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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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High WBC and it does matter to my doctor
I really don't want chemo and 3 years ago and many times since he's told me that "given my 'type', when it comes time for treatment I WILL get
FCR
" (at which time I usually bring up Dr. Furman, at which time he usually pooh-poohs).
I really don't want chemo and 3 years ago and many times since he's told me that "given my 'type', when it comes time for treatment I WILL get
FCR
" (at which time I usually bring up Dr. Furman, at which time he usually pooh-poohs).
gemit2000
in
CLL Support
7 years ago
Rituximab concerns
I start FLair trial Monday morning with
FCR
arm. Have a chest infection but taking antibiotics so will hopefully go ahead, I can't do another week of waiting!!
I start FLair trial Monday morning with
FCR
arm. Have a chest infection but taking antibiotics so will hopefully go ahead, I can't do another week of waiting!!
sallyplest
in
CLL Support
7 years ago
Worried about the numbers about to start FCR
I am now worried sick that this number means her prognosis is less favourable and given how unwell she currently is, I am terrified of what the effects of
FCR
will mean for her. Can anyone offer me any advice on what the % infiltration means and what we should ask before starting
FCR
next week???
I am now worried sick that this number means her prognosis is less favourable and given how unwell she currently is, I am terrified of what the effects of
FCR
will mean for her. Can anyone offer me any advice on what the % infiltration means and what we should ask before starting
FCR
next week???
Pinkvixon
in
CLL Support
7 years ago
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FCR selected
I've been randomly selected for Flair trial with
FCR
starting 11/4. I have to have chemo orally first of all as my white count is high and needs to be below 100 before I can have intravenously. I feel disappointed but not sure why.
I've been randomly selected for Flair trial with
FCR
starting 11/4. I have to have chemo orally first of all as my white count is high and needs to be below 100 before I can have intravenously. I feel disappointed but not sure why.
sallyplest
in
CLL Support
7 years ago
Hair loss
I wondered can anyone give me any details regarding hair loss with
FCR
or Ibrutinin/Rituxamab.
I wondered can anyone give me any details regarding hair loss with
FCR
or Ibrutinin/Rituxamab.
sallyplest
in
CLL Support
7 years ago
Need for irradiated transfusions following FCR
Does
FCR
contain fluradabin.?
Does
FCR
contain fluradabin.?
Broadbent
in
CLL Support
7 years ago
First Online Electronic Blood Test Results on Patients Know Best
And the actual results are just great, with only suppressed Lymphocytes, which you would expect after
FCR
in 2014/2015. Best wishes to all, Ernest
And the actual results are just great, with only suppressed Lymphocytes, which you would expect after
FCR
in 2014/2015. Best wishes to all, Ernest
Ernest2
in
CLL Support
7 years ago
Pottery workshop.?
At end of cycle 1 of
FCR
. Feeling great, but.... I suspect too much of a risk, even with gloves and mask... thoughts?
At end of cycle 1 of
FCR
. Feeling great, but.... I suspect too much of a risk, even with gloves and mask... thoughts?
abikaasa
in
CLL Support
7 years ago
The start for me on FCR.
So here I am sitting on a bed having my first cycle of rituximab (
FCR
) . Wish me luck and thanks to all CLLers who have contributed over the past months. I will keep you guys posted. Cheers. Sandydog
So here I am sitting on a bed having my first cycle of rituximab (
FCR
) . Wish me luck and thanks to all CLLers who have contributed over the past months. I will keep you guys posted. Cheers. Sandydog
sandydog
in
CLL Support
7 years ago
Blood clots after chemo?
I completed 5 months of
FCR
in September. This was a difficult period but successful and I returned to work after a 2 month recuperation. I was slowly recovering strength and even started light workouts. Then 3 weeks ago I had terrible pain in my flank and went to the ER.
