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Deep brain stimulation (DBS)
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Neck & midline "tremors" developed after DBS for Parkinson's disease.
Before
DBS
, I would often get severe spasm/dystonia in the back of my neck causing my head to tilt back extremely. This "tremor" doesn't feel like the typical resting tremor of PD because it doesn't go away with simple head & neck movements.
Before
DBS
, I would often get severe spasm/dystonia in the back of my neck causing my head to tilt back extremely. This "tremor" doesn't feel like the typical resting tremor of PD because it doesn't go away with simple head & neck movements.
AlabamaDoc
in
Cure Parkinson's
10 years ago
Is there anyone with DBS taking Madopar or Sinemet and then added Azilect?
He has
DBS
and on Madopar several times a day. His
DBS
specialist prescribed him Azilect, several months ago, which he took for about one week, but stopped because he perceived no benefit.
He has
DBS
and on Madopar several times a day. His
DBS
specialist prescribed him Azilect, several months ago, which he took for about one week, but stopped because he perceived no benefit.
Norton1
in
Cure Parkinson's
10 years ago
What procedure have you used to turn down your DBS stimulator?
I think my stimulator may be turned up too high because I started having some new type of dystonia after beginning lifting weights. What is the best way to make sure you have the right amount of stimulator amplitude or pulse width for therapeutic benefit?
I think my stimulator may be turned up too high because I started having some new type of dystonia after beginning lifting weights. What is the best way to make sure you have the right amount of stimulator amplitude or pulse width for therapeutic benefit?
AlabamaDoc
in
Cure Parkinson's
10 years ago
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I was evaluated for DBS surgery last week. The doctor said I was not the best candidate because I don' respond to leva dopa well.
He also said the surgery was the best he could offer me. He said "perhaps" it would help with the dyskensia and dystonia I have. If it did I might need less medication and my speech would improve. ( leva dopa causes me to have a severe stammering and stuttering problem.). Either way, whether I have
He also said the surgery was the best he could offer me. He said "perhaps" it would help with the dyskensia and dystonia I have. If it did I might need less medication and my speech would improve. ( leva dopa causes me to have a severe stammering and stuttering problem.). Either way, whether I have
Eileen9
in
Cure Parkinson's
10 years ago
Anyone know what turning the impedance down on my DBS will do ? Its three weeks since, as each day comes so dose the pain .
I do not know if my PD has moved on or it the
DBS
. yours EXPORT.
I do not know if my PD has moved on or it the
DBS
. yours EXPORT.
export
in
Cure Parkinson's
10 years ago
does anyone with sd have bowel problems
i have crest sd, tumous calification. it is 2 inch on thigh bones and i have awlful leg pain, now im having some bowel problem. the gas dr. says i cant get all bowels out and it causes a lump between bowell and vagina. i take stuff to lossen bowell but still have problems. i dont do any exercise because
i have crest sd, tumous calification. it is 2 inch on thigh bones and i have awlful leg pain, now im having some bowel problem. the gas dr. says i cant get all bowels out and it causes a lump between bowell and vagina. i take stuff to lossen bowell but still have problems. i dont do any exercise because
bellejewel
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
One step closer
Had part two of the
dbs
surgery yesterday. In considerabley more pain than the first go around Thanking God for Percocet. Haven't slept this much since I was an infant
Had part two of the
dbs
surgery yesterday. In considerabley more pain than the first go around Thanking God for Percocet. Haven't slept this much since I was an infant
Hidden
in
Cure Parkinson's
10 years ago
Has any any used transcutaneous electrical nerve stimulation (TENS) for PD symptoms?
Just wondering if it could have a positive effect on PD symptoms like
DBS
?
Just wondering if it could have a positive effect on PD symptoms like
DBS
?
DeanGreen
in
Cure Parkinson's
10 years ago
finally....
am scheduled for
DBS
surgery on Tuesday. have to be 24 hours off my meds all day tomorrow. kind of excited, happy, hyperventilating, and apprehensive ...
am scheduled for
DBS
surgery on Tuesday. have to be 24 hours off my meds all day tomorrow. kind of excited, happy, hyperventilating, and apprehensive ...
Hidden
in
Cure Parkinson's
11 years ago
I was diagnosed 5 yrs. ago. Had DBS 2 yrs ago. My movement is pretty good, but I have CONSTANT anxiety issues. On sinemet and requip.
Clenching of my left foot is bad, and with the angst I'm never comfortable. Any one else?
