Search
Search
About
Log in
Join
Experiences with
Benlysta
Posts
Communities
68 public posts
Filter results
Share you experiences of belimumab (Benlysta)
Hi everyone, You may be aware that LUPUS UK is a stakeholder in the current NICE appraisal process for belimumab (
Benlysta
), which we hope will result in more people with lupus having access to the treatment through the NHS.
Hi everyone, You may be aware that LUPUS UK is a stakeholder in the current NICE appraisal process for belimumab (
Benlysta
), which we hope will result in more people with lupus having access to the treatment through the NHS.
Paul_Howard
LUPUS UK
in
LUPUS UK
4 years ago
Lupus patients who are currently undergoing biologic treatment (Benlysta/Rituximab) needed for paid research study
Global Patients, a market research company specialising in the healthcare sector, are looking for two people with systemic lupus erythematosus who are currently undergoing biologic treatment (
Benlysta
(belimumab)/Rituximab) to take part in a research study.
Global Patients, a market research company specialising in the healthcare sector, are looking for two people with systemic lupus erythematosus who are currently undergoing biologic treatment (
Benlysta
(belimumab)/Rituximab) to take part in a research study.
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
4 years ago
Should You Get the COVID-19 Vaccine During a Disease Flare-Up?
Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex: Kineret, Ilaris) IL-17 biologics (ex: Cosentyx, Taltz) IL-23 biologics (ex: Skyrizi, Tremfya) IL-12/23 biologics (ex: Stelara) Belimumab (
Benlysta
Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex: Kineret, Ilaris) IL-17 biologics (ex: Cosentyx, Taltz) IL-23 biologics (ex: Skyrizi, Tremfya) IL-12/23 biologics (ex: Stelara) Belimumab (
Benlysta
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
7 Questions to Ask Your Rheumatologist If You’re Nervous About Getting the COVID-19 Vaccine
Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex: Kineret, Ilaris) IL-17 biologics (ex: Cosentyx, Taltz) IL-23 biologics (ex: Skyrizi, Tremfya) IL-12/23 biologics (ex: Stelara) Belimumab (
Benlysta
Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex: Kineret, Ilaris) IL-17 biologics (ex: Cosentyx, Taltz) IL-23 biologics (ex: Skyrizi, Tremfya) IL-12/23 biologics (ex: Stelara) Belimumab (
Benlysta
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Getting a COVID-19 Vaccine with Autoimmune or Inflammatory Rheumatic Disease: New Guidance from the American College of Rheumatology
Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex: Kineret, Ilaris) IL-17 biologics (ex: Cosentyx, Taltz) IL-23 biologics (ex: Skyrizi, Tremfya) IL-12/23 biologics (ex: Stelara) Belimumab (
Benlysta
Cyclophosphamide (Cytoxan) (oral) TNF biologics (ex: Cimzia, Enbrel, Humira, Remicade, Simponi and Simponi Aria) IL-6 biologics (ex: Actemra, Kevzara) IL-1 biologics (ex: Kineret, Ilaris) IL-17 biologics (ex: Cosentyx, Taltz) IL-23 biologics (ex: Skyrizi, Tremfya) IL-12/23 biologics (ex: Stelara) Belimumab (
Benlysta
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
NICE appraisal of belimumab (Benlysta) - please complete our anonymous online survey
The National Institute for Health and Care Excellence (NICE) are doing an appraisal of belimumab (
Benlysta
) to produce new guidance for its use in the treatment of adults with SLE in England. LUPUS UK is a registered consultee (stakeholder) and will be submitting evidence.
The National Institute for Health and Care Excellence (NICE) are doing an appraisal of belimumab (
Benlysta
) to produce new guidance for its use in the treatment of adults with SLE in England. LUPUS UK is a registered consultee (stakeholder) and will be submitting evidence.
Paul_Howard
LUPUS UK
in
LUPUS UK
4 years ago
Benlysta Treatment Lowers Disease Activity for SLE Patients, Real-world Data Shows
SOURCE
: https://lupusnewstoday.com/
benlysta
-lowers-disease-activity-organ-damage-sle-patients-real-world-data?
SOURCE
: https://lupusnewstoday.com/
benlysta
-lowers-disease-activity-organ-damage-sle-patients-real-world-data?
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Benlysta?
Anyone on
benlysta
? I will be stsrting it soon kinda nervous.
Anyone on
benlysta
? I will be stsrting it soon kinda nervous.
Princerogers777
in
LUPUS UK
5 years ago
New Phase 3 Study Shows Positive Results for Benlysta® in Lupus Nephritis
Read Announcement from GSK https://www.lupusresearch.org/new-phase-3-study-shows-positive-results-for-
benlysta
-in-lupus-nephritis/
LUpus Patients Understanding & Support (LUPUS)
: https://www.lupus-support.org/topic/3163-new-phase-3-study-shows-positive-results-for-
benlysta
%C2%AE-in-lupus-nephritis
Read Announcement from GSK https://www.lupusresearch.org/new-phase-3-study-shows-positive-results-for-
benlysta
-in-lupus-nephritis/
LUpus Patients Understanding & Support (LUPUS)
: https://www.lupus-support.org/topic/3163-new-phase-3-study-shows-positive-results-for-
benlysta
%C2%AE-in-lupus-nephritis
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
LRA Shares Excitement For What’s Ahead in Lupus Nephritis
Food and Drug Administration (FDA) for approval of their drugs to treat lupus nephritis based on positive Phase III trial results with
Benlysta
® (belimumab) and voclosporin respectively. Two new Phase III trials are starting up to test potential treatments – Gazyva® (obinutuzumab) and secukinumab.
