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Anyone else w/ CLL getting rashes? I need your feedback
I'm wondering how many people with CLL is getting rashes on their shins of their legs, whether their treatment was with FCR or inbru? I've been in remission for almost 10 years now and have been battling this rash for almost all of it. I would love to get anyone's feed back since my 6 month checkup is
I'm wondering how many people with CLL is getting rashes on their shins of their legs, whether their treatment was with FCR or inbru? I've been in remission for almost 10 years now and have been battling this rash for almost all of it. I would love to get anyone's feed back since my 6 month checkup is
Loulou46
in
CLL Support
7 years ago
Travel insurance
Don't know if allowed to name firms but having spent 6 hours on web and phone I located an incredibly thorough insurer who was willing to offer insurance for Europe wide travel even though I am currently on iv FCR. They asked about all medications and seemed to understand CLL. It's called World First
Don't know if allowed to name firms but having spent 6 hours on web and phone I located an incredibly thorough insurer who was willing to offer insurance for Europe wide travel even though I am currently on iv FCR. They asked about all medications and seemed to understand CLL. It's called World First
abikaasa
in
CLL Support
7 years ago
This time last year my FCR journey began ... what a year! We can do it!
A year ago today I began a chemo therapy journey to treat my leaukemia; a process that I faced blind, having no idea of what to expect or what the future might hold. There were ups and downs along the way but the positives far out weigh the negatives. So many walked along side me on my journey - many
A year ago today I began a chemo therapy journey to treat my leaukemia; a process that I faced blind, having no idea of what to expect or what the future might hold. There were ups and downs along the way but the positives far out weigh the negatives. So many walked along side me on my journey - many
Bethan49
in
Leukaemia Support
7 years ago
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Lymph node pain in neck
I'm about to start on Thursday my 4th round of FCR. Just these last few days a lymph node on my collarbone has been very painful, so much so that I have had to prop my head up with a cushion to take the strain. Since starting FCR my lymph nodes were back to normal size as far as I could tell so I feel
I'm about to start on Thursday my 4th round of FCR. Just these last few days a lymph node on my collarbone has been very painful, so much so that I have had to prop my head up with a cushion to take the strain. Since starting FCR my lymph nodes were back to normal size as far as I could tell so I feel
sallyplest
in
CLL Support
7 years ago
I've just reviewed treatments and am more confused!
The range of medical opinions and videos, combined with and problems reading long posts at the moment (various reasons) are beginning to cause me some degree of anxiety, and adding to my confusion. So I'd like some straight, simple information, if possible. I'm failing to understand this completely despite
The range of medical opinions and videos, combined with and problems reading long posts at the moment (various reasons) are beginning to cause me some degree of anxiety, and adding to my confusion. So I'd like some straight, simple information, if possible. I'm failing to understand this completely despite
deveritt
in
CLL Support
7 years ago
Post FCR
Two months after FCR. Dr. said my numbers should grow as the weeks progress. Started therapy due to low platelets, not high WBC. My whites are .09 and platlets 47. The lowest ever. There was a mention of left shift. Don't know what's going.
Two months after FCR. Dr. said my numbers should grow as the weeks progress. Started therapy due to low platelets, not high WBC. My whites are .09 and platlets 47. The lowest ever. There was a mention of left shift. Don't know what's going.
Rprdoom
in
CLL Support
7 years ago
Another week's delay
My other half started FCR 7 weeks ago, first course went without hiccup. Platelet levels initially spiked, but now steadily dropping (82 before treatment, then weekly readings of 73, 99, 103, 76, 67 and now 63). Lymphocytes way down (now 1.36 against 35.9 before treatment). Treatment now being delayed
My other half started FCR 7 weeks ago, first course went without hiccup. Platelet levels initially spiked, but now steadily dropping (82 before treatment, then weekly readings of 73, 99, 103, 76, 67 and now 63). Lymphocytes way down (now 1.36 against 35.9 before treatment). Treatment now being delayed
shoppingtrolley
in
CLL Support
7 years ago
Allopurinol
Hi everyone I've just started my third session of FCR and haven't been prescribed my gout medication, Allopurinol this time. My nurse says I only take for the first two sessions. I'm sure I read some people take this all the way through and after. Unless I'm thinking of something else. Best wishes
Hi everyone I've just started my third session of FCR and haven't been prescribed my gout medication, Allopurinol this time. My nurse says I only take for the first two sessions. I'm sure I read some people take this all the way through and after. Unless I'm thinking of something else. Best wishes
sallyplest
in
CLL Support
7 years ago
UTI
Can anyone advise me please. I am due to start my third FCR on Thursday but have been to Walk in Centre today and had some antibiotics for a UTI. Could this delay my chemo?
Can anyone advise me please. I am due to start my third FCR on Thursday but have been to Walk in Centre today and had some antibiotics for a UTI. Could this delay my chemo?
