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Gilenya
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Ms has left me wanting!
I have been without meds for over 2 months now and my neurologist prescribe me
gilenya
has this medication actually helped anyone? I'm not so sure these seemingly Placebo medications are doing anything anyway. Does anyone have any suggestions on what I need to do? It would be greatly appreciated!
I have been without meds for over 2 months now and my neurologist prescribe me
gilenya
has this medication actually helped anyone? I'm not so sure these seemingly Placebo medications are doing anything anyway. Does anyone have any suggestions on what I need to do? It would be greatly appreciated!
Fattius
in
My MSAA Community
7 years ago
Gilenya
I'm looking for experience stories with
Gilenya
. I'm considering it for my next treatment plan, but I'm terrified of the side effects. My reactions to Tecfidera wiped me out for a week, so I'm a little gun shy. My problem symptoms are brain fog and deteriorating vision in my right eye.
I'm looking for experience stories with
Gilenya
. I'm considering it for my next treatment plan, but I'm terrified of the side effects. My reactions to Tecfidera wiped me out for a week, so I'm a little gun shy. My problem symptoms are brain fog and deteriorating vision in my right eye.
kyaro123
in
My MSAA Community
7 years ago
I'm new here
I have been on Betaseron and
Gilenya
. I am currently on Tysabri for the past two years. My neurologist is suggesting that I go on Ocrevus? Anyone out there on Ocrevus? How is it working for you?
I have been on Betaseron and
Gilenya
. I am currently on Tysabri for the past two years. My neurologist is suggesting that I go on Ocrevus? Anyone out there on Ocrevus? How is it working for you?
alleynyberg
in
My MSAA Community
7 years ago
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Gilenya
Hi, I am going to be starting
Gilenya
next week and was looking to see what experiences people have had with this medication. I was diagnosed in 2012 and have been on Rebif for the last 5 years. I am switching because recently I have been feeling really wiped out the day after my shots. Thank you🌻
Hi, I am going to be starting
Gilenya
next week and was looking to see what experiences people have had with this medication. I was diagnosed in 2012 and have been on Rebif for the last 5 years. I am switching because recently I have been feeling really wiped out the day after my shots. Thank you🌻
Vallie02
in
My MSAA Community
7 years ago
Gilenya update
I have FINALLY been accepted through Good Days for help paying my
Gilenya
. I only pay $20. instead of a crazy $2000.00. I have to reapply in December, but that's ok I'll do it ! Thanks guys again!😀💞
I have FINALLY been accepted through Good Days for help paying my
Gilenya
. I only pay $20. instead of a crazy $2000.00. I have to reapply in December, but that's ok I'll do it ! Thanks guys again!😀💞
Kath55
in
My MSAA Community
7 years ago
Gilenya help
She said they would send me a free bottle of
Gilenya
while they decide what type of help I could get. Well, prayers half answered. Someone will look at my paperwork and give me some
Gilenya
. Please keep praying for me my friends that all will go good. Thanks. Kath55
She said they would send me a free bottle of
Gilenya
while they decide what type of help I could get. Well, prayers half answered. Someone will look at my paperwork and give me some
Gilenya
. Please keep praying for me my friends that all will go good. Thanks. Kath55
Kath55
in
My MSAA Community
7 years ago
Please excuse my funny word y'all in my last post! I was trying to say gilenya.
Sorry about that weird typo.
Sorry about that weird typo.
Amore55
in
My MSAA Community
7 years ago
HELLO AGAIN EVERYONE
My doctor had mentioned it, but I just saw new studies that show that Tecfidera is working extremely well and seems to be outpacing even
Gilenya
which I was put on first and which I thought was fantastic until it ripped up my stomach.
My doctor had mentioned it, but I just saw new studies that show that Tecfidera is working extremely well and seems to be outpacing even
Gilenya
which I was put on first and which I thought was fantastic until it ripped up my stomach.
Sukie427
in
My MSAA Community
7 years ago
Hello!
Once cleared by GYN, started
Gilenya
Jan 31. Unfortunately, my liver does not like this medication and had to stop it last week after my levels continued to rise after decreasing med to every other day. Neuro is out on medical leave and will be seeing NP tomorrow.
Once cleared by GYN, started
Gilenya
Jan 31. Unfortunately, my liver does not like this medication and had to stop it last week after my levels continued to rise after decreasing med to every other day. Neuro is out on medical leave and will be seeing NP tomorrow.
-BB-
in
My MSAA Community
7 years ago
Hi !!
I've been on
Gilenya
since then and (in the beginning) steroid IV's. Everything was going well until a couple of weeks ago. I've been having what I can only describe as grayness closing in on me on the sides of my eyes in the morning. It seems to ease up over time unless my body adjusts to it.
