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Experiences with
Congenital rubella syndrome
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Changing opiods
I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm and 25mg at 8pm. I still suffer from restless legs early in the morning, however it is far less intense. Having read many comments re the benefits
I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm and 25mg at 8pm. I still suffer from restless legs early in the morning, however it is far less intense. Having read many comments re the benefits
Trish8433
in
Restless Legs Syndrome
4 months ago
2nd post update from neurology and quick Q. can you see your muscles moving?
hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle twitching out hip surgery with restless legs flaring up as a side dish it’s now widespread twitching and restless legs. He tried prescribing me duloxetine
hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle twitching out hip surgery with restless legs flaring up as a side dish it’s now widespread twitching and restless legs. He tried prescribing me duloxetine
Zenawarrior73
in
Restless Legs Syndrome
5 months ago
Whirly Whirly bird.
You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably heard about me HipHop1972, I am that whirly whirly bird. With my surgeries inability to treat my severe refractory RLS quite possibly due to the
You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably heard about me HipHop1972, I am that whirly whirly bird. With my surgeries inability to treat my severe refractory RLS quite possibly due to the
HipHop1972
in
Restless Legs Syndrome
5 months ago
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RLS and augmentation – the battle for sufficient treatment.
A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating RLS with morphine only. It has been a BIG help - thanks to you, my doctor has for the time being agreed to give me a small dose of morphine while
A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating RLS with morphine only. It has been a BIG help - thanks to you, my doctor has for the time being agreed to give me a small dose of morphine while
Gibbel
in
Restless Legs Syndrome
5 months ago
Ibuprofen gel/cream
Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck, though? Or would that find its way into blood or stomach? Paracetamol does very little. Dihydrocodeine is highly effective, but I limit that as it
Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck, though? Or would that find its way into blood or stomach? Paracetamol does very little. Dihydrocodeine is highly effective, but I limit that as it
random901
in
PMRGCAuk
5 months ago
Thinking of switching to Gabapentin or Pregabalin
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
Baldrick123
in
Restless Legs Syndrome
5 months ago
Buprenorphine update - one week in
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Claire_lc
in
Restless Legs Syndrome
5 months ago
buprenorphine for sleep apnea patients
Does anyone know if you can use buprenorphine if you have sleep apnea and use a cpap? I was taking mirapax and oxycodone. Went off mirapax. Took my last mirapax on 5/2. Ever since then I have had rls almost all night after going to bed til morning. I am now taking 4 oxycodone ( 5 mg each) spread
Does anyone know if you can use buprenorphine if you have sleep apnea and use a cpap? I was taking mirapax and oxycodone. Went off mirapax. Took my last mirapax on 5/2. Ever since then I have had rls almost all night after going to bed til morning. I am now taking 4 oxycodone ( 5 mg each) spread
lorri214
in
Restless Legs Syndrome
5 months ago
medication rotation
My RLS doctor, who I have found to be most knowledgeable about RLS put me on Buprenorphine,( .5 mg is my lowest effective dose). I was on Pramipexole without significant augmentation, but discontinued gradually after starting the Bup. After a year of Bup only, after the dopamine receptors have “reset
My RLS doctor, who I have found to be most knowledgeable about RLS put me on Buprenorphine,( .5 mg is my lowest effective dose). I was on Pramipexole without significant augmentation, but discontinued gradually after starting the Bup. After a year of Bup only, after the dopamine receptors have “reset
teakabeagle
in
Restless Legs Syndrome
5 months ago
methadone ? Tolerance
hi, I am wondering if I am developing a tolerance to methadone, and, if so, where too from here? Sorry about the long post but I think if anyone is able to help me, they will need details. Aafter augmenting repeatedly on dopamine agonists I finally withdrew from them cold turkey on on 2 Dec 23, not
hi, I am wondering if I am developing a tolerance to methadone, and, if so, where too from here? Sorry about the long post but I think if anyone is able to help me, they will need details. Aafter augmenting repeatedly on dopamine agonists I finally withdrew from them cold turkey on on 2 Dec 23, not
Mongolia2020
in
Restless Legs Syndrome
5 months ago
Addicted or not addicted
Last night I e xperceived very painful calf muscles and restless leg syndrome . I thought I hade taken my normal prescription of 3 x 50mg of Tramadol! & you can imagine the thought processes regarding augmentation!!When morning arrived my wife asked what was the one Tramadol capsule doing in my pill
Last night I e xperceived very painful calf muscles and restless leg syndrome . I thought I hade taken my normal prescription of 3 x 50mg of Tramadol! & you can imagine the thought processes regarding augmentation!!When morning arrived my wife asked what was the one Tramadol capsule doing in my pill
