Search
Search
About
Log in
Join
Experiences with
Dyskinesia
Posts
Communities
934 public posts
Filter results
Matcha green tea
Hi everyone! For those of you mixing green tea with your mucuna I attached a link for Japanese organically-grown matcha green tea. With matcha you drink the entire ground up leaf it has more egcg in it then the steeping kind. Nutrivitashop sells the l-dopa as well as the green tea. I guess my point is
Hi everyone! For those of you mixing green tea with your mucuna I attached a link for Japanese organically-grown matcha green tea. With matcha you drink the entire ground up leaf it has more egcg in it then the steeping kind. Nutrivitashop sells the l-dopa as well as the green tea. I guess my point is
Stevenmast
in
Cure Parkinson's
5 years ago
Parkinsons Medication
I have had such bad
dyskinesia
that I am trying Mucuna with xado. Does anyone else take this medcation and can you tell me how you are getting on with it. Many Thanks Lady Chatterley
I have had such bad
dyskinesia
that I am trying Mucuna with xado. Does anyone else take this medcation and can you tell me how you are getting on with it. Many Thanks Lady Chatterley
LadyChatterley
in
Cure Parkinson's
5 years ago
why are my pupils dilated in the evening and why do I get olfactory hallucinations?
I was started on 1 tab of sinemet 3x's per day, needed more it seemed, my doc increased to 2 tabs 3x's per day of the 25/100. still had alot of off time. heard about taking 1 tab 6x's per day and that helped with coverage but caused the dilation and hallucinations or at least i think it did because
I was started on 1 tab of sinemet 3x's per day, needed more it seemed, my doc increased to 2 tabs 3x's per day of the 25/100. still had alot of off time. heard about taking 1 tab 6x's per day and that helped with coverage but caused the dilation and hallucinations or at least i think it did because
Jockboy17
in
Cure Parkinson's
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
L Dopa, the drug which makes Parkinson's worse?
What do you think? From my negative experience of Sinemet, I surmise that it brings some initial improvement in movement issues along with some devastating side effects. It wears off, so more is taken, and after a while dyskinesias can occur solely because of the drug. Also 'on - off' can occur due to
What do you think? From my negative experience of Sinemet, I surmise that it brings some initial improvement in movement issues along with some devastating side effects. It wears off, so more is taken, and after a while dyskinesias can occur solely because of the drug. Also 'on - off' can occur due to
Yoginipoet
in
Cure Parkinson's
5 years ago
Switching from generic Carbidopa/Levodopa to Rytary
*** Update*** I will be starting on Rytary from tomorrow. I will keep everyone updated. Here is the link to the new medication: https://rytary.com/ https://www.accessdata.fda.gov/drugsatfda_docs/label/2015/203312s000lbl.pdf Rytary is actually a combination medication that is composed of short acting
*** Update*** I will be starting on Rytary from tomorrow. I will keep everyone updated. Here is the link to the new medication: https://rytary.com/ https://www.accessdata.fda.gov/drugsatfda_docs/label/2015/203312s000lbl.pdf Rytary is actually a combination medication that is composed of short acting
Hidden
in
Cure Parkinson's
5 years ago
HDT and dyskinesia
A friend of mine and a PWP has severe
dyskinesia
and I was wondering if the high dose thiamine protocol would help her? I understand that HDT is meant to prevent developing
dyskinesia
but I'm not sure if it helps decrease the movements once you have it.
A friend of mine and a PWP has severe
dyskinesia
and I was wondering if the high dose thiamine protocol would help her? I understand that HDT is meant to prevent developing
dyskinesia
but I'm not sure if it helps decrease the movements once you have it.
Shaky-hand
in
Cure Parkinson's
6 years ago
Requip
Took for two days, took
Dyskinesia
away, but tremors, and my legs wouldn't work very well, my right leg would give out on me. Felt body aches, forgetful and on edge. So today I just took my 1and half cardopa/levadopa with the entacopone. Dr.
