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Experiences with
Cyclophosphamide
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Painting & decorating?
Before starting
cyclophosphamide
, I decided to blitz through painting all of my doors and frames. I thought I would get it out of the way before my lungs deteriorated any more (I have lung fibrosis as a result of scleroderma). To my astonishment, my breathing got easier with gloss paint fumes.
Before starting
cyclophosphamide
, I decided to blitz through painting all of my doors and frames. I thought I would get it out of the way before my lungs deteriorated any more (I have lung fibrosis as a result of scleroderma). To my astonishment, my breathing got easier with gloss paint fumes.
Geordie_Kate
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
neurologist's letter
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
annie330
in
LUPUS UK
13 years ago
Plasmapheresis
I was first given
cyclophosphamide
and then quite quickly Rituximab, once I had the Rituximab I was transferred to a different rheumy (something to do with biological drugs I think). I have brought up the plasmapheresis with his team once but they dismissed it.
I was first given
cyclophosphamide
and then quite quickly Rituximab, once I had the Rituximab I was transferred to a different rheumy (something to do with biological drugs I think). I have brought up the plasmapheresis with his team once but they dismissed it.
annie330
in
LUPUS UK
13 years ago
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Has anyone taking cyclophosphamide suffered from tinnitus as a result?
I have CNS vasculitis and shortly after starting
cyclophosphamide
I developed tinnitus. I have had it for nearly 3 years now and I just wonder if it is a side effect of this particular drug?
I have CNS vasculitis and shortly after starting
cyclophosphamide
I developed tinnitus. I have had it for nearly 3 years now and I just wonder if it is a side effect of this particular drug?
LyndaGould
in
Vasculitis UK
13 years ago
Thoughts on neurologists letter
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
annie330
in
Vasculitis UK
13 years ago
Feeling like nobody cares?
I recently had a rather large argument with my boyfriend, as he told me that I talk about my Scleroderma and
Cyclophosphamide
treament too much and it 'tires' him. This made me feel like I winge and moan, when I know don't.
I recently had a rather large argument with my boyfriend, as he told me that I talk about my Scleroderma and
Cyclophosphamide
treament too much and it 'tires' him. This made me feel like I winge and moan, when I know don't.
AshtonRains
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Cyclophosphamide.... HELP
I have just been told I need to start
Cyclophosphamide
treatment once a month for 6-12 months, has anybody else had this? And what side effects are there? As I am worried about hair loss???
I have just been told I need to start
Cyclophosphamide
treatment once a month for 6-12 months, has anybody else had this? And what side effects are there? As I am worried about hair loss???
AshtonRains
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Seen this on the internet - positive as it Highlights Lupus. Men may find this useful with Lupus SLE
Immunosuppressive drugs may also be used (with or in place of steroid treatments), such as
cyclophosphamide
(Cytoxan®), azathioprine (Imuran®), cyclosporin A, and mycophenolate mofetil (CellCept®).
Immunosuppressive drugs may also be used (with or in place of steroid treatments), such as
cyclophosphamide
(Cytoxan®), azathioprine (Imuran®), cyclosporin A, and mycophenolate mofetil (CellCept®).
Lulabelle
in
LUPUS UK
13 years ago
Cyclophosphamide side effects
Hello all, I recently started Cyclo treatment in Dec, so far so good! But I have recently started to get little red spots appear on my arms and lots on my chest. Since last night, (my boyfriend noticed) that I now have a cluster of blood spots under my skin in the middle of my chest, about 20 or so
Hello all, I recently started Cyclo treatment in Dec, so far so good! But I have recently started to get little red spots appear on my arms and lots on my chest. Since last night, (my boyfriend noticed) that I now have a cluster of blood spots under my skin in the middle of my chest, about 20 or so
AshtonRains
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Anyone else got experience with Cyclophosphamide?
Hi all, I am starting Rituximab soon and then got told today that I will be given
Cyclophosphamide
as well.
Hi all, I am starting Rituximab soon and then got told today that I will be given
Cyclophosphamide
as well.
Karen34
in
LUPUS UK
13 years ago
Wegener's Granulomatosis: The Treatment (Podcast 2)
I myself have so far been on
Cyclophosphamide
, Prednisolone, Mycophenelate Mofeti and now Rituximab. Any response is appreciated and if you wish to email me rather than post on here or inbox me, feel free.
I myself have so far been on
Cyclophosphamide
, Prednisolone, Mycophenelate Mofeti and now Rituximab. Any response is appreciated and if you wish to email me rather than post on here or inbox me, feel free.
missm23
in
Vasculitis UK
12 years ago
remission
i have wg when i took ill my egfr was 14,i had 12 courses of
cyclophosphamide
and my egfr improved to 62,however it started dropping again to 52 and i waas told i had refractory vasculitis. i was then given rituxumab and my egfr has stabilised over the last 2 months to 52.
i have wg when i took ill my egfr was 14,i had 12 courses of
cyclophosphamide
and my egfr improved to 62,however it started dropping again to 52 and i waas told i had refractory vasculitis. i was then given rituxumab and my egfr has stabilised over the last 2 months to 52.
quinnster
in
Vasculitis UK
12 years ago
Stopping Thalidomide treatment; starting Cyclophosphamide (in addition to masses of other stuff)
Assuming my blood tests are ok I'm going to start
Cyclophosphamide
, in pill form, with Mesna prescribed as well to protect my bladder. This had always been ruled out for me before.
Assuming my blood tests are ok I'm going to start
Cyclophosphamide
, in pill form, with Mesna prescribed as well to protect my bladder. This had always been ruled out for me before.
vivdunstan
Volunteer
in
Vasculitis UK
12 years ago
Trying Thalidomide for cerebral vasculitis
Cyclophosphamide
was ruled out initially for fertility concerns (I was only in my early 20s, and hoped to have children), then more recently for fears of worsening my already very severe bladder incontinence from the brain damage.
Cyclophosphamide
was ruled out initially for fertility concerns (I was only in my early 20s, and hoped to have children), then more recently for fears of worsening my already very severe bladder incontinence from the brain damage.
vivdunstan
Volunteer
in
Vasculitis UK
13 years ago
My experience with cerebral (CNS) vasculitis
Cyclophosphamide
was initially ruled out for fertility concerns - I was very young, and married, and hoped to have children sometime.
Cyclophosphamide
was initially ruled out for fertility concerns - I was very young, and married, and hoped to have children sometime.
vivdunstan
Volunteer
in
Vasculitis UK
13 years ago
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