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Very Scared
I have to admit that I have avoided this forum because I am still so scared of my condition. I have my first Cardiologist appointment on Thursday and I am absolutely terrified of what will happen and feel like a complete coward. I have possible heart failure of which afib is only one symptom. I had other
I have to admit that I have avoided this forum because I am still so scared of my condition. I have my first Cardiologist appointment on Thursday and I am absolutely terrified of what will happen and feel like a complete coward. I have possible heart failure of which afib is only one symptom. I had other
Grigbey56
in
AF Association
4 years ago
***sensitive**** rising beta levles
Okay so we got the results of my second beta hcg levles today and they jumped to a 1275 from a 385 in just 2 days..... is that a normal range for 12dp5dt? Seems high but either way I am so excited she is growing away in there!!!
Okay so we got the results of my second beta hcg levles today and they jumped to a 1275 from a 385 in just 2 days..... is that a normal range for 12dp5dt? Seems high but either way I am so excited she is growing away in there!!!
Jldurham73
in
Fertility Network UK
3 years ago
***sensitive** BFP and high hcg level...ovulation induction
Hi to anyone reading this... I feel very grateful to be writing this but just wanted to put it out there as worrying here. I had ovulation induction treatment with trigger coming up to 3 weeks ago now and have had 1st blood test today and hcg has come back at 1612....has anyone had experience of this
Hi to anyone reading this... I feel very grateful to be writing this but just wanted to put it out there as worrying here. I had ovulation induction treatment with trigger coming up to 3 weeks ago now and have had 1st blood test today and hcg has come back at 1612....has anyone had experience of this
Emrevic
in
Fertility Network UK
3 years ago
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Scottish Medicines Agency has decided in favour of Venetoclax plus Obintuzumab for some patients.
The SMC has accepted venetoclax in combination with obinutuzumab for use in certain patients. There is a restriction that means that venetoclax may be used together with obinutuzumab as a fixed term treatment in two subgroups of patients with CLL who have not yet had any treatment for their CLL: - patients
The SMC has accepted venetoclax in combination with obinutuzumab for use in certain patients. There is a restriction that means that venetoclax may be used together with obinutuzumab as a fixed term treatment in two subgroups of patients with CLL who have not yet had any treatment for their CLL: - patients
Jm954
Administrator
in
CLL Support
4 years ago
Off we go again ๐ค๐ผ๐
Just started a full bleed from the chemical pregnancy phoned our clinic and they are happy to start the progress for the next frozen transfer from Monday, so first things first baseline scan and to double check HCG is back to below 1! I hope everything is ok๐ค๐ผ Going to ask what we can do different
Just started a full bleed from the chemical pregnancy phoned our clinic and they are happy to start the progress for the next frozen transfer from Monday, so first things first baseline scan and to double check HCG is back to below 1! I hope everything is ok๐ค๐ผ Going to ask what we can do different
LibzyRxx
in
Fertility Network UK
3 years ago
****SENSATIVE**** OTD AND BFP!!!! ๐๐๐
We just had our first hcg results come in and they were a 385 and 9dp5dt so we are officially pregnant!!!!! I hope these numbers are good keep rising! I just want to say thank you to all of you amazing women who have been supportive and helpful during all of this!!! Being on here helped me through and
We just had our first hcg results come in and they were a 385 and 9dp5dt so we are officially pregnant!!!!! I hope these numbers are good keep rising! I just want to say thank you to all of you amazing women who have been supportive and helpful during all of this!!! Being on here helped me through and
Jldurham73
in
Fertility Network UK
3 years ago
CLL Canada Statement on COVID - 19 Vaccines
From: CLL CANADA [mailto:cllcanada.org@gmail.com] Sent: Saturday, December 5, 2020 12:08 PM Subject: Will COVID vaccines work for CLL patients? Dear CLL Canada members The recent news of successful vaccine trials have many of us wondering whether they will be safe and whether they will work for
From: CLL CANADA [mailto:cllcanada.org@gmail.com] Sent: Saturday, December 5, 2020 12:08 PM Subject: Will COVID vaccines work for CLL patients? Dear CLL Canada members The recent news of successful vaccine trials have many of us wondering whether they will be safe and whether they will work for
lankisterguy
Volunteer
in
CLL Support
4 years ago
HCG levels at 4weeks pregnant - possibly twins?
