Search
Search
About
Log in
Join
Experiences with
Cerebral vasculitis
Posts
Communities
802 public posts
Filter results
Leg lesion biopsy result
Evening/morning all Letter from dermatologist 8th June Received today Dear Laura, This is to confirm your biopsy showed very little, although there was possibly a late stage of vasculitis. There was certainly no way of making a diagnosis from this & if matters are not improved then it is important
Evening/morning all Letter from dermatologist 8th June Received today Dear Laura, This is to confirm your biopsy showed very little, although there was possibly a late stage of vasculitis. There was certainly no way of making a diagnosis from this & if matters are not improved then it is important
LauraMk30
in
Vasculitis UK
7 years ago
Article in the Guardian newspaper about walking sticks
I have
cerebral
vasculitis
, in a very MS-like form. I always now use at least 1 stick, often 2, and sometimes my manual wheelchair.
I have
cerebral
vasculitis
, in a very MS-like form. I always now use at least 1 stick, often 2, and sometimes my manual wheelchair.
vivdunstan
Volunteer
in
Vasculitis UK
7 years ago
secondary cns vasculitis
I just started prednisone and am wondering how long before my tingling in arms in legs will subside.. Has anyone else had this?
I just started prednisone and am wondering how long before my tingling in arms in legs will subside.. Has anyone else had this?
judyann
in
Vasculitis UK
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anca vasculitis and diet
Hi everyone, my husband has anca vasculitis and I've been trying out Holistic approaches with him. Trying to use food as medicine Since it's well known that sugar and carbs are inflammatory foods, do you watch how much you consume? And if you do, does it seem to be helping? Do you have a certain
Hi everyone, my husband has anca vasculitis and I've been trying out Holistic approaches with him. Trying to use food as medicine Since it's well known that sugar and carbs are inflammatory foods, do you watch how much you consume? And if you do, does it seem to be helping? Do you have a certain
Christina1960
in
Vasculitis UK
7 years ago
Son with Vasculiti Anca Associata with renal involvement
Hi I write from north of Italy. In March of this year the doctor told us that my son, who is 11 years old and 1/2, has an aggressive form of Vasculiti Anca Associata with renal involvement. At first they saw a Rapidly progressive glomerulonephritis that now after due mounths of cyclophosphamide, Prednisone
Hi I write from north of Italy. In March of this year the doctor told us that my son, who is 11 years old and 1/2, has an aggressive form of Vasculiti Anca Associata with renal involvement. At first they saw a Rapidly progressive glomerulonephritis that now after due mounths of cyclophosphamide, Prednisone
Wizzi
in
Vasculitis UK
7 years ago
Recently diagnosed, halfway through treatment
Just want to relate my experience here, as all accounts seem to be useful. Symptoms started in February this year: what felt like a blocked nose. Exacerbated when eating and especially drinking alcohol. I had five visits to my clinic, seeing different GPs, and all suggested it was allergic and recommended
Just want to relate my experience here, as all accounts seem to be useful. Symptoms started in February this year: what felt like a blocked nose. Exacerbated when eating and especially drinking alcohol. I had five visits to my clinic, seeing different GPs, and all suggested it was allergic and recommended
astrachan2
in
Vasculitis UK
7 years ago
Emg to help diagnose cerebral vasculitis?
Will an emg tell if it's
cerebral
vasculitis
? It's been 5 years and trying to get a diagnosis.. I have had many chronic symptoms that move around, but this one never goes away. Thank you for any help. Judy
Will an emg tell if it's
cerebral
vasculitis
? It's been 5 years and trying to get a diagnosis.. I have had many chronic symptoms that move around, but this one never goes away. Thank you for any help. Judy
judyann
in
Vasculitis UK
7 years ago
Update Of Today
Hey everyone, I got to the ambulatory Emergency care unit at 10am this morning. Plan of action was bloods, Halter monitor & Dermatology Opinion. Had my bloods taken which were ENA ANTI Ds DNA C2 blood test & more for autoantibodies. I was told 10 days for results. I met the Dermatologist, have
Hey everyone, I got to the ambulatory Emergency care unit at 10am this morning. Plan of action was bloods, Halter monitor & Dermatology Opinion. Had my bloods taken which were ENA ANTI Ds DNA C2 blood test & more for autoantibodies. I was told 10 days for results. I met the Dermatologist, have
LauraMk30
in
Vasculitis UK
7 years ago
Tingling in all four limbs.. What type of vasculitis?
