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Experiences with
Chronic kidney disease (CKD)
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Physio and CBD
hi. My mum (81) has CBD, diagnosed December 2019 but had symptoms for about 3/4 years before. Due to lockdown and other circumstances, she’s just started to see a neuro physio. Her right arm is the ‘alien limb’ and mum hasn’t been able to do anything with it really but the physio wanted her to try and
hi. My mum (81) has CBD, diagnosed December 2019 but had symptoms for about 3/4 years before. Due to lockdown and other circumstances, she’s just started to see a neuro physio. Her right arm is the ‘alien limb’ and mum hasn’t been able to do anything with it really but the physio wanted her to try and
Daffodil41
in
PSP Association
1 year ago
Monday due to have exercise MRI
I had a heart attach 7.5 years ago. Now having had an episode of severe chest pain and a two night hospital stay - no troponin increase or iffy ecg, I’ve got to have a stress MRY on Monday and I’m absolutely terrified. Has anyone on here had one?
I had a heart attach 7.5 years ago. Now having had an episode of severe chest pain and a two night hospital stay - no troponin increase or iffy ecg, I’ve got to have a stress MRY on Monday and I’m absolutely terrified. Has anyone on here had one?
jo0267
in
Sudden Cardiac Arrest & Heart Attack
1 year ago
Does anyone with CKD have any experience with Circle of Care phone calls? They say they are part of my drs medical group, but they arent.
My husband thinks it's a scam. They said my dr signed me up, my drs ofc say they never heard of them. I told them to quit calling me. They said they are a medicare program and the only way I can get out of it is to quit Medicare. Say what, that sounds like communism.
My husband thinks it's a scam. They said my dr signed me up, my drs ofc say they never heard of them. I told them to quit calling me. They said they are a medicare program and the only way I can get out of it is to quit Medicare. Say what, that sounds like communism.
chicablue
in
Kidney Disease
1 year ago
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Uveitis treatment opinion please
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
I have been an intermediate uveitis patient ( vasculitis of the eye) for about 18 months now. Have had several steroid implants in the eye and has been on methotexrate injections for 6 months now. But the oedema due to vasculitis is coming back repeatedly. So seems like I have 2 options now in terms
Udupik
in
Vasculitis UK
1 year ago
Supplement Reverses Hallmarks Of Old Age And Promotes Healthier Aging
Good Morning All, I thought this may be of interest to some or many. The supplement "Glynac" (combination of Glycine and N-acetylcysteine) showed after 16 weeks of participants taking doses of 100 mg/kg/d each of glycine and NAC, was associated with a host of benefits for key hallmarks of aging and
Good Morning All, I thought this may be of interest to some or many. The supplement "Glynac" (combination of Glycine and N-acetylcysteine) showed after 16 weeks of participants taking doses of 100 mg/kg/d each of glycine and NAC, was associated with a host of benefits for key hallmarks of aging and
Baron1
in
Cure Parkinson's
1 year ago
A Sneak Peek Into The 2023 Ice Cream Challenge for PSP & CBD
In time for Valentine's Day. Milk chocolate heart bowl line filled with white chocolate, whipped cream, milk and white chocolate hearts, two scoops of strawberry ice cream, freshly sliced strawberries, strawberry sauce with chocolate dipped strawberries.
In time for Valentine's Day. Milk chocolate heart bowl line filled with white chocolate, whipped cream, milk and white chocolate hearts, two scoops of strawberry ice cream, freshly sliced strawberries, strawberry sauce with chocolate dipped strawberries.
daddyt
in
PSP Association
1 year ago
Newbie
Morning from the old lady 4am wee club!I have a slow heart rate. Recently had a diagnosis of paroxysmal AF from a 24hr holter. My rate ranges from 38 to 125 +. My general resting is anywhere from 48 to 52. ECG at A and E always shows as normal.sinus. Waiting for a cardiology appointment. Still
Morning from the old lady 4am wee club!I have a slow heart rate. Recently had a diagnosis of paroxysmal AF from a 24hr holter. My rate ranges from 38 to 125 +. My general resting is anywhere from 48 to 52. ECG at A and E always shows as normal.sinus. Waiting for a cardiology appointment. Still
Cheryl2710
in
AF Association
1 year ago
Ectopic Beats ruining my life
So I’ve always suffered with anxiety all my life, last year I was going through a lot of stress with work and in December I got stranded in Germany due to bad snow. I was having panic attacks with heart palpitations over Christmas then on Boxing Day I had sat down and I felt this weird thud/flutter in
So I’ve always suffered with anxiety all my life, last year I was going through a lot of stress with work and in December I got stranded in Germany due to bad snow. I was having panic attacks with heart palpitations over Christmas then on Boxing Day I had sat down and I felt this weird thud/flutter in
Sammi25
in
AF Association
1 year ago
Health anxiety or health issue
So before i start, let me make clear that i do have some health issue Well had, i was born with a unicuspid valve and had open heart surgery 2 years ago. Up to the surgery i was a mental wreck more than before. Now after the surgery ive been Well for the most part. I have had alot of fears after that
So before i start, let me make clear that i do have some health issue Well had, i was born with a unicuspid valve and had open heart surgery 2 years ago. Up to the surgery i was a mental wreck more than before. Now after the surgery ive been Well for the most part. I have had alot of fears after that
Froller
in
Anxiety Support
1 year ago
Pregablin Life Changing
Hi I just wanted to give you all an update on my mums RLS. She was struggling to sleep and would walk around all night rolling on the floors banging her legs and this would leave her depressed agitated emotional and sometimes suicidal and she wouldnt want to get out of bed the next day. My mums RLS
