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Continuous Electrical Neuromodulation of the Globus Pallidus Intern in Parkinson's Disease by the Directional Electrode
https://clinicaltrials.gov/ct2/show/NCT05626608 The hypothesis is that the efficacy of DBS in directional mode will be more effective on the motor signs of Parkinson's disease compared to omnidirectional stimulation and bipolar mode, with a better tolerance profile (fewer side effects).
https://clinicaltrials.gov/ct2/show/NCT05626608 The hypothesis is that the efficacy of DBS in directional mode will be more effective on the motor signs of Parkinson's disease compared to omnidirectional stimulation and bipolar mode, with a better tolerance profile (fewer side effects).
Hidden
in
Cure Parkinson's
2 years ago
Driving Licence Application
In Jan 2022 I reapplied for my driving licence having had it revoked due to a brain tumour diagnosis in Dec 2020. I had successful surgery to remove the tumour in Mar 2021 and underwent voluntary radio and chemo therapies, with the latter finishing in Jun this year. My tumour (low grade) caused seizures
In Jan 2022 I reapplied for my driving licence having had it revoked due to a brain tumour diagnosis in Dec 2020. I had successful surgery to remove the tumour in Mar 2021 and underwent voluntary radio and chemo therapies, with the latter finishing in Jun this year. My tumour (low grade) caused seizures
busyfool
in
Headway
2 years ago
brain tumour
Hi, I have a 9mm acoustic neuroma I had a CT scan done this April I was told in July that it has grown but in the last 8 weeks I have had headaches every day and night. I eventually went / got to see my GP who says she is not sure my white cells are down she said she THINKS my CT scan would have
Hi, I have a 9mm acoustic neuroma I had a CT scan done this April I was told in July that it has grown but in the last 8 weeks I have had headaches every day and night. I eventually went / got to see my GP who says she is not sure my white cells are down she said she THINKS my CT scan would have
Ballantyne56
in
Acoustic Neuroma Support
2 years ago
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video: GNI Grand Rounds: Deep Brain Stimulation for Parkinson’s Disease: Where we are and where we’re going
https://www.youtube.com/watch?v=i5BcRkcocqY
https://www.youtube.com/watch?v=i5BcRkcocqY
Hidden
in
Cure Parkinson's
2 years ago
Mything the point: Some Thoughts on Living Well with PD
This sort of thing is a tough sell in the sense that people running the show at PD websites are worried that submissions that aren't predictably positive or upbeat in tone might upset regular readers. In some cases, fundraising' may come into play. As noted in the piece, I'm not trying to stir up a
This sort of thing is a tough sell in the sense that people running the show at PD websites are worried that submissions that aren't predictably positive or upbeat in tone might upset regular readers. In some cases, fundraising' may come into play. As noted in the piece, I'm not trying to stir up a
slapdasch4
in
Cure Parkinson's
2 years ago
Zoom session at 4 pm GMT on Thursday 15th of December: "DBS, Focused Ultrasound and Infusion Pumps: how these technologies can help PwPs"
I am delighted to announce our next NoSilverBullet zoom session that will be taking place at 4pm London time (11am Toronto time) on Thursday, the 15th of December. We will have the pleasure of listening to Dr. Alfonso Fasano, Professor of Neurology at the University of Toronto and one of the world
I am delighted to announce our next NoSilverBullet zoom session that will be taking place at 4pm London time (11am Toronto time) on Thursday, the 15th of December. We will have the pleasure of listening to Dr. Alfonso Fasano, Professor of Neurology at the University of Toronto and one of the world
Michel0220
in
Cure Parkinson's
2 years ago
update
I am NOT leaving my home because if I do I will end up been homeless at 73 and disabled with osteoporosis,
brain
injury, stroke,
brain
haemorrhage
, unable to walk far. What is his game. . Any advice would be appreciated Love Liz and Shelly 🙏🌹
I am NOT leaving my home because if I do I will end up been homeless at 73 and disabled with osteoporosis,
brain
injury, stroke,
brain
haemorrhage
, unable to walk far. What is his game. . Any advice would be appreciated Love Liz and Shelly 🙏🌹
1949liz
in
Headway
2 years ago
A Bit Off Topic, FMT In A Single Case Report, Stopped ALS Progression And Improved Symptoms
According to the following case report, the title of this post is correct : http://www.jbr-pub.org.cn/article/doi/10.7555/JBR.36.20220088 Here is a relevant quote from the case report :
' The subsequent rescue WMTs successfully stopped the progression of the disease with quick improvement. The
According to the following case report, the title of this post is correct : http://www.jbr-pub.org.cn/article/doi/10.7555/JBR.36.20220088 Here is a relevant quote from the case report :
' The subsequent rescue WMTs successfully stopped the progression of the disease with quick improvement. The
chartist
in
Cure Parkinson's
2 years ago
Shingles vaccine
Has anyone here has the shingles vaccine? I know that the usual one is a live vaccine but the nurse at the surgery told me that there is a two-dose non-live one I could have if it didn’t compromise my condition. I do have a haematology phone appointment coming up but not for a few weeks yet so I wondered
Has anyone here has the shingles vaccine? I know that the usual one is a live vaccine but the nurse at the surgery told me that there is a two-dose non-live one I could have if it didn’t compromise my condition. I do have a haematology phone appointment coming up but not for a few weeks yet so I wondered
Garstongal
in
MPN Voice
2 years ago
Long-Term Outcomes of Bilateral Subthalamic Nucleus Deep Brain Stimulation for Patients With Parkinson's Disease: 10 Years and Beyond
https://pubmed.ncbi.nlm.nih.gov/36084204/?utm_source=dlvr.it&utm_medium=twitter Methods: We investigated all 81 patients including 37 males and 44 females who underwent bilateral STN DBS from March 2005 to March 2008 at a single institution. The current survival status of the patients was investigated