Hi, I transferred 2 embryos because of my age (41) to increase the chances of one sticking. Iโm now 12dp5dt and my HCG blood test has come back measuring 1730. Anyone else with twins started off with the same levels? Obviously I wonโt know until the scan in 2 weeks but it would be helpful to hear about
Hi, I transferred 2 embryos because of my age (41) to increase the chances of one sticking. Iโm now 12dp5dt and my HCG blood test has come back measuring 1730. Anyone else with twins started off with the same levels? Obviously I wonโt know until the scan in 2 weeks but it would be helpful to hear about
Murielsmom
in
Fertility Network UK
4 years ago
Inherited?
CLL Society ASH 2019 Inherited? Does an inherited defect in the germline ATM tumor suppressor gene contribute to the development of CLL? Dr. Jennifer Brown found that one in four CLL patients studied had a variance (mutation) in their ATM gene. https://cllsociety.org/2020/11/ash-2019-dr-jennifer-brown-on-atm-gene-variants-in-chronic-lymphocytic-leukemia-cll
CLL Society ASH 2019 Inherited? Does an inherited defect in the germline ATM tumor suppressor gene contribute to the development of CLL? Dr. Jennifer Brown found that one in four CLL patients studied had a variance (mutation) in their ATM gene. https://cllsociety.org/2020/11/ash-2019-dr-jennifer-brown-on-atm-gene-variants-in-chronic-lymphocytic-leukemia-cll
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
HCG LOWER
๐๐ so my bloods have come back to 28 which is lower than Thursdays (which where 34). Has anyone ever had their bloods come back lower than the previous test or am I out the game?!? ๐ญ
๐๐ so my bloods have come back to 28 which is lower than Thursdays (which where 34). Has anyone ever had their bloods come back lower than the previous test or am I out the game?!? ๐ญ
LibzyRxx
in
Fertility Network UK
4 years ago
Advice-has anyone done a FET with a HCG injection after transfer to aid implantation?
Hey lovely ladies, I have recently read about hcg injections being used to help the endometrium to communicate with blastocyst once tranferred? In natural reproduction we start secreting small amounts of this to help this process, with IVF this can sometimes be lost so HCG is used after to help the
Hey lovely ladies, I have recently read about hcg injections being used to help the endometrium to communicate with blastocyst once tranferred? In natural reproduction we start secreting small amounts of this to help this process, with IVF this can sometimes be lost so HCG is used after to help the
Masief
in
Fertility Network UK
4 years ago
10dp5dt - SENSITIVE - home test
Weโve never actually had a positive home test so when we did this mornings it seemed a little surreal. It showed straight away too! No having to wait the 3 minutes! ๐๐ Another bloods test tomorrow to hopefully see my HCG double ๐ค๐ผ
Weโve never actually had a positive home test so when we did this mornings it seemed a little surreal. It showed straight away too! No having to wait the 3 minutes! ๐๐ Another bloods test tomorrow to hopefully see my HCG double ๐ค๐ผ
LibzyRxx
in
Fertility Network UK
4 years ago
COVID -19 Vaccinations for CLL patients ?
Here is an opinion from my CLL expert doctor copied from https://groups.io/g/CLLSLL/message/30481?reply=1 with permission from the writer Richard Furman MD [i] Date: Thu, 26 Nov 2020 12:51:33 EST We don't know if they are effective nor whether there will be unanticipated side effects in CLL patients
Here is an opinion from my CLL expert doctor copied from https://groups.io/g/CLLSLL/message/30481?reply=1 with permission from the writer Richard Furman MD [i] Date: Thu, 26 Nov 2020 12:51:33 EST We don't know if they are effective nor whether there will be unanticipated side effects in CLL patients
lankisterguy
Volunteer
in
CLL Support
4 years ago
Revisiting Ibrutinib , but then no Venetoclax?
