardijaWardija]

Your most welcome.Good luck.

[Noodlesalad]

I totally understand. I am up most nights going backwards and forwards to the toilet to pee. I find it really annoying because I'm desperate to sleep and each time I go I say that's it I'm not getting up again within minutes I'm up again. Some nights up to 14 times in three hours. I've done the whole process of elimination thing a number of times and have never found a commonality. I do have stage 3 kidney disease and have had for some years. I have yearly blood tests to keep a check on that and it always comes back fine. I am sorry I don't have the answer for you just to let you know I feel sorry for you and it's good to know I'm not the only person treading the boards to the toilet for what seems like all night every night.

[lizzieloo2]

Feel your pain. I have Paroxysmal AF and when I have an episode, I need to pee every 30 minutes. Don't know where it all comes from. However, even without the AF, I have to get up at least 3 times a night and sometimes find I wet myself getting to the loo- fine during the day but at night! I was put on some tablets which were supposed to tighten the sphincter or something but they didn't stop the frequency so I stopped taking them. Take care

[Deluge]

Research pumpkin seed oil. It is said to be good for urinary tract health including over active and irritable bladder.

[Harefieldfan]

yes, I have this problem. Up every 2 hours on a good night, more on a bad night. I used to have Botox injections but stopped — the last bladder investigation I had gave me a terrible painful infection. I’d love to find help and will investigate those two drugs. I assumed it was constipation-related. Thanks for writing about it!

[Pollypuss in reply to Harefieldfan]

Thank you for your reply. How did you get on with Botox 😺

[Harefieldfan in reply to Pollypuss]

It worked for a while and then it didn’t. May try again

[Adlon57]

Have something similar, taking Jardiance for high sugar level, have diabetes 2, instead of metformin, but thank goodness bedroom is next to loo, not much sleep, very irregular, am on incontinence pads, but Whew! very bad tempered at present, just as well retired, living on my own, am drinking a lot of water, iced water🤗, meant to be loosing weight, but appetite getting better🙃 going to health centre on Monday reckon back to metformin🤞 Was 'diagnosed ' with PC in June 2022, [jury still out on that?🙄]which has not helped proceedings?

[Qualipop]

I have a similar problem but mine's caused by spinal damage. During teh day when I'm upright I really struggle t o go when the pain is bad but lying down takes the pressure off my trapped nerves and within half an hour I have to rush to the loo and often don't make it in time. I then wake up many times through the night. I've had to get a potty by the side of the bed. Urology are no help. They offer the usual treatments for when I struggle during the day like catheters or stretching the urethra but that would make night time much worse. All they see when they do the tests is me not being able to go during teh day. They don't seem to understand nerve damage at all.

[Harefieldfan]

I should add that when I got the infection from a test/procedure, it was so painful that I couldn't sit. Maybe get referred to a neurologist?

[Pollypuss]

Looking back over this question and thanks for your replies. Through your replies I think this is a problem that ought to be researched thoroughly as it must affect millions of people worldwide and make their daily life sheer hell. In our cases we are trying to recover fro major surgery and run our daily lives a responsibilities.