Search
Search
About
Log in
Join
Experiences with
Clenil modulite
Posts
Communities
718 public posts
Filter results
Catheter issues
I live in a remote part of California. My doctors (primary care, urologist, oncologist) are from 1.5 to 4 hours (one way) away. I am having a great deal of difficulty urinating. I have a complicated history but summary is: Brachy, IMRT ADT gleason 0 PSAS low for a few years, now is up to about 75 with
I live in a remote part of California. My doctors (primary care, urologist, oncologist) are from 1.5 to 4 hours (one way) away. I am having a great deal of difficulty urinating. I have a complicated history but summary is: Brachy, IMRT ADT gleason 0 PSAS low for a few years, now is up to about 75 with
spencoid2
in
Prostate Cancer And Gay Men
4 years ago
Asthma Apps
Very positive on the whole, good control, good inhaler technique and my personal best peak flow has improved.. however she has advised me to be particularly vigilant this hay fever season (my biggest trigger), as I'm on
Clenil
Modulite
and she says I'm on the highest dose (2 puffs twice a day) so she
Very positive on the whole, good control, good inhaler technique and my personal best peak flow has improved.. however she has advised me to be particularly vigilant this hay fever season (my biggest trigger), as I'm on
Clenil
Modulite
and she says I'm on the highest dose (2 puffs twice a day) so she
Hidden
in
Asthma Community Forum
4 years ago
what if chemo only brings down psa to 5.8 what is next
My husband was diagnosed in 2011, gleason 8, psa 22, many years of treatment, IMRT, zytiga, Lupron/Avodart. Treated with Dr. Snuffy Myers until his retirement. Psa has never been to 0. All scans stable, cancer in lymph nodes, no bone involvement. He feels good, has had 9 chemo treatments (Doxetaxal
My husband was diagnosed in 2011, gleason 8, psa 22, many years of treatment, IMRT, zytiga, Lupron/Avodart. Treated with Dr. Snuffy Myers until his retirement. Psa has never been to 0. All scans stable, cancer in lymph nodes, no bone involvement. He feels good, has had 9 chemo treatments (Doxetaxal
Judymin
in
Advanced Prostate Cancer
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
After Radical Prostatectomy PSA and Radition with/without Hormone Therapy
Hi Guys, My Father (age 62) was diagnosed PC with a 14 PSA Score. 2 Months ago he had a robotic radical prostatectomy surgery. Patalogy report specified; pT3aN1M0, Gleaseon 7 (4+3), Pattern 4 rate %60, Grade Group 3 and unfortunattelly surgical margin is positive. (Carcinoma metastasis in 2 of 10 removed
Hi Guys, My Father (age 62) was diagnosed PC with a 14 PSA Score. 2 Months ago he had a robotic radical prostatectomy surgery. Patalogy report specified; pT3aN1M0, Gleaseon 7 (4+3), Pattern 4 rate %60, Grade Group 3 and unfortunattelly surgical margin is positive. (Carcinoma metastasis in 2 of 10 removed
Bmhk
in
Advanced Prostate Cancer
4 years ago
Brachytherapy, IMRT, Nanoknife or Active Surveillance
Hi I recently obtained a second opinion from Professor Stricker, NSW, Australia. I’m in Tasmania. Active surveillance now for a little over 12 months. Sought a second opinion from second urologist mentioned above. Professor Stricker stated that due to 80% volume in two core samples and 5% in one
Hi I recently obtained a second opinion from Professor Stricker, NSW, Australia. I’m in Tasmania. Active surveillance now for a little over 12 months. Sought a second opinion from second urologist mentioned above. Professor Stricker stated that due to 80% volume in two core samples and 5% in one
Aussieguy1
in
Active Surveillance - Prostate Cancer
4 years ago
Stricture at Bulbar after HDRBT and IMRT - Seeking Advice
A G9, had both HDRBT and IMRT in 2017. Also, ADT (Eligard and Zytiga) ended on January 2019. I am in SoCal. March of 2019 had a complete blockage and it was a stricture at Bulbar, Uro did a Direct Visual Internal Urethrotomy and it has been good for about 15 months now. Last week had a cystoscopy due
A G9, had both HDRBT and IMRT in 2017. Also, ADT (Eligard and Zytiga) ended on January 2019. I am in SoCal. March of 2019 had a complete blockage and it was a stricture at Bulbar, Uro did a Direct Visual Internal Urethrotomy and it has been good for about 15 months now. Last week had a cystoscopy due
akaipop3ps
in
Advanced Prostate Cancer
4 years ago
Interesting report on the efficacy of IMRT on prostate cancer
An 8-year study comparing the results of various cancer treatments concluded that IMRT is equal to or in some cases superior to other treatments such as brachytherapy and surgery. Among the numbers mentioned were: "Men with localized prostate cancer who are treated with external-beam radiation therapy
An 8-year study comparing the results of various cancer treatments concluded that IMRT is equal to or in some cases superior to other treatments such as brachytherapy and surgery. Among the numbers mentioned were: "Men with localized prostate cancer who are treated with external-beam radiation therapy
Don_1213
in
Advanced Prostate Cancer
4 years ago
Bone Mets or Arthritis?
