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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Sinemet CR and IR
6 times per day.I Ingest Sinemet CR + IR (either 1/2 or 1 25-100 IR). I would like to ingest only CR at 6 pm and 10 pm and 2 am. Is there away to do that with only CR? Half of a CR added?
6 times per day.I Ingest Sinemet CR + IR (either 1/2 or 1 25-100 IR). I would like to ingest only CR at 6 pm and 10 pm and 2 am. Is there away to do that with only CR? Half of a CR added?
aspergerian
in
Cure Parkinson's
4 years ago
Acute ankle pain
I am a year post
FCR
chemo for CLL. Suddenly started with acute ankle pain bilaterally in my ankles and feet. After 3 weeks of anti inflammatory medication and pain killers, the symptoms remain the same. Struggle to walk even short distances, where as I normally walk with no problems at all.
I am a year post
FCR
chemo for CLL. Suddenly started with acute ankle pain bilaterally in my ankles and feet. After 3 weeks of anti inflammatory medication and pain killers, the symptoms remain the same. Struggle to walk even short distances, where as I normally walk with no problems at all.
Kingfisher20
in
CLL Support
4 years ago
CLL remission
My spouse is in remission after doing 6 rounds of
FCR
for his CLL. His last round was in August. Since late September he has been getting small lumps under his skin . They seem to only affect his face neck and chest. They are somewhat red and inflamed.
My spouse is in remission after doing 6 rounds of
FCR
for his CLL. His last round was in August. Since late September he has been getting small lumps under his skin . They seem to only affect his face neck and chest. They are somewhat red and inflamed.
DDInc65
in
CLL Support
4 years ago
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Ibrutinib and pneumonia
Depleted immune status continues after
FCR
6 yrs ago. Had pneumonia for 10 mos and continue to have debilitating episodes of extreme fatigue, chills and sweats that are only addressed with heavy duty moxyfloxacin. Welcome any thoughts
Depleted immune status continues after
FCR
6 yrs ago. Had pneumonia for 10 mos and continue to have debilitating episodes of extreme fatigue, chills and sweats that are only addressed with heavy duty moxyfloxacin. Welcome any thoughts
irish828
in
CLL Support
5 years ago
Fludarabine: rare side effect of destroying ability for red blood cell production in myself. But also unwell with fevers.
With no improvement in this time a bone marrow biopsy now indicates that the loss of rbc production has most likely been caused by
FCR
(in particular Fludarabine). I completed 4 cycles in June 2018 with a good result.
With no improvement in this time a bone marrow biopsy now indicates that the loss of rbc production has most likely been caused by
FCR
(in particular Fludarabine). I completed 4 cycles in June 2018 with a good result.
Jotame
in
CLL Support
4 years ago
Dr Michael Keating's Story - Taking CLL Therapies From Bedside to Community
A fascinating overview of one of the giants in CLL research, who provided many of us with the first treatment capable of prolonging life expectancy (
FCR
) and for about 60% of those who are mutated IgHV, effectively a cure.
A fascinating overview of one of the giants in CLL research, who provided many of us with the first treatment capable of prolonging life expectancy (
FCR
) and for about 60% of those who are mutated IgHV, effectively a cure.
AussieNeil
Administrator
in
CLL Support
4 years ago
Looking for advice on travel insurance
I’m 6 years post
FCR
I’m 6 years post
FCR
Billys60
in
CLL Support
5 years ago
Travel insurance
I am 6 years since
FCR
treatment and to date still doing well not near further treatment ( fingers crossed) my daughter lives in South Africa I’m in Scotland and looking to visit her next year. Does anyone have advice on travel insurance best options who does the best at best rate etc.
I am 6 years since
FCR
treatment and to date still doing well not near further treatment ( fingers crossed) my daughter lives in South Africa I’m in Scotland and looking to visit her next year. Does anyone have advice on travel insurance best options who does the best at best rate etc.
Billys60
in
CLL Support
5 years ago
Flowers and FCR
Well, it's the evening before I start
FCR
and a friend has sent me cut flowers. There is conflicting info on line, some sights say no flowers or plants in the house at all and others say just not in the bedroom. Any thoughts?
Well, it's the evening before I start
FCR
and a friend has sent me cut flowers. There is conflicting info on line, some sights say no flowers or plants in the house at all and others say just not in the bedroom. Any thoughts?
Root65
in
CLL Support
5 years ago
New Review Article about Venetoclax
And yet we don't seem to talk about it quite as much on here as Ibrutinib and
FCR
. Just this month a very helpful and quite detailed review article has been released. It is well worth a look whether you are in watch and wait, remission, or coming up for treatment.