Hi I just wanted to give you all an update on my mums RLS. She was struggling to sleep and would walk around all night rolling on the floors banging her legs and this would leave her depressed agitated emotional and sometimes suicidal and she wouldnt want to get out of bed the next day. My mums RLS
Ruzi
in
Restless Legs Syndrome
1 year ago
worries
I have just returned from my holiday since my return I have become more breathless the walking into the airport terminal and on the return home from the terminal during the flight my heart rate varied from 52 to 112 and at times my chest felt uncomfortable I have a diagnosis of a fib should I be concerned
I have just returned from my holiday since my return I have become more breathless the walking into the airport terminal and on the return home from the terminal during the flight my heart rate varied from 52 to 112 and at times my chest felt uncomfortable I have a diagnosis of a fib should I be concerned
Lumps
in
AF Association
1 year ago
Dr Mark Norman EP
Have been looking at EPs in my area as I believe that I’ll need an ablation eventually. I’m on flecainide and bisoprolol currently and whilst so far I’ve only had one AF event in the last 12 months (compared to every two or three months pre medication) I know that it may not last. The number of palpitations
Have been looking at EPs in my area as I believe that I’ll need an ablation eventually. I’m on flecainide and bisoprolol currently and whilst so far I’ve only had one AF event in the last 12 months (compared to every two or three months pre medication) I know that it may not last. The number of palpitations
Profound15
in
AF Association
1 year ago
Other HealthUnlocked groups
Trying to find out if there are any groups for AF,
CKD
and AMD for my parents. Can't seem to find any way to navigate to other groups.
Trying to find out if there are any groups for AF,
CKD
and AMD for my parents. Can't seem to find any way to navigate to other groups.
Nagswoman
in
PMRGCAuk
2 years ago
October 15th - 23 years later
When I was first diagnosed with
CKD
in 1992, a friend gave me this poem.
ATTITUDE
The longer I live, the more I realize the impact of attitude on life.
When I was first diagnosed with
CKD
in 1992, a friend gave me this poem.
ATTITUDE
The longer I live, the more I realize the impact of attitude on life.
WYOAnne
NKF Ambassador
in
Kidney Disease
2 years ago
heart failure with solitary kidney CKD, multiple health problems
hi I’m 51 I’ve had two mini strokes in last six months, I had an echocardiogram the results showed impaired left ventricular systolic function- heart failure. I also only have one kidney and that has deteriorated to a function of 54% I feel the specialist have left me in limbo, I have angina and feel
hi I’m 51 I’ve had two mini strokes in last six months, I had an echocardiogram the results showed impaired left ventricular systolic function- heart failure. I also only have one kidney and that has deteriorated to a function of 54% I feel the specialist have left me in limbo, I have angina and feel
Holisticang
in
British Heart Foundation
2 years ago
A question.
I went for an ECG today which is basically a yearly check re taking Dronedarone. Unfortunately, I was asked to lie down in a totally flat position which leaves me feeling nauseous. I mentioned this to my wife who quite automatically said "Why don't they take your ECG when you are upright"? Which when
I went for an ECG today which is basically a yearly check re taking Dronedarone. Unfortunately, I was asked to lie down in a totally flat position which leaves me feeling nauseous. I mentioned this to my wife who quite automatically said "Why don't they take your ECG when you are upright"? Which when
JayDJ
in
AF Association
1 year ago
Coming off meds - any advice?
Hoping you are all having a good day. I’ve just had the news that my three month post ablation ambulatory ECG has given good results - ‘very reassuring’ and ‘no sign of AF’. So far, so good. I was told that I can stop Flecainide today and Bisoprolol after a further two months. I’d welcome your comments
Hoping you are all having a good day. I’ve just had the news that my three month post ablation ambulatory ECG has given good results - ‘very reassuring’ and ‘no sign of AF’. So far, so good. I was told that I can stop Flecainide today and Bisoprolol after a further two months. I’d welcome your comments
Leggylady
in
AF Association
1 year ago
Beta Blockers for Portal Hypertension /heart failure
Advice please for the type of Beta Blockers someone with Portal Hypertension and Heart Failure might be put on. I'm currently on Nebivolol for HF.
Advice please for the type of Beta Blockers someone with Portal Hypertension and Heart Failure might be put on. I'm currently on Nebivolol for HF.
Curryandchips
in
British Liver Trust
1 year ago
Angioplasty tomorrow...in urgent need of advice asap pls
Hi all angioplasty booked for tomorrow but not sure if I should go ahead with it or just cancel. Reason for procedure: Doc wants to investigate extent of artery blockage in order to prescribe flecanide medication for afib. If blockage is severe he will fit a stent during the procedure. Got quite a shock
Hi all angioplasty booked for tomorrow but not sure if I should go ahead with it or just cancel. Reason for procedure: Doc wants to investigate extent of artery blockage in order to prescribe flecanide medication for afib. If blockage is severe he will fit a stent during the procedure. Got quite a shock
DizzyD
in
Atrial Fibrillation Support
1 year ago
Continuing Healthcare
Hi all. Just wondering if anyone on here that has CBD or a loved one with the condition has been refused continuing healthcare funding. We’re currently awaiting the result of my dads assessment. Thanks
Hi all. Just wondering if anyone on here that has CBD or a loved one with the condition has been refused continuing healthcare funding. We’re currently awaiting the result of my dads assessment. Thanks
Stormtrooper4
in
PSP Association
1 year ago
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