Search
Search
About
Log in
Join
Experiences with
Acute leukaemia
Posts
Communities
2,756 public posts
Filter results
Richter Transformation Update 21-06-2021
Hello everyone. I would like to update the information of our Ricther Transformation group. A month and a half ago, a 42-year-old patient died. He had been transforming Ricther for nine months and was very aggressive. He had it spread all over his body. He was treated with R-Chop and in the middle
Hello everyone. I would like to update the information of our Ricther Transformation group. A month and a half ago, a 42-year-old patient died. He had been transforming Ricther for nine months and was very aggressive. He had it spread all over his body. He was treated with R-Chop and in the middle
Priss69
in
CLL Support
3 years ago
Blood test
Can anyone tell me please my latest bloods showed my MCV. 107 MCHC 310 My Haematologist wants to check them again but is waiting till my next appointment in 4 months. Feeling worried
Can anyone tell me please my latest bloods showed my MCV. 107 MCHC 310 My Haematologist wants to check them again but is waiting till my next appointment in 4 months. Feeling worried
SusieG60
in
MPN Voice
3 years ago
Awake worrying? Stop it. You deserve a free online 2nd Opinion from a CLL expert: CLL Society's Expert Access™ Program. Apply today:)
Awake worrying? If you are not seeing a CLL expert and worry is keeping you awake because you are less than confident in the treatment your current provider recommends, or you are facing a treatment decision and have received conflicting advice, CLL Society's Expert Access Program™ might be for you
Awake worrying? If you are not seeing a CLL expert and worry is keeping you awake because you are less than confident in the treatment your current provider recommends, or you are facing a treatment decision and have received conflicting advice, CLL Society's Expert Access Program™ might be for you
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hairy cell leukaemia - treatment update
Quick update one week after my 5 day subcutaneous chemo jabs ended. So far so good, I've managed a few one mile or so walks with my daughter, am sleeping well, eating well but have lost nearly a stone (13 lb) weight over the last 6 weeks, and get tired if I over-exert myself. Also having a lot of night
Quick update one week after my 5 day subcutaneous chemo jabs ended. So far so good, I've managed a few one mile or so walks with my daughter, am sleeping well, eating well but have lost nearly a stone (13 lb) weight over the last 6 weeks, and get tired if I over-exert myself. Also having a lot of night
frankmok
in
Leukaemia CARE
3 years ago
High Jak2 burden with Tet2 mutation
I was diagnosed with P-vera a few months ago. My bone marrow biopsy showed I have the Jak2 v617f mution at 88% allele burden, this sounds very high to me. I also have a Tet2 mutation at 25% allele burden. Anyone else have high burden like this. My Doctor has down played the 88% burden, but my reading
I was diagnosed with P-vera a few months ago. My bone marrow biopsy showed I have the Jak2 v617f mution at 88% allele burden, this sounds very high to me. I also have a Tet2 mutation at 25% allele burden. Anyone else have high burden like this. My Doctor has down played the 88% burden, but my reading
Flynn2107
in
MPN Voice
3 years ago
Antibodies
I decided to do my second antibody test sooner rather than later as I’m meeting up with family over half term. Apparently a result greater than 0.8 U/mL means that antibodies are detected. My result came back at 24 U/mL! That is despite a dose of 20 mg Ruxolitinib twice daily and advanced post ET MF.
I decided to do my second antibody test sooner rather than later as I’m meeting up with family over half term. Apparently a result greater than 0.8 U/mL means that antibodies are detected. My result came back at 24 U/mL! That is despite a dose of 20 mg Ruxolitinib twice daily and advanced post ET MF.
beetle
in
MPN Voice
3 years ago
Proximal onycholysis
Just wondering if anyone taking hydroxyurea or ruxolitinib has had any nail problems. Two of my fingernails (thumb and ring finger) started with bruises under the cuticles and then white areas around the base of the nail which have actually started to peel off. I went to a dermatologist this morning
Just wondering if anyone taking hydroxyurea or ruxolitinib has had any nail problems. Two of my fingernails (thumb and ring finger) started with bruises under the cuticles and then white areas around the base of the nail which have actually started to peel off. I went to a dermatologist this morning
Buggerbear
in
MPN Voice
3 years ago
[CASE-STUDY] Myocarditis Concurrent with Sweet Syndrome: A Presentation of Acute Myeloid Leukemia.