And yet we don't seem to talk about it quite as much on here as Ibrutinib and
FCR
. Just this month a very helpful and quite detailed review article has been released. It is well worth a look whether you are in watch and wait, remission, or coming up for treatment.
AdrianUK
in
CLL Support
5 years ago
Started imbruvica
Did the usual watchful waiting till 2009, then had
FCR
for 6 months. Went into total remission till 2016... Had AIHA in September of 2018, treated in hospital with 4 transfusions ,and prednisone. My cll is back & I started imbruvica 3 days ago.
Did the usual watchful waiting till 2009, then had
FCR
for 6 months. Went into total remission till 2016... Had AIHA in September of 2018, treated in hospital with 4 transfusions ,and prednisone. My cll is back & I started imbruvica 3 days ago.
habsrule
in
CLL Support
5 years ago
FLAIR TRIAL-FCR-HOLIDAYS
Hi members ..i complete my final
FCR
treatment in the UK on October 11th..we have a motorhome and have been travelling around the UK in it during treatment when I have been well..the question is we would like to travel to spain in it 5 weeks after treatment completes to our holiday home there for a
Hi members ..i complete my final
FCR
treatment in the UK on October 11th..we have a motorhome and have been travelling around the UK in it during treatment when I have been well..the question is we would like to travel to spain in it 5 weeks after treatment completes to our holiday home there for a
Fayeryan1
in
CLL Support
5 years ago
Progression Free Survival (PFS) post Discontinuation of Ibrutinib in E1912 Trial
superior to
FCR
in IGHV
[i]unmutated[/i]
patients but
[i]not in IGHV mutated[/i]
patients.
superior to
FCR
in IGHV
[i]unmutated[/i]
patients but
[i]not in IGHV mutated[/i]
patients.
Jm954
Administrator
in
CLL Support
5 years ago
Advice about flu vaccination please.
Paul is well ( he had
FCR
about 4 years ago), although his numbers are trending towards more CLL treatment . Thanks for any advice. Look after yourselves and each other, Fran 😉
Paul is well ( he had
FCR
about 4 years ago), although his numbers are trending towards more CLL treatment . Thanks for any advice. Look after yourselves and each other, Fran 😉
Fran57
in
CLL Support
5 years ago
CLL-.hair dye with FCR
I dont want a reaction doing it too early ..even makeup caused irritation shortly after
FCR
started so a bit apprehensive for hair dye ...
I dont want a reaction doing it too early ..even makeup caused irritation shortly after
FCR
started so a bit apprehensive for hair dye ...
Fayeryan1
in
CLL Support
5 years ago
CLL FCR update - 3 years on.
I have just had my latest 6 monthly ‘Watch and Wait’ blood tests and Flair trial assessment 3 years on from commencement of
FCR
chemotherapy.
I have just had my latest 6 monthly ‘Watch and Wait’ blood tests and Flair trial assessment 3 years on from commencement of
FCR
chemotherapy.
Rich316
in
CLL Support
5 years ago
Sinemet cr
I was talking to someone else with PD and told them I took 100cr every 2+half hours and they told me that it was dangerous to take them so often as the were designed to be take every 4+ hours . I’m worried now as are regular Sinemet,gives me even less on time Has anyone heard this I would like to
I was talking to someone else with PD and told them I took 100cr every 2+half hours and they told me that it was dangerous to take them so often as the were designed to be take every 4+ hours . I’m worried now as are regular Sinemet,gives me even less on time Has anyone heard this I would like to
Connie18
in
Cure Parkinson's
4 years ago
Severe reaction to FCR
In the end I chose
FCR
rather than entering the Flair trial as my markers met with a good outcome from
FCR
.
In the end I chose
FCR
rather than entering the Flair trial as my markers met with a good outcome from
FCR
.
Racing1961
in
CLL Support
5 years ago
Venetoclax day 1 (UK)
Four years ago he had
FCR
and found that very tough. However so far, so good...... Happy to provide updates if it helps others Beryl
Four years ago he had
FCR
and found that very tough. However so far, so good...... Happy to provide updates if it helps others Beryl
Fowey2009
in
CLL Support
5 years ago
Farewell
He decided to treat with
FCR
(fludaribine, cyclophosphamide, but stopped after only 2 cycles because she was not tolerating it well. She was 72 at this stage. Ibrutinib then became available at reasonable cost in Australia so he started her on daily 420 mg.
He decided to treat with
FCR
(fludaribine, cyclophosphamide, but stopped after only 2 cycles because she was not tolerating it well. She was 72 at this stage. Ibrutinib then became available at reasonable cost in Australia so he started her on daily 420 mg.
HannahHugo
in
CLL Support
5 years ago
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