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Experiences with
Adrenomyeloneuropathy
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Severe congestive heart failure caused by adrenomyeloneuropathy and hyperthyroidism
Here is one to cheer everyone up. As if we didn't have enough to worry about. https://www.researchgate.net/publication/281732912_Severe_congestive_heart_failure_caused_by_adrenomyeloneuropathy_and_hyperthyroidism
Here is one to cheer everyone up. As if we didn't have enough to worry about. https://www.researchgate.net/publication/281732912_Severe_congestive_heart_failure_caused_by_adrenomyeloneuropathy_and_hyperthyroidism
monkeybus
in
AMN EASIER
7 years ago
Podcast Session: "Living with AMN – A Clinical & Research Perspective”
From the AMN RareShare Community: We are proud to invite you for the upcoming podcast session discussing: “Living with
Adrenomyeloneuropathy
– A Clinical & Research Perspective” featuring Dr Paul Orchard, MD and Dr William Rizzo, MD On June 14, 2017 at 10:00 AM EDT The 45 minute segment will feature
From the AMN RareShare Community: We are proud to invite you for the upcoming podcast session discussing: “Living with
Adrenomyeloneuropathy
– A Clinical & Research Perspective” featuring Dr Paul Orchard, MD and Dr William Rizzo, MD On June 14, 2017 at 10:00 AM EDT The 45 minute segment will feature
SongStream
in
AMN EASIER
7 years ago
ALD Connect's Breakout Session for Men with AMN
Join the discussion moderated by #ALD and #AMN patient advocate Justin D'Agostino as men talk about important issues they confront with
adrenomyeloneuropathy
. Here's the link to the event to register: https://www.facebook.com/events/1256042984503457/
Join the discussion moderated by #ALD and #AMN patient advocate Justin D'Agostino as men talk about important issues they confront with
adrenomyeloneuropathy
. Here's the link to the event to register: https://www.facebook.com/events/1256042984503457/
bsc78
in
AMN EASIER
7 years ago
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Newly diagnosed
I have recently been diagnosed with
Adrenomyeloneuropathy
. I am 35, have spasticity, numbness in both feet, pins and needles, and I am so tired. Yesterday I spent the entire day reading through the posts on this site.
I have recently been diagnosed with
Adrenomyeloneuropathy
. I am 35, have spasticity, numbness in both feet, pins and needles, and I am so tired. Yesterday I spent the entire day reading through the posts on this site.
russianbob
in
AMN EASIER
8 years ago
Ayahuasca
Magic Mushrooms do nothing for
Adrenomyeloneuropathy
. There is an African hallucinogen, Iboga, touted as a cure-all as well. Discuss.
Magic Mushrooms do nothing for
Adrenomyeloneuropathy
. There is an African hallucinogen, Iboga, touted as a cure-all as well. Discuss.
monkeybus
in
AMN EASIER
8 years ago
Another drug
In the second form,
adrenomyeloneuropathy
, symptoms appear between 20 and 30 years. Patients have stiffness and spasticity in the legs, and slowly progresses to leave patients unable wheelchair.
In the second form,
adrenomyeloneuropathy
, symptoms appear between 20 and 30 years. Patients have stiffness and spasticity in the legs, and slowly progresses to leave patients unable wheelchair.
monkeybus
in
AMN EASIER
8 years ago
Clinical and electrophysiological improvement of adrenomyeloneuropathy with steroid treatment
This is very interesting. I know a lot of us supplement homones, but have a good read of this. http://jnnp.bmj.com/content/74/6/822.full
This is very interesting. I know a lot of us supplement homones, but have a good read of this. http://jnnp.bmj.com/content/74/6/822.full
monkeybus
in
AMN EASIER
9 years ago
Adrenomyeloneuropathy - does anyone have any info of specialists in the north west of the uk??
my brother-inlaw has
Adrenomyeloneuropathy
and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband
my brother-inlaw has
Adrenomyeloneuropathy
and the doctors around here are not really treating him very well with this as we know his cousin who lives along way from us has this condition and he gets better treatment. we have read up on him being able to have bone marrow transplant and when my husband
vicarl
in
AMN EASIER
11 years ago
Neuropathic Pain
Hi, I have a rare disease
Adrenomyeloneuropathy
and I suffer with bad muscle spasms and neuropathic pain, I've tried loads of medication but they just make me feel like a zombie!
Hi, I have a rare disease
Adrenomyeloneuropathy
and I suffer with bad muscle spasms and neuropathic pain, I've tried loads of medication but they just make me feel like a zombie!
StevenSims
in
Pain Concern
12 years ago
Vitamin D3 and Himalayan Salt
Hi, I have a rare disease
Adrenomyeloneuropathy
and I suffer muscle spasms in my arms and legs and I have found that Vitamin D3 stops them! however vitamin d uses magnesium to be converted to it's active form in the bloodstream and after taking it for 2 months it has caused Magnesium dificiency!
Hi, I have a rare disease
Adrenomyeloneuropathy
and I suffer muscle spasms in my arms and legs and I have found that Vitamin D3 stops them! however vitamin d uses magnesium to be converted to it's active form in the bloodstream and after taking it for 2 months it has caused Magnesium dificiency!
StevenSims
in
Restless Legs Syndrome
12 years ago
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