m1946
in
Restless Legs Syndrome
5 months ago
Gabapentin side effects
I have been taking medication for my RLS for 11 years now. Initially pramipexol for 8 years then Ropinirole for two years and I’ve just started Gabapentin on top of the Ropinirole. I’ve been increasing the Gabapentin to 600mg a day, 100mg in the morning, 200mg afternoon and 300mg at night. I feel
I have been taking medication for my RLS for 11 years now. Initially pramipexol for 8 years then Ropinirole for two years and I’ve just started Gabapentin on top of the Ropinirole. I’ve been increasing the Gabapentin to 600mg a day, 100mg in the morning, 200mg afternoon and 300mg at night. I feel
Louless9
in
Restless Legs Syndrome
5 months ago
Magnesium, how much and tablet/spray
My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other avenues. I have eliminated caffeine and alcohol and have regular exercise but it doesn't seem to help. I recently tried the Therapulse but at times
My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other avenues. I have eliminated caffeine and alcohol and have regular exercise but it doesn't seem to help. I recently tried the Therapulse but at times
ChilliChocolateLover
in
Restless Legs Syndrome
5 months ago
RLS Requip (the devil med) and then Gabapentin(my savior)
I was on Requip for years always inching up in the dose as I went. It really didn’t stop the pain or movements. Then I had a blast of some kind of mental dysfunction and I began to gamble. I gambled away $200,000.00 of my retirement money. I also acted different. More than one person told me that. I
I was on Requip for years always inching up in the dose as I went. It really didn’t stop the pain or movements. Then I had a blast of some kind of mental dysfunction and I began to gamble. I gambled away $200,000.00 of my retirement money. I also acted different. More than one person told me that. I
Maystamper1
in
Restless Legs Syndrome
5 months ago
Hay fever medicines
I continue to have badly blocked ears and a runny nose for several weeks. I’ve only managed to see paramedics rather than a GP about it. I haven’t used any nasal sprays (other than saline) but would like to try anti-allergy medication such as antihistamine. Yet I’ve read that “A few common stimulating
I continue to have badly blocked ears and a runny nose for several weeks. I’ve only managed to see paramedics rather than a GP about it. I haven’t used any nasal sprays (other than saline) but would like to try anti-allergy medication such as antihistamine. Yet I’ve read that “A few common stimulating
Samazeuilh2
in
Atrial Fibrillation Support
5 months ago
methadone or buprenorphine
After augmentation and the horrors of withdrawal, I started on methadone in Feb this year and have titrated slowly up to 7.5 mg . I am now sleeping around 5-7 hours per night but very broken sleep with breakthrough RLS during the night. I think I may still be feeling some effects of augmentation. On
After augmentation and the horrors of withdrawal, I started on methadone in Feb this year and have titrated slowly up to 7.5 mg . I am now sleeping around 5-7 hours per night but very broken sleep with breakthrough RLS during the night. I think I may still be feeling some effects of augmentation. On
Mongolia2020
in
Restless Legs Syndrome
5 months ago
Anyone know where I can get the following Blood tests done?
Hello All, Trust you are all doing well. Just trying to find somewhere that offer the ANTI-SPERM ANTIBODY (FEMALE PARTNER) & ANTI-DNA Blood Tests? My Clinic dont offer these and struggling to find somewhere that does. Really wanting these tests done as heard they can impact re-occurring failed implantation
Hello All, Trust you are all doing well. Just trying to find somewhere that offer the ANTI-SPERM ANTIBODY (FEMALE PARTNER) & ANTI-DNA Blood Tests? My Clinic dont offer these and struggling to find somewhere that does. Really wanting these tests done as heard they can impact re-occurring failed implantation
Flowergirlhope
in
Fertility Network UK
8 months ago
Mildly Burning After Withdrawing From Neupro
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
RiversW
in
Restless Legs Syndrome
5 months ago
Triggers
If I do everything right--which I don't know exactly what that is--I will have a great sleep with my current pregabalin/morphine routine. BUT, not for not trying, I can't figure out my triggers well enough, or, I guess, it could be that I just don't have PLMs every night (although I did before I got
If I do everything right--which I don't know exactly what that is--I will have a great sleep with my current pregabalin/morphine routine. BUT, not for not trying, I can't figure out my triggers well enough, or, I guess, it could be that I just don't have PLMs every night (although I did before I got
wantokporo
in
Restless Legs Syndrome
5 months ago
Insomnia
I experienced intense insomnia on Ropinirole. I actually did not sleep at all when I took this medicine and also experienced headaches and confusion. It was definitely not for me. I would much rather suffer from Restless Leg Syndrome than deal with the side effects of Ropinirole.
I experienced intense insomnia on Ropinirole. I actually did not sleep at all when I took this medicine and also experienced headaches and confusion. It was definitely not for me. I would much rather suffer from Restless Leg Syndrome than deal with the side effects of Ropinirole.
Rejectamenta
in
Restless Legs Syndrome
5 months ago
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