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I am back again sorry if I wrote this last night.
almost a month ago I had a cardioversion and it was amazing. I have been dealing with a heart rate in the 150s since the end of April. When I woke up from the CV it was 82. I actually had a smile as I awoke. I did not even know my heart rate was down yet so maybe it was the drugs lol but I felt happier
almost a month ago I had a cardioversion and it was amazing. I have been dealing with a heart rate in the 150s since the end of April. When I woke up from the CV it was 82. I actually had a smile as I awoke. I did not even know my heart rate was down yet so maybe it was the drugs lol but I felt happier
DawnTX
in
AF Association
2 years ago
What are your thoughts on RELYVRIO previously known as AMX0035? Could it benefit PD patients as well?
Amylyx Pharmaceuticals Announces FDA Approval of RELYVRIO™ for the Treatment of ALS (September 29, 2022). AMX0035 is a Fixed Combination of Phenylbutyrate (PB) and
Tauroursodeoxycholic Acid (TUDCA)
. Many studies showed TUDCA is beneficial for PD. RELYVRIO (previously known as AMX0035 in the
Amylyx Pharmaceuticals Announces FDA Approval of RELYVRIO™ for the Treatment of ALS (September 29, 2022). AMX0035 is a Fixed Combination of Phenylbutyrate (PB) and
Tauroursodeoxycholic Acid (TUDCA)
. Many studies showed TUDCA is beneficial for PD. RELYVRIO (previously known as AMX0035 in the
Hidden
in
Cure Parkinson's
2 years ago
Metoprolol
I have a CT angiogram tomorrow at 0830 and have been given two tablets of Metoprolol (50mg) to take 12 hrs and then 2hrs before the procedure. This is apparently to slow the heart down (to below 60bpm). I rang the hospital and told them that I already take Sotalol and my heart rate is generally slow
I have a CT angiogram tomorrow at 0830 and have been given two tablets of Metoprolol (50mg) to take 12 hrs and then 2hrs before the procedure. This is apparently to slow the heart down (to below 60bpm). I rang the hospital and told them that I already take Sotalol and my heart rate is generally slow
Samazeuilh2
in
Atrial Fibrillation Support
2 years ago
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Was there a trigger for your symptoms Mine was likely the death of a loved one 🥹
my symptoms all started after the death of my dad at the end of 2019 - I first started to take them ‘seriously ‘ in feb / March 2020 . Although the diagnostic process was long - as most of you will know - the consultant felt it was likely that this Emotional trauma was my trigger . Just wondered
my symptoms all started after the death of my dad at the end of 2019 - I first started to take them ‘seriously ‘ in feb / March 2020 . Although the diagnostic process was long - as most of you will know - the consultant felt it was likely that this Emotional trauma was my trigger . Just wondered
PBMB
in
Fibromyalgia Action UK
2 years ago
Advice please
Since starting on the steroid journey I have experienced palpitations and high blood pressure. The palpitations were controlled by beta blockers and since reducing the steroid dose my blood pressure is back to normal. However my heart rate is not! I’ve reduced the beta blockers because my pulse was
Since starting on the steroid journey I have experienced palpitations and high blood pressure. The palpitations were controlled by beta blockers and since reducing the steroid dose my blood pressure is back to normal. However my heart rate is not! I’ve reduced the beta blockers because my pulse was
Ana-16
in
PMRGCAuk
2 years ago
Sleep Disruption
Hi all, I hope you all have been well!! I’ve been having problems sleeping lately and was wondering if anyone had similar issues or advice. I normally have very bizarre dreams and these dreams cause my heart rate to spike drastically while I’m sleeping, so much so that I’ll wake up and I cannot get my
Hi all, I hope you all have been well!! I’ve been having problems sleeping lately and was wondering if anyone had similar issues or advice. I normally have very bizarre dreams and these dreams cause my heart rate to spike drastically while I’m sleeping, so much so that I’ll wake up and I cannot get my
Dogluvr95
in
AF Association
2 years ago
update / nurse
hi all, well had chat with nurse today and she said my bisoprolol was such a low dose it was not helping me, so going back on my evening one and if that doesn’t help up the flecainide. It’s not what I wanted. All my problems are coming from my left atrium, the rest of my heart is ok so she said. I asked
hi all, well had chat with nurse today and she said my bisoprolol was such a low dose it was not helping me, so going back on my evening one and if that doesn’t help up the flecainide. It’s not what I wanted. All my problems are coming from my left atrium, the rest of my heart is ok so she said. I asked
Electricblue1
in
Atrial Fibrillation Support
2 years ago
Calling all BAT-men ...
