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Oncology Learning Network CME- Emerging Treatments for CLL / SLL included in NCCN and ESMO guidelines
This video and most on the Oncology Learning Network CME are intended for trained medical professionals, but those comfortable with MedSpeak can sign up for an account to view this excellent presentation by Dr. Nicole Lamanna of Columbia NY Presbyterian here: https://hmpeducation.com/content/access-webcast
This video and most on the Oncology Learning Network CME are intended for trained medical professionals, but those comfortable with MedSpeak can sign up for an account to view this excellent presentation by Dr. Nicole Lamanna of Columbia NY Presbyterian here: https://hmpeducation.com/content/access-webcast
lankisterguy
Volunteer
in
CLL Support
2 years ago
Patient Power CLL & Fatigue 2022-10-19.
Fatigue is a side effect shared by just about every patient with chronic lymphocytic leukemia (CLL). In this replay of a recent CLL Answers Now program, CLL patient and host Brad Adams and Carmelita Escalante, MD, from the Cancer-Related Fatigue Clinic at the University of Texas MD Anderson Cancer Center
Fatigue is a side effect shared by just about every patient with chronic lymphocytic leukemia (CLL). In this replay of a recent CLL Answers Now program, CLL patient and host Brad Adams and Carmelita Escalante, MD, from the Cancer-Related Fatigue Clinic at the University of Texas MD Anderson Cancer Center
lankisterguy
Volunteer
in
CLL Support
2 years ago
CLL testing
hi relatively new in here. I cannot see a pinned post on this subject but apologies if i missed it. i am on watch and wait and next check up isnt till December. I have read posts about deletions and mutations and how it influences long term prognosis re future treatment, aggressiveness and mutations
hi relatively new in here. I cannot see a pinned post on this subject but apologies if i missed it. i am on watch and wait and next check up isnt till December. I have read posts about deletions and mutations and how it influences long term prognosis re future treatment, aggressiveness and mutations
Saju21
in
CLL Support
2 years ago
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Essential Thrombocythaemia
Hi, I have just been diagnosed with a rear blood condition called Essential Thrombocythaemia (ET The courses of treatment offered to me are Hydroxycarbamide and Pegasys. I would like to ask if anyone else has the same condition and if they are taking one of the mentioned drugs and if so how do you find
Hi, I have just been diagnosed with a rear blood condition called Essential Thrombocythaemia (ET The courses of treatment offered to me are Hydroxycarbamide and Pegasys. I would like to ask if anyone else has the same condition and if they are taking one of the mentioned drugs and if so how do you find
Snowking
in
Leukaemia Support
2 years ago
essential thrombocytosis or mf
not sure if my et is progressing to mf, Hb 112,normal mcv ,wbc 5 .2,neutrophils 3.6,platelets 352,eGfr 88,lft normal, ldh595.mild splenomegaly at 13.7. medication is aspirin,symtoms are fatigue, dry mouth,frequent urinating and of course anxiety. Does anyone think i should be on some treatment Thank
not sure if my et is progressing to mf, Hb 112,normal mcv ,wbc 5 .2,neutrophils 3.6,platelets 352,eGfr 88,lft normal, ldh595.mild splenomegaly at 13.7. medication is aspirin,symtoms are fatigue, dry mouth,frequent urinating and of course anxiety. Does anyone think i should be on some treatment Thank
glyndale
in
MPN Voice
2 years ago
Fred Hutchinson Cancer Center receives $710.5 million gift to accelerate cancer and infectious disease research.
