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Experiences with
Aicardi-goutieres syndrome (AGS)
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Update on Idiopathic Pulmonary Fibrosis treatment.
Just a wee update on my previous post on being diagnosed with IPF. I have now been prescribed the drug Nintenidab and Mycophenalate has been removed as it had stopped being effective. There has not been any diahorrea thank goodness! But, have had a 'rumbly tummy' ever since starting on the new med. last
Just a wee update on my previous post on being diagnosed with IPF. I have now been prescribed the drug Nintenidab and Mycophenalate has been removed as it had stopped being effective. There has not been any diahorrea thank goodness! But, have had a 'rumbly tummy' ever since starting on the new med. last
marilynmcl
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Knee operation
I am due to go into hospital for knee replacement, but iam worried about how to cope with my RLS post op. The thought of my leg klcking out at night fills me with fear, any help would be great. Haydn.
I am due to go into hospital for knee replacement, but iam worried about how to cope with my RLS post op. The thought of my leg klcking out at night fills me with fear, any help would be great. Haydn.
holden47
in
Restless Legs Syndrome
4 years ago
Feeling hopeless-pregnant with rls.
I'm not sure if I'm here to vent, get support, advice or what. It's almost 3:30am and I've been struggling to fall asleep. This is a nightly thing now during this pregnancy. I'm 28 weeks along and I'm absolutely miserable due to my legs and lack of sleep. It started early with this pregnancy and nothing
I'm not sure if I'm here to vent, get support, advice or what. It's almost 3:30am and I've been struggling to fall asleep. This is a nightly thing now during this pregnancy. I'm 28 weeks along and I'm absolutely miserable due to my legs and lack of sleep. It started early with this pregnancy and nothing
Emmarielee
in
Restless Legs Syndrome
4 years ago
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Severe impaction told to use lactulose then Movicol
Hi Guys, As the title says I've finally been diagnosed (after a CT Scan and Colonoscopy) with impacted bowel. I never had a clue as I thought I was going normally everyday but was experiencing feeling of incomplete evacuation. I was advised to take lactulose 15ml twice a day for at least 6 months. I've
Hi Guys, As the title says I've finally been diagnosed (after a CT Scan and Colonoscopy) with impacted bowel. I never had a clue as I thought I was going normally everyday but was experiencing feeling of incomplete evacuation. I was advised to take lactulose 15ml twice a day for at least 6 months. I've
Devlin26
in
IBS Network
4 years ago
Novel coronavirus man-made? Lancet Journal just said 84% transmission, 15% death rate GREATER than SARS virus.
https://www.naturalhealth365.com/coronavirus-death-toll-3285.html Keep distance of at least six feet. . Middle of the article there is a link to Professor Francis Boyel's talk. Very interesting. All those people screaming the end of the world is coming. I think it's finally coming true. .
https://www.naturalhealth365.com/coronavirus-death-toll-3285.html Keep distance of at least six feet. . Middle of the article there is a link to Professor Francis Boyel's talk. Very interesting. All those people screaming the end of the world is coming. I think it's finally coming true. .
parkie13
in
Cure Parkinson's
4 years ago
General Anesthesia and Severe Brittle Asthma
Has anyone had the experience of both, had a GA yesterday was due to have a spinal but they changed it to full GA yesterday peak flow was 500, today 340 and now on steroids and antibiotics and feeling awful. Xx
Has anyone had the experience of both, had a GA yesterday was due to have a spinal but they changed it to full GA yesterday peak flow was 500, today 340 and now on steroids and antibiotics and feeling awful. Xx
Kimmy132
in
Asthma Community Forum
4 years ago
Egg transfer done!!
