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So so tired of trying to get well with such poor results, 9 years on and I feel so depressed. (Graves’ disease) ( blood tests inc in post).
Is there anyone with Graves’ disease that has managed long term remission?. For 9 years I have tried and only managed 18 months remission. I try to do everything to help myself. With health, I don’t drink or smoke, eat well and exercise moderately, take vitamins etc. Here are my latest bloods after 6
Is there anyone with Graves’ disease that has managed long term remission?. For 9 years I have tried and only managed 18 months remission. I try to do everything to help myself. With health, I don’t drink or smoke, eat well and exercise moderately, take vitamins etc. Here are my latest bloods after 6
Erin60
in
Thyroid UK
5 years ago
Hanshimotos or Graves? Continue with Drug, or RAi, OR Surgery ?
@greygoose Hi, Below is my recent complete blood test. FT4 20.0 pmol/L (9.0-25.0) TSH 0.053 mIU/L (0.400-4.700) FT3 6.4 pmol/L (3.5-6.5) TSH Receptor Antibodies Thyroid Stimulating Immunoglobulins (TSI) 2.43 IU/L (<0.55) (comment: Consistent with Graves disease) THYROID AUTOANTIBODIES
@greygoose Hi, Below is my recent complete blood test. FT4 20.0 pmol/L (9.0-25.0) TSH 0.053 mIU/L (0.400-4.700) FT3 6.4 pmol/L (3.5-6.5) TSH Receptor Antibodies Thyroid Stimulating Immunoglobulins (TSI) 2.43 IU/L (<0.55) (comment: Consistent with Graves disease) THYROID AUTOANTIBODIES
Hidden
in
Thyroid UK
5 years ago
Radioactive Iodine Treatment or Thyroidectomy?
Hello! I was diagnosed with Graves Disease in May 2017, my levels of TSH came down to normal range and so I was taken off Carbimozole in March 2019. Two weeks ago I was admitted to hospital with a heart rate of 160, where they'd found I was down to 7.5 stone and unfortunately that my hyperthyroidism
Hello! I was diagnosed with Graves Disease in May 2017, my levels of TSH came down to normal range and so I was taken off Carbimozole in March 2019. Two weeks ago I was admitted to hospital with a heart rate of 160, where they'd found I was down to 7.5 stone and unfortunately that my hyperthyroidism
GioFarmani
in
Thyroid UK
5 years ago
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Indefinite antithyroid drug therapy in toxic Graves’ disease: What are the cons
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3830376/ Whilst I don't agree especially with the cost effectiveness bits comparing ATD therapy to RAI or TT, this piece is chocked full of details about ATD, RAI, TT. Worth a read since many of us always wonder how long we can go on with Graves on ATD therapy
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3830376/ Whilst I don't agree especially with the cost effectiveness bits comparing ATD therapy to RAI or TT, this piece is chocked full of details about ATD, RAI, TT. Worth a read since many of us always wonder how long we can go on with Graves on ATD therapy
ling
in
Thyroid UK
5 years ago
Questions about bone marrow biopsy (having my second one Tuesday 😰) and MDS
Hi, I am getting my second bone marrow biopsy in less than a year on Tuesday 😥 because I have had low white blood cells since last fall, and as of Monday they were down to 1.6k/ml . If anyone has a chance to look at my results, can you explain about MDS. One doctor said I essentially have it just because
Hi, I am getting my second bone marrow biopsy in less than a year on Tuesday 😥 because I have had low white blood cells since last fall, and as of Monday they were down to 1.6k/ml . If anyone has a chance to look at my results, can you explain about MDS. One doctor said I essentially have it just because
Bustamove86
in
Leukaemia CARE
5 years ago
Iodine Supplements
Does anyone hypo take iodine supplements?
Does anyone hypo take iodine supplements?