Food and Drug Administration (FDA) for approval of their drugs to treat lupus nephritis based on positive Phase III trial results with
Benlysta
® (belimumab) and voclosporin respectively. Two new Phase III trials are starting up to test potential treatments – Gazyva® (obinutuzumab) and secukinumab.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Greetings from a newbie
I was also asked if I wanted to participate in a trial for Belimumab (
Benlysta
). I’d read of this drug and the feedback seemed very positive, so I jumped at this chance. As with most trials, the only downside was that I could be trialling the REAL thing OR just a PLACEBO! But I was up for it.
I was also asked if I wanted to participate in a trial for Belimumab (
Benlysta
). I’d read of this drug and the feedback seemed very positive, so I jumped at this chance. As with most trials, the only downside was that I could be trialling the REAL thing OR just a PLACEBO! But I was up for it.
SurferGuy
in
LUPUS UK
4 years ago
LRA Celebrates Major Research Breakthroughs in 2019
First and Only Lupus Treatment Approved for Use in Children —
Benlysta
(belimumab) was approved by the U.S. FDA to treat children with lupus who are five years old or above.
First and Only Lupus Treatment Approved for Use in Children —
Benlysta
(belimumab) was approved by the U.S. FDA to treat children with lupus who are five years old or above.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
LRA Celebrates Major Research Breakthroughs in 2019
First and Only Lupus Treatment Approved for Use in Children
—
Benlysta
(belimumab) was approved by the U.S. FDA to treat children with lupus who are five years old or above.
First and Only Lupus Treatment Approved for Use in Children
—
Benlysta
(belimumab) was approved by the U.S. FDA to treat children with lupus who are five years old or above.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Fear of starting Benlysta
Anyone with experience w
Benlysta
? If yes, did your doctor check for JK virus and still recommend
Benlysta
?
Anyone with experience w
Benlysta
? If yes, did your doctor check for JK virus and still recommend
Benlysta
?
miccika1
in
LUPUS UK
5 years ago
Medical marijuana and CBD products for AI
I am on the standard medications prednisone, Plaquenil , azathioprine,
benlysta
, ms cotin and few other pills. About 4 months ago I started using CBD rub on my joints and muscles for pain relief, and it worked fabulously.
I am on the standard medications prednisone, Plaquenil , azathioprine,
benlysta
, ms cotin and few other pills. About 4 months ago I started using CBD rub on my joints and muscles for pain relief, and it worked fabulously.
Kismetsoul
in
LUPUS UK
5 years ago
Benlysta anyone?
I'm waiting for
Benlysta
approval. Anyone that has taken this, could you please share any positive and/or negative experience? I'm worried about too much immunosuppression and side effects. My doctor mentioned JK disease and freaked me out.
I'm waiting for
Benlysta
approval. Anyone that has taken this, could you please share any positive and/or negative experience? I'm worried about too much immunosuppression and side effects. My doctor mentioned JK disease and freaked me out.
miccika1
in
LUPUS UK
5 years ago
Benlysta anyone?
Recently started on these injections. Any thoughts? 💭 It seems to have helped a wee bit to raise my WBC’s but I still feel like death most days. Also I get a pretty big rash for the entire week after I inject. My dr thinks it’s worth the rash.
Recently started on these injections. Any thoughts? 💭 It seems to have helped a wee bit to raise my WBC’s but I still feel like death most days. Also I get a pretty big rash for the entire week after I inject. My dr thinks it’s worth the rash.
suzzze
in
Lupus Foundation of Florida
6 years ago
Benlysta Maintenance Does Not Change Kidney Function of Lupus Nephritis Patients, Phase 2 Trial Shows
Source: lupusnewstoday.com/2018/11/21/no-change-kidney-function-
benlysta
-maintenance-lupus-nephritis-patients-phase-2-trial/ Jose Marques Lopes, PhDNovember 21, 2018
Benlysta
Maintenance Does Not Change Kidney Function of Lupus Nephritis Patients, Phase 2 Trial Shows Using
Benlysta
(belimumab) as a maintenance
Source: lupusnewstoday.com/2018/11/21/no-change-kidney-function-
benlysta
-maintenance-lupus-nephritis-patients-phase-2-trial/ Jose Marques Lopes, PhDNovember 21, 2018
Benlysta
Maintenance Does Not Change Kidney Function of Lupus Nephritis Patients, Phase 2 Trial Shows Using
Benlysta
(belimumab) as a maintenance
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Beware of Shingles (Shingrix) vaccine!
I am on
Benlysta
, a biologic(!) and my doctor knows that! Ugh. As soon as this is over, I am going to get a new doctor.
I am on
Benlysta
, a biologic(!) and my doctor knows that! Ugh. As soon as this is over, I am going to get a new doctor.
ecough
in
LUPUS UK
6 years ago
Questions about Disease Activity and Plaquenil dose
I am also on
Benlysta
infusions once a month and LOTS of ibuprofen and Alleve. I've only seen her twice (this past appointment was my 2nd). I don't know how she can make these decisions about my treatment without knowing me a little better.
I am also on
Benlysta
infusions once a month and LOTS of ibuprofen and Alleve. I've only seen her twice (this past appointment was my 2nd). I don't know how she can make these decisions about my treatment without knowing me a little better.
ecough
in
LUPUS UK
6 years ago
1
2
3
4
Next page
Filter results
Clear filters
Posted in
All communities
LUPUS UK
40 results
LUpus Patients Understanding and Support
21 results
Hughes Syndrome APS Forum
4 results
View top 10 communities
Sort by
Most Relevant
Newest