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Experiences with
Deep brain stimulation (DBS)
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fibromyalgia book
there are various books on fibro out there but i think the most informative book i have bought is a large detailed book called "FIBROMYALGIA &CHRONIC MYOFASCIAL PAIN" a survival manual ,second addition by american ladies devin starlanyl and mary ellen copeland,what is not in that book isn't worth knowing
there are various books on fibro out there but i think the most informative book i have bought is a large detailed book called "FIBROMYALGIA &CHRONIC MYOFASCIAL PAIN" a survival manual ,second addition by american ladies devin starlanyl and mary ellen copeland,what is not in that book isn't worth knowing
electricjaws
in
Fibromyalgia Action UK
12 years ago
Poem No. 3
Yes, you’d be nervous too if holes were going to be drilled into your head But I‘ve assured all who have asked , that I am not anxious nor do I feel any dread. The bottom line is simply this – I have done everything that I can possibly do, So Deep Brain Stimulation for Parkinson’s
Yes, you’d be nervous too if holes were going to be drilled into your head But I‘ve assured all who have asked , that I am not anxious nor do I feel any dread. The bottom line is simply this – I have done everything that I can possibly do, So Deep Brain Stimulation for Parkinson’s
FifteenyearsPD
in
Cure Parkinson's
13 years ago
Newbie w/DBS
I had
DBS
surgery in 2009 and would be happy to share my experience(s), I live in the metro Washington, DC area.
I had
DBS
surgery in 2009 and would be happy to share my experience(s), I live in the metro Washington, DC area.
Thumbpick
in
Cure Parkinson's
13 years ago
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My Experience With Deep Brain Stimulation
One of the first things that bothered me about
DBS
was the fact that the first surgery was performed, not on me, but on a laptop computer. Not on lab rats, space monkeys or even crash pad dummies, but a freeking laptop. That's sounds like a practice swing to me.
One of the first things that bothered me about
DBS
was the fact that the first surgery was performed, not on me, but on a laptop computer. Not on lab rats, space monkeys or even crash pad dummies, but a freeking laptop. That's sounds like a practice swing to me.
jeffjennings
in
Cure Parkinson's
13 years ago
I was dx 9 years ago, had DBS last year. Recently all toes and fingers feel ridged and sometimes lose my grip. Is this a PD progression?
Pelley
in
Cure Parkinson's
13 years ago
Has anyone had DBS, deep brain surgery?
Hidden
in
Cure Parkinson's
13 years ago
RE: On being Affaid
The day of my first surgery came up and if you don know what
DBS
surgery is, goggle it .. Its not a pleasant operation to say the least .your awake during the whole process ..
The day of my first surgery came up and if you don know what
DBS
surgery is, goggle it .. Its not a pleasant operation to say the least .your awake during the whole process ..
Captsteve
in
Cure Parkinson's
13 years ago
Something new
It's happening on the left side. the side he's complain to the neuro in B'ham about the wires being too tight from the
dbs
surgery. Was told to give it time. It's been about 3 years. Will ask again when we go back on the 15th. With these results maybe something will be done.
It's happening on the left side. the side he's complain to the neuro in B'ham about the wires being too tight from the
dbs
surgery. Was told to give it time. It's been about 3 years. Will ask again when we go back on the 15th. With these results maybe something will be done.
DANIEL
in
Cure Parkinson's
13 years ago
Is it really a disease?
In the case of the frozen woman I met with the
DBS
, she had recently had a tuning of the
DBS
and the technicians had made a mistake with the device, so the week after she was fine again. But even when she couldn’t walk on the ground, she could run up the stairs! WYH? Dalo
In the case of the frozen woman I met with the
DBS
, she had recently had a tuning of the
DBS
and the technicians had made a mistake with the device, so the week after she was fine again. But even when she couldn’t walk on the ground, she could run up the stairs! WYH? Dalo
dalo
in
Cure Parkinson's
13 years ago
Happy days ... re-implantation date in site
Then in late 2010 my wonderful wife got me into a world leading
DBS
program at Ohio State Medical Center. I was short tracked for the
DBS
in-plant.
Then in late 2010 my wonderful wife got me into a world leading
DBS
program at Ohio State Medical Center. I was short tracked for the
DBS
in-plant.
NoSringsAussie
in
Cure Parkinson's
13 years ago
Our Annual PD Symposium
There was a presentation on
DBS
and information on exercise, dance and advise for caregivers- who often get forgotten. I don't know if you have these types of programs where you live but I would search them out and attend.
