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Experiences with
Deep brain stimulation (DBS)
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Newbie w/DBS
I had
DBS
surgery in 2009 and would be happy to share my experience(s), I live in the metro Washington, DC area.
I had
DBS
surgery in 2009 and would be happy to share my experience(s), I live in the metro Washington, DC area.
Thumbpick
in
Cure Parkinson's
12 years ago
Poem 5Have had 3 procedures of DBS and awaiting programming
Remote control programming ( Turn me on) Just turn me on, For goodness sake, Turn me on I say, I’m not sure that I can wait very long; probably not another day. My head is throbbing from electrodes in my brain bouncing to and fro. And my chest muscles feel like I had a Boob Job with
Remote control programming ( Turn me on) Just turn me on, For goodness sake, Turn me on I say, I’m not sure that I can wait very long; probably not another day. My head is throbbing from electrodes in my brain bouncing to and fro. And my chest muscles feel like I had a Boob Job with
FifteenyearsPD
in
Cure Parkinson's
12 years ago
When all you have is luck... but then you loose hope for luck
Did a bilateral
DBS
within 4months of our first visit. I thought then as I do now that this man was a hero and my saviour. The surgery que for Rezai was in 2010 2 years, it is now 3-4. Placement occurred in April 2011. I had amazing results.
Did a bilateral
DBS
within 4months of our first visit. I thought then as I do now that this man was a hero and my saviour. The surgery que for Rezai was in 2010 2 years, it is now 3-4. Placement occurred in April 2011. I had amazing results.
NoSringsAussie
in
Cure Parkinson's
12 years ago
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HI DOES ANY ONE GET VERY BAD PAIN IN THE FACE ???
Face swollen My GP can see my face HAS ANY ONE WHO HAS A
DBS
HAD BAD PAIN WHICH THEY PUT DOWN TO THE
DBS
. CAN
DBS
GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
Face swollen My GP can see my face HAS ANY ONE WHO HAS A
DBS
HAD BAD PAIN WHICH THEY PUT DOWN TO THE
DBS
. CAN
DBS
GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
export
in
Cure Parkinson's
12 years ago
Poem 4 - DBS - 1 procedure down and 2 to go
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
FifteenyearsPD
in
Cure Parkinson's
12 years ago
A little bit down
I'm definitely not too keen on the idea of deep brain stimulation (
DBS
). I'm going to go have a shower because I was at work today and I have somehow managed, despite changing clothes, to retain the smell of hamster whizz, possibly in my hair so I am going for shower two now!
I'm definitely not too keen on the idea of deep brain stimulation (
DBS
). I'm going to go have a shower because I was at work today and I have somehow managed, despite changing clothes, to retain the smell of hamster whizz, possibly in my hair so I am going for shower two now!
LittleClapham
in
Tourettes Action
12 years ago
DBS I WOULD LIKE TO HERE FROM ANY ONE WHO HAS ONE.
Hi would like to here from any one who has a
DBS
and know,s how many volts . Since you have had the
DBS
Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
Hi would like to here from any one who has a
DBS
and know,s how many volts . Since you have had the
DBS
Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
export
in
Cure Parkinson's
12 years ago
DBS
Abstract BACKGROUND: The effects of constant-current deep brain stimulation (
DBS
) have not been studied in controlled trials in patients with Parkinson's disease. We aimed to assess the safety and efficacy of bilateral constant-current
DBS
of the subthalamic nucleus.
Abstract BACKGROUND: The effects of constant-current deep brain stimulation (
DBS
) have not been studied in controlled trials in patients with Parkinson's disease. We aimed to assess the safety and efficacy of bilateral constant-current
DBS
of the subthalamic nucleus.
Hidden
in
Cure Parkinson's
12 years ago
I was dx 9 years ago, had DBS last year. Recently all toes and fingers feel ridged and sometimes lose my grip. Is this a PD progression?
Pelley
in
Cure Parkinson's
12 years ago
A Good Article about DBS
Refers to treatment of psychiatric ailmentss using
DBS
but addresses the procedure for Parkies. The article was from the Wall St. Journal: http://online.wsj.com/article/SB10001424052970204555904577164813955136748.html A good 2 minute video is included free of charge :)
Refers to treatment of psychiatric ailmentss using
DBS
but addresses the procedure for Parkies. The article was from the Wall St. Journal: http://online.wsj.com/article/SB10001424052970204555904577164813955136748.html A good 2 minute video is included free of charge :)
Beachdog
in
Cure Parkinson's
12 years ago
When to decide to get DBS ?
