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Back pain
I’m getting rear rib pain that I largely feel when lying down and in certain body movement. I do have a little spread to my front ribs. Not sure if this is something to worry about or yet another consequence of the PC and/or medication. My PSA is creeping up though my oncologist it not concerned at the
I’m getting rear rib pain that I largely feel when lying down and in certain body movement. I do have a little spread to my front ribs. Not sure if this is something to worry about or yet another consequence of the PC and/or medication. My PSA is creeping up though my oncologist it not concerned at the
FortyWinks
in
Advanced Prostate Cancer
9 months ago
my life is miserable life due to hormone treatment (eligard) want to quit asap . questions to ask ? /experiences ?
Im a very active 61 - had zero symptoms - no peeing in the night etc and 15 PSA was only flagged while doing pre op for a hip replacement in January. Next PSA was 17 in March so in for biopsy - 8 positive biopsy samples of 48 taken but only one of concern with Gleason of 8. PET scan indicated borderline
Im a very active 61 - had zero symptoms - no peeing in the night etc and 15 PSA was only flagged while doing pre op for a hip replacement in January. Next PSA was 17 in March so in for biopsy - 8 positive biopsy samples of 48 taken but only one of concern with Gleason of 8. PET scan indicated borderline
moon1878
in
Prostate Cancer Network
9 months ago
Wait or start docetaxel?
Currently taking Nubeqa and Orgovyx but PSA doubling time is only 7 weeks and PSMA scan shows activity in abdominal lymph nodes, 2 vertebrae and 2 ribs. MO suggested DORA Clinical trial (everyone gets docetaxel, half get radium) but the head of a trial I was previously in at NIH feels that unless a CT
Currently taking Nubeqa and Orgovyx but PSA doubling time is only 7 weeks and PSMA scan shows activity in abdominal lymph nodes, 2 vertebrae and 2 ribs. MO suggested DORA Clinical trial (everyone gets docetaxel, half get radium) but the head of a trial I was previously in at NIH feels that unless a CT
AllenMarco
in
Advanced Prostate Cancer
9 months ago
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WHAT ARE THE CURRENT EFFECTIVE SALVAGE TREATMENTS IN CASE OF A REOCCURRENCE IF YOU HAVE HAD SBRT,IMRT, WITH PLACEMENT OF GOLD BARS?
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
JWS13
in
Advanced Prostate Cancer
10 months ago
I like it, but not too much: Phase 2 trial of a DNA vaccine (pTVG-HP) and nivolumab in patients with nmHSPC
"No patients met the primary endpoint of complete PSA response; however, 4/19 (21%) patients had a PSA decline >50%. Median PSA doubling times were 5.9 months pretreatment, 25.6 months on-treatment (p=0.001), and 9.0 months in the subsequent year off-treatment. The overall median radiographic progression-free
"No patients met the primary endpoint of complete PSA response; however, 4/19 (21%) patients had a PSA decline >50%. Median PSA doubling times were 5.9 months pretreatment, 25.6 months on-treatment (p=0.001), and 9.0 months in the subsequent year off-treatment. The overall median radiographic progression-free
Maxone73
in
Advanced Prostate Cancer
10 months ago
Rising PSA
I had a prostatectomy almost 3 years ago. My PSA has been undetectable (<0.01) for all that time. This week it was .02 I’m going to redo the test to make sure. Then my urologist wants to refer me to a radiation oncologist. Has anyone had any experience with this. It’s really been hard trying to sort
I had a prostatectomy almost 3 years ago. My PSA has been undetectable (<0.01) for all that time. This week it was .02 I’m going to redo the test to make sure. Then my urologist wants to refer me to a radiation oncologist. Has anyone had any experience with this. It’s really been hard trying to sort
MJPH
in
Prostate Cancer And Gay Men
10 months ago
Should I be concernedPSA rising from 0.3 to 0.40
