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Just curious on who has been on pred and Actemora for long periods of time and if you successfully got off it
Who on this forum has been on prednisone and Actemra for long periods of time and successfully got off it/them? I remember PREMPRO said 12 years and I am assuming still on it. Can GCA go into remission? I am currently on 4mg of pred and weekly injections of Actemra. I have benn to my GP, my eye
Who on this forum has been on prednisone and Actemra for long periods of time and successfully got off it/them? I remember PREMPRO said 12 years and I am assuming still on it. Can GCA go into remission? I am currently on 4mg of pred and weekly injections of Actemra. I have benn to my GP, my eye
luv2read
in
PMRGCAuk
3 years ago
Chemo as first treatment
Is there a reason as to why some patients go on ADT (Lupron, Firmagon, etc) and Chemo instead of a different path at the beginning of PC diagnosis? Background- my husband was first dx with stage 4 with PSA 350 and bone mets throughout (ribs, spine, pelvis, shoulders, skull). He started on Docetaxal immediately
Is there a reason as to why some patients go on ADT (Lupron, Firmagon, etc) and Chemo instead of a different path at the beginning of PC diagnosis? Background- my husband was first dx with stage 4 with PSA 350 and bone mets throughout (ribs, spine, pelvis, shoulders, skull). He started on Docetaxal immediately
Sipj
in
Advanced Prostate Cancer
3 years ago
Rural Air Pollution
In our small rural adjacent norfolk villages, we had, a couple of weeks back, an incident whereby the whole of the communities were pervaded by a hugely strong, powerful and intolerable stench (described as like domestic oil or paraffin) which filled the air for the best part of the day. It was reported
In our small rural adjacent norfolk villages, we had, a couple of weeks back, an incident whereby the whole of the communities were pervaded by a hugely strong, powerful and intolerable stench (described as like domestic oil or paraffin) which filled the air for the best part of the day. It was reported
micox
in
Lung Conditions Community Forum
3 years ago
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Big improvement in dexa - could they have missed a fracture?
It doesn't mention anything about
fractures
, but it also doesn't show the images so I can't see the structures myself. Realistically, is it possible they've missed something? Is it more likely that this big increase is the result of a fracture they haven't noticed?
It doesn't mention anything about
fractures
, but it also doesn't show the images so I can't see the structures myself. Realistically, is it possible they've missed something? Is it more likely that this big increase is the result of a fracture they haven't noticed?
xA-A-Ax
in
Bone Health and Osteoporosis UK
3 years ago
Constant finger pain
I`ve had it examined as mentioned, No
fractures
or breaks were picked up but i`m still not sure what it could be. My thinking maybe a bone bruise? It feels like it`s coming from the bone. Any idea what I could do as I`m just fed up of it
I`ve had it examined as mentioned, No
fractures
or breaks were picked up but i`m still not sure what it could be. My thinking maybe a bone bruise? It feels like it`s coming from the bone. Any idea what I could do as I`m just fed up of it
emmaaaar18
in
NRAS
2 years ago
Newly diagnosed Osteoporosis and hip fracture
Hi everyone, I am new here I have just found out this week that I have osteoporosis and a fracture of the hip. I have been told to use crutches by my consultant but am very confused about what I can and can't do. I have a fragility fracture on the femoral neck apparently. Any help and advice greatly
Hi everyone, I am new here I have just found out this week that I have osteoporosis and a fracture of the hip. I have been told to use crutches by my consultant but am very confused about what I can and can't do. I have a fragility fracture on the femoral neck apparently. Any help and advice greatly
Ceri-d-wen1
in
Bone Health and Osteoporosis UK
3 years ago
Back fractures
I had chemoradiotheraphy two years ago followed by an oesphagectomy and although I,ve never been told this I think that this could have caused the
fractures
. I can no longer sleep flat because of the op and have to sleep on an incline.
I had chemoradiotheraphy two years ago followed by an oesphagectomy and although I,ve never been told this I think that this could have caused the
fractures
. I can no longer sleep flat because of the op and have to sleep on an incline.
Hidden
in
Bone Health and Osteoporosis UK
3 years ago
Effectiveness of treatment.Arbiterone and Docetaxcel
After 6 cycles of Docetaxcel in April-July 2016 ,my oncologist put me on ADT till 2020 when Psa was increasing .The nadir Psa was 0. 04 in Oct 2019. Psa increased steadily - 2.4,3.3; ,5.68,10.02 ,28, 39 ,108 in June 2021. ADT used .: Honvan ,Arbiterone ,Enzaltamide. Oncologist put me on chemo Docetaxcel
After 6 cycles of Docetaxcel in April-July 2016 ,my oncologist put me on ADT till 2020 when Psa was increasing .The nadir Psa was 0. 04 in Oct 2019. Psa increased steadily - 2.4,3.3; ,5.68,10.02 ,28, 39 ,108 in June 2021. ADT used .: Honvan ,Arbiterone ,Enzaltamide. Oncologist put me on chemo Docetaxcel
Kodamolagai
in
Advanced Prostate Cancer
3 years ago
Should I cancel salvage radiation and ADT
I am 58 years old. I’m 185cms and weigh 95 kg. I was diagnosed with Gleeson 4+3 =7 around Feb 2014. I had a radical prostatectomy in 2014, Monitoring of my psa showed increasing levels; from 0.02 to 0.57 in Feb 2021. So it took 7 years to get from 0.02 to 0.57 I commenced ADT treatment 3 months
I am 58 years old. I’m 185cms and weigh 95 kg. I was diagnosed with Gleeson 4+3 =7 around Feb 2014. I had a radical prostatectomy in 2014, Monitoring of my psa showed increasing levels; from 0.02 to 0.57 in Feb 2021. So it took 7 years to get from 0.02 to 0.57 I commenced ADT treatment 3 months
Granster62
in
Advanced Prostate Cancer
3 years ago
PSA .04 up from undetectable six weeks ago
Open till six weeks ago I was on Xtandi for a year with an undetectable PSA. Six weeks ago I stopped taking the Xtandi but continued with my Lupron and my PSA has gone up to .04. My question is should I get back on the Xtandi or possibly try Zytiga and prednisone. My understanding is when I become resistant
Open till six weeks ago I was on Xtandi for a year with an undetectable PSA. Six weeks ago I stopped taking the Xtandi but continued with my Lupron and my PSA has gone up to .04. My question is should I get back on the Xtandi or possibly try Zytiga and prednisone. My understanding is when I become resistant
ReMarcAble
in
Advanced Prostate Cancer
3 years ago
ZOLENDRONIC ACID VERSUS PROLIA?
