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Experiences with
Deep brain stimulation (DBS)
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Help! My legs are swollen all the time.
I was diagnosed 17 years ago and had
DBS
on my left side to control my tremor in my right arm/hand in 2010. I am scheduled for
DBS
on June 3rd to make my symptoms on the left side behave. The swelling in my legs is terrible.
I was diagnosed 17 years ago and had
DBS
on my left side to control my tremor in my right arm/hand in 2010. I am scheduled for
DBS
on June 3rd to make my symptoms on the left side behave. The swelling in my legs is terrible.
LauraL
in
Cure Parkinson's
5 years ago
Another FUS news. Now from Isreal . Looks like it's replacing DBS
The firm obtained US Food and Drug Administration (FDA) approval for its technology in 2016, based on a clinical study of 76 patients, which demonstrated that the treatment is effective and safe. A three-year follow-up of the same group of patients showed that tremor reduction was sustained over a period
The firm obtained US Food and Drug Administration (FDA) approval for its technology in 2016, based on a clinical study of 76 patients, which demonstrated that the treatment is effective and safe. A three-year follow-up of the same group of patients showed that tremor reduction was sustained over a period
Farooqji
in
Cure Parkinson's
5 years ago
DBS
Anyone that has had
DBS
, would you please share your experience? I’m highly considering starting the approval process. I’m 45, dx in 2008, and have exhausted medication options. I’ve tried diet, exercise, HDT.
Anyone that has had
DBS
, would you please share your experience? I’m highly considering starting the approval process. I’m 45, dx in 2008, and have exhausted medication options. I’ve tried diet, exercise, HDT.
Jlloy5
in
Cure Parkinson's
5 years ago
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Another Question about DBS
I’ve been following the latest discussions about
DBS
. It makes me feel hopeful. However, I have a pacemaker already and am wondering if that would disqualify me as a candidate. Has anyone ever heard anything about this? I plan to ask my MDS, but I don’t see him again until next January.
I’ve been following the latest discussions about
DBS
. It makes me feel hopeful. However, I have a pacemaker already and am wondering if that would disqualify me as a candidate. Has anyone ever heard anything about this? I plan to ask my MDS, but I don’t see him again until next January.
Cjbro2000
in
Cure Parkinson's
5 years ago
DBS battery--affecting my symptoms?
I had
DBS
surgery 4.5 years ago. I have been alerted to the fact that my battery needs changing out by my
DBS
monitor, and I am having the minimal surgery on 4/24. I was diagnosed almost 20 years ago (I am now 70) and have stayed fairly functional. Until now.
I had
DBS
surgery 4.5 years ago. I have been alerted to the fact that my battery needs changing out by my
DBS
monitor, and I am having the minimal surgery on 4/24. I was diagnosed almost 20 years ago (I am now 70) and have stayed fairly functional. Until now.
tnleighla
in
Cure Parkinson's
5 years ago
dystonia after requip
As time went on he got a
DBS
but never was able to resolve the dystonia. He continued to be on Requip until well after his
DBS
placement. It has been frustrating for me because I know that Requip was the devil that caused my husband's iissues.
As time went on he got a
DBS
but never was able to resolve the dystonia. He continued to be on Requip until well after his
DBS
placement. It has been frustrating for me because I know that Requip was the devil that caused my husband's iissues.
Grvarley
in
Cure Parkinson's
5 years ago
Need Help and Advice On What I Can Do To Relieve The Intensity Level of My Current and Parkinsons Disease Symptoms
The course of action they are investlgating is either a duo pump or possibly
DBS
surgery. At this time I am not sure if and when this would take place, but I am currently having a lot of problems which is also interfering with my family life as well. I have been following Dr.
The course of action they are investlgating is either a duo pump or possibly
DBS
surgery. At this time I am not sure if and when this would take place, but I am currently having a lot of problems which is also interfering with my family life as well. I have been following Dr.
neilp02
in
Cure Parkinson's
5 years ago
WHICH WOULD YOU CONSIDER AS THE MOST BENEFICIAL TO YOU AS A PD TREATMENT? MEDICATION OR DBS.
opinions we go a long way to help me decide on my options,at the right time.Please if you have been on medication therapy for sveral years and then opted for surgery with DBS.Kindly share your experiences.As I understand through my searches online and communication with different online PD experts,that
DBS
opinions we go a long way to help me decide on my options,at the right time.Please if you have been on medication therapy for sveral years and then opted for surgery with DBS.Kindly share your experiences.As I understand through my searches online and communication with different online PD experts,that
DBS
GBAMIGOD
in
Cure Parkinson's
5 years ago
B1 Intolerance
My husband has tried taking B1 twice. Firstly with powder then recently with Solgar capsules as recommended. He started on 500mg capsule in the morning then 500mg late afternoon. After 7 days he felt it was making his symptoms worse and had to stop.I read how so many people are benefitting from B1 and
My husband has tried taking B1 twice. Firstly with powder then recently with Solgar capsules as recommended. He started on 500mg capsule in the morning then 500mg late afternoon. After 7 days he felt it was making his symptoms worse and had to stop.I read how so many people are benefitting from B1 and
JeanieBeanie
in
Cure Parkinson's
5 years ago
Anyone on Inbrija
Finally got our Inbrija prescription. 2 capsules at a time seems too strong ( PWP is on a low dose of rytary due to
DBS
). Jury is still out. Anyone else try it yet?
