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Cystitis
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Looking for help with radiation cystitis management
Has anyone had hyperbolic oxygen therapy for radiation
cystitis
? My husband started bleeding 6 weeks ago and has been through a living hell since the bleeding started. Two hospital stays, 7 emergency room visits and 5 Foley catheters. He lost so much blood he has to have two transfusions.
Has anyone had hyperbolic oxygen therapy for radiation
cystitis
? My husband started bleeding 6 weeks ago and has been through a living hell since the bleeding started. Two hospital stays, 7 emergency room visits and 5 Foley catheters. He lost so much blood he has to have two transfusions.
Carmen2
in
Advanced Prostate Cancer
5 years ago
Bladder pain...is this PMR?
I have tried a herbal tablet for
cystitis
and that didn't work so I have had a urine sample checked at my surgery which has just come back clear....
I have tried a herbal tablet for
cystitis
and that didn't work so I have had a urine sample checked at my surgery which has just come back clear....
PamJCam
in
PMRGCAuk
5 years ago
Vulvodynia ? thrush and lichen sclerosis
Hi I have had persistant thrush for 3 years and it always show heavy growth ive tried most of the tablets and pessaries and im now having weekly genetian violet treatment which seems to be reducing my thrush symptoms but I still have pain in my vulva region and going to my back passage the dr today
Hi I have had persistant thrush for 3 years and it always show heavy growth ive tried most of the tablets and pessaries and im now having weekly genetian violet treatment which seems to be reducing my thrush symptoms but I still have pain in my vulva region and going to my back passage the dr today
kaya12
in
Pelvic Pain Support Network
5 years ago
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UK Endometriosis Excision Specialists recommendations please
I am desperate to find an actual endometriosis excision expert. I have had several surgeries from general gynaecologists and feel that this time I need a specialist in the field. While it seems easy to find one in the US, we do not have the same culture here and I cannot find one! Please help. I am
I am desperate to find an actual endometriosis excision expert. I have had several surgeries from general gynaecologists and feel that this time I need a specialist in the field. While it seems easy to find one in the US, we do not have the same culture here and I cannot find one! Please help. I am
endometriosissucks
in
Endometriosis UK
5 years ago
Constant Burning/Stinging Inside Vagina/Urethra
I got a referral to a Gynecologist and she said it had to be Interstitial
cystitis
, which I had doubts about because I never have issues peeing or pain with urination.
I got a referral to a Gynecologist and she said it had to be Interstitial
cystitis
, which I had doubts about because I never have issues peeing or pain with urination.
cassie14
in
Pelvic Pain Support Network
5 years ago
Chronic cervicitis
Hi all I’m convinced I have chronic cervicitis as I have a burning sensation deep in my vagina. It gets worse on my period and a biopsy revealed I had ‘patchy inflammation’ but the gynaecologist said this can be a ‘normal finding’. I had cryosurgery on some cervical ectropion to see if this was the
Hi all I’m convinced I have chronic cervicitis as I have a burning sensation deep in my vagina. It gets worse on my period and a biopsy revealed I had ‘patchy inflammation’ but the gynaecologist said this can be a ‘normal finding’. I had cryosurgery on some cervical ectropion to see if this was the
Shy_x
in
Pelvic Pain Support Network
5 years ago
First recognisable flare
Hi all, I was diagnosed with lupus last month with symptoms of joint pain, continuous mouth ulcers, an arm rash that wouldn’t go away and obviously all the lupus blood markers and possible lupus
cystitis
(I have a urology appointment in a few days). Fatigue was also a big problem as I’m a nurse.
Hi all, I was diagnosed with lupus last month with symptoms of joint pain, continuous mouth ulcers, an arm rash that wouldn’t go away and obviously all the lupus blood markers and possible lupus
cystitis
(I have a urology appointment in a few days). Fatigue was also a big problem as I’m a nurse.
DaniMichelle
in
LUPUS UK
5 years ago
hello from pudendal neuralgia sufferer
Hi, I kinda diagnosed myself. I've pretty much lived at my local Dr surgery this last 18 months. Each time I've been told they don't know what my symptoms were, couldn't therefore prescribe any meds to relieve the pain/discomfort. I have had heart tests, bloods (numerous ones), an ultrasound and
Hi, I kinda diagnosed myself. I've pretty much lived at my local Dr surgery this last 18 months. Each time I've been told they don't know what my symptoms were, couldn't therefore prescribe any meds to relieve the pain/discomfort. I have had heart tests, bloods (numerous ones), an ultrasound and
Moomoosmum
in
Pelvic Pain Support Network
5 years ago
Advice please
I’ve tried drinking loads of water , tried taking the over the counter
cystitis
sachets , and also drinking cranberry juice regularly . I’m not due to see my consultant at the hospital until next month - any suggestions on what on earth might help? Sorry to go on !
I’ve tried drinking loads of water , tried taking the over the counter
cystitis
sachets , and also drinking cranberry juice regularly . I’m not due to see my consultant at the hospital until next month - any suggestions on what on earth might help? Sorry to go on !
Lucy_x
in
Endometriosis UK
5 years ago
Interstitial cystitis
Hello my lovelies, Looking for some advice on if interstitial
cystitis
can be missed on a rigid cystoctopy? Here's the short version of my story: Been dealing with basically recurring UTI's but no infection found for the last 6 years.