sallyplest
in
CLL Support
7 years ago
Continuation of antivirals post treatment
Hi everyone, I completed round 6 of FCR in March. I've been building myself up and was beginning to feel somewhat normal again when 10 days ago I got shingles. Can I ask anyone out there who's had FCR how long you took antivirals for after treatment ended? I was told to stop after 2 months. Now I have
Hi everyone, I completed round 6 of FCR in March. I've been building myself up and was beginning to feel somewhat normal again when 10 days ago I got shingles. Can I ask anyone out there who's had FCR how long you took antivirals for after treatment ended? I was told to stop after 2 months. Now I have
Kenn123
in
CLL Support
7 years ago
Shingles post FCR
I finished FCR about 9 weeks ago and was beginning to feel better and thinking about a return date for work when the dreaded shingles struck. I'd just stopped taking the antiviral meds about three weeks before. It's been 9 days now since the rash appeared and the pain has actually gotten worse in the
I finished FCR about 9 weeks ago and was beginning to feel better and thinking about a return date for work when the dreaded shingles struck. I'd just stopped taking the antiviral meds about three weeks before. It's been 9 days now since the rash appeared and the pain has actually gotten worse in the
Kenn123
in
CLL Support
7 years ago
platelet levels still dropping
My OH had his first FCR treatment 5 weeks ago. Was due for another to start last Tuesday, but platelet levels low (72), so delayed a week until another test and hopefully pick up in levels; however, have just got results, even lower now (68), so probably another week's delay. Is this standard? Is
My OH had his first FCR treatment 5 weeks ago. Was due for another to start last Tuesday, but platelet levels low (72), so delayed a week until another test and hopefully pick up in levels; however, have just got results, even lower now (68), so probably another week's delay. Is this standard? Is
shoppingtrolley
in
CLL Support
7 years ago
Any connection between HRT and CLL ?
Hi all, I was diagnosed in 2015 ,treated with FCR in nov2016, all went well considering how it affects some people, I came through well. So... just wondering if anyone has any opinions on whether starting hrt for menopause, it would exacerbate cll?
Hi all, I was diagnosed in 2015 ,treated with FCR in nov2016, all went well considering how it affects some people, I came through well. So... just wondering if anyone has any opinions on whether starting hrt for menopause, it would exacerbate cll?
Megellen
in
CLL Support
7 years ago
Impact of chemo on orthopedic healing process?
Hi, Was diagnosed CLL in 2010 and have been on WW since. However my ALC has increased from mid 20's to mid 40's in the last 6-9 months which has prompted my hematologist to start making noises re treatment. Feel reasonably well in myself and free from ongoing infections, but have significant lymph node
Hi, Was diagnosed CLL in 2010 and have been on WW since. However my ALC has increased from mid 20's to mid 40's in the last 6-9 months which has prompted my hematologist to start making noises re treatment. Feel reasonably well in myself and free from ongoing infections, but have significant lymph node
Redlion
in
CLL Support
7 years ago
Food Intolerance
My husband seems to have developed an intolerance to fish and crustaceans in the couple of years following his FCR chemotherapy. I was wondering if anyone else has had this sort of problem.
My husband seems to have developed an intolerance to fish and crustaceans in the couple of years following his FCR chemotherapy. I was wondering if anyone else has had this sort of problem.
teragramb
in
CLL Support
7 years ago
Treatment Tradeoffs. Very good Video. Debate: Is it appropriate to treat patients with CLL earlier in the era of novel agents? Dr. Furman
Published on Apr 23, 2017 In this presentation from the 2017 Great Debates & Updates in Hematologic Malignancies, Dr. Richard R. Furman argues that, in the era of novel agents, it is not appropriate to treat CLL patients earlier than before. https://www.youtube.com/watch?v=AN3yUS8ZuKc FCR vs. Ibruvica
Published on Apr 23, 2017 In this presentation from the 2017 Great Debates & Updates in Hematologic Malignancies, Dr. Richard R. Furman argues that, in the era of novel agents, it is not appropriate to treat CLL patients earlier than before. https://www.youtube.com/watch?v=AN3yUS8ZuKc FCR vs. Ibruvica
Hoffy
in
CLL Support
7 years ago
Fludarabine, cyclophosphamide, and rituximab as first-line treatment for CLL
Full article at: https://communityview.lls.org/articles/
fludarabine
-cyclophosphamide-and-rituximab-as-first-line-treatment-for-cll
Full article at: https://communityview.lls.org/articles/
fludarabine
-cyclophosphamide-and-rituximab-as-first-line-treatment-for-cll
wmay13241
in
CLL Support
7 years ago
Treatment choices and work or not to work
Hello again. When I returned to the hospital again on Monday the doctors are now urging me to begin treatment fairly soon. My WBC doubled from 68 in April 2016 to 118 in October and then 206 a few weeks ago. I don't remember my other blood numbers but no other concerns were mentioned. She said if we
Hello again. When I returned to the hospital again on Monday the doctors are now urging me to begin treatment fairly soon. My WBC doubled from 68 in April 2016 to 118 in October and then 206 a few weeks ago. I don't remember my other blood numbers but no other concerns were mentioned. She said if we
Eebie1234
in
CLL Support
7 years ago
6 months post FCR and let me introduce Brewster to you all!
It's hard to believe that 6 months have past by since Chemo... some days I feel nearly normal🤓 And don't give too much thought to CLL but other days it can be the burden that you carry around – On those days it feels as if i am on an isolated island, all by myself , trying to predict how long remission
It's hard to believe that 6 months have past by since Chemo... some days I feel nearly normal🤓 And don't give too much thought to CLL but other days it can be the burden that you carry around – On those days it feels as if i am on an isolated island, all by myself , trying to predict how long remission
Bethan49
in
CLL Support
7 years ago
2nd session
I started my 2nd session FCR on Wednesday. No reaction this time with Rituximab! Only side effects so far are fatigue and nausea which unpleasant but manageable. Onwards and upwards. Best wishes to everyone out there x
I started my 2nd session FCR on Wednesday. No reaction this time with Rituximab! Only side effects so far are fatigue and nausea which unpleasant but manageable. Onwards and upwards. Best wishes to everyone out there x
sallyplest
in
CLL Support
7 years ago
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