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possible ONJ-- seeing an oral surgeon for the first time tomorrow morning
My dentist referred me to an oral surgeon as I have a small area of exposed bone behind my right lower molar, and have been on meds for bone mets (Zometa first, now Xgeva) since diagnosis in 2004. I've done well in terms of the bone mets and the women I have met who've had ONJ have generally done well
My dentist referred me to an oral surgeon as I have a small area of exposed bone behind my right lower molar, and have been on meds for bone mets (Zometa first, now Xgeva) since diagnosis in 2004. I've done well in terms of the bone mets and the women I have met who've had ONJ have generally done well
PJBinMI
in
SHARE Metastatic Breast Cancer
2 years ago
Recurrence update
Hi lovely ladies I saw my oncologist on Friday to get results of PET scan and update of first recurrence. The scan showed another area of growth this time near my liver. Measuring 14mm same as those in diaphragm and cardio although these haven’t grown much since last scan. Extremely bright in velocity
Hi lovely ladies I saw my oncologist on Friday to get results of PET scan and update of first recurrence. The scan showed another area of growth this time near my liver. Measuring 14mm same as those in diaphragm and cardio although these haven’t grown much since last scan. Extremely bright in velocity
Barmycharm
in
My Ovacome
2 years ago
Change from Ropinerole to Rigotine patches
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
Ruffabug
in
Restless Legs Syndrome
2 years ago
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Vancouver liquid biopsy NGS for lung cancer?
Hi all, I first signed up to this support group when my Mum was diagnosed NSCLC in 2018, she sadly passed away in 2021 after trying Iressa (~1yr), chemo (~1yr), and Tagrisso (~10m). Unfortunately, my ~70yr old uncle who lives in Vancouver had a CT scan last week that showed a change (from one year
Hi all, I first signed up to this support group when my Mum was diagnosed NSCLC in 2018, she sadly passed away in 2021 after trying Iressa (~1yr), chemo (~1yr), and Tagrisso (~10m). Unfortunately, my ~70yr old uncle who lives in Vancouver had a CT scan last week that showed a change (from one year
waterchestnut
in
Lung Cancer Support
2 years ago
Survey to help us understand your experience of the different therapies/cancer drugs that are prescribed after chemotherapy has finished
This survey is to help us understand your experience of the different therapies/cancer drugs that are prescribed after
chemotherapy
has finished.
This survey is to help us understand your experience of the different therapies/cancer drugs that are prescribed after
chemotherapy
has finished.
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 years ago
Abiraterone/enzalutamide+PARP inhibitor better than abiraterone/enzalutamide alone for mCRPC, even without BRCA+
A new therapy may be approved next month for all men with mCRPC. Previously, PARP inhibitors were only approved for men with mutations in the BRCA gene (BRCA+) and a few other rare similar mutations. By combining the PARP inhibitor (Lynparza (olaparib) or Talzenna (talazoparib)) with either abiraterone
A new therapy may be approved next month for all men with mCRPC. Previously, PARP inhibitors were only approved for men with mutations in the BRCA gene (BRCA+) and a few other rare similar mutations. By combining the PARP inhibitor (Lynparza (olaparib) or Talzenna (talazoparib)) with either abiraterone
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
6 rounds of chemo before surgery HGSC
Hi everyone, has anyone had 6 rounds of chemo prior to surgery? My mum has high grade serous, not sure which stage, I think she is stage 3 at least, but now I’m worried she is stage 4 because the doctors want to do 6 rounds of chemo instead of 3 before surgery. They have said her gall bladder and spleen
Hi everyone, has anyone had 6 rounds of chemo prior to surgery? My mum has high grade serous, not sure which stage, I think she is stage 3 at least, but now I’m worried she is stage 4 because the doctors want to do 6 rounds of chemo instead of 3 before surgery. They have said her gall bladder and spleen