So, after a nail biting anxious few days after egg collection, I now have a 5AA embaby on boardš¬šš. I have another good quality embie going in the freezer. Will find out in the morning if I have two more to go in the freezer so fingers crossed! Good luck to all you ladies whatever stage of IVF you
So, after a nail biting anxious few days after egg collection, I now have a 5AA embaby on boardš¬šš. I have another good quality embie going in the freezer. Will find out in the morning if I have two more to go in the freezer so fingers crossed! Good luck to all you ladies whatever stage of IVF you
Hidden
in
Fertility Network UK
4 years ago
Trilogy and restless legs
Trilogy has been on my list of medications for the past few months. I need it for COPD. Shortly after beginning therapy my restless legs kicked in with a vengeance. It seems like it's every night, mornings too. Discontinuing Trilogy it's not an option. Has anyone else experienced this problem? My doctor
Trilogy has been on my list of medications for the past few months. I need it for COPD. Shortly after beginning therapy my restless legs kicked in with a vengeance. It seems like it's every night, mornings too. Discontinuing Trilogy it's not an option. Has anyone else experienced this problem? My doctor
Foxden6915
in
Restless Legs Syndrome
4 years ago
Buserelin shortage?
Hi all. Iāve been told by my clinic thereās a national shortage of buserelin sub cut so I have to do the nasal sprays. This is a nightmare for me as I have a very high pressure job with loads of meetings every day so taking the spray on time is going to be really difficult. Plus it means Iāll have to
Hi all. Iāve been told by my clinic thereās a national shortage of buserelin sub cut so I have to do the nasal sprays. This is a nightmare for me as I have a very high pressure job with loads of meetings every day so taking the spray on time is going to be really difficult. Plus it means Iāll have to
JoP32
in
Fertility Network UK
4 years ago
Opinions on Clomiphene?
Due to the fact and I have Pcos and I donāt ovulate often, my gp referred me to a specialist. Looking at my blood tests, my husbandās semen result and the fact I got pregnant last year, he said it doesnāt look like I have a problem conceiving and itās just due to ovulation not occurring every month.
Due to the fact and I have Pcos and I donāt ovulate often, my gp referred me to a specialist. Looking at my blood tests, my husbandās semen result and the fact I got pregnant last year, he said it doesnāt look like I have a problem conceiving and itās just due to ovulation not occurring every month.
FrancyItaly
in
Fertility Network UK
4 years ago
Any info on RLS and Chronic Kidney Disease?
Hello, fellow twitchers. My pertinent PMH: I spent 3 weeks in a coma after I fractured my skull in an MVA 35 years ago. My speech is sometimes slurred and I have impulse control issues. 20 years ago, I donated a kidney to my mom and shortly after that RLS started. A doctor prescribed Levodopa, then Ropinole
Hello, fellow twitchers. My pertinent PMH: I spent 3 weeks in a coma after I fractured my skull in an MVA 35 years ago. My speech is sometimes slurred and I have impulse control issues. 20 years ago, I donated a kidney to my mom and shortly after that RLS started. A doctor prescribed Levodopa, then Ropinole
ArtHanger
in
Restless Legs Syndrome
4 years ago
Your experience of Steroids and metphormin in IVF FET cycle
Hi ladies Iāve had my 5th embryo transfer in the beginning of January and I was gobsmacked when I got a BFP. Unfortunately we had scan today and Iāve miscarried at week 6/7. I have 4 frozen embryos left but am losing hope. Donāt know what to do as donāt know if itās a fail due to chromosomal abnormality
Hi ladies Iāve had my 5th embryo transfer in the beginning of January and I was gobsmacked when I got a BFP. Unfortunately we had scan today and Iāve miscarried at week 6/7. I have 4 frozen embryos left but am losing hope. Donāt know what to do as donāt know if itās a fail due to chromosomal abnormality
Hope-and-faith
in
Fertility Network UK
4 years ago
DESPERATE FOR HELP
This is my 8th day of withdrawal from ropinirole. My doctor is unavailable and if I go to the ER they'll think I'm looking for a cheap high. I could use some reasonable advice. I am now taking 1 mg of Ropinirole in the afternoon and another in the evening for 3 more days and then 1 mg . Then 1 at
This is my 8th day of withdrawal from ropinirole. My doctor is unavailable and if I go to the ER they'll think I'm looking for a cheap high. I could use some reasonable advice. I am now taking 1 mg of Ropinirole in the afternoon and another in the evening for 3 more days and then 1 mg . Then 1 at
sweetiepye
in
Restless Legs Syndrome
4 years ago
Pramiprexole worsening my RLS?