Took for two days, took
Dyskinesia
away, but tremors, and my legs wouldn't work very well, my right leg would give out on me. Felt body aches, forgetful and on edge. So today I just took my 1and half cardopa/levadopa with the entacopone. Dr.
akgirlsrock
in
Cure Parkinson's
5 years ago
I am planning on starting MUCUNA I need advice on brands, doses etc....
I need to know if I can take it between my C/L 25/100 every three hours due to the fact that it only last two hours, is Amantadine a Dopamine Agonist? I’m also starting Amantadine, anyone on it for tremor? Good results? Any advice would be much appreciated. Thanks 🙏🏽
I need to know if I can take it between my C/L 25/100 every three hours due to the fact that it only last two hours, is Amantadine a Dopamine Agonist? I’m also starting Amantadine, anyone on it for tremor? Good results? Any advice would be much appreciated. Thanks 🙏🏽
Chicafromchitown
in
Cure Parkinson's
5 years ago
Relief from Artane but none with Sinemet
I’m curious if anyone else has had symptom relief while taking Artane after levodopa provided no relief? My neurologist had me on Sinemet, eventually up to 3 tablets 4x a day. During this time I didn’t experience any symptom relief. He recently had me try Artane, and after taking 1/2 tablet 2x a day
I’m curious if anyone else has had symptom relief while taking Artane after levodopa provided no relief? My neurologist had me on Sinemet, eventually up to 3 tablets 4x a day. During this time I didn’t experience any symptom relief. He recently had me try Artane, and after taking 1/2 tablet 2x a day
PixelPaul
in
Cure Parkinson's
5 years ago
B1 overdose at 0.5g ?
Dear easilly/Art Your 3.28.19 response is MUCH APPRECIATED because I find it DETAILED and RATIONAL ! My background: 3.13.19 START B1 at 500mg/day 146lbs, age 77, 15 months after early phase diagnosis, now updrs 15/100, still ignoring neurologist prescription for Sinemet, one single step backward
Dear easilly/Art Your 3.28.19 response is MUCH APPRECIATED because I find it DETAILED and RATIONAL ! My background: 3.13.19 START B1 at 500mg/day 146lbs, age 77, 15 months after early phase diagnosis, now updrs 15/100, still ignoring neurologist prescription for Sinemet, one single step backward
Pa-zzi69
in
Cure Parkinson's
5 years ago
Trying requip and
today and dropping down my cardopa/levadopa to 1 pill, because it gives me
Dyskinesia
it has improved since I am on entacopone which I was doing 1 half cardopa/levadopa 3 times a day in April and one ER 50 200 at bedtime with half muscle relaxers 4 times a day and half Anxiety morn/ bedtime when I
today and dropping down my cardopa/levadopa to 1 pill, because it gives me
Dyskinesia
it has improved since I am on entacopone which I was doing 1 half cardopa/levadopa 3 times a day in April and one ER 50 200 at bedtime with half muscle relaxers 4 times a day and half Anxiety morn/ bedtime when I
akgirlsrock
in
Cure Parkinson's
5 years ago
Rytary Side Effects
I taking Rytary 145 mg. 3 capsule hrs 6:00 am to 6:00 pm.My Nero wants me to start taking GOCOVRI for the
dyskinesia
. I think I too find a new Doctor.
I taking Rytary 145 mg. 3 capsule hrs 6:00 am to 6:00 pm.My Nero wants me to start taking GOCOVRI for the
dyskinesia
. I think I too find a new Doctor.
Fishaholic
in
Cure Parkinson's
6 years ago
Amantadine side effects for anyone??
My husband is currently in the hospital for severe bowel impaction having had about a dozen enemas in 10 days it's 3/4 removed he has been started on amantadine and is having issues with reaching out fidgeting with his clothes with the bed sheets just looking like he's internally nervous does this sound
My husband is currently in the hospital for severe bowel impaction having had about a dozen enemas in 10 days it's 3/4 removed he has been started on amantadine and is having issues with reaching out fidgeting with his clothes with the bed sheets just looking like he's internally nervous does this sound
Boyce3600
in
Cure Parkinson's
6 years ago
Levodopa Induced Dystonia
(NOT
dyskinesia
) If you experienced it first hand, how did you get relief from this specific kind of dystonia? I am on cl 25/100. Dystonia appeared on affected side a couple of days after starting cl in Feb.
