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Rusfertide...
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
K-itty
in
MPN Voice
1 year ago
Trying to understand
Will I have depression and anxiety, am sure it's because of the way I was raised. At the moment for years am the type I put up walls because I don't want to ever get hurt. I have four daughters I have done so much for them but yet I get treated like crap, now it's to the point we don't talk to each other
Will I have depression and anxiety, am sure it's because of the way I was raised. At the moment for years am the type I put up walls because I don't want to ever get hurt. I have four daughters I have done so much for them but yet I get treated like crap, now it's to the point we don't talk to each other
Moncarr
in
Anxiety and Depression Support
1 year ago
Celebrating International Clinical Trials Day.
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
Richard-Allen
in
British Liver Trust
1 year ago
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Low Sulfur Diet?
Low Sulfur Diet?
2022/12/07 - 22:14 So I was reading this Martha's Quest blog post: Desulfovibrio bacteria, Parkinson's and diet https://www.marthasquest.com/post/desulfovibrio-bacteria-parkinson-s-and-diet She was talking about Desulfovibrio Bacteria being associated with Parkinson’s Disease
Low Sulfur Diet?
2022/12/07 - 22:14 So I was reading this Martha's Quest blog post: Desulfovibrio bacteria, Parkinson's and diet https://www.marthasquest.com/post/desulfovibrio-bacteria-parkinson-s-and-diet She was talking about Desulfovibrio Bacteria being associated with Parkinson’s Disease
Bolt_Upright
in
Cure Parkinson's
1 year ago
Myo-inositol & anxiety
I stumbled on this article via the Thyroid Pharmacist Dr Isabel Wentz on the use of Myo-inositol for anxiety. I’m curious if anyone here has tried using it, & how was the outcome if so? What dosage and brand? Etc. Thanks in advance for your input! https://thyroidpharmacist.com/articles/myo-inositol-and-hashimotos
I stumbled on this article via the Thyroid Pharmacist Dr Isabel Wentz on the use of Myo-inositol for anxiety. I’m curious if anyone here has tried using it, & how was the outcome if so? What dosage and brand? Etc. Thanks in advance for your input! https://thyroidpharmacist.com/articles/myo-inositol-and-hashimotos
rustyempire
in
Thyroid UK
1 year ago
I got fluanxol prescribed but didn't get my other anti psychotic stopped and i just read it shouldn't be taken with other antipsychotics
For my anxiety and depression
For my anxiety and depression
Against_the_current
in
Anxiety and Depression Support
1 year ago
Estetrol for bone density? What estrogen test so I need, anything specific?
Found this interesting article on estetrol and wondering if anyone out there has taken this form of estrogen? I see a lot of posts relating to estradiol patches but the E4 estrogen form appears to be much better at least on first look. The clinical trials were done in the Netherlands so it may be something
Found this interesting article on estetrol and wondering if anyone out there has taken this form of estrogen? I see a lot of posts relating to estradiol patches but the E4 estrogen form appears to be much better at least on first look. The clinical trials were done in the Netherlands so it may be something
watertender
in
Advanced Prostate Cancer
1 year ago
PBA Pseudobulbar Affect
One of the lesser known symtoms of MS is PBA (no l dont have have this) PBA also known as Pseudobulbar Affect... It involves uncontrolled or inappriate episodes of laughing or crying. These emotional responses don’t match the intensity of your inner feelings. PBA results from certain underlying neurological
One of the lesser known symtoms of MS is PBA (no l dont have have this) PBA also known as Pseudobulbar Affect... It involves uncontrolled or inappriate episodes of laughing or crying. These emotional responses don’t match the intensity of your inner feelings. PBA results from certain underlying neurological
Jesmcd2
CommunityAmbassador
in
My MSAA Community
1 year ago
Lung Cancer Research
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
sertaline
l started sertraline 12 days ago should l be feeling better by now? Started at 25mg . Feeling very anxious, achy and teary. Mind is overthinking everything.
l started sertraline 12 days ago should l be feeling better by now? Started at 25mg . Feeling very anxious, achy and teary. Mind is overthinking everything.
