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Bone Pain
I was diagnosed with CLL/SLL in 2019. I have the usual fatigue all the time along with a few other issues. Now, I am having bone pain in my rib cage. It’s in my lower center ribs and along the edges of the bottom of my ribs but hurting worse on each of my sides and center bottom of my ribs. has anyone
I was diagnosed with CLL/SLL in 2019. I have the usual fatigue all the time along with a few other issues. Now, I am having bone pain in my rib cage. It’s in my lower center ribs and along the edges of the bottom of my ribs but hurting worse on each of my sides and center bottom of my ribs. has anyone
Willowbug
in
CLL Support
11 months ago
Stem cell transplant starts on Monday
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
Jm954
Administrator
in
CLL Support
1 year ago
mood and cll
Isn't it interesting how when you are in your disease treatment period, you just are a warrior that gets things done! At least this has been my experience with O and V trial. It was time consuming and quite a process, but I focused and just did what I had to do. Fast forward to my LAST bone marrow
Isn't it interesting how when you are in your disease treatment period, you just are a warrior that gets things done! At least this has been my experience with O and V trial. It was time consuming and quite a process, but I focused and just did what I had to do. Fast forward to my LAST bone marrow
Gardengirl44
in
CLL Support
1 year ago
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Anoro
A few weeks ago I had a text to arrange my annual COPD review. This is normally with the practice nurse who can prescribe medications too. I was surprised to be given a Doctor appointment. I am mild COPD and was taking Salmeterol and Carbocisteine. It seemed quite effective. The doctor advised that I
A few weeks ago I had a text to arrange my annual COPD review. This is normally with the practice nurse who can prescribe medications too. I was surprised to be given a Doctor appointment. I am mild COPD and was taking Salmeterol and Carbocisteine. It seemed quite effective. The doctor advised that I
kc110
in
Lung Conditions Community Forum
6 months ago
Calquence / acalabrutinib and Brukinsa / zanubrutinib Adverse Event Comparison for Chronic Lymphocytic Leukaemia / CLL from clinical trials
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
AussieNeil
Partner
in
CLL Support
1 year ago
8DP5DT - FRER Line Progression
The first test was 6dp5dt at 5am The second test was 7dp5dt at 9pm (had time to darken which doesn't help) Third test was this morning at 5am. I also did a clear blue digital yesterday morning and got a big old positive I know that HCG doubles every 48-72 hours. I know that you should take the same
The first test was 6dp5dt at 5am The second test was 7dp5dt at 9pm (had time to darken which doesn't help) Third test was this morning at 5am. I also did a clear blue digital yesterday morning and got a big old positive I know that HCG doubles every 48-72 hours. I know that you should take the same
SurrogateFriend
in
Fertility Network UK
2 hours ago
Both LH and HCG positive
This is my 6th week since first miscarriage. I have confirmed negative hcg 3 times before. Have been tracking my LH just to see how my body is reacting, which as usual started with very low LH. I'm getting high LH now since 5 days, I never ovulated on my own before (atleast never checked) and I was suspicious
This is my 6th week since first miscarriage. I have confirmed negative hcg 3 times before. Have been tracking my LH just to see how my body is reacting, which as usual started with very low LH. I'm getting high LH now since 5 days, I never ovulated on my own before (atleast never checked) and I was suspicious
UnicornDust22
in
Fertility Network UK
2 days ago
Worried tests are getting lighter / hook effect
I'm really worried and sorry to be asking again. But I did a test today (5+6) after disappearance of my only symptom and the test was quite light (bottom test) compared to the one i did about 5 days ago. I had heard of the hook effect so tried it by diluting with water (top test) and the test line did
I'm really worried and sorry to be asking again. But I did a test today (5+6) after disappearance of my only symptom and the test was quite light (bottom test) compared to the one i did about 5 days ago. I had heard of the hook effect so tried it by diluting with water (top test) and the test line did
Skittles11
in
Fertility Network UK - Pregnancy Support
3 days ago
Low HCG levels
Hi all, just looking for some hope I guess. I had 5day FET. Was testing positive lightly from day 6. Has blood test 12 days after it was 72 then 4 days later was 205. Now I'm going to have my 3rd test today. Dr said it doesn't sound very promising 😔 my urine tests have progressively got darker but no
Hi all, just looking for some hope I guess. I had 5day FET. Was testing positive lightly from day 6. Has blood test 12 days after it was 72 then 4 days later was 205. Now I'm going to have my 3rd test today. Dr said it doesn't sound very promising 😔 my urine tests have progressively got darker but no
joanne2024
in
Fertility Network UK
4 days ago
Testing out the trigger
Curious to know when people got the first clear negative if you tested out the trigger? I took Ovitrelle 250 9 days ago and I am now 2dp5dt. I did a test today as I wanted to be sure the trigger was gone from my system but there was a clear but faint second line. Internet says it can stay for up
Curious to know when people got the first clear negative if you tested out the trigger? I took Ovitrelle 250 9 days ago and I am now 2dp5dt. I did a test today as I wanted to be sure the trigger was gone from my system but there was a clear but faint second line. Internet says it can stay for up
BlahBlah55
in
Fertility Network UK
5 days ago
*Sensitive* 6 weeks 3 days empty sac
Hi girls, Sorry if you don't need to read this today - please scroll on by. I'm after a bit of reassurance really - I had good HCG on OTD and had my viability scan today - unfortunately the dr was only able to see an empty sac. No foetal pole or yolk. I'm desperately hoping it's too early but my
Hi girls, Sorry if you don't need to read this today - please scroll on by. I'm after a bit of reassurance really - I had good HCG on OTD and had my viability scan today - unfortunately the dr was only able to see an empty sac. No foetal pole or yolk. I'm desperately hoping it's too early but my
Millbanks
in
Fertility Network UK
6 days ago
late progynova dose at 4w5d (FET) - looking for reassurance
hi. I’m 4w5d pregnant following FET. I’m on quite a lot of medication due to having trouble getting my lining to thicken - 2x Cyclogest pessaries (taken rectally for the last 3 weeks because of irritation), 1x lubion injection, 6x2mg progynova tablets, and also estradiol patches 2x per week. On Tuesday
hi. I’m 4w5d pregnant following FET. I’m on quite a lot of medication due to having trouble getting my lining to thicken - 2x Cyclogest pessaries (taken rectally for the last 3 weeks because of irritation), 1x lubion injection, 6x2mg progynova tablets, and also estradiol patches 2x per week. On Tuesday
emma_g87
in
Fertility Network UK
6 days ago
Reassurance about clear blue digital tests.