Hi everyone. Going for emg in 3 weeks. Tingling is in arms and legs. Started in only legs for a long time. Is this every form of vasculitis? Thank you for any help with this..
Hi everyone. Going for emg in 3 weeks. Tingling is in arms and legs. Started in only legs for a long time. Is this every form of vasculitis? Thank you for any help with this..
judyann
in
Vasculitis UK
7 years ago
Vasculitis flares
I have been suffering a number of flares which have in the past been treated by an increase in steroids however last weekend I suffered a bad one resulting in a bad, red, angry looking skin rash rendering me unable to walk. I am due to discuss something newly proposed tomorrow which involved a weekly
I have been suffering a number of flares which have in the past been treated by an increase in steroids however last weekend I suffered a bad one resulting in a bad, red, angry looking skin rash rendering me unable to walk. I am due to discuss something newly proposed tomorrow which involved a weekly
Lauriescott1
in
Vasculitis UK
7 years ago
EGPA/Churg-Strauss? New Member, recent Diagnosis
Hi All- I'm new to the community. is there anyone else here diagnosed with Eosinophilic Granulomatosis Polyangiitis (EGPA)/Churg-Strauss? I received my diagnosis in December 2016 and have been in treatment since. Vasculitis affecting both of my legs, but gratefully seems too be limited to the legs only
Hi All- I'm new to the community. is there anyone else here diagnosed with Eosinophilic Granulomatosis Polyangiitis (EGPA)/Churg-Strauss? I received my diagnosis in December 2016 and have been in treatment since. Vasculitis affecting both of my legs, but gratefully seems too be limited to the legs only
grindhaus
in
Vasculitis UK
7 years ago
Google Annalytics Vasculitis UK website March 1st - March 31st 2017
Google Analytics Vasculitis website March 1st - March 31st 2017 for those with an interest 26,167 users 66,634 pages viewed Average time 2 mins 4 seconds 74% new visitors 26% returning visitors Top 5 types viewed EGPA ( CSS ) HSP IgA Vasculitis GCA Urticarial Vasculitis GPA Top 15 countries
Google Analytics Vasculitis website March 1st - March 31st 2017 for those with an interest 26,167 users 66,634 pages viewed Average time 2 mins 4 seconds 74% new visitors 26% returning visitors Top 5 types viewed EGPA ( CSS ) HSP IgA Vasculitis GCA Urticarial Vasculitis GPA Top 15 countries
Suzym2u
Vasculitis UK
in
Vasculitis UK
7 years ago
Have many symptoms of vasculitis but a tone of blood tests are normal!!
Hi ... Im am jack .. i have a transplant kidney surgery in 2009 and i take cellcept and prednisolon 40 mg every day for it ... since 3 month ago i have neuropathy consists of my legs and hands so i visit many doctors ... neurologist ,cardiologist!,nephrologist but everything was ok while i knew i have
Hi ... Im am jack .. i have a transplant kidney surgery in 2009 and i take cellcept and prednisolon 40 mg every day for it ... since 3 month ago i have neuropathy consists of my legs and hands so i visit many doctors ... neurologist ,cardiologist!,nephrologist but everything was ok while i knew i have
Alexwwww
in
Vasculitis UK
8 years ago
Trying to connect the dots
Hello friends and encouragers. I have a rare bone disease called Kienbock's. Wondering if anyone has been diagnosed with this along with vascultis or lupus OR any other autoimmune disorder. Kienbocks is avascular necrosis of the lunate bone, a carpal bone making up the joint of your wrist. Necrosis is
Hello friends and encouragers. I have a rare bone disease called Kienbock's. Wondering if anyone has been diagnosed with this along with vascultis or lupus OR any other autoimmune disorder. Kienbocks is avascular necrosis of the lunate bone, a carpal bone making up the joint of your wrist. Necrosis is
autoimmunemystery
in
Vasculitis UK
8 years ago
Hearing loss?