Shorty18
in
My Ovacome
2 years ago
CA 125… waitting CT
the story, my mom has 2nd recurrance may-sept she get carbo+taxol 8 treatments ca 125 was down from 350 to 40, some lymph was "suriver"after that but doctor sent her for watch and wait. after 2 month her ca was up to 95, after 3 month from last chemo 230 and now 5 month after chemo it is 370. if i count
the story, my mom has 2nd recurrance may-sept she get carbo+taxol 8 treatments ca 125 was down from 350 to 40, some lymph was "suriver"after that but doctor sent her for watch and wait. after 2 month her ca was up to 95, after 3 month from last chemo 230 and now 5 month after chemo it is 370. if i count
Inguc_is
in
My Ovacome
2 years ago
Rise in CA125
Hi ladies, Hope you're all well! My Mum has really had a bit of a knock back after being told of a rise in her CA125 levels. It was 16, then 22, and now shot up to 92. She's stage 4 borderline, had 6x chemo, optimal debulking surgery, and was declared NED August last year — she's also completing a year
Hi ladies, Hope you're all well! My Mum has really had a bit of a knock back after being told of a rise in her CA125 levels. It was 16, then 22, and now shot up to 92. She's stage 4 borderline, had 6x chemo, optimal debulking surgery, and was declared NED August last year — she's also completing a year
georgialocksss
in
My Ovacome
2 years ago
Tailbone Spasms from Neulasta
After my second dose of chemo (Docetaxel), I ended up in the ER with a fever. My white blood cell count was 1.2 K/CMM and Neutrophils were 0 K/CMM (!). Anyway, I was approved for Neulasta and had the injection 24 hours after my 3rd chemo infusion. Six days later I woke up with horrible pain and spasms
After my second dose of chemo (Docetaxel), I ended up in the ER with a fever. My white blood cell count was 1.2 K/CMM and Neutrophils were 0 K/CMM (!). Anyway, I was approved for Neulasta and had the injection 24 hours after my 3rd chemo infusion. Six days later I woke up with horrible pain and spasms
carguy
in
Advanced Prostate Cancer
2 years ago
Chemo brain
Hi does anybody else struggle with what is called chemo brain?
Hi does anybody else struggle with what is called chemo brain?
Platelets2022
in
Leukaemia Support
2 years ago
PSA after SBRT to T7
A recent PET/PSMA showed a single PC tumor on T7. My PSA at the time was 1.1 I was initially treated 5 years ago with ADT, Radiation to prostate and chemo and my PSA nadir was in the range of .6 to .8 over the last few years. My recent SBRT treatment was 45 gray over 5 treatments. One month after
A recent PET/PSMA showed a single PC tumor on T7. My PSA at the time was 1.1 I was initially treated 5 years ago with ADT, Radiation to prostate and chemo and my PSA nadir was in the range of .6 to .8 over the last few years. My recent SBRT treatment was 45 gray over 5 treatments. One month after
billd50
in
Advanced Prostate Cancer
2 years ago
Exon20 mutation and Mobocertinib
Hi , after the usual ‘standard’ chemo and immunotherapy ( which seriously impacted on my kidney function and had to be stopped ) I have now been diagnosed with Exon20 mutation and offered Mobocertinib . This is exactly a year after my initial diagnosis . My stage 4 adenocarcinoma and bony secondaries
Hi , after the usual ‘standard’ chemo and immunotherapy ( which seriously impacted on my kidney function and had to be stopped ) I have now been diagnosed with Exon20 mutation and offered Mobocertinib . This is exactly a year after my initial diagnosis . My stage 4 adenocarcinoma and bony secondaries
WoolleySunshine
in
The Roy Castle Lung Cancer Foundation
2 years ago
Have you experienced delays in your chemotherapy for first-line ovarian cancer? Research study seeking to hear first-hand experiences
The researchers are looking to hear from people who are keen to share their first-hand experience of delays in first line
chemotherapy
for breast or ovarian cancer.
The researchers are looking to hear from people who are keen to share their first-hand experience of delays in first line
chemotherapy
for breast or ovarian cancer.
