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Background: 45 yo, athletic with no comorbidities. Gleason 9, metastatic with 5 bone mets, node mets, and BRCA2. No surgeries or radiation. I’ve been on ADT since Jan 30, 2023. PSA at time of first Firmagon shot was 78. one month later it at 2nd shot it was 5. On Mar 1, 2023 it was 1.5. started Zytiga
Background: 45 yo, athletic with no comorbidities. Gleason 9, metastatic with 5 bone mets, node mets, and BRCA2. No surgeries or radiation. I’ve been on ADT since Jan 30, 2023. PSA at time of first Firmagon shot was 78. one month later it at 2nd shot it was 5. On Mar 1, 2023 it was 1.5. started Zytiga
revchris77
in
Advanced Prostate Cancer
11 months ago
Increase in PSA
Hi, my dad (age 62) was diagnosed with Stage 4 prostate cancer with multiple bone metastases in October 2022. He is also BRCA positive. He received 6 doses of docetaxel which he completed on 1/30/2023 and has also been taking apalutamide daily and eligard injections every 3 months. He just received
Hi, my dad (age 62) was diagnosed with Stage 4 prostate cancer with multiple bone metastases in October 2022. He is also BRCA positive. He received 6 doses of docetaxel which he completed on 1/30/2023 and has also been taking apalutamide daily and eligard injections every 3 months. He just received
Juju0713
in
Advanced Prostate Cancer
11 months ago
Calcium, confused
Yes, many posts on calcium, to take or not to take. Tall Allen has posted research results on the efficacy and stated that calcium supplements are not necessary if your levels are correct from a blood test.My level of calcium in 2021 was low in spite of using a Mediteranean diet and no supplements. After
Yes, many posts on calcium, to take or not to take. Tall Allen has posted research results on the efficacy and stated that calcium supplements are not necessary if your levels are correct from a blood test.My level of calcium in 2021 was low in spite of using a Mediteranean diet and no supplements. After
edgeh
in
Advanced Prostate Cancer
11 months ago
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Anyone have a high testosterone after SBRT?
In September 2022 I had image guided SBRT utilizing ViewRay Technology for a 3+4 gleason grade, low decipher score, PSA 2.7 before treatment, on Avodart for BPH. Been monitoring PSAs and Testosterone every three months, and remaining on Avodart. During this time my PSAs and Testosterone values have
In September 2022 I had image guided SBRT utilizing ViewRay Technology for a 3+4 gleason grade, low decipher score, PSA 2.7 before treatment, on Avodart for BPH. Been monitoring PSAs and Testosterone every three months, and remaining on Avodart. During this time my PSAs and Testosterone values have
Yearofthecow
in
Prostate Cancer Network
11 months ago
knee replacement
i was just diagnosed stage 4 psa 250 psma scan detected mets 2lymph in pelvis 1lymph suspicious in back Waiting on a prostate biopsy. I am in need of a knee replacement and wrote it off when I was diagnosed. But today I saw Todd1963 refer to having a knee replacement while undergoing therapy. Todd
i was just diagnosed stage 4 psa 250 psma scan detected mets 2lymph in pelvis 1lymph suspicious in back Waiting on a prostate biopsy. I am in need of a knee replacement and wrote it off when I was diagnosed. But today I saw Todd1963 refer to having a knee replacement while undergoing therapy. Todd
pj1121
in
Advanced Prostate Cancer
11 months ago
Another anniversary
Eight days ago i celebrated 17 years of marriage to the beast.. three days later on the ninth, I celebrated 16 years of marriage to my sweetheart Mandy. I promised Mandy 30 years together on our wedding day Why wouldn't I? A year previous, my PSA was over 3200. My lungs look like Swiss cheese and
Eight days ago i celebrated 17 years of marriage to the beast.. three days later on the ninth, I celebrated 16 years of marriage to my sweetheart Mandy. I promised Mandy 30 years together on our wedding day Why wouldn't I? A year previous, my PSA was over 3200. My lungs look like Swiss cheese and
Todd1963
in
Advanced Prostate Cancer
11 months ago
Requesting Help to Develop Bespoke BAT
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Fight Prostate Cancer
11 months ago
Requesting Help to Develop Bespoke BAT Protocol
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Advanced Prostate Cancer
11 months ago
PSA Went Up After Start of ADT
I had my prostate removed in January. I started ADT about two weeks ago and just received my second session of radiation. Prior to starting ADT, my PSA was .37 and a month prior was .22. I had blood drawn right after my first session of radiation yesterday and got the result back today. My PSA has
I had my prostate removed in January. I started ADT about two weeks ago and just received my second session of radiation. Prior to starting ADT, my PSA was .37 and a month prior was .22. I had blood drawn right after my first session of radiation yesterday and got the result back today. My PSA has
toyman79912
in
Advanced Prostate Cancer
11 months ago
Tests/Scans etc
Does anyone know if there are any blood tests that would indicate whether the cancer has spread and become neuroendocrine? My husband has monthly PSA and Chromogranin A blood tests . PSA remains undetectable but Chroma A is creeping up but still low. His oncologist is not keen on extra scanning but without
Does anyone know if there are any blood tests that would indicate whether the cancer has spread and become neuroendocrine? My husband has monthly PSA and Chromogranin A blood tests . PSA remains undetectable but Chroma A is creeping up but still low. His oncologist is not keen on extra scanning but without
NickJoy
in
Advanced Prostate Cancer
11 months ago
5 year diagnosis anniversary!
