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long read: asking for community help deciding next steps -- worsening RLS/PLMD, medications, Neurologist, no sleep, HRT
Hi everyone, I haven’t been around in a long while because I’ve been unwell and dealing with family matters. I always feel guilty popping back in after a long while but I’ve not been able to maintain any sort of consistency the last several months. Up until I started HRT I was alright with what I
Hi everyone, I haven’t been around in a long while because I’ve been unwell and dealing with family matters. I always feel guilty popping back in after a long while but I’ve not been able to maintain any sort of consistency the last several months. Up until I started HRT I was alright with what I
HappyGreenBean
in
Restless Legs Syndrome
10 days ago
Buprenorphine
so I took my first dose of Buprenorphine last night. I started with 1 mg,that wasn't enough so I took the other half ( I have the 2 mgs) This stuff is amazing! Not a single jiggle of the legs! I'm going to drop to 1 mg tonight again and see.how that goes. I had to take half.a clonazepam for the,sleep
so I took my first dose of Buprenorphine last night. I started with 1 mg,that wasn't enough so I took the other half ( I have the 2 mgs) This stuff is amazing! Not a single jiggle of the legs! I'm going to drop to 1 mg tonight again and see.how that goes. I had to take half.a clonazepam for the,sleep
Retiredandrestless
in
Restless Legs Syndrome
11 days ago
I'm RLS free now and want to share how
Hi! As a person more or less RLS free I want to share something. I had to abondone Emoxypine (you can find my original post here) after the initial 7 days course. An elevated level of dopamine caused indigestion in my guts. After some time it became obvious. Now I'm more or less RLS free, since it was
Hi! As a person more or less RLS free I want to share something. I had to abondone Emoxypine (you can find my original post here) after the initial 7 days course. An elevated level of dopamine caused indigestion in my guts. After some time it became obvious. Now I'm more or less RLS free, since it was
Alex2308
in
Restless Legs Syndrome
11 days ago
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Codipar
I’m from Ireland so very little knowledge of RLS by doctors here!! I weaned off premipexole as I mentioned here in my last post. I cannot take gabapentin as it really upsets my stomach. I am now taking 1 codipar tablet before bed. I find it helps quite a bit but am worried that I will become dependent
I’m from Ireland so very little knowledge of RLS by doctors here!! I weaned off premipexole as I mentioned here in my last post. I cannot take gabapentin as it really upsets my stomach. I am now taking 1 codipar tablet before bed. I find it helps quite a bit but am worried that I will become dependent
Golferie
in
Restless Legs Syndrome
11 days ago
Anti depressants
Hi everyone, just wanting clarification on antidepressants. I'vee stopped taking Citalopram, as it seems to make my legs worse. I have asked my Doctor for Trazadone (not sure of spelling) but she is reluctant, as they can make you drowsy and as I'm on gabapentin which can do the same, altho doesnt
Hi everyone, just wanting clarification on antidepressants. I'vee stopped taking Citalopram, as it seems to make my legs worse. I have asked my Doctor for Trazadone (not sure of spelling) but she is reluctant, as they can make you drowsy and as I'm on gabapentin which can do the same, altho doesnt
Cobobay
in
Restless Legs Syndrome
11 days ago
Help with Lasix please
I have severe R LS. I take Methadone 10 mg Twice daily. It worked well but lately not at all. I had a heart attack, have a new pacemaker. I was put on Lasix 4mg 3 times weekly and remaining days 20 mg. R L s has gone mad — starts at 10 am and goes on till 5 am. Please help. Picol
I have severe R LS. I take Methadone 10 mg Twice daily. It worked well but lately not at all. I had a heart attack, have a new pacemaker. I was put on Lasix 4mg 3 times weekly and remaining days 20 mg. R L s has gone mad — starts at 10 am and goes on till 5 am. Please help. Picol
wairoa36
in
Restless Legs Syndrome
12 days ago
Pramipexole
I have been on Pramipexole 0.125 for almost 7 yrs. Lately one pill hasn’t been working. What else is there. I am 44 yr old female, stroke survivor. I’m on sertraline, pantoprazole, Eliquis, Roustatin and pramipexole. Any advice would help. RLS is the worse.
