Search
Search
About
Log in
Join
Experiences with
Chronic renal failure
Posts
Communities
4,686 public posts
Filter results
BNP levels raised
Hello everybody I had to have a blood test recently as have been getting slightly more short of breath (SOB) on stairs and slopes. may have been due to some other meds I was prescribed. The GP phoned me and said i have a slightly raised BNP level and i have a face to face appointment with her on Wednesday
Hello everybody I had to have a blood test recently as have been getting slightly more short of breath (SOB) on stairs and slopes. may have been due to some other meds I was prescribed. The GP phoned me and said i have a slightly raised BNP level and i have a face to face appointment with her on Wednesday
Wightbaby
in
AF Association
9 months ago
B CELL lymphoma
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Tchapman
in
CLL Support
7 months ago
Heart failure
My mum had heart failure. Was placed in a nursing home for end of life care. A DNR was placed on her . She went down really quickly and last few weeks of her life she was tormented having hallucinations. It was awful On her 6th day. I was called at 5pm to go in she had deteriorated and
My mum had heart failure. Was placed in a nursing home for end of life care. A DNR was placed on her . She went down really quickly and last few weeks of her life she was tormented having hallucinations. It was awful On her 6th day. I was called at 5pm to go in she had deteriorated and
Jencpj71
in
Thyroid UK
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Petechia
I have been treated with Ibrutinib for 16 months and have responded to treatment really well. My white blood count was 148.7 when I started treatment now I am 14.7. I have Petechia on arms and legs. My platelets are 278. Just wondering what could be causing this. This is my first time to post and
I have been treated with Ibrutinib for 16 months and have responded to treatment really well. My white blood count was 148.7 when I started treatment now I am 14.7. I have Petechia on arms and legs. My platelets are 278. Just wondering what could be causing this. This is my first time to post and
Glasstop
in
CLL Support
7 months ago
CLL/SLL and ischemic bowel death
My brother had untreated SLL. He died March 2022, after a week of omicron Covid infection that seemed to pass mid January of that year. We have heard rumors that many with CLL/SLL die of blood clot/ischemia, but I have been unable to confirm. Are there data to confirm this? I myself have CLL, which
My brother had untreated SLL. He died March 2022, after a week of omicron Covid infection that seemed to pass mid January of that year. We have heard rumors that many with CLL/SLL die of blood clot/ischemia, but I have been unable to confirm. Are there data to confirm this? I myself have CLL, which
prichman
in
CLL Support
7 months ago
Treatment for life?
Hello. First time posting here. Diagnosed with CLL in July by flow test and Fish test. Although still technically in lymphocytosis. My chart says diagnosis: CLL. During the discussion in July my Dr told me of things they will be keeping an eye on. Then he said he won't discuss particular treatment plans
Hello. First time posting here. Diagnosed with CLL in July by flow test and Fish test. Although still technically in lymphocytosis. My chart says diagnosis: CLL. During the discussion in July my Dr told me of things they will be keeping an eye on. Then he said he won't discuss particular treatment plans
Quiltingone
in
CLL Support
7 months ago
Pain in the spleen/splenomegaly
Hello, maybe someone has an idea. After 5 years w&w my spleen has now enlarged (splenomegaly). I've also been having pain on my left side for a few days now. Are there any natural or herbal ways I can support my spleen? Because I don't want to have a spleen removed. I don't take any other medicine,
Hello, maybe someone has an idea. After 5 years w&w my spleen has now enlarged (splenomegaly). I've also been having pain on my left side for a few days now. Are there any natural or herbal ways I can support my spleen? Because I don't want to have a spleen removed. I don't take any other medicine,
Omaschnabel
in
CLL Support
7 months ago
Mutation Levels
I have seen other discussions re bad mutations , on my regular letter to my doctor from my haematologist it states : Chronic Lymphocytic Leukemia associated with high risk variants including loss of the LEU and ATM genes. As per my normal blood results, do these have a high and low level and if so
I have seen other discussions re bad mutations , on my regular letter to my doctor from my haematologist it states : Chronic Lymphocytic Leukemia associated with high risk variants including loss of the LEU and ATM genes. As per my normal blood results, do these have a high and low level and if so
uide3095
in
CLL Support
7 months ago
Drs. Susan O'Brien and Catherine Wu Presented the Binet-Rai Medal at 20th International Workshop on Chronic Lymphocytic Leukemia
Two doctors who have spent many many hours helping the CLL community.