Long story but will do my best to sumarize :) I come to this forum out of desperation to get some decent sleep. Since becoming healthier and losing 3st (now 18.0st) I have found I have RLS, originally i was put on .088 1 tablet a night, which within 3 months increased to 3 tablets a night and 3 in
Long story but will do my best to sumarize :) I come to this forum out of desperation to get some decent sleep. Since becoming healthier and losing 3st (now 18.0st) I have found I have RLS, originally i was put on .088 1 tablet a night, which within 3 months increased to 3 tablets a night and 3 in
Omegadcuj
in
Restless Legs Syndrome
4 years ago
FET cancelled š
Hey everyone I am new to here but been reading lots of comments etc about FET After having an ectopic and three miscarriages I couldnāt wait to start my Ivf Itās been such a long journey I had to do a freeze all because I was High risk of OHSS ! The timing wasnāt great I couldnāt start straight away
Hey everyone I am new to here but been reading lots of comments etc about FET After having an ectopic and three miscarriages I couldnāt wait to start my Ivf Itās been such a long journey I had to do a freeze all because I was High risk of OHSS ! The timing wasnāt great I couldnāt start straight away
Cmc2020
in
Fertility Network UK
4 years ago
Augmentation & Ropnirole
My story started in 2013 when shortly after a prostate surgery procedure my rls became a significant issue. A hospital neurologist prescribed Ropinirolde (dosage o.25mg rising to 0.5mg) & tramadol.(50mg) Apart from one or two instances the prescription allowed me more often than not 8 hours sleep every
My story started in 2013 when shortly after a prostate surgery procedure my rls became a significant issue. A hospital neurologist prescribed Ropinirolde (dosage o.25mg rising to 0.5mg) & tramadol.(50mg) Apart from one or two instances the prescription allowed me more often than not 8 hours sleep every
m1946
in
Restless Legs Syndrome
4 years ago
Rls vitamins
Don't know if anyone has heard of these pills I found on amazon. Haven't ordered them yet but the reviews from others with rls are good. What do you all think? Calm Legs Natural Sleep Aid for Natural Itching, Crawling, Tingling and Leg Jerk Relief with Iron, Magnesium, and Valerian
Don't know if anyone has heard of these pills I found on amazon. Haven't ordered them yet but the reviews from others with rls are good. What do you all think? Calm Legs Natural Sleep Aid for Natural Itching, Crawling, Tingling and Leg Jerk Relief with Iron, Magnesium, and Valerian
Mustanggirlgirl
in
Restless Legs Syndrome
4 years ago
Pregnancy scan nt fluid measuring 8mm
Hi Iāve had my 12 week scan to find a lot of fluid around the baby. We had another last week and it measured 7.9mm and this week 8mm. Iāve been booked in for an amniocentesis in a few weeks time. Has anyone else had a similar experience? The heart rate was good. However they did say the extra fluid can
Hi Iāve had my 12 week scan to find a lot of fluid around the baby. We had another last week and it measured 7.9mm and this week 8mm. Iāve been booked in for an amniocentesis in a few weeks time. Has anyone else had a similar experience? The heart rate was good. However they did say the extra fluid can
Bump2020
in
Pregnancy and Parenting Support
4 years ago
Pramipexole withdrawal
So been to Dr today and explained I wanted to drop the pramipexole due to starting augementation this was what heās suggested for tapering I am on 350mg now And starting Pregabalin at 25mg to start and up it slowly
So been to Dr today and explained I wanted to drop the pramipexole due to starting augementation this was what heās suggested for tapering I am on 350mg now And starting Pregabalin at 25mg to start and up it slowly
Hages
in
Restless Legs Syndrome
4 years ago
A new member hoping to learn from others
Hello, I'm new to this forum. I've had RLS for most of my life but getting worse the last few years, especially since starting Sertraline a couple of months ago - I'm up every night pacing the floor and don't get to sleep before 2am usually. I also get that periodic leg movement thing while awake; that's
Hello, I'm new to this forum. I've had RLS for most of my life but getting worse the last few years, especially since starting Sertraline a couple of months ago - I'm up every night pacing the floor and don't get to sleep before 2am usually. I also get that periodic leg movement thing while awake; that's
Embroiderer
in
Restless Legs Syndrome
4 years ago
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