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Chronic leukaemia
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CLL 17p - Rituximab/Imbruvica then Rituximab/Venetoclax or enter in a clinical trial ?
lymphocytic
leukaemia
(CLL)"...
lymphocytic
leukaemia
(CLL)"...
Noham027
in
CLL Support
3 years ago
How to request test for chromosome 17p deletion, TP 53 mutation; unmutated immunoglobulin heavy chain variable region (IgHV) in Canada?
We live in Brampton, Ontario in Canada. My wife diagnosed with CLL in Dec 2020. We did not have the opportunity to talk to a hematologist in person and appointment only by phone and the Hematologist said it is CLL and nothing to be worried just the w & w situation. When I start questioning further
We live in Brampton, Ontario in Canada. My wife diagnosed with CLL in Dec 2020. We did not have the opportunity to talk to a hematologist in person and appointment only by phone and the Hematologist said it is CLL and nothing to be worried just the w & w situation. When I start questioning further
Sagarcanada
in
CLL Support
3 years ago
Does green tea extract (EGCG can) reduce WBC in CLL?
I have read some positive things about green tea extract to treat CLL so our Hematologist said just W & W but we could not stop and search about the CLL and its alternative methods of treatment from food and tea etc. Finally, we found that EGCG is useful to reduce the WBC or postpone development symptoms
I have read some positive things about green tea extract to treat CLL so our Hematologist said just W & W but we could not stop and search about the CLL and its alternative methods of treatment from food and tea etc. Finally, we found that EGCG is useful to reduce the WBC or postpone development symptoms
Sagarcanada
in
CLL Support
3 years ago
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Advice from family members of dialysis He
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Husbandtobe
in
Dialysis Support
3 years ago
Unknown location pregnancy IVF
^^^ Unknown Location Pregnancy IVF^^^ Hi everybody. I would like to share my current situation and ask for your opinions please, if anyone has experienced the same thing. I did the embryo transfer on May 25th. I got anxious after my IVF tranfer and wanted to confirm if everything was going ok. I did
^^^ Unknown Location Pregnancy IVF^^^ Hi everybody. I would like to share my current situation and ask for your opinions please, if anyone has experienced the same thing. I did the embryo transfer on May 25th. I got anxious after my IVF tranfer and wanted to confirm if everything was going ok. I did
Adanali
in
Fertility Network UK
3 years ago
Abdominal rls after a kidney transplant
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
ESRDRLS
in
Restless Legs Syndrome
3 years ago
Feeling so horrible and in pain since EC. What can I do?
Hello lovely people! I'm currently 9 days past a 5 day transfer and I'm feeling awful. I have been having pain since my egg collection and although the pain is different now- it's still there and the discomfort is getting worse. First of all I'm still extremely bloated. I'm not using progesterone or
Hello lovely people! I'm currently 9 days past a 5 day transfer and I'm feeling awful. I have been having pain since my egg collection and although the pain is different now- it's still there and the discomfort is getting worse. First of all I'm still extremely bloated. I'm not using progesterone or
IvfStruggler
in
Fertility Network UK
3 years ago
Chlorambucil
I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on Obinutzumib but I had anaphylaxis and it was terminated. Hope this helps. Jan x
I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on Obinutzumib but I had anaphylaxis and it was terminated. Hope this helps. Jan x
JanChas
in
CLL Support
3 years ago
Low hcg - not looking good
So after letting myself get excited over our BFP my clinic has called to say my hcg is very low (34 on 10dp5dt). Feeling absolutely heart broken and facing the added complication that we were due to fly to Scotland this evening to see our family for the first time in over 18 months and instead I need
So after letting myself get excited over our BFP my clinic has called to say my hcg is very low (34 on 10dp5dt). Feeling absolutely heart broken and facing the added complication that we were due to fly to Scotland this evening to see our family for the first time in over 18 months and instead I need
Llizzie
in
Fertility Network UK
3 years ago
Enlarged Spleen
I have post Pv Myelofibrosis and am on Ruxolitinib. My blood counts are good except for a white cell count of 21. However, my “blasts” are at 18%. I am not experiencing any major symptoms except for an enlarged Spleen that currently measures 28 cams, which is large. The Ruxolitinib is not reducing it
I have post Pv Myelofibrosis and am on Ruxolitinib. My blood counts are good except for a white cell count of 21. However, my “blasts” are at 18%. I am not experiencing any major symptoms except for an enlarged Spleen that currently measures 28 cams, which is large. The Ruxolitinib is not reducing it
billybrock
in
MPN Voice
3 years ago
Leukemia diagnosis
I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please
I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please
Mariacat01
in
CLL Support
3 years ago
Antibody test
I just got my 2nd covid vaccination, Moderna. I would like to get an antibody test in a few weeks to make sure it did the job since they don't know yet whether the vaccine will work with CLL. Has anyone else done/ considered this idea? Is it even feasible?
I just got my 2nd covid vaccination, Moderna. I would like to get an antibody test in a few weeks to make sure it did the job since they don't know yet whether the vaccine will work with CLL. Has anyone else done/ considered this idea? Is it even feasible?