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 years ago
rise in ca125
hi I had surgery 4 years ago to remove everything including my cervix, 2 years ago I started bleeding which turned out to be 2 Lgc in surgery the found another tumour on my uretha which the had to cut part of this way, after which I had chemo carcinoma and taxol. now my issue is in October my ca125
hi I had surgery 4 years ago to remove everything including my cervix, 2 years ago I started bleeding which turned out to be 2 Lgc in surgery the found another tumour on my uretha which the had to cut part of this way, after which I had chemo carcinoma and taxol. now my issue is in October my ca125
Heidi1965
in
My Ovacome
2 years ago
What to do?
I know that continuing with chemo is a personal thing, and that it has to be my decision, but I have no one else, who understands, to discuss this with.I had my first chemo, Carbo/Taxel in 2016,, and since then have had Avastin, Carbo/Caelyx, Rucaparib and weekly Taxel, which I finished just before Christmas
I know that continuing with chemo is a personal thing, and that it has to be my decision, but I have no one else, who understands, to discuss this with.I had my first chemo, Carbo/Taxel in 2016,, and since then have had Avastin, Carbo/Caelyx, Rucaparib and weekly Taxel, which I finished just before Christmas
27-359
in
My Ovacome
2 years ago
Former art teacher with a passion for travel
Former art teacher. I started traveling in my fifties and it became my passion (I’ve visited 41 countries so far!) until Covid and then my stage 4 diagnosis came. Diagnosed with IDC stage 3 in 2015. My great-grandmother had breast cancer in the 1920s, and an aunt had it when she was in her mid-eighties
Former art teacher. I started traveling in my fifties and it became my passion (I’ve visited 41 countries so far!) until Covid and then my stage 4 diagnosis came. Diagnosed with IDC stage 3 in 2015. My great-grandmother had breast cancer in the 1920s, and an aunt had it when she was in her mid-eighties
Chamisa
in
SHARE Metastatic Breast Cancer
2 years ago
Enhertu (Do your research first ALWAYS)
It states patient "should have had
chemotherapy
previously (I never had chemo, I was diagnosed at stage iv) or the patient should have had surgery where the cancer was gone but then returned." I never had surgery and I have been in treatment for five years.
It states patient "should have had
chemotherapy
previously (I never had chemo, I was diagnosed at stage iv) or the patient should have had surgery where the cancer was gone but then returned." I never had surgery and I have been in treatment for five years.
kearnan
in
SHARE Metastatic Breast Cancer
2 years ago
Hi all I’ve not been here for nearly 3 months time has disappeared recently. Last time here was the night before my surgery.
Surgery was ok ( In hindsight ! ). total hysterectomy bilateral salpingoophrectomy .., they took my appendix and also omentum. Histology came back as Stage 1c2 mucinous adenocarcinoma . Was suspected ( as most mucinous are ) that it was a secondary tumour from GI origin ( stomach / bowel) I’ve had
Surgery was ok ( In hindsight ! ). total hysterectomy bilateral salpingoophrectomy .., they took my appendix and also omentum. Histology came back as Stage 1c2 mucinous adenocarcinoma . Was suspected ( as most mucinous are ) that it was a secondary tumour from GI origin ( stomach / bowel) I’ve had
Deli44
in
My Ovacome
2 years ago
chemo fatigue any help out there
my husband had round 9 and last of cabitaxel two weeks ago He cannot hardly stay awake for more than a few minutes and can go nowhere and can’t even think straight We are flying from Scotland to London for scans next Monday for pre Lutetium treatment Not sure he will be up to it Say thing I can
my husband had round 9 and last of cabitaxel two weeks ago He cannot hardly stay awake for more than a few minutes and can go nowhere and can’t even think straight We are flying from Scotland to London for scans next Monday for pre Lutetium treatment Not sure he will be up to it Say thing I can
Hidden
in
Advanced Prostate Cancer
2 years ago
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