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
Me2AsWell
in
CLL Support
4 years ago
Alan Hyde - QE Hospital Birmingham.
Many people who have received their liver transplant at the QE, will most likely know of Alan Hyde. Alan has been a strong supporter of the QE for over 14-years, visiting patients on the liver transplant ward (726), Alan was also chairman of the โQueen Elizabeth Liver Patients Support Groupโ, and featured
Many people who have received their liver transplant at the QE, will most likely know of Alan Hyde. Alan has been a strong supporter of the QE for over 14-years, visiting patients on the liver transplant ward (726), Alan was also chairman of the โQueen Elizabeth Liver Patients Support Groupโ, and featured
Richard-Allen
in
British Liver Trust
4 years ago
Another study on Thyroid function and Heart Failure that relies on TSH only
https://pubmed.ncbi.nlm.nih.gov/33115640/ Relation Between Thyroid Function and Mortality in Patients With Chronic Heart Failure Nathan A Samuel , Joseph J Cuthbert , Oliver I Brown , Syed Kazmi , John G F Cleland , Alan S Rigby , Andrew L Clark PMID: 33115640 DOI: 10.1016/j.amjcard.2020.10.034
https://pubmed.ncbi.nlm.nih.gov/33115640/ Relation Between Thyroid Function and Mortality in Patients With Chronic Heart Failure Nathan A Samuel , Joseph J Cuthbert , Oliver I Brown , Syed Kazmi , John G F Cleland , Alan S Rigby , Andrew L Clark PMID: 33115640 DOI: 10.1016/j.amjcard.2020.10.034
holyshedballs
in
Thyroid UK
4 years ago
Furosemide side effects
I am suffering severe hearing loss and inflammation of big toe joints. I understand these are known side effects of the diuretic Furosemide. It was prescribed by GP because I have slight heart failure and various heart valve problems and in danger of water collecting round organs, although I have no
I am suffering severe hearing loss and inflammation of big toe joints. I understand these are known side effects of the diuretic Furosemide. It was prescribed by GP because I have slight heart failure and various heart valve problems and in danger of water collecting round organs, although I have no
Pityme91
in
AF Association
4 years ago
85 year old not coping with nor responding to treatment
Hi, I am new. My Dad has CLL which has just become symptomatic after 5 years. He has had 3 treatments of Obinutuzimab and Chlorambucil , the first one made him so ill he was rushed to ICU. Now he seems to have hemalosis, as his RBC is very low at 70 and will not increase even after 8 blood transfusions
Hi, I am new. My Dad has CLL which has just become symptomatic after 5 years. He has had 3 treatments of Obinutuzimab and Chlorambucil , the first one made him so ill he was rushed to ICU. Now he seems to have hemalosis, as his RBC is very low at 70 and will not increase even after 8 blood transfusions
TKB2020
in
CLL Support
4 years ago
Hyperbaric oxygen therapy...
I just read about a trial of volunteers in Israel who took hyperbaric oxygen therapy (HBOT) for 90 minutes a day, 5 days a week, for 3 months, and the results were apparently nothing less than extraordinary in reversing the ageing process. I then briefly checked the internet and found that dating back
I just read about a trial of volunteers in Israel who took hyperbaric oxygen therapy (HBOT) for 90 minutes a day, 5 days a week, for 3 months, and the results were apparently nothing less than extraordinary in reversing the ageing process. I then briefly checked the internet and found that dating back
Pogee
in
CLL Support
4 years ago
I need advice please!
Hi everyone! I am 5 days late so I been testing with 1st Response and getting faint positives so my question is: do you think its a chemical pregnancy or low hcg levels?
Hi everyone! I am 5 days late so I been testing with 1st Response and getting faint positives so my question is: do you think its a chemical pregnancy or low hcg levels?
Mzmomof3
in
Pregnancy and Parenting Support
4 years ago
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