Finally got our Inbrija prescription. 2 capsules at a time seems too strong ( PWP is on a low dose of rytary due to
DBS
). Jury is still out. Anyone else try it yet?
Adnelg54
in
Cure Parkinson's
5 years ago
Focused Ultrasound in Switzerland
It is not all about dopamine replacement or this and
DBS
would not work.
It is not all about dopamine replacement or this and
DBS
would not work.
Trixiedee
in
Cure Parkinson's
5 years ago
arritmiq and apiterapia
Hello to everyone. I heard of a treatment called apitherapy. He was treated with honey bee venom to treat many diseases and rhythm disorders. Anybody know about it?
Hello to everyone. I heard of a treatment called apitherapy. He was treated with honey bee venom to treat many diseases and rhythm disorders. Anybody know about it?
Panikman
in
Arrhythmia Alliance
5 years ago
London bridge appointment
Hi all , I have been up and down and had terrible days. Had recently bloods taken for systemic mastocytosis... I have finally decided and made an appointment at London Bridge to see a specialist, it won't be Dr Cruz as he is overly busy , it will be Dr Kaul this Friday. I'm scared , I have 2 a4 pages
Hi all , I have been up and down and had terrible days. Had recently bloods taken for systemic mastocytosis... I have finally decided and made an appointment at London Bridge to see a specialist, it won't be Dr Cruz as he is overly busy , it will be Dr Kaul this Friday. I'm scared , I have 2 a4 pages
Theodora23
in
LUPUS UK
5 years ago
Does Deep brain stimulation even work for Dystonia
Hi all my name is Joshua, I have got some questions and concerned about the opt I’ve had over a year ago called deep brain stimulating (
DBS
), my doctor told me that it would approximately take a year before I can see any changes but it has been now over a year and I haven’t seen anything happening I
Hi all my name is Joshua, I have got some questions and concerned about the opt I’ve had over a year ago called deep brain stimulating (
DBS
), my doctor told me that it would approximately take a year before I can see any changes but it has been now over a year and I haven’t seen anything happening I
Josh_l
in
Cure Parkinson's
6 years ago
Deep brain stimulation
Has anyone had deep brain stimulation? Did you have a good outcome? Did it reduce the tone? Desperate to hear from others x
Has anyone had deep brain stimulation? Did you have a good outcome? Did it reduce the tone? Desperate to hear from others x
Clgn83
in
Dystonia Society
5 years ago
Deep Brain Stimulation
Hi, my partner has Dystonia and we may be going down the route of Deep Brain stimulation. Has anyone had this? is there any personal stories anyone wanted to share? Thanks in advance xx
Hi, my partner has Dystonia and we may be going down the route of Deep Brain stimulation. Has anyone had this? is there any personal stories anyone wanted to share? Thanks in advance xx
Clgn83
in
Dystonia Society
5 years ago
Anyone with DBS tried High Dose Thiamine?
Unable to find any data on this. Any help would be appreciated! Thanks
Unable to find any data on this. Any help would be appreciated! Thanks
Kattripp
in
Cure Parkinson's
6 years ago
DBS Neuropsychiatric evaluation pretest
I'm scheduled for
DBS
surgery on the 28th of February. I'm not a great test taker and I'm worried.
I'm scheduled for
DBS
surgery on the 28th of February. I'm not a great test taker and I'm worried.
Buddba58
in
Cure Parkinson's
6 years ago
Living with a megacolon
Hi folks. I have a megacolon and am currently managing my condition with bisacodyl (20 mg twice per day) and lactulose. I was in hospital recently with severe bloating and the surgeons were all set to operate on me (ileostomy) but I picked up a bit and regained some bowel movement so my consultant is
Hi folks. I have a megacolon and am currently managing my condition with bisacodyl (20 mg twice per day) and lactulose. I was in hospital recently with severe bloating and the surgeons were all set to operate on me (ileostomy) but I picked up a bit and regained some bowel movement so my consultant is
Hidden
in
IBS Network
5 years ago
HDT and dyskinesia
A friend of mine and a PWP has severe dyskinesia and I was wondering if the high dose thiamine protocol would help her? I understand that HDT is meant to prevent developing dyskinesia but I'm not sure if it helps decrease the movements once you have it. She was considering deep brain stimulation but
A friend of mine and a PWP has severe dyskinesia and I was wondering if the high dose thiamine protocol would help her? I understand that HDT is meant to prevent developing dyskinesia but I'm not sure if it helps decrease the movements once you have it. She was considering deep brain stimulation but
Shaky-hand
in
Cure Parkinson's
6 years ago
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