after being undetectable for ~ 5 years my PSA became detectable 0.10 in July. In October I was retested and my PSA was 0.30 . In early November I had a PSMA-Pet scan which was negative. Today I was retested with a result of 0.40. How soon should I followup with my MO? Any advice would be appreciated
after being undetectable for ~ 5 years my PSA became detectable 0.10 in July. In October I was retested and my PSA was 0.30 . In early November I had a PSMA-Pet scan which was negative. Today I was retested with a result of 0.40. How soon should I followup with my MO? Any advice would be appreciated
Rfs1975
in
Advanced Prostate Cancer
10 months ago
Declining psa #8
Gm folks, hope all is well during this Christmas season… I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely. Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95
Gm folks, hope all is well during this Christmas season… I’ve just received my 8th psa test after getting off ADT, 9 months of using alternative meds ivermectin, cbd oil turmeric zinc ashwaganda n dim a natural estrogen blocker solely. Psa came in at .95 down from 1.29, 6 weeks ago and down from 1.95
Nfler
in
Advanced Prostate Cancer
10 months ago
combining standard PCA care with alternative care
In a three month period my PSA went from 58 to 70. Obviously my testosterone was producing more new cancer cells than my alternative treatment. I started the combination treatment on Dec 1 by taking 2 ORGOVYX. Dec 15 my PSA is 27.5 and I will take one more ORGOVYX today hoping to reduce PSA to 10
In a three month period my PSA went from 58 to 70. Obviously my testosterone was producing more new cancer cells than my alternative treatment. I started the combination treatment on Dec 1 by taking 2 ORGOVYX. Dec 15 my PSA is 27.5 and I will take one more ORGOVYX today hoping to reduce PSA to 10
agnut
in
Fight Prostate Cancer
10 months ago
PSA on the rise
Good morning everyone, my PSA has been undectable, {<.01} since July 2022. Not real long, but it has been a good time. Felt good, no pain, can look on my profile for more details. I am on Xtandi and Lupron--(3 months). (I had taxetere in 2021) I get my PSA checked every three months right before
Good morning everyone, my PSA has been undectable, {<.01} since July 2022. Not real long, but it has been a good time. Felt good, no pain, can look on my profile for more details. I am on Xtandi and Lupron--(3 months). (I had taxetere in 2021) I get my PSA checked every three months right before
JD-guy
in
Advanced Prostate Cancer
10 months ago
PSA post Salvage Radiation
Prior post: My husband, at diagnosis had 3+4 on a couple of samples and chose to have surgery. He had clean margins and reached undetectable PSA after Prostatectomy. Near the end of 5th year after surgery his PSA became detectable. He did salvage radiation at .09 PSA. His PSA went down to .08 after
Prior post: My husband, at diagnosis had 3+4 on a couple of samples and chose to have surgery. He had clean margins and reached undetectable PSA after Prostatectomy. Near the end of 5th year after surgery his PSA became detectable. He did salvage radiation at .09 PSA. His PSA went down to .08 after
Silverlings
in
Advanced Prostate Cancer
10 months ago
Do I need 6th Pluvicto infusion? PSA undetectable for 6 months.
I've been on the PSMAddition trial having had 5 of 6th infusions. PSA undetectable (<0.02) since June (it was 0.31 in early May when accepted into trial with relatively low burden PSMA-avid lesions). Aug 4 CT/bone scans showed significant reductions in size and activity of lesions (prior to 3rd treatment
I've been on the PSMAddition trial having had 5 of 6th infusions. PSA undetectable (<0.02) since June (it was 0.31 in early May when accepted into trial with relatively low burden PSMA-avid lesions). Aug 4 CT/bone scans showed significant reductions in size and activity of lesions (prior to 3rd treatment
LongTimeRunning
in
Advanced Prostate Cancer
10 months ago
Has anybody used Immucura clinics ?