There was a presentation on
DBS
and information on exercise, dance and advise for caregivers- who often get forgotten. I don't know if you have these types of programs where you live but I would search them out and attend.
wifeofparky
in
Cure Parkinson's
12 years ago
PARKINSONS CURE WHIT ,IM QUITE RAATTY LOOKING
GROUNDS OF BEING DOWN THE PAN AND THATS NOT SO FAR OFF THE MARK A CURE , I RECKON THERE IS ONE BUT IT REMAINS UNANOUNCED UNTIL A CHEAPER SOLUTION IS FOUND,YEA BABY MEDICAL TRIALS F ANYONE HAS TRIED TO BE A TRIALIST COLOUR RELIGION HEIGHT WEIGHT.HAD DIAHORHEA, LESS THAN 5 TIMES,BJT NO
DBS
GROUNDS OF BEING DOWN THE PAN AND THATS NOT SO FAR OFF THE MARK A CURE , I RECKON THERE IS ONE BUT IT REMAINS UNANOUNCED UNTIL A CHEAPER SOLUTION IS FOUND,YEA BABY MEDICAL TRIALS F ANYONE HAS TRIED TO BE A TRIALIST COLOUR RELIGION HEIGHT WEIGHT.HAD DIAHORHEA, LESS THAN 5 TIMES,BJT NO
DBS
professor
in
Cure Parkinson's
12 years ago
When to decide to get DBS ?
Hidden
in
Cure Parkinson's
13 years ago
Parkinson's and Quality of Life - a patient's perspective
To a neurologist or neurosurgeon observing my dyskinesias, the option of deep brain stimulation (
DBS
) may seem like a logical choice. However, any procedure that could potentially compromise my ability to communicate is not worth the risk for me, even if it benefits my motor symptoms.
To a neurologist or neurosurgeon observing my dyskinesias, the option of deep brain stimulation (
DBS
) may seem like a logical choice. However, any procedure that could potentially compromise my ability to communicate is not worth the risk for me, even if it benefits my motor symptoms.
CPT_Tom
in
Cure Parkinson's
13 years ago
Finally joining the fight, a brief history of my life with parkinson's dbs before during and after
The doctors took the
dbs
on the right side out of my brain for the time being. Just this past summer I finished up the
dbs
operation and have everything turned on, I guess one would say.
The doctors took the
dbs
on the right side out of my brain for the time being. Just this past summer I finished up the
dbs
operation and have everything turned on, I guess one would say.
Captsteve
in
Cure Parkinson's
13 years ago
Can PD symptoms remain on one side of the body?
My left side got SO bad (dystonia, arm muscle cramps, stiffness, incredible leg pain, resting tremor, plus a host of the non-motor symptoms) that I had
DBS
surgery in 2010 - but only my right brain. I'm better now.
My left side got SO bad (dystonia, arm muscle cramps, stiffness, incredible leg pain, resting tremor, plus a host of the non-motor symptoms) that I had
DBS
surgery in 2010 - but only my right brain. I'm better now.
jazzfan53
in
Cure Parkinson's
13 years ago
Poem 4 - DBS - 1 procedure down and 2 to go
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
FifteenyearsPD
in
Cure Parkinson's
13 years ago
DBS
IF I HAVE THE BRAIN STIMULATION WIRES IVE BEEN TOLD I CANNOT BE NEAR ANYTHING WITH MAGNETS. AM I GOING TO BECOME A PRISONER OF A SURGERY THAT IS SUPPOSE TO HELP ME . I DON'T WANT TO BECOME A HERMIT..AND ALMOST EVERYTHING HAS MAGNETS
IF I HAVE THE BRAIN STIMULATION WIRES IVE BEEN TOLD I CANNOT BE NEAR ANYTHING WITH MAGNETS. AM I GOING TO BECOME A PRISONER OF A SURGERY THAT IS SUPPOSE TO HELP ME . I DON'T WANT TO BECOME A HERMIT..AND ALMOST EVERYTHING HAS MAGNETS
paloma
in
Cure Parkinson's
13 years ago
When is it time to have DBS surgery?
merlethegirl
in
Cure Parkinson's
12 years ago
DBS I WOULD LIKE TO HERE FROM ANY ONE WHO HAS ONE.
Hi would like to here from any one who has a
DBS
and know,s how many volts . Since you have had the
DBS
Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
Hi would like to here from any one who has a
DBS
and know,s how many volts . Since you have had the
DBS
Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
export
in
Cure Parkinson's
13 years ago
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