Experiences with

Epidermolysis bullosa

Now I have some blisters that have come up, I don’t know if it is from the stress of everything, or if it is EBA (Epidermolysis bullosa acquisita, it is another autoimmune disease) the blisters came up on my penis, I went to my dermatologist, and they done biopsies on 3 of the blisters.

Not sure if this is from Lupus or Epidermolysis bullosa acquisita (EBA) either way it’s an autoimmune disease. This place came up next to a scar from a blister from a year or two ago. It is just below waist, just above right leg.

Just a question, has anyone else with Lupus been diagnosed with Epidermolysis bullosa acquisita (EBA) It is an autoimmune skin disease that causes blisters? I have 3 new blisters that came up over the weekend. One on my left hand, one on my left little toe, and one just below my left knee.

This is the blisters on my toe, still can’t wear shoes, I have been barefoot 100% of the time for over 4 years, due to skin issues!

They had called it Epidermolysis Bullosa (E.B) but my GP said he didn't think so, prescribing an ointment. Using this ointment had such a reaction that my skin split very deeply across the heel, was unable to bear my weight, so hobbling &, housebound.

I’m getting lots of painful bumps on my hands/fingers at the moment (see photo). Are these chillblains or ulcers? I’m on sildenifil for my raynauds but wondering if I need to do something more?! I have a bad chillblain on my toe but using balmosa cream for this.

Junctional Epidermolysis Bullosa (LAMB3-related). Leigh Syndrome, French Canadian Type (LSFC). Limb-girdle Muscular Dystrophy Maple Syrup Urine Disease Type 1B Medium-Chain Acyl-CoA Dehydrogenase (MCAD) Deficiency Mucolipidosis IV Neuronal Ceroid Lipofuscinosis (CLN5-related).

bullosa, atopic eczema, vitiligo, fungal infections of the nails, hailey-hailey disease, hidradenitis suppurativa, hirsutism, ichthyosis, keratosis pilaris, lichen planus, lichen sclerosus, pemphis vulgaris, pityriasis lichenoides, scabies, squamous cell carcinoma, sweets syndrome). 

i have chilblains on my fingers i am using calamine lotion and balmosa cream but neither really give me any relief, on a night they burn up and get really itchy and im now fed up to a point of nearly crying