I have been on Pramipexole 0.125 for almost 7 yrs. Lately one pill hasn’t been working. What else is there. I am 44 yr old female, stroke survivor. I’m on sertraline, pantoprazole, Eliquis, Roustatin and pramipexole. Any advice would help. RLS is the worse.
Dreamaforever
in
Restless Legs Syndrome
12 days ago
sertraline
I have been taking 100mg of Sertraline for many years for anxiety. Every year at some point I have to increase to 150mg as my anxiety is so extreme. I am in touch with a friend who is a retired Consultant Psychiatrist and he recommends I go back to my G.P and ask to go on a different class of antidepressants
I have been taking 100mg of Sertraline for many years for anxiety. Every year at some point I have to increase to 150mg as my anxiety is so extreme. I am in touch with a friend who is a retired Consultant Psychiatrist and he recommends I go back to my G.P and ask to go on a different class of antidepressants
NonnieJ
in
Restless Legs Syndrome
13 days ago
RLS after stopping citalopram
Hi there, In May, I decided to wean myself of 40mg citalopram which I had been taking almost continuously for 18 years. I did this with the support of my GP. Along with some other horrible withdrawal symptoms, I started with restless legs towards in July. I’ve had this on and off over my life, and
Hi there, In May, I decided to wean myself of 40mg citalopram which I had been taking almost continuously for 18 years. I did this with the support of my GP. Along with some other horrible withdrawal symptoms, I started with restless legs towards in July. I’ve had this on and off over my life, and
Teafortwo1
in
Restless Legs Syndrome
14 days ago
Newly diagnosed
Not long diagnosed was put on Ropinirole but only lasted 3 weeks, had terrible indigestion and felt my arms getting sore also, doctor has changed me to Pramipexole will that make any difference, I also take Sertraline and Amitriptyline, the latter for sleep but not working very well. Thank you
Not long diagnosed was put on Ropinirole but only lasted 3 weeks, had terrible indigestion and felt my arms getting sore also, doctor has changed me to Pramipexole will that make any difference, I also take Sertraline and Amitriptyline, the latter for sleep but not working very well. Thank you
missyoda
in
Restless Legs Syndrome
15 days ago
Suvorexant for Insomnia.
https://www.sciencedirect.com/science/article/abs/pii/S1389945724004258 A small study by Dr John Winkelman on Suvorexant to help sleep quality in patients with well controlled RLS. Suvorexant might be helpful for people with Buprenorphine or methadone induced insomnia. Suvorexant has only recently been
https://www.sciencedirect.com/science/article/abs/pii/S1389945724004258 A small study by Dr John Winkelman on Suvorexant to help sleep quality in patients with well controlled RLS. Suvorexant might be helpful for people with Buprenorphine or methadone induced insomnia. Suvorexant has only recently been
Joolsg
in
Restless Legs Syndrome
16 days ago
Hydrocodone not working anymore
I will be seeing my GP this month,hydrocodone has stopped working after 14 years. I'm debating on gabapentin or methadone? I was on gabba years ago,it ruined my gallbladder and had to get it removed. How have any of you using either of these meds helped with your rls? I don't know which one would be
I will be seeing my GP this month,hydrocodone has stopped working after 14 years. I'm debating on gabapentin or methadone? I was on gabba years ago,it ruined my gallbladder and had to get it removed. How have any of you using either of these meds helped with your rls? I don't know which one would be
Retiredandrestless
in
Restless Legs Syndrome
17 days ago
Coming off Ropinirole for Restless Legs - it's tough
It is nearly 2 weeks since I dropped from 3mg/day to 2mg/day of Ropinirole prolonged release and it is tough. I have started to use 15 - 30mg/day of codeine in the form of Cocodamol to allow me get some sleep. I am hoping that this will only be temporary. I still have 6 weeks to go before I taper to
It is nearly 2 weeks since I dropped from 3mg/day to 2mg/day of Ropinirole prolonged release and it is tough. I have started to use 15 - 30mg/day of codeine in the form of Cocodamol to allow me get some sleep. I am hoping that this will only be temporary. I still have 6 weeks to go before I taper to
Insomniak
in
Restless Legs Syndrome
18 days ago
Different brands, different results
I was taking 10mg of methadone for about a year and it pretty well controlled my RLS. However, my pharmacy switched brands recently and soon my RLS was waking me up 3-4 times a night and I had to do lots of walking, massage, eating, reading etc. to get back to sleep. I was unsure of the connection
I was taking 10mg of methadone for about a year and it pretty well controlled my RLS. However, my pharmacy switched brands recently and soon my RLS was waking me up 3-4 times a night and I had to do lots of walking, massage, eating, reading etc. to get back to sleep. I was unsure of the connection
violetta254
in
Restless Legs Syndrome
18 days ago
Withdrawal from Ropinirole
Hi everyone Looking for some advise, I have started my withdrawal of ropinirole I'm now down to 0.50mg per day and taking 200mg of Gabapentin in the Morning & Night, I am waiting to see someone regarding possible nerve damage as I suffer from constant aching/Pain. At the weekend I had a terrible time
Hi everyone Looking for some advise, I have started my withdrawal of ropinirole I'm now down to 0.50mg per day and taking 200mg of Gabapentin in the Morning & Night, I am waiting to see someone regarding possible nerve damage as I suffer from constant aching/Pain. At the weekend I had a terrible time
Marymill
in
Restless Legs Syndrome
19 days ago
Final ropinirole drop.