Clenching of my left foot is bad, and with the angst I'm never comfortable. Any one else?
fishwife
in
Cure Parkinson's
10 years ago
Focused ULTRASOUND scalpel free surgery for the treatment of persons with Parkinson’s
Focused ULTRASOUND scalpel free surgery for the treatment of persons with Parkinson’s copy “We are very encouraged by our initial experience with MRI-guided focused ultrasound. There is a tremendous amount of enthusiasm from our patients and the public for treatments without incisions,” says Jeff Elias
Focused ULTRASOUND scalpel free surgery for the treatment of persons with Parkinson’s copy “We are very encouraged by our initial experience with MRI-guided focused ultrasound. There is a tremendous amount of enthusiasm from our patients and the public for treatments without incisions,” says Jeff Elias
Hidden
in
Cure Parkinson's
11 years ago
Beta 2 Microglobin - an exquisitely sensitive marker for disease activity in many hematologic disorders.
Increased serum beta2 microglobulin levels reflect increased activity of the disease process in question and can be an exquisitely sensitive marker for this purpose in many hematologic disorders. The reference range of beta2 microglobulin in urine samples is 0-0.3 µg/mL. In serum or plasma samples,
Increased serum beta2 microglobulin levels reflect increased activity of the disease process in question and can be an exquisitely sensitive marker for this purpose in many hematologic disorders. The reference range of beta2 microglobulin in urine samples is 0-0.3 µg/mL. In serum or plasma samples,
Mikey47
in
CLL Support
10 years ago
LINKS with reference to Parkinsons
South African Parkinsons Links Please note that while we are providing the links on our WebPages for your convenience, we take no responsibility for the content thereof, as we have no influence over these linked pages. Dr R.L. Melvill - Neurosurgery Deep-Brain Stimulation experience of Margaret
South African Parkinsons Links Please note that while we are providing the links on our WebPages for your convenience, we take no responsibility for the content thereof, as we have no influence over these linked pages. Dr R.L. Melvill - Neurosurgery Deep-Brain Stimulation experience of Margaret
Anid
in
Cure Parkinson's
11 years ago
It's my health, my body...why is it that my opinion does not count? I am angry, frustrated and feeling helpless!
He then said that I should consider the
DBS
surgery. I was shocked, as I though that was a last resort and told him I thought that was pretty drastic at this point. He said that if I was going to be so difficult, that he may not be able to treat me.
He then said that I should consider the
DBS
surgery. I was shocked, as I though that was a last resort and told him I thought that was pretty drastic at this point. He said that if I was going to be so difficult, that he may not be able to treat me.
Sedona
in
Cure Parkinson's
11 years ago
I am facing the decision to have DBS . Comments, pros/cons from those of you with experience? Statistics on success rate? I am 48 years,
diagnosed 12 years ago. Have been using fitness and a ton of meds.
diagnosed 12 years ago. Have been using fitness and a ton of meds.
Amazin
in
Cure Parkinson's
11 years ago
Had a new batter in my DBS 2 weeks on uncontrollable movements same meds and volts . It always happen at weekend. Any idea can't keep ??
export
in
Cure Parkinson's
11 years ago
Does DBS surgery help your balance improve and does it stop your feet from freezing, which in turn would stop me from falling so often?
Eileen9
in
Cure Parkinson's
11 years ago
I was scheduled to have DBS surgery on the 22nd, but it has been postponed because I have an accelerated heart rate, which I believe is
a side effect of taking Azilect. I started reading more about Azilect and found that many doctors recommend you stop usage for 14 days before any procedure using any anesthetic as the reactions can be deadly and you should never be given Demerol for pain. I am scheduled to see a cardiologist on Monday
a side effect of taking Azilect. I started reading more about Azilect and found that many doctors recommend you stop usage for 14 days before any procedure using any anesthetic as the reactions can be deadly and you should never be given Demerol for pain. I am scheduled to see a cardiologist on Monday
shakey
in
Cure Parkinson's
11 years ago
Epilepsy article on my wife and Deep Brain Stimulation in the uk
Newspaper story here..... http://www.derbytelegraph.co.uk/Aston-Trent-mum-wires-inserted-brain-combat/story-20465168-detail/story.html
Newspaper story here..... http://www.derbytelegraph.co.uk/Aston-Trent-mum-wires-inserted-brain-combat/story-20465168-detail/story.html
Paul72
in
Epilepsy Action
11 years ago
Cbs surgery
Am having psych evaluation next month for
dbs
surgery. Am feeling a bit apprehensive. Anything anyone could share? Anyone had the surgery?
Am having psych evaluation next month for
dbs
surgery. Am feeling a bit apprehensive. Anything anyone could share? Anyone had the surgery?
Hidden
in
Cure Parkinson's
11 years ago
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