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Is it ok to smoke marijuana or to take edibles with cll?
It gives me relief from general anxiety and unsettling feeling of going to a medical facility. Has anyone had any experience with using this for the two reasons mentioned above? Thank you.
It gives me relief from general anxiety and unsettling feeling of going to a medical facility. Has anyone had any experience with using this for the two reasons mentioned above? Thank you.
Jessielab
in
CLL Support
7 months ago
Hypo type episode while on Forxiga /Dapaglaflozin, waiting for pacemaker upgrade. Any experiences with this drug anyone?
I felt sweaty and shaky after skipping breakfast this morning, and looking at the leaflet for Dapaglaflozin, I see one of the side effects is to cause low blood sugar levels. It's a diabetes drug which has been found to help with Heart Failure patients. It makes you pee away blood sugar. So I ate some
I felt sweaty and shaky after skipping breakfast this morning, and looking at the leaflet for Dapaglaflozin, I see one of the side effects is to cause low blood sugar levels. It's a diabetes drug which has been found to help with Heart Failure patients. It makes you pee away blood sugar. So I ate some
Coco51
in
Atrial Fibrillation Support
10 months ago
Should I be worried?
Hi All, my Haemo Lady, just called me with my Bone Marrow Biopsy results, She, said they were heavily infiltrated with CLL. A recent body scan also showed a large lump in my stomach, she is not sure if it is related to my CLL, or perhaps an aggressive lymphoma. She has ordered a needle biopsy of this
Hi All, my Haemo Lady, just called me with my Bone Marrow Biopsy results, She, said they were heavily infiltrated with CLL. A recent body scan also showed a large lump in my stomach, she is not sure if it is related to my CLL, or perhaps an aggressive lymphoma. She has ordered a needle biopsy of this
Vindicatrix
in
CLL Support
7 months ago
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Home dialysis will soon be possible for more kidney patients
Just in time for World Kidney Day, March 9, Israeli company gets FDA nod for game-changing home digital dialysis system. Healthy kidneys automatically filter waste from the blood 24/7. But for millions of people with advanced kidney disease – including about 570,000 Americans — that essential task is
Just in time for World Kidney Day, March 9, Israeli company gets FDA nod for game-changing home digital dialysis system. Healthy kidneys automatically filter waste from the blood 24/7. But for millions of people with advanced kidney disease – including about 570,000 Americans — that essential task is
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
venetoclax and obinutuzumab treatment for cll
Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?
Hi, I have finished the above 12 months treatment for cll tp53 mutated, I now have 2 monthly checks and my lymphocytes are low, is this a cause for concern?
dellkota
in
CLL Support
7 months ago
First six-month blood test, and my lymphocytes have gone down!
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
I’m soon to be 55. I was diagnosed in the UK with MBL this summer. My lymphocytes were at six with over 50% of them monoclonal cells. I’ve just had my six-month check. I’ve come down to 4.8. I know that these numbers can move around quite a lot, but for now I’m really happy with the trend. I did change
Jazzandblues
in
CLL Support
7 months ago
Longstanding Persistent AF
Hi All, I am new here, so bear with me!!...Diagnosed with AF 2 years ago ( HR 146, reduced to below 100 on treatment ) in A&E here in the UK. I was an active runner ( 5-10K races ) with a RHR of about 52. I am 68 , and I have hardly any symptoms. I had an ablation in the May ( this year ) which put
Hi All, I am new here, so bear with me!!...Diagnosed with AF 2 years ago ( HR 146, reduced to below 100 on treatment ) in A&E here in the UK. I was an active runner ( 5-10K races ) with a RHR of about 52. I am 68 , and I have hardly any symptoms. I had an ablation in the May ( this year ) which put
FSsimmer
in
AF Association
10 months ago
CLL Patients -- Venclexta
I am looking for CLL patients in the U.S. who have been diagnosed within 3-4 years and who are taking Venclexta as their treatment. I work with an organization (Patient Power) that shares patient stories to help advocate and educate others on various cancers. By sharing your journey, you can help support
I am looking for CLL patients in the U.S. who have been diagnosed within 3-4 years and who are taking Venclexta as their treatment. I work with an organization (Patient Power) that shares patient stories to help advocate and educate others on various cancers. By sharing your journey, you can help support
AlexCam
in
CLL Support
7 months ago
bnp level high, breathlessness and fluid in lungs. What does this mean?
hello everyone. I have posted relatively frequently, most recently because my weight loss surgery was cancelled due to high heart rate(120-130) in persistent af and breathlessness. The gp gave me additional bisoprolol which brought hr down to about 90. Breathlessness has continued, possibly due to
hello everyone. I have posted relatively frequently, most recently because my weight loss surgery was cancelled due to high heart rate(120-130) in persistent af and breathlessness. The gp gave me additional bisoprolol which brought hr down to about 90. Breathlessness has continued, possibly due to
Rhiannonimity1
in
AF Association
10 months ago
Decreased keft ventricul ejection fraction
Hi all, went for my annual echocardiogram and was told my left ventricular ejection fraction is 50% and it is 5 % lower than last year. It normally stays at 55 % . Has appointment with my dr next weekWant to ask my friends here is it something concerning. Just want to get the opinion from people who
Hi all, went for my annual echocardiogram and was told my left ventricular ejection fraction is 50% and it is 5 % lower than last year. It normally stays at 55 % . Has appointment with my dr next weekWant to ask my friends here is it something concerning. Just want to get the opinion from people who
Poluneeru
in
AF Association
10 months ago
Shock diagnosis and 4 week wait for follow up at rapid-access Heart Failure clinic. Is my anxiety justified?