Hi All, Has anybody used this clinic.. https://sender3.zohoinsights.eu/ck1/13ef.4aba358de/52998e20-9a8f-11ee-ae28-5254002420aa/79e0e7dcd769f1a82f624b9a91845fe7611ef03f/1?e=veESl5RWLMzB2z2VdaUL3CUq0DH9HEX%2FaTvkyymfYCc%3D I'm looking for next stepping stone.. Had nanoknife in 2018, and although psa
Hi All, Has anybody used this clinic.. https://sender3.zohoinsights.eu/ck1/13ef.4aba358de/52998e20-9a8f-11ee-ae28-5254002420aa/79e0e7dcd769f1a82f624b9a91845fe7611ef03f/1?e=veESl5RWLMzB2z2VdaUL3CUq0DH9HEX%2FaTvkyymfYCc%3D I'm looking for next stepping stone.. Had nanoknife in 2018, and although psa
321adam
in
Advanced Prostate Cancer
10 months ago
Quick follow up to PSA Bounce
RO called today and told me not to be concerned that my 1st PSA was 12 after original was 9 in March. He said that there are likely a few reasons. - remaing inflammation in prostate from treatment (I was tested 58 days after completing SBRT) -possible mild prostatitis -possible infection He said
RO called today and told me not to be concerned that my 1st PSA was 12 after original was 9 in March. He said that there are likely a few reasons. - remaing inflammation in prostate from treatment (I was tested 58 days after completing SBRT) -possible mild prostatitis -possible infection He said
Chasbearcat999
in
Prostate Cancer Network
10 months ago
Effect of Constipation on PSA
Found this. https://pubmed.ncbi.nlm.nih.gov/22040453/
Found this. https://pubmed.ncbi.nlm.nih.gov/22040453/
dhccpa
in
Advanced Prostate Cancer
10 months ago
I just started Zytiga and at the age of 86 I'm finding it difficult to climb stairs; I do have a slow heartbeat when at rest: mid to high 40
I just started Zytiga and at the age of 86 I'm finding it difficult to climb stairs; I do have a slow heartbeat when at rest: mid to high 40s. I've been on Orgovyx for 3 months, when I added Xytiga, which was added because Orgovyx was only able to bring my PSA from 12 to 1.8. Thoughts, Terry
I just started Zytiga and at the age of 86 I'm finding it difficult to climb stairs; I do have a slow heartbeat when at rest: mid to high 40s. I've been on Orgovyx for 3 months, when I added Xytiga, which was added because Orgovyx was only able to bring my PSA from 12 to 1.8. Thoughts, Terry
Poollover
in
Advanced Prostate Cancer
10 months ago
What next after Docetaxel...?
On 4/19/23 I was seen by the trial MO to confirm the previous recommendation of 10 sessions of of Docetaxel after the new liquid biopsy confirmed the first one with no mutations. Meanwhile, the PSA has risen to 115 before a kidney issue and to about 350 just before Chemo. On 12/06/2023, after 9 sessions
On 4/19/23 I was seen by the trial MO to confirm the previous recommendation of 10 sessions of of Docetaxel after the new liquid biopsy confirmed the first one with no mutations. Meanwhile, the PSA has risen to 115 before a kidney issue and to about 350 just before Chemo. On 12/06/2023, after 9 sessions
Ollie1948
in
Advanced Prostate Cancer
10 months ago
PSA Numbers and 3rd Round of Docetaxel
Hi all - so first an update. Had 3rd chemo session out of 6 yesterday and at least in my experience things are going really well all things considered. Lost hair on balls first then finally head and facial but elsewhere it is good. No issues with hand or feets. No nausea or fatigue. In fact I had
Hi all - so first an update. Had 3rd chemo session out of 6 yesterday and at least in my experience things are going really well all things considered. Lost hair on balls first then finally head and facial but elsewhere it is good. No issues with hand or feets. No nausea or fatigue. In fact I had
Yzinger
in
Advanced Prostate Cancer
10 months ago
Medical Oncologist in Denver
Hello all. Up to this point in my journey my treatment has been guided by a Urologist with SOC. I had a prostatectomy in December 2021 followed by above normal psa. A PSMA PET scan revealed several metastasis in lymph nodes. Started on Eligard and Aberaterone in February 2022 and 38 sessions of whole
Hello all. Up to this point in my journey my treatment has been guided by a Urologist with SOC. I had a prostatectomy in December 2021 followed by above normal psa. A PSMA PET scan revealed several metastasis in lymph nodes. Started on Eligard and Aberaterone in February 2022 and 38 sessions of whole
16S4
in
Advanced Prostate Cancer
10 months ago
PSA in lower range, yet PSMA PET SCAN shows diffuse bone Metastasis
Dear all , my father latest Total PSA level shows 6.24 which is down after touching 10.45. He was given one infusion of Docetaxel, however, he has been weaned off due to adverse reactions he has had, as his overall condition worsened and he had lot of prolonged mouth sores, with WBCs touching .08 and
Dear all , my father latest Total PSA level shows 6.24 which is down after touching 10.45. He was given one infusion of Docetaxel, however, he has been weaned off due to adverse reactions he has had, as his overall condition worsened and he had lot of prolonged mouth sores, with WBCs touching .08 and
Ij2023
in
Advanced Prostate Cancer
10 months ago
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