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Genetic diagnosis
Hi all, sorry I haven't posted anything for ages but sometimes life is like that. I have finally got some sort of diagnosis. I had more genetic testing a couple of years ago and they have found that I have two anomalies on gene SPG7. This means that my disability is more spastic based than ataxia.
Hi all, sorry I haven't posted anything for ages but sometimes life is like that. I have finally got some sort of diagnosis. I had more genetic testing a couple of years ago and they have found that I have two anomalies on gene SPG7. This means that my disability is more spastic based than ataxia.
ww-wibblywobbly
in
Ataxia UK
3 months ago
Iron Levels
this group is so helpful. Thank you to everyone, especially those experts. I’m currently weaning off pram with higher doses of gab. My PA in neurology is helpful with raising the gab as needed. However, I had my iron tests done with a 350 ferritin result and a 12% TSAT. So if I understand this
this group is so helpful. Thank you to everyone, especially those experts. I’m currently weaning off pram with higher doses of gab. My PA in neurology is helpful with raising the gab as needed. However, I had my iron tests done with a 350 ferritin result and a 12% TSAT. So if I understand this
CarolynE13
in
Restless Legs Syndrome
3 months ago
Cholesterol and fertility... am I overreacting?
Hiya folks, hope everyone is okay. After my second IVF round ended in failure I've been taking a few months off to lead as healthy a lifestyle as possible (I mention the changes I've made in previous posts). I've also taken a bunch of tests including a full thrombophilia screen (which has come back
Hiya folks, hope everyone is okay. After my second IVF round ended in failure I've been taking a few months off to lead as healthy a lifestyle as possible (I mention the changes I've made in previous posts). I've also taken a bunch of tests including a full thrombophilia screen (which has come back
neonpg
in
Fertility Network UK
3 months ago
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Changing beta blockers
Hello everyone,I have Graves disease and had a thyroidectomy in June 2022.I am on levothyroxine only.I am having conversion problems but I am on 20mg proprananol 3x a day for migraine prevention.I definitely need these, but know proprananol can interfere with conversion T4 to T3.I have an appointment
Hello everyone,I have Graves disease and had a thyroidectomy in June 2022.I am on levothyroxine only.I am having conversion problems but I am on 20mg proprananol 3x a day for migraine prevention.I definitely need these, but know proprananol can interfere with conversion T4 to T3.I have an appointment
Cavapoochonowner
in
Thyroid UK
3 months ago
A lot of stuff going on. Qs.
We found out partner had hemochromatosis and fibrosis from that. Fibroscan was 25 to 32 in some places. Bloods were Ferritin 2000plus 150, ALT 114 and others also out such as platelets low at 70ish. However after monthly Blood letting and not drinking and eating healthy eating for nearly a year his
We found out partner had hemochromatosis and fibrosis from that. Fibroscan was 25 to 32 in some places. Bloods were Ferritin 2000plus 150, ALT 114 and others also out such as platelets low at 70ish. However after monthly Blood letting and not drinking and eating healthy eating for nearly a year his
ARM8
in
British Liver Trust
3 months ago
Home Pregnancy Test
Hi everyone, on the 2nd May i did Beta and the results came back 210. Then the next day i did HPT the line was dark but today i did HPT again, the line getting fainter. Should i be worry ?
Hi everyone, on the 2nd May i did Beta and the results came back 210. Then the next day i did HPT the line was dark but today i did HPT again, the line getting fainter. Should i be worry ?
UnknownWoman
in
Fertility Network UK
3 months ago
Not sure if anybody seen my recent post ?
Hi I posted earlier. Not sure if I'm posting in the rite place to ask about recent test results for hormones . Oestradiol. Progesterone. Prolactin. Shbg. Fsh. ? Many thanks
Hi I posted earlier. Not sure if I'm posting in the rite place to ask about recent test results for hormones . Oestradiol. Progesterone. Prolactin. Shbg. Fsh. ? Many thanks
suzybear
in
Thyroid UK
3 months ago
t3 without prescription
I live in a small southern town in US and tested low normal w/nodules by primary care physician (PCP). Asked for t3 and was denied. I was told the only endocrinologist in town does prescribe t3 but I have to be referred by PCP. She refused to refer since it had been so long since I had been to see her
I live in a small southern town in US and tested low normal w/nodules by primary care physician (PCP). Asked for t3 and was denied. I was told the only endocrinologist in town does prescribe t3 but I have to be referred by PCP. She refused to refer since it had been so long since I had been to see her
mnlott
in
Thyroid UK
3 months ago
Mixing up the brands of Levo?