I completed 5 months of
FCR
in September. This was a difficult period but successful and I returned to work after a 2 month recuperation. I was slowly recovering strength and even started light workouts. Then 3 weeks ago I had terrible pain in my flank and went to the ER.
brian_in_Seattle
in
CLL Support
7 years ago
Chemotherapy vs Ibrutinib for CLL Frontline Treatment - Dr Susan O'Brien. 12 to 24% of FCR patients effectively cured 6 years after FCR
(Nearly 60% of the 113
FCR
treated patients with IGHV works out at 67 long term survivors with indefinite remission.) Neil
(Nearly 60% of the 113
FCR
treated patients with IGHV works out at 67 long term survivors with indefinite remission.) Neil
AussieNeil
Partner
in
CLL Support
7 years ago
Ask the expert Ohio state talk. Slide 46. PFS for treatment naïve patients on imbruvica Vs TN FCR patients.
The treatment naïve
FCR
groups are broken down in the graph by mutated and unmutated This was not a clinical trial but a combination of graphs from historical data. They admit it is not very scientific. There are clinical trials going on now investigating this exact question.
The treatment naïve
FCR
groups are broken down in the graph by mutated and unmutated This was not a clinical trial but a combination of graphs from historical data. They admit it is not very scientific. There are clinical trials going on now investigating this exact question.
Hoffy
in
CLL Support
7 years ago
Secondary BR Treatment
After being diagnosed in Jan 2013 went through immediate
FCR
which lasted eight months. This led to a three year remission after which the disease was again detected.
After being diagnosed in Jan 2013 went through immediate
FCR
which lasted eight months. This led to a three year remission after which the disease was again detected.
plett1234
in
CLL Support
7 years ago
1st week on venetoclax - WOW, not what we expected...
He feels worse then after 6 rounds of
FCR
. We are back tomorrow to start 50mg and he is terrified - your post has helped us as most folks don't have these many issues. He desperately wants to see a change in the nodes to give him the confidence that the treatment is working.
He feels worse then after 6 rounds of
FCR
. We are back tomorrow to start 50mg and he is terrified - your post has helped us as most folks don't have these many issues. He desperately wants to see a change in the nodes to give him the confidence that the treatment is working.
NMMP
in
CLL Support
7 years ago
too short of w & w
My husband Brett finished
FCR
15 months ago, 6 months ago his BMB showed all clear now ending the happy story. About 5 months ago he had a swollen lymph node in his neck. Dr confirmed that yes he thought the CLL was active though blood counts were all really good.
My husband Brett finished
FCR
15 months ago, 6 months ago his BMB showed all clear now ending the happy story. About 5 months ago he had a swollen lymph node in his neck. Dr confirmed that yes he thought the CLL was active though blood counts were all really good.
jules_c
in
CLL Support
7 years ago
High Altitude and CLL: Risk?
With a Trisomy 12 deletion we are thinking that
FCR
may be his best bet. But with all this said, the main reason to write today is this: I am very concerned about an upcoming trip that has been arranged taking him to Machu Picchu (birthday present). Can his body handle the altitude?
With a Trisomy 12 deletion we are thinking that
FCR
may be his best bet. But with all this said, the main reason to write today is this: I am very concerned about an upcoming trip that has been arranged taking him to Machu Picchu (birthday present). Can his body handle the altitude?
AGreenwoods
in
CLL Support
7 years ago
My introduction
I was diagnosed with B cell CLL in 2001 and took
FCR
in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
I was diagnosed with B cell CLL in 2001 and took
FCR
in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
Anilbhard
in
CLL Support
7 years ago
Oxford update
I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away from
FCR
I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away from
FCR
TheFlyer
in
CLL Support
7 years ago
3 Years past FCR
After a
FCR
ride from 10/13 -4/14, with more or less no side effects, I went in CR and MRD -! Since then, blood counts were always in normal range.
After a
FCR
ride from 10/13 -4/14, with more or less no side effects, I went in CR and MRD -! Since then, blood counts were always in normal range.
seoul
in
CLL Support
7 years ago
New to the group (not at all new to CLL!). Thought I'd say hello...
I went for two years before I told my consultant that I couldn't cope with work and the disease anymore at which point I was given six cycles of
FCR
, starting in February 2005.
I went for two years before I told my consultant that I couldn't cope with work and the disease anymore at which point I was given six cycles of
FCR
, starting in February 2005.
Hidden
in
CLL Support
7 years ago
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