Anyone else have hearing loss? If so, what type? I've had 3.5yrs of eye problems (anyone have those?) that have kept me housebound, now it's like its moved to my ears which has prompted my eye cons to tell me I have Wegener's. I'm not convinced although he told me to look it up then I saw it was a vasculitis
Anyone else have hearing loss? If so, what type? I've had 3.5yrs of eye problems (anyone have those?) that have kept me housebound, now it's like its moved to my ears which has prompted my eye cons to tell me I have Wegener's. I'm not convinced although he told me to look it up then I saw it was a vasculitis
LH44
in
Vasculitis UK
8 years ago
Try not to get too frightened!
Dear all, I'm UK-based. I had a diagnosis of MPA renal vasculitis nearly 3 years ago, admittedly, caught very early; I was treated according to the current protocol (cyclophosphamide; rituximab 2x; couple hits of high-dose steroids, then stop) followed by MMF (I don't tolerate Aza; this is next-best
Dear all, I'm UK-based. I had a diagnosis of MPA renal vasculitis nearly 3 years ago, admittedly, caught very early; I was treated according to the current protocol (cyclophosphamide; rituximab 2x; couple hits of high-dose steroids, then stop) followed by MMF (I don't tolerate Aza; this is next-best
SkinHorse
in
Vasculitis UK
8 years ago
Has anyone tried IPL (Phillips Lumea)
I'm sure I've read about this on here before but can't remember what was said. I've just purchased the Phillips Lumea IPL hair removal system but have read in the Do's and Dont's that it's not recommended for people with Lupus or are photosensitive. Has anyone tried this or had any experience with
I'm sure I've read about this on here before but can't remember what was said. I've just purchased the Phillips Lumea IPL hair removal system but have read in the Do's and Dont's that it's not recommended for people with Lupus or are photosensitive. Has anyone tried this or had any experience with
Shellessx
in
LUPUS UK
8 years ago
Any ideas for a Specialis in Cerebral Vasculitis in North West England area?
She has been given a new Neurologist from the same hospital (The Walton Centre in Liverpool), but I wonder if anyone is in the know as it were, of any well known Specialists of
cerebral
vasculitis
in the area? Would be grateful of any advice Many Thanks
She has been given a new Neurologist from the same hospital (The Walton Centre in Liverpool), but I wonder if anyone is in the know as it were, of any well known Specialists of
cerebral
vasculitis
in the area? Would be grateful of any advice Many Thanks
Atkins2014
in
Vasculitis UK
8 years ago
Flaring again!!
Panniculitis back with a vengeance, night sweats, hairloss increase, all joints stiff & painful, excessive fatigue feel really down and want to give up sometimes, anyone else suffer with there legs?
Panniculitis back with a vengeance, night sweats, hairloss increase, all joints stiff & painful, excessive fatigue feel really down and want to give up sometimes, anyone else suffer with there legs?
jvspeed
in
LUPUS UK
8 years ago
Cyclophosphamide
Hi, my first blog. can anyone tell me how long it takes for cyclophosphamide to leave your system, I have been on a course of 10 infusions and finished on the 16th of December. It was to treat churg strauss syndrome which has left me with nerve damage to my left foot and right hand which seems to have
Hi, my first blog. can anyone tell me how long it takes for cyclophosphamide to leave your system, I have been on a course of 10 infusions and finished on the 16th of December. It was to treat churg strauss syndrome which has left me with nerve damage to my left foot and right hand which seems to have
tonyeade1
in
Vasculitis UK
8 years ago
1
...
16
17
18
...
41
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Vasculitis UK
669 results
LUPUS UK
89 results
Behçet's UK
21 results
View top 10 communities
Sort by
Most Relevant
Newest