I FEEL SURE THAT WE ALL EXPRESS OUR MANY THANKS.
THIS IS AN AWARD THAT IS WELL DESERVED.
During this past weekend's 20th biennial International Workshop on Chronic Lymphocytic Leukemia (iwCLL), Susan M
Two doctors who have spent many many hours helping the CLL community.
I FEEL SURE THAT WE ALL EXPRESS OUR MANY THANKS.
THIS IS AN AWARD THAT IS WELL DESERVED.
During this past weekend's 20th biennial International Workshop on Chronic Lymphocytic Leukemia (iwCLL), Susan M
Kwenda
in
CLL Support
7 months ago
Fed Up with everything.
I have been on haemodialysis since May. Having completed all the tests etc at the beginning of November, I was just waiting to go live in the transplant list. My previous consultant, who is now on maternity leave, said my results were good and she even said, I would probably receive a new kidney before
I have been on haemodialysis since May. Having completed all the tests etc at the beginning of November, I was just waiting to go live in the transplant list. My previous consultant, who is now on maternity leave, said my results were good and she even said, I would probably receive a new kidney before
Ziggydoodah
in
Kidney Dialysis
1 year ago
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD- replay, slides and transcript
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD https://www.lls.org/patient-education-webcasts/spotlight-chronic-lymphocytic-leukemia-cll https://youtu.be/6KziJk3zQ_I Topics Covered: Emerging therapies and clinical trials for CLL Managing side effects Strategies
Spotlight on Chronic Lymphocytic Leukemia (CLL) May 24, 2023 Nicole Lamanna, MD https://www.lls.org/patient-education-webcasts/spotlight-chronic-lymphocytic-leukemia-cll https://youtu.be/6KziJk3zQ_I Topics Covered: Emerging therapies and clinical trials for CLL Managing side effects Strategies
lankisterguy
Volunteer
in
CLL Support
7 months ago
LET'S TALK CLL- Patients & Doctors Discuss the Latest Live! SATURDAY, OCTOBER 14, 2023 Virtual program starts at 10am CDT 11am EDT
LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Latest Live! DATE: SATURDAY, OCTOBER 14, 2023 LOCATION: MD ANDERSON CANCER CENTER Virtual program begins at 10am (CT). Register here: https://us06web.zoom.us/webinar/register/5216926341361/WN_8BHNtMXZR9Gjf211Nh_lhA - We're
LIVE & IN-PERSON EVENT- LET'S TALK CLL Patients & Doctors Discuss the Latest Live! DATE: SATURDAY, OCTOBER 14, 2023 LOCATION: MD ANDERSON CANCER CENTER Virtual program begins at 10am (CT). Register here: https://us06web.zoom.us/webinar/register/5216926341361/WN_8BHNtMXZR9Gjf211Nh_lhA - We're
lankisterguy
Volunteer
in
CLL Support
7 months ago
Shingrix availability on PBS in Australia from 1 November has been confirmed
[u][i]SEE THIS REPLY [/i][/u][u]for the latest update to this post[/u]: https://healthunlocked.com/cllsupport/posts/150056558/shingrix-availability-on-pbs-in-australia-from-1-november-has-been-confirmed?responses=150067213 Earlier this year, I posted about a possible change to the PBS to make Shingrix
[u][i]SEE THIS REPLY [/i][/u][u]for the latest update to this post[/u]: https://healthunlocked.com/cllsupport/posts/150056558/shingrix-availability-on-pbs-in-australia-from-1-november-has-been-confirmed?responses=150067213 Earlier this year, I posted about a possible change to the PBS to make Shingrix
CLLerinOz
Volunteer
in
CLL Support
7 months ago
Post Pace and Ablate
hi all a few days ago I posted my most recent rendering…spoke to a Dr yesterday who confirmed that I didn’t have heart failure that news was absolutely wonderful…he confirmed it by discharge letter comments and the last EKG that I had done at the hospital last Thursday. But had the most awful night
hi all a few days ago I posted my most recent rendering…spoke to a Dr yesterday who confirmed that I didn’t have heart failure that news was absolutely wonderful…he confirmed it by discharge letter comments and the last EKG that I had done at the hospital last Thursday. But had the most awful night