PerfectPurple
in
CLL Support
3 years ago
Symptoms that your HCG levels is rising
Hi I am on 2ww. This is my first FET. I do not have any symptoms so far except for a very intense pain in my lower abdomen (less than 5min) on day 5 after my FET. Is this normal? Is there any physical body changes symptoms showing that your HCG levels is increasing besides taking the blood test? TIA
Hi I am on 2ww. This is my first FET. I do not have any symptoms so far except for a very intense pain in my lower abdomen (less than 5min) on day 5 after my FET. Is this normal? Is there any physical body changes symptoms showing that your HCG levels is increasing besides taking the blood test? TIA
kattie22
in
Fertility Network UK
3 years ago
FDA Issues Complete Response Letter for Ropeginterferon Alfa-2b for Polycythemia Vera
The FDA has issued a complete response letter regarding the biologics license application for ropeginterferon alfa-2b-njft for the treatment of patients with polycythemia vera. The FDA has issued a complete response letter (CRL) regarding the biologics license application (BLA) for ropeginterferon alfa
The FDA has issued a complete response letter regarding the biologics license application for ropeginterferon alfa-2b-njft for the treatment of patients with polycythemia vera. The FDA has issued a complete response letter (CRL) regarding the biologics license application (BLA) for ropeginterferon alfa
JT_Marlin
in
MPN Voice
3 years ago
Interferon-Alpha Improves MFS and OS Over Standard Approaches in Polycythemia Vera
Interferon-alpha has been shown to significantly improve both myelofibrosis-free survival and overall survival over hydroxyurea and phlebotomy only in patients with polycythemia vera. Interferon-alpha (IFN) has been shown to significantly improve both myelofibrosis-free survival (MFS) and overall survival
Interferon-alpha has been shown to significantly improve both myelofibrosis-free survival and overall survival over hydroxyurea and phlebotomy only in patients with polycythemia vera. Interferon-alpha (IFN) has been shown to significantly improve both myelofibrosis-free survival (MFS) and overall survival
JT_Marlin
in
MPN Voice
3 years ago
Fatigue
Hello everyone, I am on nPlate, I am on weekly doses and been on it for 7 weeks. I am getting periods of extreme fatigue, similar to before I was diagnosed. I am not due to have another blood test to check my platelet levels for another three weeks. Does anyone else get fatigue on nPlate? Or is
Hello everyone, I am on nPlate, I am on weekly doses and been on it for 7 weeks. I am getting periods of extreme fatigue, similar to before I was diagnosed. I am not due to have another blood test to check my platelet levels for another three weeks. Does anyone else get fatigue on nPlate? Or is
DevonMaid1
in
ITP Support Association
3 years ago
Vaccine antibodies
I know there is is some concern about recent reports that blood cancer patients are at much greater risk than solid cancer patients. My understanding is that this is related to those with very low B cells. The B cells produce antibodies, hence risk that the vaccine will be less effective. Most MPN patients
I know there is is some concern about recent reports that blood cancer patients are at much greater risk than solid cancer patients. My understanding is that this is related to those with very low B cells. The B cells produce antibodies, hence risk that the vaccine will be less effective. Most MPN patients
Paul123456
in
MPN Voice
3 years ago
Any one know ......
Hi due to have my pneumonia vacination next week it's been 8 years since my last vaccination back in 2013 and they only gave me the adult one pneumovax 23 ( pnn23) then I phoned up my GPs to book this and Spoke to the practice nurse explained it's been 8 years since my last one and I wanted the
Hi due to have my pneumonia vacination next week it's been 8 years since my last vaccination back in 2013 and they only gave me the adult one pneumovax 23 ( pnn23) then I phoned up my GPs to book this and Spoke to the practice nurse explained it's been 8 years since my last one and I wanted the
stewie
in
CLL Support
3 years ago
Hello from CT
Newly diagnosed 50 year old male from Connecticut with CLL. Awaiting the results of the FISH test. Just wanted to thank everyone for the knowledge here as I have been reading and reading non stop. I am sure I will be asking many questions as I move forward but right now trying to learn everything I
Newly diagnosed 50 year old male from Connecticut with CLL. Awaiting the results of the FISH test. Just wanted to thank everyone for the knowledge here as I have been reading and reading non stop. I am sure I will be asking many questions as I move forward but right now trying to learn everything I
controlsct
in
CLL Support
3 years ago
Ruxolitinib and Anaemia
I'm struggling with heavy anaemia and very very low platelets after four months of Ruxolitinib. It's not pleasant at all, and I need blood transfusions every two weeks or so. There is a danger of my ferritin levels getting too high as well. I gather this happens a lot. I understand my Hgb levels might
I'm struggling with heavy anaemia and very very low platelets after four months of Ruxolitinib. It's not pleasant at all, and I need blood transfusions every two weeks or so. There is a danger of my ferritin levels getting too high as well. I gather this happens a lot. I understand my Hgb levels might
RobinBrum
in
MPN Voice
3 years ago
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