Hello my lovelies, Looking for some advice on if interstitial
cystitis
can be missed on a rigid cystoctopy? Here's the short version of my story: Been dealing with basically recurring UTI's but no infection found for the last 6 years.
MidgetSammi
in
Pelvic Pain Support Network
5 years ago
Never Ending Back Pain
When it gets really bad I often get
cystitis
like burning pee. I saw a physio a couple of weeks ago who confirmed the pain wasn’t a muscular or skeletal issue. He gave me a side stretching exercises to try but I think this just makes things worse.
When it gets really bad I often get
cystitis
like burning pee. I saw a physio a couple of weeks ago who confirmed the pain wasn’t a muscular or skeletal issue. He gave me a side stretching exercises to try but I think this just makes things worse.
Crazy_Cat_Woman
in
LUPUS UK
5 years ago
pain when urinating plus extreme genital and vaginal pain
Interstitial
cystitis
doesn’t seem to have genital and vaginal pain associated with it.
Interstitial
cystitis
doesn’t seem to have genital and vaginal pain associated with it.
Silvermouse
in
Pelvic Pain Support Network
5 years ago
Interstitial Cystitis (painful bladder syndrome), FODMAP diet and Endometriosis
During my laparoscopy they also found that I had interstitial
cystitis
, I was told that this is like IBS of the bladder. I wondered if anyone else had heard of it or has this condition as it is common to have both apparently.
During my laparoscopy they also found that I had interstitial
cystitis
, I was told that this is like IBS of the bladder. I wondered if anyone else had heard of it or has this condition as it is common to have both apparently.
ali_cupcake
in
Endometriosis UK
5 years ago
pianomn still suffering after pudendal block
I had the pudendal nerve block ... nothing happened...so depressed...This rectal pain very low near the sphincter just won't stop...can't sit down 10 years now,,,,so frustrated,,,,how can a inferior rectal nerve injury be fixed if at all?????
I had the pudendal nerve block ... nothing happened...so depressed...This rectal pain very low near the sphincter just won't stop...can't sit down 10 years now,,,,so frustrated,,,,how can a inferior rectal nerve injury be fixed if at all?????
pianoguy
in
Pelvic Pain Support Network
5 years ago
urinary symptoms
Has anyone had
cystitis
like symptoms as a sign of recurrence? I was diagnosed in 2011 with stage 1c. Had surgery and chemo and all has been well since until a couple of months ago when I started getting
cystitis
like symptoms.
Has anyone had
cystitis
like symptoms as a sign of recurrence? I was diagnosed in 2011 with stage 1c. Had surgery and chemo and all has been well since until a couple of months ago when I started getting
cystitis
like symptoms.
katefernhill
in
My Ovacome
5 years ago
I just got the stimulater I need advice from those who have the permanent or had a temporary one on the past.
Now most of you know I suffer from PD AND interstitial
cystitis
. So last night my pain started to slowly creep back around 6 pm. By 10 pm last night my pain was an 81/2 on pain medication.
Now most of you know I suffer from PD AND interstitial
cystitis
. So last night my pain started to slowly creep back around 6 pm. By 10 pm last night my pain was an 81/2 on pain medication.
Debra13
in
Pelvic Pain Support Network
5 years ago
Missed period?
The pregnancy test I took at 6 days late was negative and I don't feel like I could be pregnant but I am confused and fed up because along with the missed period I am also getting over
cystitis
and thrush. How likely is it that this could be 'just' a missed period? Or another ovarian cyst?
The pregnancy test I took at 6 days late was negative and I don't feel like I could be pregnant but I am confused and fed up because along with the missed period I am also getting over
cystitis
and thrush. How likely is it that this could be 'just' a missed period? Or another ovarian cyst?
AliceVictoria
in
Women's Health
5 years ago
Grapefruitseed capsules or liquid
I am thinking of using it to help prevent
cystitis
, as have read it can help. Already using D Mannose which helps a little if taken when needed. Using probiotics too. Would obviously take the grapefruitseed a few hours away from my Levo.
I am thinking of using it to help prevent
cystitis
, as have read it can help. Already using D Mannose which helps a little if taken when needed. Using probiotics too. Would obviously take the grapefruitseed a few hours away from my Levo.
Deeseona
in
Thyroid UK
5 years ago
Pain
The surgery also seemed to exacerbate my interstitial
cystitis
. I am allergic to acetaminophen (Tylenol), with aspirin I have breathing problems. My pain doctor has prescribed 10mg Oxycodone IR up to three times per day for severe pain.
The surgery also seemed to exacerbate my interstitial
cystitis
. I am allergic to acetaminophen (Tylenol), with aspirin I have breathing problems. My pain doctor has prescribed 10mg Oxycodone IR up to three times per day for severe pain.
PurpleMinded
in
Kidney Disease
5 years ago
Moon face and continued swelling.
Really want to get down to at least 10 pred but at each step down I get
cystitis
, muscle cramps etc. Any suggestions as to what I can do ?
Really want to get down to at least 10 pred but at each step down I get
cystitis
, muscle cramps etc. Any suggestions as to what I can do ?
ragdollcat4
in
PMRGCAuk
5 years ago
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