Hey guys, i haven’t posted for a while my RLS was not to bad while dropping from 4mg to now at .25 along side 450 pregabalin and 60mg codeine when needed. In the last few weeks my symptoms have got terrible with 6-3 hours sleep. Ive had my initial app at the Babrbery Birmingham and awaiting bloods
Hey guys, i haven’t posted for a while my RLS was not to bad while dropping from 4mg to now at .25 along side 450 pregabalin and 60mg codeine when needed. In the last few weeks my symptoms have got terrible with 6-3 hours sleep. Ive had my initial app at the Babrbery Birmingham and awaiting bloods
RLSAndy
in
Restless Legs Syndrome
19 days ago
Buprenorphine and depression versus Suboxone
I have been on Buprenorphine for a couple of months at 0.4 mcg. It mainly controls my rls. I have been suffering from depression virtually since I started this. Never suffered before in my life. I came off Pramipexole in May and had a very traumatic time before I started Buprenorphine. Could it be
I have been on Buprenorphine for a couple of months at 0.4 mcg. It mainly controls my rls. I have been suffering from depression virtually since I started this. Never suffered before in my life. I came off Pramipexole in May and had a very traumatic time before I started Buprenorphine. Could it be
keiralee
in
Restless Legs Syndrome
21 days ago
methadone and depression
hi, I have been taking methadone for 7 months now . I am on 10 mg and still have breakthrough RLS symptoms. I have been debating further increasing my dose to 12.5 mg but am worried about the depression that I feel is creeping in. I am considering asking my GP if I can switch to suboxone, and am interested
hi, I have been taking methadone for 7 months now . I am on 10 mg and still have breakthrough RLS symptoms. I have been debating further increasing my dose to 12.5 mg but am worried about the depression that I feel is creeping in. I am considering asking my GP if I can switch to suboxone, and am interested
Mongolia2020
in
Restless Legs Syndrome
21 days ago
please advise
I need help for my husband. I’ve been here before. He started taking methadone and it seems the combination of that and the horizant is causing side effects such as panic attacks, feels like he can’t breathe when he lays down and can’t sleep. Sue - please advise. 🙏
I need help for my husband. I’ve been here before. He started taking methadone and it seems the combination of that and the horizant is causing side effects such as panic attacks, feels like he can’t breathe when he lays down and can’t sleep. Sue - please advise. 🙏
tiffanie125d
in
Restless Legs Syndrome
21 days ago
Worsening of RLS with baclofen
Hi, I am taking methadone and started taking baclofen to see if it would help me better control my RLS symptoms, which were very intense. From the beginning I felt like it wasn't helping me much, my seizures got worse and I had a lot of side effects. When we decided to double the dose, to 20mg per day
Hi, I am taking methadone and started taking baclofen to see if it would help me better control my RLS symptoms, which were very intense. From the beginning I felt like it wasn't helping me much, my seizures got worse and I had a lot of side effects. When we decided to double the dose, to 20mg per day
ArianeGuerra
in
Restless Legs Syndrome
21 days ago
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