Hello all, I’m increasingly confused about how radiologists differentiate between PC bone mets and routine degenerative changes like arthritis. Bear with me... My husband’s initial CT scan on 8/19 stated “Lytic lesion is seen in T7 as seen on the recent bone scan. A lytic lesion in the right L5 vertebral
Hello all, I’m increasingly confused about how radiologists differentiate between PC bone mets and routine degenerative changes like arthritis. Bear with me... My husband’s initial CT scan on 8/19 stated “Lytic lesion is seen in T7 as seen on the recent bone scan. A lytic lesion in the right L5 vertebral
Dett
in
Advanced Prostate Cancer
4 years ago
PORTOS
I’m beginning week 3 of IMRT after a small uptick in my PSA from .01 to .03. Things are going well but in my head I am bugged by the fact that I had a low PORTOS score associated with my DECIPHER GRID. Neither my urologist nor either of the two RO’s I spoke with before treatment seemed very interested
I’m beginning week 3 of IMRT after a small uptick in my PSA from .01 to .03. Things are going well but in my head I am bugged by the fact that I had a low PORTOS score associated with my DECIPHER GRID. Neither my urologist nor either of the two RO’s I spoke with before treatment seemed very interested
Jmr11820
in
Advanced Prostate Cancer
4 years ago
Clenil modulite
Well - my Christmas’s have all come at once!!! Opened a new inhaler - to find they have now put a counter in the inhaler chamber (the brown bit at the back) ... I’m sooooi happy!! Does anyone know if they’ve done the same to the ventolin yet?
Well - my Christmas’s have all come at once!!! Opened a new inhaler - to find they have now put a counter in the inhaler chamber (the brown bit at the back) ... I’m sooooi happy!! Does anyone know if they’ve done the same to the ventolin yet?
Hidden
in
Asthma Community Forum
4 years ago
Decision Matrix Conundrum
So I completed IMRT to my left hemi-pelvis with boost to 2 nodes there that lit up on Ga-PSMA scan last October. Used adjuvant ADT with degarelix plus estradiol patches. Approximately 5-6 months until T levels recovered. Post RT my PSA fell by about half (.25 to .15 and staying there for 3 months now
So I completed IMRT to my left hemi-pelvis with boost to 2 nodes there that lit up on Ga-PSMA scan last October. Used adjuvant ADT with degarelix plus estradiol patches. Approximately 5-6 months until T levels recovered. Post RT my PSA fell by about half (.25 to .15 and staying there for 3 months now
MateoBeach
in
Advanced Prostate Cancer
4 years ago
“Undetectable”
Hello All, My husband (diagnosed 8/19 with APC - Gleason 9 PSA 77 - stage four with three mets) is nearing completion of radiation treatment for oligometastatic PC (three Cyberknife treatments with subsequent five weeks IMRT - seven treatments remaining). He has been on Casodex and Eligard since diagnosis
Hello All, My husband (diagnosed 8/19 with APC - Gleason 9 PSA 77 - stage four with three mets) is nearing completion of radiation treatment for oligometastatic PC (three Cyberknife treatments with subsequent five weeks IMRT - seven treatments remaining). He has been on Casodex and Eligard since diagnosis
Dett
in
Advanced Prostate Cancer
4 years ago
A Pain in the Butt
For a whole year after my prostatectomy I felt like I had a "charley horse" in my right butt cheek. I complained about it to my medical oncologist and he had a radiation oncologist zap my sacrum with 800gys of IMRT. About two weeks later the pain was gone! Now, many years later, I'm feeling a similar
For a whole year after my prostatectomy I felt like I had a "charley horse" in my right butt cheek. I complained about it to my medical oncologist and he had a radiation oncologist zap my sacrum with 800gys of IMRT. About two weeks later the pain was gone! Now, many years later, I'm feeling a similar
Scoofer33
in
Advanced Prostate Cancer
4 years ago
Clenil Modulite
Hi, thank you to all of you for helping me with my reaction to the above. Have seen GP this morning and now have a prescription for a new inhaler, I have to collect from pharmacy shortly, can't remember the name of the new one but fingers crossed. Still coughing and spluttering from my Clenil dose
Hi, thank you to all of you for helping me with my reaction to the above. Have seen GP this morning and now have a prescription for a new inhaler, I have to collect from pharmacy shortly, can't remember the name of the new one but fingers crossed. Still coughing and spluttering from my Clenil dose