Lamplight37
in
AF Association
10 months ago
Richters Transformation
I recently informed here that after nine therapy free years since 2014 (FCR) my CLL bounced back in 10/2022 with an DLBCL and a suspicion of Richters. Biopsy and Lab tests predicted that. Therefore I was immediately treated with R-CHOP 14 CI Therapy first in Hospital one week and then within the ambulance
I recently informed here that after nine therapy free years since 2014 (FCR) my CLL bounced back in 10/2022 with an DLBCL and a suspicion of Richters. Biopsy and Lab tests predicted that. Therefore I was immediately treated with R-CHOP 14 CI Therapy first in Hospital one week and then within the ambulance
seoul1949
in
CLL Support
8 months ago
Post Pace and Ablate now diagnosed with Heart Failure
hi ….I have posted on here a few times ..back in Feb this year I saw privately Cardio specialising in AF …as I wasn’t enjoying a reasonable quality of life …starting to get out of breath…he said with no question Pace and Ablate ..Ihave had AF for approx 15 years. With usual drugs Bisoprolol …Edoxoban
hi ….I have posted on here a few times ..back in Feb this year I saw privately Cardio specialising in AF …as I wasn’t enjoying a reasonable quality of life …starting to get out of breath…he said with no question Pace and Ablate ..Ihave had AF for approx 15 years. With usual drugs Bisoprolol …Edoxoban
Lamplight37
in
AF Association
10 months ago
flow cytometry is showing about 74% CLL involvement.
Is it likely that treatment might be needed in the near future? Husband is trisomy 12, TP53 negative. Mutated. He has splenomegaly, and enlarged nodes. Fish is in process. INTERPRETATION A phenotypically abnormal population with forward and right-angle scatter features of small lymphocytes constitutes
Is it likely that treatment might be needed in the near future? Husband is trisomy 12, TP53 negative. Mutated. He has splenomegaly, and enlarged nodes. Fish is in process. INTERPRETATION A phenotypically abnormal population with forward and right-angle scatter features of small lymphocytes constitutes
juniper1975
in
CLL Support
8 months ago
CLL and mRNA Vaccines
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
BWHR
in
CLL Support
8 months ago
Very High Reverse T3 level. Should I be concerned.
Out of the blue I decided to get my Reverse T3 level checked as I’ve never had it done before and I was rather curious. I have Central hypothyroidism. I currently take 150 mcgs of Levo , 20 mcgs T3 and 10 mgs of hydrocortisone. My most recent blood results were - TSH - 0 ulU/ml
Out of the blue I decided to get my Reverse T3 level checked as I’ve never had it done before and I was rather curious. I have Central hypothyroidism. I currently take 150 mcgs of Levo , 20 mcgs T3 and 10 mgs of hydrocortisone. My most recent blood results were - TSH - 0 ulU/ml
Joesmum
in
Thyroid UK
10 months ago
p17 deletion. Can anyone advise or cheer me up?!
Hi! I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic leukaemia (CLL) and suspected Chronic myelomonocytic leukaemia (CMML), I have been still at early stage and not needing treatment. However, yesterday I received a copy of my consultant’s latest report with new blood
Hi! I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic leukaemia (CLL) and suspected Chronic myelomonocytic leukaemia (CMML), I have been still at early stage and not needing treatment. However, yesterday I received a copy of my consultant’s latest report with new blood
Fogey
in
CLL Support
8 months ago
1
...
8
9
10
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
1509 results
CLL Support
1431 results
Lung Conditions Community Forum
358 results
View top 10 communities
Sort by
Most Relevant
Newest