(... that's you, Russ!) I am about to begin BAT with a new MO (who works in MA and NH), and am looking for some input from forum members. My MO has an existing contact at Johns Hopkins that he's consulted, but is not (yet) in direct contact with anyone from Denmeade's group so far as I know. A little
(... that's you, Russ!) I am about to begin BAT with a new MO (who works in MA and NH), and am looking for some input from forum members. My MO has an existing contact at Johns Hopkins that he's consulted, but is not (yet) in direct contact with anyone from Denmeade's group so far as I know. A little
noahware
in
Advanced Prostate Cancer
2 years ago
Update on surgery and remission - still doing good - enrolling in a clinical trial, I hope
I had surgery December 13th. They took 14 inches of my colon due to recurrent diverticulitis. And good they did. 5 inches was narrow and stiff and not functioning at all, as I also had a benign but inlfammed tumor over my bladder. So a lot of chronic inflammation has been going on for years they said
I had surgery December 13th. They took 14 inches of my colon due to recurrent diverticulitis. And good they did. 5 inches was narrow and stiff and not functioning at all, as I also had a benign but inlfammed tumor over my bladder. So a lot of chronic inflammation has been going on for years they said
krillemy
in
PMRGCAuk
2 years ago
Clinical Trials !!!!!!
Conversations about #clinicaltrials are important. Check out our Questions to Ask Your Health Care Team here: https://bit.ly/FastFacts1 #colorectalcancer #coloncancer #bowelcancer
Conversations about #clinicaltrials are important. Check out our Questions to Ask Your Health Care Team here: https://bit.ly/FastFacts1 #colorectalcancer #coloncancer #bowelcancer
GCCA-Survivor
Administrator
in
Colon Cancer Connected
2 years ago
Post Ablation breathing difficulties
Hi all! So, I’m 11 weeks post my (first ablation) and I seem to be one of the lucky ones with zero Afib symptoms since the procedure. Long may it last! But I’ve been having breathing issues ever since the op and wanted to know if others have been in a similar position? Generally my chest just feels
Hi all! So, I’m 11 weeks post my (first ablation) and I seem to be one of the lucky ones with zero Afib symptoms since the procedure. Long may it last! But I’ve been having breathing issues ever since the op and wanted to know if others have been in a similar position? Generally my chest just feels
SJ1000
in
AF Association
2 years ago
Personalized mRNA vaccine more
[i]
based on our current understanding of science and medicine, we have reason to be cautiously optimistic that mRNA vaccines, in combination with checkpoint inhibitors, might provide yet another incremental advance toward more effective cancer treatment.
[/i] CANCER Antitumor mRNA vaccines
[i]
based on our current understanding of science and medicine, we have reason to be cautiously optimistic that mRNA vaccines, in combination with checkpoint inhibitors, might provide yet another incremental advance toward more effective cancer treatment.
[/i] CANCER Antitumor mRNA vaccines
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Never Ending
I was only diagnosed a week ago, after a weekend of being in AFib, went to the ER. Confirmed. It's been non stop ever since. I am now on Xarelto and Metoprolol 50 x2 a day. NO relief. Most of my ECG readings show heart rate around 130-140. BP mostly ok--a bit high, but not awful. I find myself
I was only diagnosed a week ago, after a weekend of being in AFib, went to the ER. Confirmed. It's been non stop ever since. I am now on Xarelto and Metoprolol 50 x2 a day. NO relief. Most of my ECG readings show heart rate around 130-140. BP mostly ok--a bit high, but not awful. I find myself
Arnold6694
in
AF Association
2 years ago
Looking for suggestion of clinical trials for mCRPC
I have had SBRT (2007), Chemotherapy (2010/2011), ADT using Casodex/Lupron/Zytiga (2012-Current). Interested in joining trials that involve PARP inihibitors, immunotherapy, or other new/novel therapies. Can any of you suggest trials currently accepting candidates. My PSA was undetectable (<0.01) for
I have had SBRT (2007), Chemotherapy (2010/2011), ADT using Casodex/Lupron/Zytiga (2012-Current). Interested in joining trials that involve PARP inihibitors, immunotherapy, or other new/novel therapies. Can any of you suggest trials currently accepting candidates. My PSA was undetectable (<0.01) for
Cmdrdata
in
Advanced Prostate Cancer
2 years ago
AF taking a different direction??