As a result, it's affected my bone strength and I've had a number of Osteoporotic
fractures
. Initially I had Risedronate/Actonell but (like many people) was unable to tolerate it due to tummy side effects.
As a result, it's affected my bone strength and I've had a number of Osteoporotic
fractures
. Initially I had Risedronate/Actonell but (like many people) was unable to tolerate it due to tummy side effects.
Kags1068
in
Bone Health and Osteoporosis UK
3 years ago
MRI scan
Had 2nd MRI scan end of July ( first one was in beginning of March) Results of this last one show 20 percent further height loss in 2 of previous vertebral
fractures
plus a new fracture since last MRI .a couple of other changes one of which was mild curve of spine .
Had 2nd MRI scan end of July ( first one was in beginning of March) Results of this last one show 20 percent further height loss in 2 of previous vertebral
fractures
plus a new fracture since last MRI .a couple of other changes one of which was mild curve of spine .
Looby60
in
PMRGCAuk
3 years ago
Question about Forteo injector pen
If you discharge the Forteo pen without the needle attached does that mess up the dosage? When I use it the next time will I get 2 doses?
If you discharge the Forteo pen without the needle attached does that mess up the dosage? When I use it the next time will I get 2 doses?
Lattelover
in
Bone Health and Osteoporosis UK
3 years ago
New member with osteoporosis
I'm new here, have severe osteoporosis with vertebral compression
fractures
. I have had my first Prolia shot.
I'm new here, have severe osteoporosis with vertebral compression
fractures
. I have had my first Prolia shot.
TONY19471
in
Osteoporosis Support
3 years ago
Any advice would be greatly appreciated!!
I started getting stress
fractures
in 2007. One in my pelvis, then several in my right ankle. This was exacerbated by an ankle deformity. In 2018 I had my ankle straightened and fused, and as yet, thankfully no more
fractures
. I've been on cholecalciferol for many years.
I started getting stress
fractures
in 2007. One in my pelvis, then several in my right ankle. This was exacerbated by an ankle deformity. In 2018 I had my ankle straightened and fused, and as yet, thankfully no more
fractures
. I've been on cholecalciferol for many years.
Kags1068
in
Bone Health and Osteoporosis UK
3 years ago
Can D&V be a symptom of steroid withdrawal?
Also have developed some spinal compression
fractures
.
Also have developed some spinal compression
fractures
.
Sharitone
in
PMRGCAuk
3 years ago
Results of Radiation to My Fractured Superior & Interior Pubic Ramus Bones
Certainly an option I will consider if I get
fractures
or tumors in other bones. Option 2 - The option I chose. Getting treatment back at home in Florida. Option 3 - Not ready for major surgery nor was it recommended by 2 of the 3 doctors. I was prescribed 10 fractions (days), 30 Gray Dose.
Certainly an option I will consider if I get
fractures
or tumors in other bones. Option 2 - The option I chose. Getting treatment back at home in Florida. Option 3 - Not ready for major surgery nor was it recommended by 2 of the 3 doctors. I was prescribed 10 fractions (days), 30 Gray Dose.
hopenowandtomorrow
in
SHARE Metastatic Breast Cancer
2 years ago
Treatment Options Dwindling ... Arranging In-Home Hospice Care
As some folks here may recall, I'm the guy who started as very metastatic almost 8 years ago in Nov 2013 with a PSA of 5,006. I also developed metastatic melanoma a little over two years ago. Details about my treatments and various dates are in my Profile. The most recent double chemo tried for the
As some folks here may recall, I'm the guy who started as very metastatic almost 8 years ago in Nov 2013 with a PSA of 5,006. I also developed metastatic melanoma a little over two years ago. Details about my treatments and various dates are in my Profile. The most recent double chemo tried for the
ctarleton
in
Advanced Prostate Cancer
3 years ago
Ketotifen and Xolair
Soooo, thought I'd give an update. Had my Xolair injections yesterday (was so stressful getting back to the hospital lol), went well and the specialist nurse was lovely. Minimal wheals today although still a lot of itching, but it is progress! On the asthma front though I think the increase of my Ketotifen
Soooo, thought I'd give an update. Had my Xolair injections yesterday (was so stressful getting back to the hospital lol), went well and the specialist nurse was lovely. Minimal wheals today although still a lot of itching, but it is progress! On the asthma front though I think the increase of my Ketotifen
floating_
in
Asthma Community Forum
3 years ago
Hi there I'm new to this my name is Claire is anyone waiting for hip replacement surgery??
Is anyone waiting for replacement hip surgery. I use 2 crutches and cannot get by without them 24/7 pain.....is this normal??
Is anyone waiting for replacement hip surgery. I use 2 crutches and cannot get by without them 24/7 pain.....is this normal??
Clairemaria
in
NRAS
3 years ago
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