In this case, the Sweet's syndrome (SS) developed secondary to
acute
myeloid
leukaemia
(AML). In AML, the heart muscle can be infiltrated by malignant leukaemia cells, but SS can also cause heart problems, including myocarditis (inflammation of the heart muscle).
In this case, the Sweet's syndrome (SS) developed secondary to
acute
myeloid
leukaemia
(AML). In AML, the heart muscle can be infiltrated by malignant leukaemia cells, but SS can also cause heart problems, including myocarditis (inflammation of the heart muscle).
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
3 years ago
No Antibodies after Vaccine
Just got my results back for Covid Antibodies after Vaccination. It was Negative with a reported level of less than 0.4(U/mL). I took two doses of Pfizer, 8 weeks apart. I've been on Ibrutinib for CLL for 7 months now, and the first vaccine dose was 3 months after starting treatment. Really peed off
Just got my results back for Covid Antibodies after Vaccination. It was Negative with a reported level of less than 0.4(U/mL). I took two doses of Pfizer, 8 weeks apart. I've been on Ibrutinib for CLL for 7 months now, and the first vaccine dose was 3 months after starting treatment. Really peed off
MovingForward4423
in
CLL Support
3 years ago
AbbVie Pharm--positive phase 3 for CLL!
Hey, all, see this article about AbbVie pharma! AbbVie Sees Continued Positive Results for Leukemia Treatment 7:05 am ET June 11, 2021 (Dow Jones) Print By Chris Wack AbbVie said it saw continued positive results from a four-year follow-up analysis of its Phase 3 CLL14 trial. The pharmaceutical company
Hey, all, see this article about AbbVie pharma! AbbVie Sees Continued Positive Results for Leukemia Treatment 7:05 am ET June 11, 2021 (Dow Jones) Print By Chris Wack AbbVie said it saw continued positive results from a four-year follow-up analysis of its Phase 3 CLL14 trial. The pharmaceutical company
Vlaminck
in
CLL Support
3 years ago
NPlate and hair thinning
Hi from a very wet and windy Dartmoor. I’m on nPlate and have been for the past two months, platelets are stable at 123 which is good. Have had a few side effects, joint pain, headaches but am also noticing my hair is thinning, even my hairdresser said I had lost a noticeable amount. Has anyone else
Hi from a very wet and windy Dartmoor. I’m on nPlate and have been for the past two months, platelets are stable at 123 which is good. Have had a few side effects, joint pain, headaches but am also noticing my hair is thinning, even my hairdresser said I had lost a noticeable amount. Has anyone else
DevonMaid1
in
ITP Support Association
3 years ago
Webinar 3.30pm, Tuesday 6th April - Acute lymphoblastic leukaemia (ALL) treatment update
Please join us for the 3rd in the series of
acute
leukaemia
treatment updates. This webinar will update on how ALL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
Please join us for the 3rd in the series of
acute
leukaemia
treatment updates. This webinar will update on how ALL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Webinar 3.30pm, Thursday 11th March - Acute myeloid leukaemia (AML) treatment update
Please join us for our 2nd webinar in the
acute
leukaemia
treatment updates series. This webinar will update on how AML is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
Please join us for our 2nd webinar in the
acute
leukaemia
treatment updates series. This webinar will update on how AML is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Radiotherapy for sarcomatoid sccs related to ruxolitinib: would welcome dosage experiences
Hi. Thank you in advance for your time. I’m having 50 grays of radiation split into 20 doses ( 5 days a week) to prevent further recurrences of SCCs. on my face. Removed surgically. . Nasty stuff , and face is already sore and itchy after 6 treatments. Can’t find any evidence base for that level of
Hi. Thank you in advance for your time. I’m having 50 grays of radiation split into 20 doses ( 5 days a week) to prevent further recurrences of SCCs. on my face. Removed surgically. . Nasty stuff , and face is already sore and itchy after 6 treatments. Can’t find any evidence base for that level of
Rachelthepotter
in
MPN Voice
3 years ago
Supporting you to make decisions around clinical trials - a free online webinar - Friday 18th June at 3pm