Two weeks ago I went for a stress echo test. It was a real shock that after a preliminary echo the test was abandoned. Serious faces and mutterings all round ensued, and a cardiologist came in, studied the screen and told me I had heart failure! She advised me not to go on my planned holiday till
Two weeks ago I went for a stress echo test. It was a real shock that after a preliminary echo the test was abandoned. Serious faces and mutterings all round ensued, and a cardiologist came in, studied the screen and told me I had heart failure! She advised me not to go on my planned holiday till
Coco51
in
Atrial Fibrillation Support
10 months ago
New to the group. Should I worry concerning my latest blood results?
New to the group. First post even if I regularly read what is posted. Dx in March 2023. But CLL for at least 2 years. Unmutated, triso 12 and q (14,19). On W&W. 53 years old. I had an appointment with my Cll doctor one month ago and a bit worried. Wbc 48 000 Monocytes 12000 ALC 29 000 LDH 550 I understood
New to the group. First post even if I regularly read what is posted. Dx in March 2023. But CLL for at least 2 years. Unmutated, triso 12 and q (14,19). On W&W. 53 years old. I had an appointment with my Cll doctor one month ago and a bit worried. Wbc 48 000 Monocytes 12000 ALC 29 000 LDH 550 I understood
povhgc
in
CLL Support
7 months ago
confused!!!
hi everyone hope you are all as well as you could be!!! I’m struggling big time now! I have a strange situation which I wonder if anyone else has? I became unwell end of July this year , tests started and diagnosed CLL it took a further few tests like MRI CT Scan and bone marrow biopsy only to be told
hi everyone hope you are all as well as you could be!!! I’m struggling big time now! I have a strange situation which I wonder if anyone else has? I became unwell end of July this year , tests started and diagnosed CLL it took a further few tests like MRI CT Scan and bone marrow biopsy only to be told
Dragonfly766
in
CLL Support
8 months ago
Transformation of Richter's Transformation Treatment to combination targeted therapy - tislelizumab +zanubrutinib (ASH 2023)
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
Richter's Transformation treatments are typically fixed term R-CHOP*, or modifications of that chemoimmunity therapy. So it's encouraging to hear that [i]"In a phase 2 trial, anti-PD-1 inibitor tislelizumab + next gen BTK inhibitor zanubrutinib had an overall response rate of 58.3% in patients with Richter's
AussieNeil
Partner
in
CLL Support
8 months ago
AI and CLL
it hasn’t really been covered here yet, but AI and ML is beginning to influence medicine. With all the big techs chasing AI development, the ability for AI to discover new novel proteins at a rate beyond what could ever happen in a lab. We are likely to see an uptick in treatments and maybe even cures
it hasn’t really been covered here yet, but AI and ML is beginning to influence medicine. With all the big techs chasing AI development, the ability for AI to discover new novel proteins at a rate beyond what could ever happen in a lab. We are likely to see an uptick in treatments and maybe even cures
MovingForward4423
in
CLL Support
8 months ago
How you can help make ibrutinib plus venetoclax fixed duration therapy a reality for Australians with previously untreated CLL
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
CLLerinOz
Administrator
in
CLL Support
8 months ago
symptoms of CLL
I was diagnosed w CLL in Dec 2019. I’m on a watch and wait protocol with blood work every 6 months. My question is if I’m not on any meds yet, can I still have symptoms of occasional extreme fatigue, recurrent infections and sometimes feeling like I’m always fighting off something? Is this caused by
I was diagnosed w CLL in Dec 2019. I’m on a watch and wait protocol with blood work every 6 months. My question is if I’m not on any meds yet, can I still have symptoms of occasional extreme fatigue, recurrent infections and sometimes feeling like I’m always fighting off something? Is this caused by
RockymtnTexan
in
CLL Support
8 months ago
new to Group
hello, I’m New to this group. I’m hoping for some basic information regarding how you live with leukemia. I have chronic kidney disease. I received a deceased donor transplant 13 months ago. My transplant team has had real difficulty dealing with dangerously low white blood cell count. I’ve received
hello, I’m New to this group. I’m hoping for some basic information regarding how you live with leukemia. I have chronic kidney disease. I received a deceased donor transplant 13 months ago. My transplant team has had real difficulty dealing with dangerously low white blood cell count. I’ve received
Jayhawker
in
CLL Support
8 months ago
comments and why is body super bloated water retention
hi I asked my endo to test reverse t3 which is pointless it seems . here is the info replied Also since being on t3 - pleaee has anyone experienced kidney issues ? my face is super swollen and changed and legs blowing up again Hi Sarah, I cannot do reverse T3 as this is not a test that is
hi I asked my endo to test reverse t3 which is pointless it seems . here is the info replied Also since being on t3 - pleaee has anyone experienced kidney issues ? my face is super swollen and changed and legs blowing up again Hi Sarah, I cannot do reverse T3 as this is not a test that is
Chouchou1234
in
Thyroid UK
10 months ago
Any advice for travel insurance with previous Pulmonary Embolisms?
Hello all. After a bad bout of pneumonia/pleurisy 18 months ago had a crisis and diagnosed with non acute pulmonary embolisms. I haven't really improved and appear to have some heart failure etc since. Now I wondered if anyone with similar has managed to get health insurance for flying to Spain for
Hello all. After a bad bout of pneumonia/pleurisy 18 months ago had a crisis and diagnosed with non acute pulmonary embolisms. I haven't really improved and appear to have some heart failure etc since. Now I wondered if anyone with similar has managed to get health insurance for flying to Spain for
jib70
in
Lung Conditions Community Forum
10 months ago
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