My Endo has increased my dose of Levo from 25 mcg to a mix of 25 / 50. I know it may be too low as T4 is currently only 20% through the range. I will have the debate about dosing again in a month when we have more data. The good news is that my Vits are now all optimal, so I should be making use of the
My Endo has increased my dose of Levo from 25 mcg to a mix of 25 / 50. I know it may be too low as T4 is currently only 20% through the range. I will have the debate about dosing again in a month when we have more data. The good news is that my Vits are now all optimal, so I should be making use of the
N5girl
in
Thyroid UK
4 months ago
Mirena coil
Hi, I have no Thyriod as I had thyriod cancer in 2018. My thyroxine has been too low for a while so Hypothyriod atm. Waiting for levels to balance but anxiety is awful. And feeling low etc. The GP recommended Mirena coil as no interaction with Thyroxine for all the hormonal symptoms. But reading
Hi, I have no Thyriod as I had thyriod cancer in 2018. My thyroxine has been too low for a while so Hypothyriod atm. Waiting for levels to balance but anxiety is awful. And feeling low etc. The GP recommended Mirena coil as no interaction with Thyroxine for all the hormonal symptoms. But reading
Clairestevo
in
Thyroid UK
4 months ago
Test Results Back
Hi, I got my test results back. Impressed with the speed of Monitor My Health! I’ll post them below. Can you advise what they mean and what I should do going forward? Edited to add: test done at 9am. No food or drink between waking and doing the test. Last levo thyroxine dose (150mcg) was more than
Hi, I got my test results back. Impressed with the speed of Monitor My Health! I’ll post them below. Can you advise what they mean and what I should do going forward? Edited to add: test done at 9am. No food or drink between waking and doing the test. Last levo thyroxine dose (150mcg) was more than
DownAndDesperate
in
Thyroid UK
4 months ago
Neutropenia /pregabalin
Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is new and wasn't present in my last results in march.It's a side effect of pregabalin from what I can find (the pharmacist was useless). Ferritin down to 79 from 179 in November after iron infusion. Legs are chaotic . I'm.at
Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is new and wasn't present in my last results in march.It's a side effect of pregabalin from what I can find (the pharmacist was useless). Ferritin down to 79 from 179 in November after iron infusion. Legs are chaotic . I'm.at
Baz33
in
Restless Legs Syndrome
4 months ago
Eating after Levo/t3
just wondering if anyone finds they need to wait longer than an hour before eating and having caffeine? I wait an hour but sometimes I feel I’m not getting the full dose. I do have reflux. Took my drugs at 5am and at 10am, my heart rate was 60 and I was feeling very cold. My most recent test shows my
just wondering if anyone finds they need to wait longer than an hour before eating and having caffeine? I wait an hour but sometimes I feel I’m not getting the full dose. I do have reflux. Took my drugs at 5am and at 10am, my heart rate was 60 and I was feeling very cold. My most recent test shows my
Girlslovescifi
in
Thyroid UK
4 months ago
3 day embryo transfer - 11th day today, help?
Hi Guys, I'm new here. It's my first round on IVF. Only had one embryo that developed for the transfer. Haven't got anything on reserve :( Todays my 11th day post transfer, I'm getting a very faint line in the clear blue pregnancy test, should I be worried? 😬
Hi Guys, I'm new here. It's my first round on IVF. Only had one embryo that developed for the transfer. Haven't got anything on reserve :( Todays my 11th day post transfer, I'm getting a very faint line in the clear blue pregnancy test, should I be worried? 😬
JS321
in
Fertility Network UK
4 months ago
conversion
hi everyone I posted previously about my blood results (ft4 19 (12-22). Ft3 5 (3.1-6.8) I was advised that my conversion is really poor and asked to get some vitamin blood results and come back with them. They have come back this week and I have posted them below , is it ok if someone checks them
hi everyone I posted previously about my blood results (ft4 19 (12-22). Ft3 5 (3.1-6.8) I was advised that my conversion is really poor and asked to get some vitamin blood results and come back with them. They have come back this week and I have posted them below , is it ok if someone checks them
Tuesday28
in
Thyroid UK
4 months ago
Why would my Alk Phos go up after just starting urso?
Hi All, I have a question and wondered if anyone had an answer to if they had a similar experience. I just started taking Urso and have been on it now close to a month my recent blood work shows that my Alk Phos has increased rather than decreased. While I know it may take awhile for Urso to potentially
Hi All, I have a question and wondered if anyone had an answer to if they had a similar experience. I just started taking Urso and have been on it now close to a month my recent blood work shows that my Alk Phos has increased rather than decreased. While I know it may take awhile for Urso to potentially
Toddyboo
in
PBC Foundation
4 months ago
Time if day for taking medicine
I want to try taking medicine at night. Is natural thyroid or thyroxin likely to interfere with sleep?I'm completely shattered all the time apart from waking due to work stress so I doubt I would notice a small effect.
I want to try taking medicine at night. Is natural thyroid or thyroxin likely to interfere with sleep?I'm completely shattered all the time apart from waking due to work stress so I doubt I would notice a small effect.
FinneUK
in
Thyroid UK
4 months ago
Next Endo Meeting, T3...
I am going to ask my Endocrinologist for a trial of T3 at my next meeting, as it was suggested by them at my last meeting that if my last dose change didn't help, they would recommend a trial on the basis of significant persistent symptoms. What should I know about this, and what questions are wise
I am going to ask my Endocrinologist for a trial of T3 at my next meeting, as it was suggested by them at my last meeting that if my last dose change didn't help, they would recommend a trial on the basis of significant persistent symptoms. What should I know about this, and what questions are wise
ErraticAspie
in
Thyroid UK
4 months ago
Was I even pregnant?
Hi, this is a strange question I have but are the HCG strips accurate? I came to know I was pregnant through 4 strip tests which all came positive, got confirmation from fertility nurse over email that those are positive. I also got bloods done which confirms I ovulated as well.I started bleeding at
Hi, this is a strange question I have but are the HCG strips accurate? I came to know I was pregnant through 4 strip tests which all came positive, got confirmation from fertility nurse over email that those are positive. I also got bloods done which confirms I ovulated as well.I started bleeding at
Hope_1996
in
Fertility Network UK
4 months ago
ferratin blood level
Hi, I’ve got a ferritin level of 40.5 (30 - 169) To me this is low isn’t it? Also I have been taking spatone iron sachets for 6 months so would you say I’d need a higher iron supplement? If so could anymore please advise on a decent one ?
Hi, I’ve got a ferritin level of 40.5 (30 - 169) To me this is low isn’t it? Also I have been taking spatone iron sachets for 6 months so would you say I’d need a higher iron supplement? If so could anymore please advise on a decent one ?
Lilymayjean
in
Thyroid UK
4 months ago
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