I've been on
Gilenya
since then and (in the beginning) steroid IV's. Everything was going well until a couple of weeks ago. I've been having what I can only describe as grayness closing in on me on the sides of my eyes in the morning. It seems to ease up over time unless my body adjusts to it.
Cwacker
in
My MSAA Community
7 years ago
Prayers needed
Well, after being rejected several times about help paying for my
Gilenya
,I have this last chance. Sending paperwork into Novartis. They want everything. My husband said buying a house is easier. LOL ! Well, please pray they accept my application. Thanks kath55
Well, after being rejected several times about help paying for my
Gilenya
,I have this last chance. Sending paperwork into Novartis. They want everything. My husband said buying a house is easier. LOL ! Well, please pray they accept my application. Thanks kath55
Kath55
in
My MSAA Community
7 years ago
Gilenya process
I'm starting the transfer from Tysabri to
Gilenya
in the next few weeks. My neurologist ask me "where do I want to do my first dose at the cardiologist office or at home (The medicine company will pay to have someone come to your house to monitor you)"?
I'm starting the transfer from Tysabri to
Gilenya
in the next few weeks. My neurologist ask me "where do I want to do my first dose at the cardiologist office or at home (The medicine company will pay to have someone come to your house to monitor you)"?
Royjr
in
My MSAA Community
7 years ago
Anyone have any ideas to help me pay for med
I am on
Gilenya
for my MS. My husband has retired and now I am going on Medicare. The co-pay for this drug is $2000.00. I cannot afford that! The drug maker does not help those on medicare, only regular insurance. This is stupid.
I am on
Gilenya
for my MS. My husband has retired and now I am going on Medicare. The co-pay for this drug is $2000.00. I cannot afford that! The drug maker does not help those on medicare, only regular insurance. This is stupid.
Kath55
in
My MSAA Community
7 years ago
Optic neuritis
We are about to take on
Gilenya
but have a fear of her optic neuritis getting worse because she was one of the unlucky people who did not get her vision back in one eye with her first episode. We cannot afford to take on a medicine that could virtually take away what is left of her vision.
We are about to take on
Gilenya
but have a fear of her optic neuritis getting worse because she was one of the unlucky people who did not get her vision back in one eye with her first episode. We cannot afford to take on a medicine that could virtually take away what is left of her vision.
Jmarie1
in
My MSAA Community
7 years ago
I'm covered in hives today.
The whole thing seems to have started when I began taking pills from a new bottle of
Gilenya
. Called the neuro today. Could be the
Gilenya
, but probably not. I've started 2 different antihistamines and am hoping for the best. Does anyone else ever get hives?
The whole thing seems to have started when I began taking pills from a new bottle of
Gilenya
. Called the neuro today. Could be the
Gilenya
, but probably not. I've started 2 different antihistamines and am hoping for the best. Does anyone else ever get hives?
Iona60
in
My MSAA Community
7 years ago
Undecided
Anyone taking
Gilenya
and how do you feel?
Anyone taking
Gilenya
and how do you feel?
Royjr
in
My MSAA Community
7 years ago
Hello thanks for allowing me to Join your community!
I am currently taking
gilenya
but I'm looking to switch medicationso because
gilenya
doesn't seem to be helping my symptoms have worsened since I started
gilenya
.
I am currently taking
gilenya
but I'm looking to switch medicationso because
gilenya
doesn't seem to be helping my symptoms have worsened since I started
gilenya
.
Tiffbella
in
My MSAA Community
7 years ago
Good report from Neuro today! Yay!
Didn't need anything new from
Gilenya
.
Didn't need anything new from
Gilenya
.
Iona60
in
My MSAA Community
8 years ago
Gilenya
I am looking for feedback on
Gilenya
. Success? Side effects? How long have you been on it?
I am looking for feedback on
Gilenya
. Success? Side effects? How long have you been on it?
jandrews
in
My MSAA Community
8 years ago
Multiple MS therapies?
I just started
Gilenya
, the 4th drug. He wanted me to take Tysabri but I tested positive for the JC Virus with high numbers; he won't prescribe it and my insurance said they wouldn't cover it. Is it normal to have tried so many different therapies and still continue to have new active lesions?
I just started
Gilenya
, the 4th drug. He wanted me to take Tysabri but I tested positive for the JC Virus with high numbers; he won't prescribe it and my insurance said they wouldn't cover it. Is it normal to have tried so many different therapies and still continue to have new active lesions?
AYW68SS
in
My MSAA Community
8 years ago
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