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A New Cell Therapy Trial for MF
Not sure if this has come up before. This company is focused on improving SCT for bone cancers with a new agent, Orca-T. https://orcabio.com/clinical-programs/ A phase 2 trial for MF had this result among others: "Regression of marrow fibrosis to MF grade 0 or 1 was noted by D+ 100 in 7 of 7 Orca-T
Not sure if this has come up before. This company is focused on improving SCT for bone cancers with a new agent, Orca-T. https://orcabio.com/clinical-programs/ A phase 2 trial for MF had this result among others: "Regression of marrow fibrosis to MF grade 0 or 1 was noted by D+ 100 in 7 of 7 Orca-T
EPguy
in
MPN Voice
1 year ago
Persistent atrial fibrillation
I have now been in persistent afib for almost 3 months and have yet to receive a consultants appointment though have received an appointment with a cardionurse on the 28th December!!! I have been self administering (what alternative) and apart from Edoxaban 30mg which I was prescribed by my GP in February
I have now been in persistent afib for almost 3 months and have yet to receive a consultants appointment though have received an appointment with a cardionurse on the 28th December!!! I have been self administering (what alternative) and apart from Edoxaban 30mg which I was prescribed by my GP in February
Swimsyroke
in
AF Association
2 years ago
Erratic Heart Rate - Afib or Tachycardia 24 hour heart monitor.
Since my Open Heart Surgery's twice in April 2019 for an Ascending Thoracic Aortic Aneurysm I've had Afib and Tachycardia issues and was on Amiodarone for a few and months and now on bisoprolol. It settled for a while but its gradually came back and more recently its gotten more frequent. My heart
Since my Open Heart Surgery's twice in April 2019 for an Ascending Thoracic Aortic Aneurysm I've had Afib and Tachycardia issues and was on Amiodarone for a few and months and now on bisoprolol. It settled for a while but its gradually came back and more recently its gotten more frequent. My heart
cjbroon
in
AF Association
2 years ago
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Chemo (Docetaxel) with Prednisone
Hi all, Zytiga stopped working for me and I am castrate-resistant. After a failed clinical trial (immunotherapy) I started Docetaxel 2 weeks ago and was prescribed Prednisone (5mg twice per day). I seem to be very sensitive to the Prednisone....having trouble sleeping, feeling anxious, etc. even when
Hi all, Zytiga stopped working for me and I am castrate-resistant. After a failed clinical trial (immunotherapy) I started Docetaxel 2 weeks ago and was prescribed Prednisone (5mg twice per day). I seem to be very sensitive to the Prednisone....having trouble sleeping, feeling anxious, etc. even when
carguy
in
Advanced Prostate Cancer
1 year ago
11 clinical trials that will shape medicine in 2023
https://www.nature.com/articles/s41591-022-02132-3
https://www.nature.com/articles/s41591-022-02132-3
Farooqji
in
Cure Parkinson's
1 year ago
polycystic liver disease
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
Sep9
in
British Liver Trust
2 years ago
Fitbit for a fib?
hi all. My husband has had paroxysmal a fib for last 4 years and takes digoxin. We use the Kardia mobile with great success. I’m wondering whether to get him either a Fitbit or more expensive Apple Watch so he can keep an eye on how high his rate goes while out on his daily walk. I don’t think it’s
hi all. My husband has had paroxysmal a fib for last 4 years and takes digoxin. We use the Kardia mobile with great success. I’m wondering whether to get him either a Fitbit or more expensive Apple Watch so he can keep an eye on how high his rate goes while out on his daily walk. I don’t think it’s
Janau
in
Atrial Fibrillation Support
2 years ago
Modified Citrus Pectin - reply from Dr Eliaz
A member asked me to post the reply I was to get from Dr Isaac Eliaz on MCP, Modified Citrus Pectin / Pectasol and I do this. Below is my communication with dr Eliaz, generously facilitated by AnnieAppleseed, followed by excerpts from two studies. Dr. Eliaz writes that 80 % of patients with BRPC,
A member asked me to post the reply I was to get from Dr Isaac Eliaz on MCP, Modified Citrus Pectin / Pectasol and I do this. Below is my communication with dr Eliaz, generously facilitated by AnnieAppleseed, followed by excerpts from two studies. Dr. Eliaz writes that 80 % of patients with BRPC,
Purple-Bike
in
Advanced Prostate Cancer
1 year ago
Amiodarone - yes or no ?
Hi all. Just interested to hear from any forum members who have used / or are using Amiodarone to treat their afib. To help with afib it seems to be a last resort medication - I understand that it can and does cause bad side effects. However if you can tolerate these it appears to be the most effective
Hi all. Just interested to hear from any forum members who have used / or are using Amiodarone to treat their afib. To help with afib it seems to be a last resort medication - I understand that it can and does cause bad side effects. However if you can tolerate these it appears to be the most effective
Paulbounce
in
Atrial Fibrillation Support
2 years ago
Doxycycline
Bottom Line: Low-dose Doxycycline may be a useful add-on to other therapies, for a number of reasons: i) inhibition of mitochondrial protein synthesis, with decreased ATP and a slowing of proliferation ... ii) ... &, with a particularly detrimental effect on PCa stem cell-like cells iii) inhibition
Bottom Line: Low-dose Doxycycline may be a useful add-on to other therapies, for a number of reasons: i) inhibition of mitochondrial protein synthesis, with decreased ATP and a slowing of proliferation ... ii) ... &, with a particularly detrimental effect on PCa stem cell-like cells iii) inhibition
pca2004
in
Fight Prostate Cancer
1 year ago
A New Clinical Trial for Pain and Fibrosis in Chronic Pancreatitis!
