Hi !!

It's been quite some time since I've wrote, probably since September...through posts and encouragement I did find a wonderful new neurologist. I've been on Gilenya since then and (in the beginning) steroid IV's. Everything was going well until a couple of weeks ago. I've been having what I can only describe as grayness closing in on me on the sides of my eyes in the morning. It seems to ease up over time unless my body adjusts to it. My neuro is out of town, his nurse sent him a msg, and she told me to go to my opthlamologist to check for macular (?spelling) degeneration. I have an appointment in 2 days. Have any of you experienced this? It's a new one for me.

9 Replies

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  • Hi Cwacker... I have Nystagmus in my eyes from MS and it screws up my peripheral vision. It causes blurriness when I look to the side. I've never experienced a grayness though.

    It's possible you are experiencing optic neuritis which would be MS related. Check out the symptoms here: mayoclinic.org/diseases-con... Your ophthalmologist will be able to check your optic nerve while you are there as well as check for macular degeneration.

  • Cwacker according to the literature, macular edema and blurry vision can be side effects of Gileyna

    Both macular edema and degeneration supposedly affect more of the central vision.

    Peripheral blurring can be things like glaucoma or ON as Raingrrl said

    Glad u r seeing the ophthalmologist to get this addressed.

    Hope all is ok

  • I'm sorry for the new symptom, whatever the cause. I hope you can see the opthamologist quickly and get some answers.

  • Hi Cwacker So sorry to here about your vision problems. But have to say lm thilled that your seeing a specialist for it. Hopefully he will find out what's going on with you ☺

    Glad to know that you have a new neuro!!! And that your on a DMT ☺ You should stop by more often.😕😁

    Keep us updated! Let us know what he says so we can learn from it.😊

    Jes 🌠

  • Hi Cwacker So sorry to here about your vision problems. But have to say lm thilled that your seeing a specialist for it. Hopefully he will find out what's going on with you ☺

    Glad to know that you have a new neuro!!! And that your on a DMT ☺ You should stop by more often.😕😁

    Keep us updated! Let us know what he says so we can learn from it.😊

    Jes 🌠

  • Hi again...Just got back from the Ophthamologist, I have cataracts. I'll be going back for another exam for it along with a peripheral vision test in 6 weeks to see if it progresses. So I'm relieved its not macular degeneration :)

  • Hi Cwacker sorry to hear about the cataracts, but at least it's the other!☺ Are the going to do surgery for that?

    J 🌠

  • I also have cataracts in both eyes but I don't see grayness. It's like I have light colored sunglasses on all the time. My Opthomologist said my eyes were healthy and when it does get so bad I can't function, that's when I should get surgery. I don't drive anymore.

  • my ophthlamologist mentioned surgery for this but I don't know if I'll have surgery for my cataracts any time soon. I guess I'll talk to him more seriously about this when I return in 6 weeks. I needed time to digest this new bit of news. The grayness has been annoying and I was thinking it was allergies. (funny, that's what I thought when I had optic neuritis 5 years ago...) I don't drive at night because I have a problem understanding car lights..where they're coming from, etc. The thought of surgery scares me, but I'll cross that bridge when I come to it. Thank you for all of your responses, I appreciate it and I'm sorry it takes me awhile to respond,,,,

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