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⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
4 months ago
If I Didn't Have Faith and Family Like You!
Now, I just shared my story about my weekend in NY seeing Chris Botti; now I'm sitting in the Family Waiting Room of Jefferson Hospital for hubby to get out of surgery. He kept complaining of bad back and stomach pain. Well, large Kidney Stone causing a blockage! He needed a different procedure; not
Now, I just shared my story about my weekend in NY seeing Chris Botti; now I'm sitting in the Family Waiting Room of Jefferson Hospital for hubby to get out of surgery. He kept complaining of bad back and stomach pain. Well, large Kidney Stone causing a blockage! He needed a different procedure; not
GratefulNeeC
in
My MSAA Community
7 months ago
Thyroid blood test results
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
SusieR68
in
Thyroid UK
4 months ago
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Is atrial enlargement serious.
hi guys and girls. Just had a phone appointment over the phone with cardiologist. I think it went well.? But it seemed to be a rushed appointment and I didn’t have time to ask him all the questions i wanted to unfortunately.! but the main thing im worried about is that he mentioned my ECHO in December
hi guys and girls. Just had a phone appointment over the phone with cardiologist. I think it went well.? But it seemed to be a rushed appointment and I didn’t have time to ask him all the questions i wanted to unfortunately.! but the main thing im worried about is that he mentioned my ECHO in December
Jetcat
in
Atrial Fibrillation Support
3 months ago
Rythm changed
hi I was diagnosed with AF three months ago was put on apixoban and bisoperol however bisoperol has been changed to verapamil after a four day stay in hospital where due to them using a nebuliser my heart rate went to 210 nebuliser was used for an asthma attack told never let anyone use a nebuliser
hi I was diagnosed with AF three months ago was put on apixoban and bisoperol however bisoperol has been changed to verapamil after a four day stay in hospital where due to them using a nebuliser my heart rate went to 210 nebuliser was used for an asthma attack told never let anyone use a nebuliser
KelliEAnniE
in
Atrial Fibrillation Support
3 months ago
New NICE guidelines
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
helvella
Thyroid UK
in
Thyroid UK
4 months ago
NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
PAScomms
in
Pernicious Anaemia Society
4 months ago
Dr Guptas video
Has anyone seen the video re cardiac anxiety? I'm trying to figure out what comes first the anxiety or the list of symptoms ie palpitations chest pain etc. Has anyone dived into this research?
Has anyone seen the video re cardiac anxiety? I'm trying to figure out what comes first the anxiety or the list of symptoms ie palpitations chest pain etc. Has anyone dived into this research?
TillyBoss
in
Atrial Fibrillation Support
3 months ago
Oxygen therapy
I am helping to look after my 88 year old sister at present. She has been prescribed ambulatory oxygen therapy following a diagnosis of pulmonary hypertension, I think related to her Protein S Deficiency. She is frail and even the small oxygen cylinders are heavy and difficult for her to use but oxygen
I am helping to look after my 88 year old sister at present. She has been prescribed ambulatory oxygen therapy following a diagnosis of pulmonary hypertension, I think related to her Protein S Deficiency. She is frail and even the small oxygen cylinders are heavy and difficult for her to use but oxygen
mozart27
in
Lung Conditions Community Forum
3 months ago
Muscle wasting?
Is this a PD sign? It happens anyway with age so how do you know what the root problem is? A few days ago I finished a treadmill workout in our shed and as I was walking away my legs gave out. Suddenly I was on the ground. Ultimately I was able to get up and shuffle into the house. I posted
Is this a PD sign? It happens anyway with age so how do you know what the root problem is? A few days ago I finished a treadmill workout in our shed and as I was walking away my legs gave out. Suddenly I was on the ground. Ultimately I was able to get up and shuffle into the house. I posted
kaypeeoh
in
Cure Parkinson's
7 months ago
atypical trigeminal neuralgia
Recently diagnosed with atypical trigeminal neuralgia, pain on left side of face/eye/head. I also have rheumatoid arthritis which I take methotrexate 20mg once per week for. Does anyone else know anything about this, or what helps, in a lot of pain.
Recently diagnosed with atypical trigeminal neuralgia, pain on left side of face/eye/head. I also have rheumatoid arthritis which I take methotrexate 20mg once per week for. Does anyone else know anything about this, or what helps, in a lot of pain.