I just passed my 5 years diagnosis anniversary, and I’m happy to report that my treatment has been durable and my PSA remains < 0.01. At diagnosis, I had a PSA of 211, an alk phos above 900, multiple Mets, a Gleason of 9 (5+4), and a wonky, non-hereditary PTEN gene. My treatment from day 1 has been
I just passed my 5 years diagnosis anniversary, and I’m happy to report that my treatment has been durable and my PSA remains < 0.01. At diagnosis, I had a PSA of 211, an alk phos above 900, multiple Mets, a Gleason of 9 (5+4), and a wonky, non-hereditary PTEN gene. My treatment from day 1 has been
catbus
in
Advanced Prostate Cancer
11 months ago
Advice Needed, Abiraterone Failing?
Hi to all, I was diagnosed with locally advanced prostate cancer back in 2018. I have had 40 sessions of radiotherapy and HT since then, I am currently taking Abiraterone with Steroids and I have a three-monthly De-Capetyl injection. My Gleason score is 7, (4+3). I recently had a Gallium PSMA PET scan
Hi to all, I was diagnosed with locally advanced prostate cancer back in 2018. I have had 40 sessions of radiotherapy and HT since then, I am currently taking Abiraterone with Steroids and I have a three-monthly De-Capetyl injection. My Gleason score is 7, (4+3). I recently had a Gallium PSMA PET scan
scranbag
in
Advanced Prostate Cancer
11 months ago
Pmr and raised psa
Does anyone know if pmr and predisinol raises your psa .husband was put on predisinol 6 months ago blood test for prostate psa was 5.1 and digital examination done all seemed ok and husband has no prostate problems.He had a flare up due to work load and went from 6 to 8.5 od predisinoland now 8 which
Does anyone know if pmr and predisinol raises your psa .husband was put on predisinol 6 months ago blood test for prostate psa was 5.1 and digital examination done all seemed ok and husband has no prostate problems.He had a flare up due to work load and went from 6 to 8.5 od predisinoland now 8 which
andfio
in
PMRGCAuk
11 months ago
Neuropathic Foot Pain
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hello Warriors: I've just finished my second pluvicto injection and everything seems to be going fine. PSA is going down and I do have mild bouts of diarrhea but that is totally manageable. My 20 year battle with this disease continues. I will never give up . I continue to have neuropathic foot
Hidden
in
Advanced Prostate Cancer
11 months ago
PSA Nadir After RT+ADT for Prostate Cancer Predicts Outcomes
monthshttps://www.renalandurologynews.com/home/news/urology/prostate-cancer/psa-nadir-after-rtadt-for-prostate-cancer-predicts-outcomes/?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter One could read this and construe that that 6 months of ADT would be as good as as 24-36 but of course
monthshttps://www.renalandurologynews.com/home/news/urology/prostate-cancer/psa-nadir-after-rtadt-for-prostate-cancer-predicts-outcomes/?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter One could read this and construe that that 6 months of ADT would be as good as as 24-36 but of course
Scout4answers
in
Advanced Prostate Cancer
11 months ago
Asking employer for accommodations - yes, no, maybe?
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
farmanerd
in
Advanced Prostate Cancer
11 months ago
Pluvicto and tongue and taste issues
Previously posted the below message. Just had third Pluvicto infusion (6/9) and tongue and taste issue has gotten worse. Tried all suggestions from Oral Medicine at Dana and suggestions on HealthUnlocked. Has anyone experienced this issue and if so, any further suggestions. Your input always appreciated
Previously posted the below message. Just had third Pluvicto infusion (6/9) and tongue and taste issue has gotten worse. Tried all suggestions from Oral Medicine at Dana and suggestions on HealthUnlocked. Has anyone experienced this issue and if so, any further suggestions. Your input always appreciated
TTJJ1
in
Advanced Prostate Cancer
11 months ago
Imraldi started Jan 23
Was diagnosed with PSA in Sept 21(previously just arthritis) have been on Sulfasalazine since December 20, Methotrexate tablets from Sept 21 which were changed to metoject in April 22 because of side effects and not really helping! Metoject sent my LFTs sky rocketing to 152 them 196 and they wanted me
Was diagnosed with PSA in Sept 21(previously just arthritis) have been on Sulfasalazine since December 20, Methotrexate tablets from Sept 21 which were changed to metoject in April 22 because of side effects and not really helping! Metoject sent my LFTs sky rocketing to 152 them 196 and they wanted me
Kaylee62
in
Beyond Psoriasis
11 months ago
QoL Book Recommendation?
I'm 75 and four years ago, upon my Dx, my oncologist reluctantly guessed I had 3-4 years. Thankfully, I've reacted great to Erleada and Lupron, with few side effects. My PSA gradually dropped from 67 to undetectable and has held there steady for three years. Obviously, I've been grateful, but stupidly
I'm 75 and four years ago, upon my Dx, my oncologist reluctantly guessed I had 3-4 years. Thankfully, I've reacted great to Erleada and Lupron, with few side effects. My PSA gradually dropped from 67 to undetectable and has held there steady for three years. Obviously, I've been grateful, but stupidly
NorYug
in
Advanced Prostate Cancer
11 months ago
Advice on bloodwork after radiation treatment?
Hello all, I have been coming back to this forum since finding it a few weeks back, and am looking for some advice and thoughts on my father's case. He was diagnosed with prostate cancer (a very low PSA) back in 2016, underwent a radical prostatectomy that year, and then radiation a year or two later
Hello all, I have been coming back to this forum since finding it a few weeks back, and am looking for some advice and thoughts on my father's case. He was diagnosed with prostate cancer (a very low PSA) back in 2016, underwent a radical prostatectomy that year, and then radiation a year or two later
Hidden
in
Advanced Prostate Cancer
11 months ago
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