This gift will enable Fred Hutch to recruit about 36 new researchers from a variety of scientific areas, including early- and mid-career researchers and senior scientists. The funding includes resources for lab space, equipment, and technology for Fred Hutch’s collaborative research environment. https
This gift will enable Fred Hutch to recruit about 36 new researchers from a variety of scientific areas, including early- and mid-career researchers and senior scientists. The funding includes resources for lab space, equipment, and technology for Fred Hutch’s collaborative research environment. https
gardening-girl
in
CLL Support
2 years ago
RISK OF DYING OF COVID DURING THIS OMICRON PHASE
Hi, Covid Mortality Rates, I am wondering about the reality. I've read everything from 33% - 89% until Omicron. I've read 2% in a recent publication from Denmark during their Omicron phase, and most of those deaths were in age > than 71, with many other serious morbidities. Half of those dying
Hi, Covid Mortality Rates, I am wondering about the reality. I've read everything from 33% - 89% until Omicron. I've read 2% in a recent publication from Denmark during their Omicron phase, and most of those deaths were in age > than 71, with many other serious morbidities. Half of those dying
skipro
in
CLL Support
2 years ago
Acalabrutinib + Ruxolitinib interactions
Hello I have CLL (taking Acalabrutinib ) I also have Myelofibrosis and my Dr might put me on Ruxolitinib..... I am Looking for interactions between both drugs. I have checked drugs.com and Epocrates Looking for someone with more info or someone taking this combination Thank you
Hello I have CLL (taking Acalabrutinib ) I also have Myelofibrosis and my Dr might put me on Ruxolitinib..... I am Looking for interactions between both drugs. I have checked drugs.com and Epocrates Looking for someone with more info or someone taking this combination Thank you
antonb
in
CLL Support
2 years ago
Webinar 3.30pm on Thursday - What can help when talking to others about your diagnosis? - Particularly relevant today during the COVID era.
Panel: Jamie Woods
acute
leukaemia
patient Margaret Miller chronic lymphocytic leukaemia patient Caroline Kerr, Clinical Nurse Specialist for Leukaemia & MPN at Belfast City Hospital, Belfast Health and Social Care Trust Catherine Langton, Myeloid Specialist Nurse at Leeds Teaching Hospitals NHS
Panel: Jamie Woods
acute
leukaemia
patient Margaret Miller chronic lymphocytic leukaemia patient Caroline Kerr, Clinical Nurse Specialist for Leukaemia & MPN at Belfast City Hospital, Belfast Health and Social Care Trust Catherine Langton, Myeloid Specialist Nurse at Leeds Teaching Hospitals NHS
HAIRBEAR_UK
in
Leukaemia Support
2 years ago
PV patients and Common Variable Immune Deficiency Adult Onset
I have been a PV patient since 2012 and on Ruxolitinib 20mg 2xday since 2017. In the past two years my IG's have begun to fall as have my B cells and T cells. My oncologist referred me to Immunology. After several subset blood tests, they have determined that my immune system is failing and I have
I have been a PV patient since 2012 and on Ruxolitinib 20mg 2xday since 2017. In the past two years my IG's have begun to fall as have my B cells and T cells. My oncologist referred me to Immunology. After several subset blood tests, they have determined that my immune system is failing and I have
Psteuer
in
MPN Voice
2 years ago
Ruxolitinib update.
Two weeks today I started Ruxolitinib. Within day two, my back pain by my ribs went, spleen pain is easing, day sweats have gone, night sweat are wasting too. Bone ache, what bone ache. I feel good. I am 100% better than I was months ago. I get a heavy headache (not pain) now and then. I take
Two weeks today I started Ruxolitinib. Within day two, my back pain by my ribs went, spleen pain is easing, day sweats have gone, night sweat are wasting too. Bone ache, what bone ache. I feel good. I am 100% better than I was months ago. I get a heavy headache (not pain) now and then. I take
wendycu
in
MPN Voice
2 years ago
Dx of ET vs PV
Some of this is likely redundant, but we have many posts on this subject and plenty of curiosity. Here is a bit more, as always no single report is the last word: The most interesting finding is that RBC, a measure we all get in our CBC, FBC, can distinguish Jak2 ET and PV when marrow points to an
Some of this is likely redundant, but we have many posts on this subject and plenty of curiosity. Here is a bit more, as always no single report is the last word: The most interesting finding is that RBC, a measure we all get in our CBC, FBC, can distinguish Jak2 ET and PV when marrow points to an
EPguy
in
MPN Voice
2 years ago
Ruxolitinib and NSAIDs
Would anyone care to comment on the Jakafi label warnings against using NSAIDs? There is reportedly an increased risk of bleeding. If this is really the case, I guess I'm limited to acetaminophen for pain management.
