Search
Search
About
Log in
Join
Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
Posts
Communities
856 public posts
Filter results
MRD blood tests post FCR
I had
FCR
in 2018. Telephone consultation in 4-6 weeks when results back from Sheffield test centre. This has not happened before and now I’m starting to worry. Did he see something in my routine blood tests or is this standard in the Flair trial?
I had
FCR
in 2018. Telephone consultation in 4-6 weeks when results back from Sheffield test centre. This has not happened before and now I’m starting to worry. Did he see something in my routine blood tests or is this standard in the Flair trial?
Mandy56
in
CLL Support
3 years ago
Fitness
I've done 1 round of chemo (
FCR
) and have had cll for 3 years. The fatigue is one of the hardest things to deal with. After a half hour exercise, I'm exhausted and have to nap. How do you folks keep fit? Does anyone have a solution for this? Would energy drinks help?
I've done 1 round of chemo (
FCR
) and have had cll for 3 years. The fatigue is one of the hardest things to deal with. After a half hour exercise, I'm exhausted and have to nap. How do you folks keep fit? Does anyone have a solution for this? Would energy drinks help?
kiwiCanuck
in
CLL Support
3 years ago
Night time medication
My husband takes Madopar IR and mucuna during the day, approx 4 tabs of Madopar 100/25 and 1.5mg of mucuna, which gives him quite good on/off times. What doesn't work so well is the night, where he takes one Madopar CR at 10pm and then one Madopar IR at 3.30/4am, with some mucuna here and there. Any
My husband takes Madopar IR and mucuna during the day, approx 4 tabs of Madopar 100/25 and 1.5mg of mucuna, which gives him quite good on/off times. What doesn't work so well is the night, where he takes one Madopar CR at 10pm and then one Madopar IR at 3.30/4am, with some mucuna here and there. Any
billyroca
in
Cure Parkinson's
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Cll and Ulcer Colitis
My doctor did say that one patient of hers had
FCR
treatment and it got rid of the cll and ulcer colitis at the same time. I have decided not to go down the chemo route but to try venetoclax first up. Look forward to hearing some feedback on this? 😊😊
My doctor did say that one patient of hers had
FCR
treatment and it got rid of the cll and ulcer colitis at the same time. I have decided not to go down the chemo route but to try venetoclax first up. Look forward to hearing some feedback on this? 😊😊
Driverps1
in
CLL Support
3 years ago
Is FCR a treatment of the past?
Hello, I’m about to have my first line of treatment and there are so many options out there. (Very lucky) i have all the good mutation markers. I am leaning towards have venetoclax to start with , what’s the thoughts on this? as want to give my body the best opportunity possible. Is this the right path
Hello, I’m about to have my first line of treatment and there are so many options out there. (Very lucky) i have all the good mutation markers. I am leaning towards have venetoclax to start with , what’s the thoughts on this? as want to give my body the best opportunity possible. Is this the right path
Driverps1
in
CLL Support
3 years ago
Frontline treatment of Chronic Lymphocytic Leukemia (CLL/SLL) in 2021
[/i][i] For this patient population, the treatment with
FCR
regimen can lead to long-term disease-free survival in about 50%-55% of the patients.'
[/i][i] For this patient population, the treatment with
FCR
regimen can lead to long-term disease-free survival in about 50%-55% of the patients.'
CLLerinOz
Administrator
in
CLL Support
3 years ago
Just when you thought CLL was enough to deal with! advice on BTK inhibitors and Heart Attack Meds interactions?
Since my last post, informing that I had come out of a 4 year remission, after
FCR
, I have been monitored for my ALC and lymph node enlargement. After 6 months my ALC had reached 24 and some spleen and node enlargement . My Haematology team suggested I would not need treatment this year.
Since my last post, informing that I had come out of a 4 year remission, after
FCR
, I have been monitored for my ALC and lymph node enlargement. After 6 months my ALC had reached 24 and some spleen and node enlargement . My Haematology team suggested I would not need treatment this year.
Rich316
in
CLL Support
3 years ago
Antibody testing
I had
FCR
in 2018 and of course have had both jabs. I’d love to know if I have any antibodies. Thanks
I had
FCR
in 2018 and of course have had both jabs. I’d love to know if I have any antibodies. Thanks
Mandy56
in
CLL Support
3 years ago
BUPA's get-out clause for cancer
So basically, and right now CLL has no one-off treatments other than
FCR
. Bupa sees Ibrutinib as a one-off yearly treatment, rather than a single claim that simple is ongoing. So my future with Bupa is to simply be priced out of treatment. So much for Bupa's cancer promise!
So basically, and right now CLL has no one-off treatments other than
FCR
. Bupa sees Ibrutinib as a one-off yearly treatment, rather than a single claim that simple is ongoing. So my future with Bupa is to simply be priced out of treatment. So much for Bupa's cancer promise!
MovingForward4423
in
CLL Support
3 years ago
Venetoclax
Not sure you would remember but I posted on here just over 2 years ago after a dreadful experience with
FCR
. My numbers have been steadily going up and it was decided that I start another treatment. As you can imagine I was very apprehensive after my last experience.
Not sure you would remember but I posted on here just over 2 years ago after a dreadful experience with
FCR
. My numbers have been steadily going up and it was decided that I start another treatment. As you can imagine I was very apprehensive after my last experience.
Racing1961
in
CLL Support
3 years ago
Antihistamine Use for Insect Bites
I thought it was about time I posted, and first explain I’m on the home straight of my journey through the 7 year FLAIR trial, with my last review due this December, and I’m still in good remission (I’m in the
FCR
Chemoimmunotherapy arm of the trial) . . .