(NOT
dyskinesia
) If you experienced it first hand, how did you get relief from this specific kind of dystonia? I am on cl 25/100. Dystonia appeared on affected side a couple of days after starting cl in Feb.
Parkie-
in
Cure Parkinson's
5 years ago
B-6, Methyl Folate and B-12
I know it's been written before, yet I'm still confused. Vitamin B-6 has to be taken a few hours after Levodopa, RIGHT? Even though he is on Levodopa/Carbidopa, I still hold to that "rule". Methyl Folate, B-9, is it safe or no? Vitamin B-12, I have heard a negative about it. He takes this daily at 1
I know it's been written before, yet I'm still confused. Vitamin B-6 has to be taken a few hours after Levodopa, RIGHT? Even though he is on Levodopa/Carbidopa, I still hold to that "rule". Methyl Folate, B-9, is it safe or no? Vitamin B-12, I have heard a negative about it. He takes this daily at 1
aridin1966
in
Cure Parkinson's
6 years ago
Primary Ciliary Dyskinesia?
It seems like I’m always chasing An Answer haha I have recently been in hospital with sputum showing P. aeruginosa and S. aureus. Sputum sample #2 went missing, and I couldn’t produce a 3rd sample but my inflammatory markers — which I assume were raised when I was admitted — came down. I have only been
It seems like I’m always chasing An Answer haha I have recently been in hospital with sputum showing P. aeruginosa and S. aureus. Sputum sample #2 went missing, and I couldn’t produce a 3rd sample but my inflammatory markers — which I assume were raised when I was admitted — came down. I have only been
Hidden
in
Lung Conditions Community Forum
6 years ago
Dyskinesia, jaw !!!
So this is the latest diagnosis...Saw a movement disorder specialist today. He's putting me back on rOPINIRole. I took this when I had Restless Leg in 2017. Guess we'll see how it goes..
So this is the latest diagnosis...Saw a movement disorder specialist today. He's putting me back on rOPINIRole. I took this when I had Restless Leg in 2017. Guess we'll see how it goes..
Bettyboop71345
in
The Australian Sjögren's Syndrome Association
6 years ago
Weight loss in Parkinson's predicts poor outcomes - which raises the question; what's worse, losing weight or eating sugar?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5705250/ Patients with lower initial body weight and weight losers have a higher risk of developing
dyskinesia
. Weight losers are at risk of higher mortality and poor quality of life.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5705250/ Patients with lower initial body weight and weight losers have a higher risk of developing
dyskinesia
. Weight losers are at risk of higher mortality and poor quality of life.
MBAnderson
in
Cure Parkinson's
6 years ago
Protein interfering with sinemet
Took 2 more pills at 11 and they still didn't kick in, 11:30 2 more pills and finally 1:00 pills worked and Cramping went away. 2:30 2 pills. 3:30
Dyskinesia
. Also Dr.
Took 2 more pills at 11 and they still didn't kick in, 11:30 2 more pills and finally 1:00 pills worked and Cramping went away. 2:30 2 pills. 3:30
Dyskinesia
. Also Dr.
akgirlsrock
in
Cure Parkinson's
6 years ago
Who is active here who has Early Onset Parkinson's Disease?
I'm concerned about the possibility of
dyskinesia
, which is more likely to occur when people with Early Onset PD take levodopa. One study found that 70% of PwP who were diagnosed in their 40s developed
dyskinesia
within 5 years of starting levodopa. Anyone have any experience with this?
I'm concerned about the possibility of
dyskinesia
, which is more likely to occur when people with Early Onset PD take levodopa. One study found that 70% of PwP who were diagnosed in their 40s developed
dyskinesia
within 5 years of starting levodopa. Anyone have any experience with this?
ElliotGreen
in
Cure Parkinson's
6 years ago
1
...
26
27
28
...
47
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
826 results
PSP Association
30 results
PCD Family Support Group (UK)
13 results
View top 10 communities
Sort by
Most Relevant
Newest