Would anyone care to comment on the Jakafi label warnings against using NSAIDs? There is reportedly an increased risk of bleeding. If this is really the case, I guess I'm limited to acetaminophen for pain management.
sbs_patient
in
MPN Voice
2 years ago
Navigating the Hidden Costs of Clinical Trials on Patient Power
Navigating the Hidden Costs of Clinical Trials https://www.patientpower.info/navigating-the-hidden-costs-of-clinical-trials Nearly two years ago, Brad Adams’ doctor presented him with a few options to treat his chronic lymphocytic leukemia after it returned. Adams could continue taking an oral treatment
Navigating the Hidden Costs of Clinical Trials https://www.patientpower.info/navigating-the-hidden-costs-of-clinical-trials Nearly two years ago, Brad Adams’ doctor presented him with a few options to treat his chronic lymphocytic leukemia after it returned. Adams could continue taking an oral treatment
lankisterguy
Volunteer
in
CLL Support
2 years ago
Save the date! Our first conference for over two years! We're very pleased to invite you to our conference in Glasgow later this month.
We are excited to announce that our first conference for over two years will be held in Glasgow.
Topic: 'Managing CLL in 2022- Treatment guidelines explained'
When:
Tuesday 18 October
Where:
Voco Grand Central, 99 Gordon Street, Glasgow, G1 3SF. The centre is within the
We are excited to announce that our first conference for over two years will be held in Glasgow.
Topic: 'Managing CLL in 2022- Treatment guidelines explained'
When:
Tuesday 18 October
Where:
Voco Grand Central, 99 Gordon Street, Glasgow, G1 3SF. The centre is within the
pkguk2
CLL Support Association
in
CLL Support
2 years ago
Atypical CF -diagnosed in UK? Results back
After the better part of a year, I finally received my results for CF and PCD testing. The initial brush biopsy for PCD indicated no mucociliary clearance amongst other things. However, they regrew the cilia and decided this was caused by mucus trapping the cilia. I was told they had to retest the
After the better part of a year, I finally received my results for CF and PCD testing. The initial brush biopsy for PCD indicated no mucociliary clearance amongst other things. However, they regrew the cilia and decided this was caused by mucus trapping the cilia. I was told they had to retest the
Person99
in
Lung Conditions Community Forum
2 years ago
pre fibrotic myelofibrosis
Hi all hope your well. Could anyone help me I had a BMB nad results say I have Pre Fibrotic myelofibrosis changes not sure what this means I have ET My Haemotoligist has suggested changing to Pegylated Interferon Has anyone had same diagnosis Is anyone on htis medication to and can tell
Hi all hope your well. Could anyone help me I had a BMB nad results say I have Pre Fibrotic myelofibrosis changes not sure what this means I have ET My Haemotoligist has suggested changing to Pegylated Interferon Has anyone had same diagnosis Is anyone on htis medication to and can tell
JeniMac
in
MPN Voice
2 years ago
PV and CML?
hi just diagnosed with PV JAK2+ve. I also have 1 type of my white cells slightly high. Could I have CML at the same time as PV. My hospital notes had CML?
hi just diagnosed with PV JAK2+ve. I also have 1 type of my white cells slightly high. Could I have CML at the same time as PV. My hospital notes had CML?
DougyW
in
MPN Voice
2 years ago
1st day on Ruxolitinib
The doctor took me off both Hydroxy and Anagrelide to start on new medication Ruxolitinib 20mg x2 daily. im a bit nervous about it, as I gained a lot of weight with the other medication and shielding, I don’t want to gain more. I know I have to lose some weight (I’ve done it before and I’ll do it again
The doctor took me off both Hydroxy and Anagrelide to start on new medication Ruxolitinib 20mg x2 daily. im a bit nervous about it, as I gained a lot of weight with the other medication and shielding, I don’t want to gain more. I know I have to lose some weight (I’ve done it before and I’ll do it again
wendycu
in
MPN Voice
2 years ago
Meet Henry
Spot Leukaemia News!!! Us and Leukaemia UK are excited to launch our new Spot Leukaemia video which aims to make the signs and symptoms the most memorable yet! Introducing Henry! He’s here to make the signs and symptoms of leukaemia memorable. In the video, you will see Henry the Macaw parrot as
Spot Leukaemia News!!! Us and Leukaemia UK are excited to launch our new Spot Leukaemia video which aims to make the signs and symptoms the most memorable yet! Introducing Henry! He’s here to make the signs and symptoms of leukaemia memorable. In the video, you will see Henry the Macaw parrot as
NicoleLeukaemiaCare
in
Leukaemia Support
2 years ago
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