Hi all When did people see 3+ weeks on there clear blue digital tests? I am currently 5 weeks and 4 days. My HCG levels on the 13th was 592 so by now should be over in the 9000 area. I have not had this retested. My test from this afternoon has read 2-3 weeks still. So I am now worried I am experiencing
Hi all When did people see 3+ weeks on there clear blue digital tests? I am currently 5 weeks and 4 days. My HCG levels on the 13th was 592 so by now should be over in the 9000 area. I have not had this retested. My test from this afternoon has read 2-3 weeks still. So I am now worried I am experiencing
Lulu9345
in
Fertility, Miscarriage & IVF Support
8 days ago
Symptoms - where are they?
Hi, I’m 5wk 5 days - FET and I have zero symptoms. I know it’s still early but I almost want them all to bring some reassurance. Yes I would say I’m more tired; but then I’m always tired 😂 but other than that nothing! I had my hcg bloods at 4+5 and repeated at 5 weeks and they had all but doubled (
Hi, I’m 5wk 5 days - FET and I have zero symptoms. I know it’s still early but I almost want them all to bring some reassurance. Yes I would say I’m more tired; but then I’m always tired 😂 but other than that nothing! I had my hcg bloods at 4+5 and repeated at 5 weeks and they had all but doubled (
Toffeepudding99
in
Fertility Network UK - Pregnancy Support
9 days ago
General Question re positive test lines
If you do a test on test day for fet and it were to say you were pregnant are the lines supposed to continue to get darker? Should you keep testing or just wait and do a hcg blood test? As I'm guessing how strong/diluted your urine is will also have impact on the darkness of the line? At what point would
If you do a test on test day for fet and it were to say you were pregnant are the lines supposed to continue to get darker? Should you keep testing or just wait and do a hcg blood test? As I'm guessing how strong/diluted your urine is will also have impact on the darkness of the line? At what point would
Flora14
in
Fertility Network UK
11 days ago
10 days post fresh embryo transfer
Hi everyone. Hope we are holding up. Please is it possible to get a urine positive test 9 or 10 days past embryo fresh transfer. I.e 16 days past hcg trigger injection? Really feel like testing😢
Hi everyone. Hope we are holding up. Please is it possible to get a urine positive test 9 or 10 days past embryo fresh transfer. I.e 16 days past hcg trigger injection? Really feel like testing😢
FioFio
in
Fertility Network UK
11 days ago
HCG Result- 9dpt
Hello Everyone, I just got my HCG tested today 9dpt , and it is 131.Do you think it is good? My clinic confirmed my pregnancy and booked me for a 6 week scan on the 3rd June. How will I know if my HCG is doubling? This makes me worry now.
Hello Everyone, I just got my HCG tested today 9dpt , and it is 131.Do you think it is good? My clinic confirmed my pregnancy and booked me for a 6 week scan on the 3rd June. How will I know if my HCG is doubling? This makes me worry now.
MrsXX
in
Fertility Network UK
12 days ago
Shocking turn of events and I'm terrified- reassurance appreciated
Hi - sorry in advance for long post!I've had a really shocking turn of events this week (I'm normally on the other forum) and hoping I can get some reassurance. The context is that I've been TTC for 5 years and have tried IVF multiple times. Had an early natural miscarriage back in 2020. In 2021 for
Hi - sorry in advance for long post!I've had a really shocking turn of events this week (I'm normally on the other forum) and hoping I can get some reassurance. The context is that I've been TTC for 5 years and have tried IVF multiple times. Had an early natural miscarriage back in 2020. In 2021 for
Skittles11
in
Fertility Network UK - Pregnancy Support
12 days ago
No Line Progression?? **5DPT to 8DPT**
Hi All, Today is 8DP5DT. I am so terrified that this transfer didn't work, as I cannot see any line progression. Is there any hope? My HCG is booked for tomorrow.
Hi All, Today is 8DP5DT. I am so terrified that this transfer didn't work, as I cannot see any line progression. Is there any hope? My HCG is booked for tomorrow.
MrsXX
in
Fertility Network UK
13 days ago
Hypogonadal - 4 months Orgovyxx- 1 year later- No recovery to baseline 286 only at 98- No libido- TRT?
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
JWS13
in
Advanced Prostate Cancer
17 days ago
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