RayannAbbey
in
Mental Health Support
1 year ago
Hyperbaric Oxjen Chamber/ Portable unit
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Peanutdog123
in
Advanced Prostate Cancer
1 year ago
Deep Depression after Psychosis
I had a stay at an MBU this summer with postnatal psychosis and received a new diagnosis of bipolar. Since then I have had ups and downs, and am under the care of the perinatal mental health team. Right now, I’m in an awful low. I feel so depressed that getting out of bed feels so hard, I cry all the
I had a stay at an MBU this summer with postnatal psychosis and received a new diagnosis of bipolar. Since then I have had ups and downs, and am under the care of the perinatal mental health team. Right now, I’m in an awful low. I feel so depressed that getting out of bed feels so hard, I cry all the
MotherOfBears
in
Action on Postpartum Psychosis
1 year ago
New evidence on the early treatment of low-risk PV patients (using IFN)
I saw this article: Final results from the Low PV study now published in the NEJM Evidence https://fondazionefrom.it/fondazione-from/la-fondazione/news/final-results-from-the-low-pv-study-now-published-in-the-nejm-evidence "The results of the randomized, controlled phase II trial Low PV clearly demonstrated
I saw this article: Final results from the Low PV study now published in the NEJM Evidence https://fondazionefrom.it/fondazione-from/la-fondazione/news/final-results-from-the-low-pv-study-now-published-in-the-nejm-evidence "The results of the randomized, controlled phase II trial Low PV clearly demonstrated
Joey1025
in
MPN Voice
1 year ago
testosterone
listened to a very interesting podcast by Dr Geo Espinosa who featured Dr Mohit Khera a renowned urologist/scientist at Baylor college of medicine whom Dr Geo refers to as the Lebron James of Testosterone. Very interesting discussion regarding TRT (testosterone replacement therapy) and the BAT (Bipolar
listened to a very interesting podcast by Dr Geo Espinosa who featured Dr Mohit Khera a renowned urologist/scientist at Baylor college of medicine whom Dr Geo refers to as the Lebron James of Testosterone. Very interesting discussion regarding TRT (testosterone replacement therapy) and the BAT (Bipolar
Appraiser
in
Advanced Prostate Cancer
1 year ago
Lived Health Parkinson's
This channel on [i]YouTube.com [/i]has some up to date info, such as this video below featuring Roger Barker talking about stem cell treatment and when we might expect some results from the current batch of clinical trials happening world wide. https://www.youtube.com/watch?v=n20yPPRheSw https://www.youtube.com
This channel on [i]YouTube.com [/i]has some up to date info, such as this video below featuring Roger Barker talking about stem cell treatment and when we might expect some results from the current batch of clinical trials happening world wide. https://www.youtube.com/watch?v=n20yPPRheSw https://www.youtube.com
Zardoz
in
Cure Parkinson's
1 year ago
Why continue taking Orgovyx while also on Zytiga? I just started a clinical trial with LU–177 I&T.
I had my first of up to four treatments last week in the Eclipse clinical trial for LU 177 I&T and I’m wondering why I should continue taking Orgovyx . I’ve heard that production of testosterone is even more efficiently reduced on Zytiga. The less meds, the better for me. Every time we add a new substance
I had my first of up to four treatments last week in the Eclipse clinical trial for LU 177 I&T and I’m wondering why I should continue taking Orgovyx . I’ve heard that production of testosterone is even more efficiently reduced on Zytiga. The less meds, the better for me. Every time we add a new substance
SViking
in
Advanced Prostate Cancer
1 year ago
Hereditary spastic paraparesis (HSP) and Ataxia how do you get diagnosed with HSP?
I wondered if you could point me in the direction of how to get a diagnosis of HSP? If anyone has one and or are in the same position as me. I am seeking answers. I have an extremely rare chromosome duplication with very little known about it. I have had a look at some research papers and there was
I wondered if you could point me in the direction of how to get a diagnosis of HSP? If anyone has one and or are in the same position as me. I am seeking answers. I have an extremely rare chromosome duplication with very little known about it. I have had a look at some research papers and there was
Grapes12
in
Ataxia UK
1 year ago
hope is the thing…
from another cancer blog…another potential cancer drug is in the works and going to clinical trials . https://www.etirarx.com/ Fingers crossed, people. There needs to be a breakthrough for this cancer terror. I’ve lost too many friends and feel like I’m swimming up stream.
from another cancer blog…another potential cancer drug is in the works and going to clinical trials . https://www.etirarx.com/ Fingers crossed, people. There needs to be a breakthrough for this cancer terror. I’ve lost too many friends and feel like I’m swimming up stream.
Dragonfly2
in
SHARE Metastatic Breast Cancer
1 year ago
Immunology clinical trial vs. Radiation?
Surgery in 2009, biochemical recurrence beginning 2017, and my slow-rising PSA is now up to 0.63, although my overall doubling time has remained pretty consistently over 2 years on average. My MO has a clinical trial in Phase I using a Listeria monocytogenes based vaccine, which supposedly seeks out
Surgery in 2009, biochemical recurrence beginning 2017, and my slow-rising PSA is now up to 0.63, although my overall doubling time has remained pretty consistently over 2 years on average. My MO has a clinical trial in Phase I using a Listeria monocytogenes based vaccine, which supposedly seeks out
KeyboardGuy
in
Advanced Prostate Cancer
1 year ago
Webinar: Pegcetacoplan for Dry AMD
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
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