Had an AF attack yesterday and it was terminated after 3 hours with my PIP 200 mg Flecainide and half a metoprolol tablet. This is about average and I have attacks every 7 to 10 days. After a few hours rest I went for a walk but didn’t feel great, lethargic and generally off par. I kept checking my apple
Had an AF attack yesterday and it was terminated after 3 hours with my PIP 200 mg Flecainide and half a metoprolol tablet. This is about average and I have attacks every 7 to 10 days. After a few hours rest I went for a walk but didn’t feel great, lethargic and generally off par. I kept checking my apple
Kjsp
in
Atrial Fibrillation Support
2 years ago
8 Month Follow up Report from Lu-J591
Results as reflected in PSA downward trend continues to impress! Current PSA is 0.030 down 80% from pre-treatment level. Reviewing: I am mHSPC, lymph node only to pelvis and abdomen. No bone involvement. Diagnosed in 2007 Gl 4+3. RARP had ECE, SVI and positive margins. Underwent docetaxel and prostate
Results as reflected in PSA downward trend continues to impress! Current PSA is 0.030 down 80% from pre-treatment level. Reviewing: I am mHSPC, lymph node only to pelvis and abdomen. No bone involvement. Diagnosed in 2007 Gl 4+3. RARP had ECE, SVI and positive margins. Underwent docetaxel and prostate
MateoBeach
in
Fight Prostate Cancer
2 years ago
Lupron+docetaxel+Abiraterone
First time posting. I have stage IVB PC, which was discovered via a hernia procedure in November 2022. I completed 1 month of ADT with no side effects and my PSA dropped to 1.0. Met with my Oncologist today and he proposed changing my treatment to mirror the CHAARTED clinical trial (Lupron+Docetaxel
First time posting. I have stage IVB PC, which was discovered via a hernia procedure in November 2022. I completed 1 month of ADT with no side effects and my PSA dropped to 1.0. Met with my Oncologist today and he proposed changing my treatment to mirror the CHAARTED clinical trial (Lupron+Docetaxel
TMcgee
in
Advanced Prostate Cancer
2 years ago
Pressure on center of back as in lying down or sitting against the back of a chair etc.
I have been diagnosed with AF and have a pace maker. Recently i have found it uncomfortable to put pressure on center of back and it brings on palpitations and short breath and an irregular rythm.I have an emay portable ECG . I could send a printout.
I have been diagnosed with AF and have a pace maker. Recently i have found it uncomfortable to put pressure on center of back and it brings on palpitations and short breath and an irregular rythm.I have an emay portable ECG . I could send a printout.
Alphakiwi
in
AF Association
2 years ago
Next NoSilverBullet Zoom session Monday 6th of Feb. Dr Matthew Phillips: "Fasting & Dietary Strategies as Therapies in Parkinson’s".
I am delighted to announce that our next NoSilverBullet Zoom session will be taking place at 7.30pm London time on Monday, the 6th of February. Dr Matthew Phillips will be talking to us about “Fasting & Dietary Strategies as Therapies in Parkinson’s Disease”. Matt is well known to many of you and
I am delighted to announce that our next NoSilverBullet Zoom session will be taking place at 7.30pm London time on Monday, the 6th of February. Dr Matthew Phillips will be talking to us about “Fasting & Dietary Strategies as Therapies in Parkinson’s Disease”. Matt is well known to many of you and
Michel0220
in
Cure Parkinson's
2 years ago
raising the topic of a hormone holiday after July
visit to London MO today for more hormones ( switched to 3 month Zolodex because last months Degarelix injection is still a nasty swollen red lump on my stomach) I picked up my Apalutamide and had blood tests as ever with a face to face consult. I decided to ‘soft land’ the subject of a hormone holiday
visit to London MO today for more hormones ( switched to 3 month Zolodex because last months Degarelix injection is still a nasty swollen red lump on my stomach) I picked up my Apalutamide and had blood tests as ever with a face to face consult. I decided to ‘soft land’ the subject of a hormone holiday
Brysonal
in
Fight Prostate Cancer
2 years ago
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