Clinical trials are an important part of the treatment of blood cancers, and for some people can offer access to new treatments that aren’t available routinely. Some people may be invited to participate in a clinical trial by their healthcare team, and some may like to raise the question of suitability
Clinical trials are an important part of the treatment of blood cancers, and for some people can offer access to new treatments that aren’t available routinely. Some people may be invited to participate in a clinical trial by their healthcare team, and some may like to raise the question of suitability
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
No Antibodies shown after taking the Moderna Vaccine
I am new to CLL only a year on W&W. My Lymphs are #10.26 and % is 69.7. WBC is 14.73. I had the Moderna vaccine in Feb and March. Just had an antibody test and the result was negative - no antibodies. To say the least I am heartbroken and disappointed. Does anyone have any ideas as to what I should
I am new to CLL only a year on W&W. My Lymphs are #10.26 and % is 69.7. WBC is 14.73. I had the Moderna vaccine in Feb and March. Just had an antibody test and the result was negative - no antibodies. To say the least I am heartbroken and disappointed. Does anyone have any ideas as to what I should
CBME
in
CLL Support
3 years ago
Has anyone that’s prone to depression taken PEG INF / Pegasys?
I guess I’m clutching at straws here but I’m not keen and will probably decide to not start Ruxolitinib at this time, so that just leaves Peg. I will post an update as to what’s going on since my last haem apt which was a couple of days ago but as always the monthly appointments tend to upset me so
I guess I’m clutching at straws here but I’m not keen and will probably decide to not start Ruxolitinib at this time, so that just leaves Peg. I will post an update as to what’s going on since my last haem apt which was a couple of days ago but as always the monthly appointments tend to upset me so
Magentas
in
MPN Voice
3 years ago
It’s official Study shows T cells are activated against Covid after vaccination
Just heard on the Irish Radio from Professor Luke O’Neill, a super immunologist in Trinity College Dublin, results of a study on Leukemia patients show T Cells show response to the vaccine. Sorry I can’t remember the name of the study he mentioned . Great news he thought. It’s nature.com and Eureka
Just heard on the Irish Radio from Professor Luke O’Neill, a super immunologist in Trinity College Dublin, results of a study on Leukemia patients show T Cells show response to the vaccine. Sorry I can’t remember the name of the study he mentioned . Great news he thought. It’s nature.com and Eureka
Hidden
in
CLL Support
3 years ago
First results of a head-to-head trial of acalabrutinib versus ibrutinib in previously treated chronic lymphocytic leukemia.
Background: Increased selectivity of the Bruton tyrosine kinase inhibitor (BTKi) acalabrutinib (Aca) vs ibrutinib (Ib) may improve tolerability. We conducted an open-label, randomized, noninferiority, phase 3 trial to compare Aca vs Ib in patients (pts) with chronic lymphocytic leukemia (CLL). Methods
Background: Increased selectivity of the Bruton tyrosine kinase inhibitor (BTKi) acalabrutinib (Aca) vs ibrutinib (Ib) may improve tolerability. We conducted an open-label, randomized, noninferiority, phase 3 trial to compare Aca vs Ib in patients (pts) with chronic lymphocytic leukemia (CLL). Methods
Jm954
Administrator
in
CLL Support
3 years ago
CLL: from molecular pathogenesis to novel therapeutic strategies
September 2020 An interesting paper "CLL is a well-defined lymphoid neoplasm with very heterogeneous biological and clinical behavior. The last decade has been remarkably fruitful in novel findings elucidating multiple aspects of the pathogenesis of the disease. These include mechanisms of genetic susceptibility
September 2020 An interesting paper "CLL is a well-defined lymphoid neoplasm with very heterogeneous biological and clinical behavior. The last decade has been remarkably fruitful in novel findings elucidating multiple aspects of the pathogenesis of the disease. These include mechanisms of genetic susceptibility
Jm954
Administrator
in
CLL Support
3 years ago
1
...
37
38
39
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1628 results
MPN Voice
788 results
Leukaemia CARE
171 results
View top 10 communities
Sort by
Most Relevant
Newest