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How to monitor PCa after you stop ADT?
I've been on Zoladex implants for coming up to 4 years in February. I plan to stop ADT next time when it's due, as my PSA is always "undetectable" and it's been 4 years of physical and mental torment for me (the side effects). I think that enough is enough now. Does anyone have advice on the best ways
I've been on Zoladex implants for coming up to 4 years in February. I plan to stop ADT next time when it's due, as my PSA is always "undetectable" and it's been 4 years of physical and mental torment for me (the side effects). I think that enough is enough now. Does anyone have advice on the best ways
BluesmanNick
in
Advanced Prostate Cancer
6 months ago
Notes for upcoming GP appointment
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Wispymisty
in
LUPUS UK
3 months ago
Can you live longer than 20 years with cirrhosis
18 years ago I was very ill with Hepatises/cirrhosis. Since then I have done ok. I have portal hypertension but no varices. Occasion fluid retention in my legs but no ascites. Enlarged spleen 17mm. I have been asking the doctors if I can live past 20 years with this disease. The responsive have been
18 years ago I was very ill with Hepatises/cirrhosis. Since then I have done ok. I have portal hypertension but no varices. Occasion fluid retention in my legs but no ascites. Enlarged spleen 17mm. I have been asking the doctors if I can live past 20 years with this disease. The responsive have been
1of5
in
British Liver Trust
6 months ago
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My journey thus far
I am currently at the point of deciding on treatment for my high risk prostate cancer. Here is where things stand thus far:
October 2023:
PSA of 22 discovered at routine physical
November 2023:
PSA score of 25.6 upon retest by urologist
December 2023:
TRUS Biopsy. Cancer in
I am currently at the point of deciding on treatment for my high risk prostate cancer. Here is where things stand thus far:
October 2023:
PSA of 22 discovered at routine physical
November 2023:
PSA score of 25.6 upon retest by urologist
December 2023:
TRUS Biopsy. Cancer in
CavScout
in
Advanced Prostate Cancer
6 months ago
Spider Nevis, does anyone else have these?
Short story, hospitalised over a year ago with jaundice and ascites due to alcoholism, considered de compensated cirrhosis, original fibro scan read 22.2kpa, now it’s 9 and I’m considered to have fibrosis and not cirrhosis although my liver is obviously scarred and my doctor is quite honest when he said
Short story, hospitalised over a year ago with jaundice and ascites due to alcoholism, considered de compensated cirrhosis, original fibro scan read 22.2kpa, now it’s 9 and I’m considered to have fibrosis and not cirrhosis although my liver is obviously scarred and my doctor is quite honest when he said
Grassroots112
in
British Liver Trust
6 months ago
Another cause of Pernicious Anaemia?
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
wedgewood
in
Pernicious Anaemia Society
3 months ago
Webinar - Navigating Arthritis: The Young Adult Perspective
Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments
Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments
arthritis_action
Partner
in
Arthritis Action
3 months ago
Answer to unknown question
Jan 2024 (after lots of research and nearly 3 years on from original diagnosis of Metastatic Prostate Cancer with extensive bone metastases) I have just worked out the answer to the question I didn't know I wanted to ask. Instead of worrying about PSA and other test results my real concern was "what
Jan 2024 (after lots of research and nearly 3 years on from original diagnosis of Metastatic Prostate Cancer with extensive bone metastases) I have just worked out the answer to the question I didn't know I wanted to ask. Instead of worrying about PSA and other test results my real concern was "what
Brendan1904
in
Advanced Prostate Cancer
6 months ago
Pain following fibroscan
Hi went for a fibroscan on friday .. the nurse struggled to get reading but kept trying.. diagnosed with liver cirrhosis.. since then i have very bad pain around right side ribs...diarrea .. is this normal.. is it sore ribs or my liver playing up..
Hi went for a fibroscan on friday .. the nurse struggled to get reading but kept trying.. diagnosed with liver cirrhosis.. since then i have very bad pain around right side ribs...diarrea .. is this normal.. is it sore ribs or my liver playing up..
Jender58
in
British Liver Trust
6 months ago
Johnny
just been diagnosed with lupus . I’m 55 and would like advice on how to control symptoms and what foods or supplements help
just been diagnosed with lupus . I’m 55 and would like advice on how to control symptoms and what foods or supplements help
Johnnyfay
in
LUPUS UK
3 months ago
Novel Drug Made of Gold Nanocrystals Appears Safe in Multiple Sclerosis
Small study suggested benefits for MS patients with chronic optic neuropathy
https://www.medpagetoday.com/meetingcoverage/aan/109777?xid=nl_mpt_DHE_2024-04-22&eun=g588185d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%20Evening%202024-04-22&utm_term=NL_Daily_DHE_dual-gmail-definition
Small study suggested benefits for MS patients with chronic optic neuropathy
https://www.medpagetoday.com/meetingcoverage/aan/109777?xid=nl_mpt_DHE_2024-04-22&eun=g588185d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%20Evening%202024-04-22&utm_term=NL_Daily_DHE_dual-gmail-definition
BettysMom
in
My MSAA Community
3 months ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
6 months ago
Declining psa #9
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Nfler
in
Advanced Prostate Cancer
6 months ago
Multiple Sclerosis Predicted by Autoantibody Signature
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
BettysMom
in
My MSAA Community
3 months ago
Join "Your Morning Wake-Up Call," a FREE virtual communication and cognition exercise series designed for individuals with Parkinson's
"Your Morning Wake-Up Call" features a comprehensive approach to enhancing communication and cognition, including: • Breath Exercises to strengthen breath support to help you communicate more effectively. • Voice and Speech Drills to improve your voice and enhance speech clarity. • Stimulating Cognitive
"Your Morning Wake-Up Call" features a comprehensive approach to enhancing communication and cognition, including: • Breath Exercises to strengthen breath support to help you communicate more effectively. • Voice and Speech Drills to improve your voice and enhance speech clarity. • Stimulating Cognitive
JMDean
in
Cure Parkinson's
6 months ago
Mr Alan M
I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I have also taken a lot of over the counter medication for liver disease. I believe that the disease has been caused by DILI / prescribed medication
I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I have also taken a lot of over the counter medication for liver disease. I believe that the disease has been caused by DILI / prescribed medication
TillySyd
in
British Liver Trust
6 months ago
Survey about patient care
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
zoe69
Vasculitis UK
in
Vasculitis UK
3 months ago
Help us develop a new information resource on lupus and the menopause
We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to learn that information, for example through a booklet, a webinar, or a video. You can tell us your thoughts via our short survey: https://forms.gle
We're developing new information resources about lupus and the menopause. We want to find out what people want to know about the topic and how they want to learn that information, for example through a booklet, a webinar, or a video. You can tell us your thoughts via our short survey: https://forms.gle
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
Feeling Disappointed
Following an ablation for SVT in January 2021 I have been problem free for two and a half years (at least heart wise). I began to feel breathless about three weeks ago and now am experiencing fairly regular runs of af. I have had an ablation for af in the past as well as surgery to repair leaky valves
Following an ablation for SVT in January 2021 I have been problem free for two and a half years (at least heart wise). I began to feel breathless about three weeks ago and now am experiencing fairly regular runs of af. I have had an ablation for af in the past as well as surgery to repair leaky valves
spinningjenny
in
AF Association
1 year ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
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