Hi everyone! I wanted to announce that there's a new clinical trial testing proglumide for pain and fibrosis in chronic pancreatitis patients that is currently recruiting participants in the Washington, D.C. area! We helped design this trial, but we need your help to find participants and get this drug
Hi everyone! I wanted to announce that there's a new clinical trial testing proglumide for pain and fibrosis in chronic pancreatitis patients that is currently recruiting participants in the Washington, D.C. area! We helped design this trial, but we need your help to find participants and get this drug
Skye_MC
Administrator
in
Chronic Pancreatitis Support
1 year ago
Multiple Studies Suggest Eliquis for Afib Can Reduce Stroke, Bleeding Risks Better Than Alternatives
Here is a link to the site re. these studies. https://www.healthline.com/health-news/new-study-suggests-eliquis-for-afib-can-reduce-stroke-bleeding-risks?slot_pos=article_2&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=afib&utm_content=2022-11-03&apid=28242615&rvid=82ca3b83950fba421b7b3a5161d7787766fd74acef2a7ebecea328bbde865607
Here is a link to the site re. these studies. https://www.healthline.com/health-news/new-study-suggests-eliquis-for-afib-can-reduce-stroke-bleeding-risks?slot_pos=article_2&utm_source=Sailthru%20Email&utm_medium=Email&utm_campaign=afib&utm_content=2022-11-03&apid=28242615&rvid=82ca3b83950fba421b7b3a5161d7787766fd74acef2a7ebecea328bbde865607
MJZaw
in
AF Association
2 years ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
1 year ago
Niacin and Butyrate: Nutraceuticals Targeting Dysbiosis and Intestinal Permeability in Parkinson’s Disease
[u]
"Future studies should study the effects of long-term supplementation of promising nutrients, such as butyrate and niacin, on their abilities to halt or reverse disease progression in PD. "
[/u] Niacin and Butyrate: Nutraceuticals Targeting Dysbiosis and Intestinal Permeability in Parkinson
[u]
"Future studies should study the effects of long-term supplementation of promising nutrients, such as butyrate and niacin, on their abilities to halt or reverse disease progression in PD. "
[/u] Niacin and Butyrate: Nutraceuticals Targeting Dysbiosis and Intestinal Permeability in Parkinson
Bolt_Upright
in
Cure Parkinson's
1 year ago
Look after yourself!
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
MrsWorried
in
British Liver Trust
2 years ago
Exercise and Afib
I'm sure you all already know this but I discovered this recently. My cardiologist sent me to cardiac rehab because I have afib and some wall weakening in the heart. The idea is to strengthen the heart muscle to be able to handle any arrhythmia that may come my way. I always thought that talk
I'm sure you all already know this but I discovered this recently. My cardiologist sent me to cardiac rehab because I have afib and some wall weakening in the heart. The idea is to strengthen the heart muscle to be able to handle any arrhythmia that may come my way. I always thought that talk
Elsie1955
in
Atrial Fibrillation Support
2 years ago
Taking part in Watchman trial to establish if it’s safe to come off anti-coagulants like Apixaban
Good afternoon everyone. On Thursday I am scheduled to go for a procedure to have a Watchman device fitted inside my heart at John Radcliffe Hospital here in Oxford under supervision of the Cardiac Research Team. I volunteered to do this as part of a world wide trial covering 3000 patients to assess
Good afternoon everyone. On Thursday I am scheduled to go for a procedure to have a Watchman device fitted inside my heart at John Radcliffe Hospital here in Oxford under supervision of the Cardiac Research Team. I volunteered to do this as part of a world wide trial covering 3000 patients to assess
JefferyW
in
Atrial Fibrillation Support
2 years ago
Grateful for any Feedback on PVI Ablation Please
Hi, My background is:- Developed Atrial Fibrillation in November 2021 (persistent from day 1). Had a cardioversion in February 2022, which lasted about 7 weeks and then back into persistent AF, looking back I carried on as normal after the cardioversion and perhaps I should have been more careful.
Hi, My background is:- Developed Atrial Fibrillation in November 2021 (persistent from day 1). Had a cardioversion in February 2022, which lasted about 7 weeks and then back into persistent AF, looking back I carried on as normal after the cardioversion and perhaps I should have been more careful.
Hidden
in
AF Association
2 years ago
Have any Vagal Afibbers tried exercising before bed?
As I have Vagal Afib I can switch it off early on in an episode with a Valsalva maneuver. A few nights ago I could not stop the Afib as it did not wake me immediately, so I could not stop it the usual way. I had read that some people exercise during Afib, so rather than pop another Flecainide pill I
As I have Vagal Afib I can switch it off early on in an episode with a Valsalva maneuver. A few nights ago I could not stop the Afib as it did not wake me immediately, so I could not stop it the usual way. I had read that some people exercise during Afib, so rather than pop another Flecainide pill I
OzRob
in
AF Association
2 years ago
With love and in loving memory.
Happy New Year to you my fellow travelers, patients and caregivers alike. I send hope that 2023 brings answers to your disease and it’s challenges. The names of those we lost to lung cancer this year are not all known but they will not be forgotten. Their words and their lives remain alive on this board
Happy New Year to you my fellow travelers, patients and caregivers alike. I send hope that 2023 brings answers to your disease and it’s challenges. The names of those we lost to lung cancer this year are not all known but they will not be forgotten. Their words and their lives remain alive on this board
Denzie
Volunteer
in
Lung Cancer Support
1 year ago
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