PurpleDuckie
in
PMRGCAuk
4 months ago
Anticoagulant for AF
I've seen some helpful posts on this site and I hope someone can help me further. I was recently diagnosed with AF but I don't have a fast heart rate. My pulse rarely gets to 59. My doctor has prescribed an anticoagulant (Eliquis) but I'm scared of taking it because of the side effects. I had two bleeding
I've seen some helpful posts on this site and I hope someone can help me further. I was recently diagnosed with AF but I don't have a fast heart rate. My pulse rarely gets to 59. My doctor has prescribed an anticoagulant (Eliquis) but I'm scared of taking it because of the side effects. I had two bleeding
Calypso76
in
Atrial Fibrillation Support
3 months ago
Positive results after five months
I hope it’s ok that I share my good news? I finally went to the hospital to a nephrologist - 6 months after realizing I had CKD stage 3.. my eGFR was about 50-53. No other symptoms.. My doctor showed me my test results that went way back - and they showed above normal creatinine and below normal eGFR
I hope it’s ok that I share my good news? I finally went to the hospital to a nephrologist - 6 months after realizing I had CKD stage 3.. my eGFR was about 50-53. No other symptoms.. My doctor showed me my test results that went way back - and they showed above normal creatinine and below normal eGFR
Pisces101
in
Early CKD Support
7 months ago
Newly Diagnosed
Hello, I’m new to this forum and was only diagnosed with SLE in late December. I’ve also got secondary triple positive antiphospholipid antibodies. I’m 26 and I’ve always lived a very active/outgoing lifestyle and have always tried to be healthy so it I’m finding it all a bit difficult to process.
Hello, I’m new to this forum and was only diagnosed with SLE in late December. I’ve also got secondary triple positive antiphospholipid antibodies. I’m 26 and I’ve always lived a very active/outgoing lifestyle and have always tried to be healthy so it I’m finding it all a bit difficult to process.
ChloeScotland
in
LUPUS UK
4 months ago
Afib and PE
Hi I have already felt supported and informed by this group and wanted to share my experience in the hope I can continue to learn about my recent diagnoses. I am 67 and other than having COPD was in reasonable health even though I am a bit overweight and probably drink more wine than is good for me
Hi I have already felt supported and informed by this group and wanted to share my experience in the hope I can continue to learn about my recent diagnoses. I am 67 and other than having COPD was in reasonable health even though I am a bit overweight and probably drink more wine than is good for me
RockingRoxy
in
Atrial Fibrillation Support
3 months ago
Lupus Diagnosis
I haven't been online for some times, perhaps years. I don't think I have posted since losing my Mum in August 2021 and then I lost my Dad last year June. My health, not surprisingly, has been all over the place and under the following hospital departments: Lupus Rheumatology, General Rheumatology -
I haven't been online for some times, perhaps years. I don't think I have posted since losing my Mum in August 2021 and then I lost my Dad last year June. My health, not surprisingly, has been all over the place and under the following hospital departments: Lupus Rheumatology, General Rheumatology -
KeepingUpBeat
in
LUPUS UK
5 months ago
Home Oxygen Therapy
I don't recall seeing this mentioned on here but was wondering if anyone had experiences of being discharged home with Oxygen after an ICU stay. I'm a month out of hospital (after a total stay of 8 months). I was discharged with a CPAP machine for OSA and prescribed 1l of oxygen at night whilst in the
I don't recall seeing this mentioned on here but was wondering if anyone had experiences of being discharged home with Oxygen after an ICU stay. I'm a month out of hospital (after a total stay of 8 months). I was discharged with a CPAP machine for OSA and prescribed 1l of oxygen at night whilst in the
CCXLI
in
ICUsteps
3 months ago
Any readers?
Would really appreciate recommendation for books linking autoimmune disease and trauma. Somebody I care about wants to read about it. Thank you. 😊
Would really appreciate recommendation for books linking autoimmune disease and trauma. Somebody I care about wants to read about it. Thank you. 😊
Pawsedagain
in
Thyroid UK
5 months ago
Apple watch and Kardia questions
I saw my cardiologist yesterday and we have agree although no AF yet (maybe A flutter) on 24hr ECG getting a watch and maybe a kardia is a good idea. I am planning to buy the watch and the local apple shop ( Edinburgh UK) and wanted to ask a few questions before hand. Ive read some on what the watch
I saw my cardiologist yesterday and we have agree although no AF yet (maybe A flutter) on 24hr ECG getting a watch and maybe a kardia is a good idea. I am planning to buy the watch and the local apple shop ( Edinburgh UK) and wanted to ask a few questions before hand. Ive read some on what the watch
ainslie
in
Atrial Fibrillation Support
3 months ago
cardioversion
hi, I had my first Cardioversion at St Richards Chichester on 11th March. (First diagnosed early January but probably been in AF since Sept) It worked initially but reverted to AF very shortly after. Since watching the very helpful video interview on this site with Prof Gupta, now realise that most revert
hi, I had my first Cardioversion at St Richards Chichester on 11th March. (First diagnosed early January but probably been in AF since Sept) It worked initially but reverted to AF very shortly after. Since watching the very helpful video interview on this site with Prof Gupta, now realise that most revert
Ongreendolphinstreet
in
Atrial Fibrillation Support
3 months ago
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