Hidden
in
Cure Parkinson's
12 years ago
Letting Go-The daughter of a Parkinson's patient urges her Dad not to give up.
Letting Go 2011 My heart feels like it has broken in two at the realization that my dad is gone. I say the words to myself, and cringe at their impact: “My dad is gone, and he’s never coming back.” I think this as I am looking straight at him, sitting up in his chair, a familiar pose; right foot
Letting Go 2011 My heart feels like it has broken in two at the realization that my dad is gone. I say the words to myself, and cringe at their impact: “My dad is gone, and he’s never coming back.” I think this as I am looking straight at him, sitting up in his chair, a familiar pose; right foot
Maryt1967
in
Cure Parkinson's
12 years ago
DBS Programming Coming Up
I have doctors appt. on January 23 for
DBS
programming. Is there any thing I should say or do to make sure I it is a successful visit? This will be my 3rd or 4th and im not real satisfied the results. I have heard how important the programmer can be. Is this true? I want better results.
I have doctors appt. on January 23 for
DBS
programming. Is there any thing I should say or do to make sure I it is a successful visit? This will be my 3rd or 4th and im not real satisfied the results. I have heard how important the programmer can be. Is this true? I want better results.
jeffjennings
in
Cure Parkinson's
12 years ago
Is any one on Rotigotine ?
I also have a
DBS
which is not working on one side .my doctor says its my Parkinson's not the patches .i don't agree. PS first time I have ask a question. I could go on tell me what you think.
I also have a
DBS
which is not working on one side .my doctor says its my Parkinson's not the patches .i don't agree. PS first time I have ask a question. I could go on tell me what you think.
export
in
Cure Parkinson's
12 years ago
tummy and bowel pain
does anyone suffer with tummy and bowel problems. i never did up untill i decome ill. i now have alot of acid and burning in my tummy, also very sensitive to food and medication. i can hardly tolorate any meds. my bowels seem to join in with my tummy with cramps,spasms, bloating and wind. any of this
does anyone suffer with tummy and bowel problems. i never did up untill i decome ill. i now have alot of acid and burning in my tummy, also very sensitive to food and medication. i can hardly tolorate any meds. my bowels seem to join in with my tummy with cramps,spasms, bloating and wind. any of this
nerri
in
LUPUS UK
12 years ago
Poem No. 3
Yes, you’d be nervous too if holes were going to be drilled into your head But I‘ve assured all who have asked , that I am not anxious nor do I feel any dread. The bottom line is simply this – I have done everything that I can possibly do, So Deep Brain Stimulation for Parkinson’s
Yes, you’d be nervous too if holes were going to be drilled into your head But I‘ve assured all who have asked , that I am not anxious nor do I feel any dread. The bottom line is simply this – I have done everything that I can possibly do, So Deep Brain Stimulation for Parkinson’s
FifteenyearsPD
in
Cure Parkinson's
12 years ago
My Experience With Deep Brain Stimulation
One of the first things that bothered me about
DBS
was the fact that the first surgery was performed, not on me, but on a laptop computer. Not on lab rats, space monkeys or even crash pad dummies, but a freeking laptop. That's sounds like a practice swing to me.
One of the first things that bothered me about
DBS
was the fact that the first surgery was performed, not on me, but on a laptop computer. Not on lab rats, space monkeys or even crash pad dummies, but a freeking laptop. That's sounds like a practice swing to me.
jeffjennings
in
Cure Parkinson's
12 years ago
Has anyone had DBS, deep brain surgery?
Hidden
in
Cure Parkinson's
13 years ago
RE: On being Affaid
The day of my first surgery came up and if you don know what
DBS
surgery is, goggle it .. Its not a pleasant operation to say the least .your awake during the whole process ..
The day of my first surgery came up and if you don know what
DBS
surgery is, goggle it .. Its not a pleasant operation to say the least .your awake during the whole process ..
Captsteve
in
Cure Parkinson's
12 years ago
Something new
It's happening on the left side. the side he's complain to the neuro in B'ham about the wires being too tight from the
dbs
surgery. Was told to give it time. It's been about 3 years. Will ask again when we go back on the 15th. With these results maybe something will be done.
It's happening on the left side. the side he's complain to the neuro in B'ham about the wires being too tight from the
dbs
surgery. Was told to give it time. It's been about 3 years. Will ask again when we go back on the 15th. With these results maybe something will be done.
DANIEL
in
Cure Parkinson's
12 years ago
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