https://pubmed.ncbi.nlm.nih.gov/36084204/?utm_source=dlvr.it&utm_medium=twitter Methods: We investigated all 81 patients including 37 males and 44 females who underwent bilateral STN DBS from March 2005 to March 2008 at a single institution. The current survival status of the patients was investigated
Hidden
in
Cure Parkinson's
2 years ago
Panic (in the streets of Birmingham)
Couldn’t resist this allusion to a song by the Smiths and I do live in Birmingham (not Alabama!). I was surprised when asking for a search to be done on our site how few posts there were with Panic in the title. I’m panicking quite a lot recently due to obvious progression of the disease. I’m panicking
Couldn’t resist this allusion to a song by the Smiths and I do live in Birmingham (not Alabama!). I was surprised when asking for a search to be done on our site how few posts there were with Panic in the title. I’m panicking quite a lot recently due to obvious progression of the disease. I’m panicking
jeeves19
in
Cure Parkinson's
2 years ago
life after pneumonectomy
Hello everyone, I would be really interested to hear from anyone who has under gone having a whole lung (left) removed. This is my situation after a Carcinoid tumour was discovered in May this year. During the operation there was also nerve damage which paralysed the left vocal cord/fold leaving
Hello everyone, I would be really interested to hear from anyone who has under gone having a whole lung (left) removed. This is my situation after a Carcinoid tumour was discovered in May this year. During the operation there was also nerve damage which paralysed the left vocal cord/fold leaving
Imkerin
in
The Roy Castle Lung Cancer Foundation
2 years ago
Shingles vaccine to have or not to have
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
PatB1948
in
PMRGCAuk
2 years ago
I may have Lyme but I ain't no Lemon!
Hello all Follow up to my original post from six months ago! I was diagnosed with PMR back in March of this year. Despite pred my symptoms were still apparent and was referred to a rheumatologist in September. He thought it wasn't PMR but really didn't know what it was! However a blood test was
Hello all Follow up to my original post from six months ago! I was diagnosed with PMR back in March of this year. Despite pred my symptoms were still apparent and was referred to a rheumatologist in September. He thought it wasn't PMR but really didn't know what it was! However a blood test was
hib61
in
PMRGCAuk
2 years ago
DBS Surgery #2, a personal essay
DBS Surgery #2 by Gary Turchin On Nov 12, 2020, a good eight months into the pandemic, I found myself checking in to Kaiser Hospital, Redwood City, for brain surgery. I arrived at the hospital in terrible pain. I had stopped taking my medications for Parkinson
DBS Surgery #2 by Gary Turchin On Nov 12, 2020, a good eight months into the pandemic, I found myself checking in to Kaiser Hospital, Redwood City, for brain surgery. I arrived at the hospital in terrible pain. I had stopped taking my medications for Parkinson
GaryTorch
in
Cure Parkinson's
2 years ago
Lumbar injection after shingles CLL
Hi everyone, I had shingles six months ago, leaving me with nerve problems in my left leg. I have received an appointment for a lumbar puncture which has left me a bit worried, is this because they think something is going on with the CLL in my spine? I can't ask the specialist as I have no follow-up
Hi everyone, I had shingles six months ago, leaving me with nerve problems in my left leg. I have received an appointment for a lumbar puncture which has left me a bit worried, is this because they think something is going on with the CLL in my spine? I can't ask the specialist as I have no follow-up
TOMMOHOODIE
in
CLL Support
2 years ago
I saw my first neuro after over five years
Today I saw the MDD who diagnosed me in august 2017. Before him I saw other doctors who could not figure what I had. So after over five years I saw him again. That time my score was 17 and today 23. He was surprised to find out my progression was very small. I told him I think the Thiamine helped me
Today I saw the MDD who diagnosed me in august 2017. Before him I saw other doctors who could not figure what I had. So after over five years I saw him again. That time my score was 17 and today 23. He was surprised to find out my progression was very small. I told him I think the Thiamine helped me
ion_ion
in
Cure Parkinson's
2 years ago
Coping with heat
I need your advice my friends. We live in the north of England and rarely get a heatwave but this summer we had 2 and my HWP, who is in his 29th year of diagnosis, really suffered. I looked on HU and saw this can be a problen in PD. I told him what I had read and dealt with it with fans and cold packs
I need your advice my friends. We live in the north of England and rarely get a heatwave but this summer we had 2 and my HWP, who is in his 29th year of diagnosis, really suffered. I looked on HU and saw this can be a problen in PD. I told him what I had read and dealt with it with fans and cold packs
JeanieBeanie
in
Cure Parkinson's
2 years ago
Muscle pain and DBS
Has anyone experienced muscle pain in your arms, legs, etc. after DBS? Do settings have anything to do with it?
Has anyone experienced muscle pain in your arms, legs, etc. after DBS? Do settings have anything to do with it?
Sherry1960
in
Cure Parkinson's
2 years ago
hydrocephalus
Hi folks , I am 42 and have battled hydrocephalus since age 20.This was caused by a presumed tectal plate tumor of some kind.after a period of battling bad headaches and vision issues etc.Been through a 3rd ventriculostomy which controlled things for a few years.This eventually failed and had a vp shunt
Hi folks , I am 42 and have battled hydrocephalus since age 20.This was caused by a presumed tectal plate tumor of some kind.after a period of battling bad headaches and vision issues etc.Been through a 3rd ventriculostomy which controlled things for a few years.This eventually failed and had a vp shunt
versa2508
in
Headway
2 years ago
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