I thought it was about time I posted, and first explain I’m on the home straight of my journey through the 7 year FLAIR trial, with my last review due this December, and I’m still in good remission (I’m in the
FCR
Chemoimmunotherapy arm of the trial) . . .
Ernest2
in
CLL Support
3 years ago
Looking for alternatives with BTK C481 resistant CLL
I have had 3 prior treatments from
FCR
to other chemo to Veneclax and Imbrutnib which was working great until my counts went up again. Turns out I have developed a BTK mutation.
I have had 3 prior treatments from
FCR
to other chemo to Veneclax and Imbrutnib which was working great until my counts went up again. Turns out I have developed a BTK mutation.
micg
in
CLL Support
3 years ago
MBL is now CLL
I was hearing stuff like
FCR
for 4 rounds further down the track. 2 month blood tests to establish a trend. 90% chance I would still be working in 10 years. He mentioned once lymphocytes start duplicating they go up quick ? So much to take in.
I was hearing stuff like
FCR
for 4 rounds further down the track. 2 month blood tests to establish a trend. 90% chance I would still be working in 10 years. He mentioned once lymphocytes start duplicating they go up quick ? So much to take in.
Billy_Oz
in
CLL Support
3 years ago
Treatment advised (after 21 years w & w)
I told hospital (Royal Marsden) I wasn't keen on
FCR
, so was offered a choice of (1) Obinutuzumab plus Venetoclax or (2) Acalabrutinib. I was also given a leaflet on Rituxan but I am not sure how this would fit in (could it be combined with Venetoclax as a first-line treatment in the UK?)
I told hospital (Royal Marsden) I wasn't keen on
FCR
, so was offered a choice of (1) Obinutuzumab plus Venetoclax or (2) Acalabrutinib. I was also given a leaflet on Rituxan but I am not sure how this would fit in (could it be combined with Venetoclax as a first-line treatment in the UK?)
ornstin
in
CLL Support
3 years ago
News - Acalabrutinib approved for Restricted use in Scotland
Medicines Consortium has approved Acalabrutinib for CLL with the following restrictions:
[i]*for the treatment of adult patients with previously untreated CLL without a del(17p) or TP53 mutation and who are [/i]
[i][u]ineligible[/u][/i]
[i] for fludarabine, cyclophosphamide and rituximab (
Medicines Consortium has approved Acalabrutinib for CLL with the following restrictions:
[i]*for the treatment of adult patients with previously untreated CLL without a del(17p) or TP53 mutation and who are [/i]
[i][u]ineligible[/u][/i]
[i] for fludarabine, cyclophosphamide and rituximab (
Jm954
Administrator
in
CLL Support
3 years ago
Neutrophils have bottomed out.
I am supposed to have finished my 4th round of
FCR
last week but the start of it was delayed for a week because my ANC was .5 (2-7.5 is normal). Blood was checked again last week and it actually dropped to .4.
I am supposed to have finished my 4th round of
FCR
last week but the start of it was delayed for a week because my ANC was .5 (2-7.5 is normal). Blood was checked again last week and it actually dropped to .4.
CallmeT
in
CLL Support
3 years ago
What’s the next step.
I’m 8 years post
FCR
and now being prepped to commence one of three options in the next few weeks after ct scan etc. Options are 1/ Venetoclax. 2 years 2/ Ibrutinib indefinitely. Or 3 Acalabrutinib indefinitely. I’m sure these are correct. Mind is swimming at the minute.
I’m 8 years post
FCR
and now being prepped to commence one of three options in the next few weeks after ct scan etc. Options are 1/ Venetoclax. 2 years 2/ Ibrutinib indefinitely. Or 3 Acalabrutinib indefinitely. I’m sure these are correct. Mind is swimming at the minute.
Billys60
in
CLL Support
3 years ago
Australian current treatment legislation
Is it correct that in Australia currently for a SLL /CLL patient, if you are NOT 17p del but still unmutated igvh and mutated tp53 ( meaning
FCR
is unlikely to be effective) , you will still need to go through
FCR
before having an option like ventoclax or or a BTK inhibitor?
Is it correct that in Australia currently for a SLL /CLL patient, if you are NOT 17p del but still unmutated igvh and mutated tp53 ( meaning
FCR
is unlikely to be effective) , you will still need to go through
FCR
before having an option like ventoclax or or a BTK inhibitor?
Waves01
in
CLL Support
3 years ago
any ideas
hi post 3mnths
fcr
haveing realy bad mouth sores as there anyone one else these nasty things ,,,hb 112 ...plts ..51...neuts ,,,0.3 still low ,,thankyou
hi post 3mnths
fcr
haveing realy bad mouth sores as there anyone one else these nasty things ,,,hb 112 ...plts ..51...neuts ,,,0.3 still low ,,thankyou
kel555
in
CLL Support
3 years ago
Long-Term Data Showcase the Clinical Utility of Fixed-Duration Venetoclax/Obinutuzumab in Treatment-Naïve CLL
We also know that some intensive chemoimmunotherapies increase the risk of specific malignancies, such as secondary acute myeloid leukemia after an
FCR
[fludarabine, cyclophosphamide, and rituximab (Rituxan)] treatment, so we have a particular focus of looking at secondary malignancies.
We also know that some intensive chemoimmunotherapies increase the risk of specific malignancies, such as secondary acute myeloid leukemia after an
FCR
[fludarabine, cyclophosphamide, and rituximab (Rituxan)] treatment, so we have a particular focus of looking at secondary malignancies.
lankisterguy
Volunteer
in
CLL Support
3 years ago
1
...
5
6
7
...
43
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
CLL Support
762 results
Cure Parkinson's
70 results
CLL America Support
7 results
View top 10 communities
Sort by
Most Relevant
Newest