Enchilada
in
Asthma Community Forum
4 years ago
Clenil Modulite
Hi Everyone, I am new, joined within the last two weeks. Really appreciate reading this forum and learning from you all. I was officially diagnosed two weeks ago, adult onset asthma, I am 64, and had absolutely no knowledge of asthma whatsoever. I have been taking the above for two weeks and seeing
Hi Everyone, I am new, joined within the last two weeks. Really appreciate reading this forum and learning from you all. I was officially diagnosed two weeks ago, adult onset asthma, I am 64, and had absolutely no knowledge of asthma whatsoever. I have been taking the above for two weeks and seeing
Enchilada
in
Asthma Community Forum
4 years ago
Rectal problems following HDR and IMRT
Finished HDR and IMRT a couple months ago. Since then have had difficulty with bowel movements. GI doc not much help. Colonoscopy a risk due to my age 80. Recently read about a radiation side effect called proctitis which seems to present with the symptoms I’m having. Anyone having similar experience
Finished HDR and IMRT a couple months ago. Since then have had difficulty with bowel movements. GI doc not much help. Colonoscopy a risk due to my age 80. Recently read about a radiation side effect called proctitis which seems to present with the symptoms I’m having. Anyone having similar experience
VN6465
in
Advanced Prostate Cancer
4 years ago
A small rise in PSA What do you think of my plan
I'm a 76 1/3 yo that has spent 2 1/4 yrs on Zytiga had IMRT, SBRT to the bone and on Xgeva. Psa was <.1 for 8 mos and has risen to .2 Alk Phos looks good. I'm expecting PSA will not go down and plan to try again to get Dexamethasone prescribed in lieu of pred. Will provide my MO in advance of next visit
I'm a 76 1/3 yo that has spent 2 1/4 yrs on Zytiga had IMRT, SBRT to the bone and on Xgeva. Psa was <.1 for 8 mos and has risen to .2 Alk Phos looks good. I'm expecting PSA will not go down and plan to try again to get Dexamethasone prescribed in lieu of pred. Will provide my MO in advance of next visit
ctflatlander
in
Advanced Prostate Cancer
4 years ago
Puzzled - stepping up preventer medicine when symptoms come on so quickly
My asthma was well controlled after a number of weeks on
Clenil
Modulite
. Then a GP suggested I step down to 1 puff twice a day from 2. All was well until I got a chest infection; I was given antibiotics and salmeterol, went back to 2 puffs, and saw some improvement within a week.
My asthma was well controlled after a number of weeks on
Clenil
Modulite
. Then a GP suggested I step down to 1 puff twice a day from 2. All was well until I got a chest infection; I was given antibiotics and salmeterol, went back to 2 puffs, and saw some improvement within a week.
pen5377
in
Asthma Community Forum
4 years ago
Lymphopenia after whole pelvic radiation
To anyone who received whole pelvic radiation: 16 months ago I had HDR brachytherapy followed by IMRT and whole pelvic radiation (WPR), after 7 months of lupron and zytiga (+pred) (I just finished 24 months of lupron+Z). 6 months ago I had a whole blood count (WBC) with differential, and in it I saw
To anyone who received whole pelvic radiation: 16 months ago I had HDR brachytherapy followed by IMRT and whole pelvic radiation (WPR), after 7 months of lupron and zytiga (+pred) (I just finished 24 months of lupron+Z). 6 months ago I had a whole blood count (WBC) with differential, and in it I saw
BruceSF
in
Advanced Prostate Cancer
4 years ago
Post IMRT questions
Have not been here for a while. I had IMRT about 14 months ago and have been on Lupron for a little longer. My Questions: Had a recent heart attack (minor) and have a history of heart trouble. I believe I read somewhere during my furious research phase at the beginning that Lupron may not be the best
Have not been here for a while. I had IMRT about 14 months ago and have been on Lupron for a little longer. My Questions: Had a recent heart attack (minor) and have a history of heart trouble. I believe I read somewhere during my furious research phase at the beginning that Lupron may not be the best
Stellabell
in
Prostate Cancer Network
4 years ago
1
...
19
20
21
...
36
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
395 results
Asthma Community Forum
156 results
Prostate Cancer Network
82 results
View top 10 communities
Sort by
Most Relevant
Newest