Lizf1006
in
Thyroid UK
5 years ago
Optimal vitamin levels for optimal thyroid health
Hi can anyone post me the ranges for the main vitamins that help thyroid function that we need optimal I am just going back through my bloods to check what levels they are and if my irons low what are good supplements to take as I am very sensitive ? years ago I tried a hair supplement which had seaweed
Hi can anyone post me the ranges for the main vitamins that help thyroid function that we need optimal I am just going back through my bloods to check what levels they are and if my irons low what are good supplements to take as I am very sensitive ? years ago I tried a hair supplement which had seaweed
Merlio18
in
Thyroid UK
5 years ago
Iodine for weight lose after thyriod removal
I had thyroid removed ( messy and long story) and am now suffering from heart disease due to thyroid issues and am on a 100mg from 75mg of levothyroxine but cannot shift the excess weight I have put on ie over 30lb nor the feeling of bloating. My GP,Cardiology and thyroid endocrinology teams haven't
I had thyroid removed ( messy and long story) and am now suffering from heart disease due to thyroid issues and am on a 100mg from 75mg of levothyroxine but cannot shift the excess weight I have put on ie over 30lb nor the feeling of bloating. My GP,Cardiology and thyroid endocrinology teams haven't
Feelinglike
in
Thyroid UK
5 years ago
Urine iodine test results
Ive just received my Iodine (Urine) test result from Genova via Thyroid UK and the result is 91 mcg/l (Range 100-199), hence classed as "Slight Deficit". Any views on way forward e.g. should I maintain or increase my iodine supplementation (below)? Note: 1. Ive not been diagnosed with thyroid disease
Ive just received my Iodine (Urine) test result from Genova via Thyroid UK and the result is 91 mcg/l (Range 100-199), hence classed as "Slight Deficit". Any views on way forward e.g. should I maintain or increase my iodine supplementation (below)? Note: 1. Ive not been diagnosed with thyroid disease
userotc
in
Thyroid UK
5 years ago
Recently diagnosed with Hypothyroidism - six weeks on Levothyroxine
Hi all, I've been reading this forum avidly for the last few days following my first blood test after six weeks of Northstar levothyroxine treatment of 50 mcg. My latest results are below, can anyone please tell me if these are 'normal', 'good' or otherwise? I realise it's a very individual matter. Also
Hi all, I've been reading this forum avidly for the last few days following my first blood test after six weeks of Northstar levothyroxine treatment of 50 mcg. My latest results are below, can anyone please tell me if these are 'normal', 'good' or otherwise? I realise it's a very individual matter. Also
StrongCoffee
in
Thyroid UK
5 years ago
Specialist trying to scare me with “long term effects of overactive thyroid”
Hi all me again! Have been back to the specialist and did not increase my carbimzaole to 40mg from 10mg as I didn’t feel I needed to. My March blood test (last one I had) came back as; TSH 0.03, Free T4 12.8, Free T3 5.3 Again I am being pressured into upping my meds to make my thyroid TSH level go into
Hi all me again! Have been back to the specialist and did not increase my carbimzaole to 40mg from 10mg as I didn’t feel I needed to. My March blood test (last one I had) came back as; TSH 0.03, Free T4 12.8, Free T3 5.3 Again I am being pressured into upping my meds to make my thyroid TSH level go into
Kelz21
in
Thyroid UK
5 years ago
I3C [indole-3-carbinol]
Following on from recent I3C posts, I thought I would review the literature. Plants have evolved protective mechanisms to deal with environmental insult. The greatest such insult, of course, is to be eaten. So, along with the chemicals that are considered to be protective in humans, such as the polyphenols
Following on from recent I3C posts, I thought I would review the literature. Plants have evolved protective mechanisms to deal with environmental insult. The greatest such insult, of course, is to be eaten. So, along with the chemicals that are considered to be protective in humans, such as the polyphenols
pjoshea13
in
Advanced Prostate Cancer
5 years ago
Carbimazole
Hi I was wondering as anyone been on carbimazole longer than 18 months ? My consultant said I have to come off mine in July and go back for bloods and see him in September, now if I’ve gone back overactive only two options he said which is rai or thyroid removel, I have Graves by the way, but he said
Hi I was wondering as anyone been on carbimazole longer than 18 months ? My consultant said I have to come off mine in July and go back for bloods and see him in September, now if I’ve gone back overactive only two options he said which is rai or thyroid removel, I have Graves by the way, but he said
Ginger-bread
in
Thyroid UK
5 years ago
Anyone who has had thyroid cancer with RAI been diagnosed or tested for leukemia after?
Anyone who has had thyroid cancer with RAI been diagnosed or tested for leukemia after? I have had symptoms like weakness and vision problems for about a year and also very low white blood cells (1.8k last week, and normal range is 4-11k). My hematologist informed me at our first appt that people who
Anyone who has had thyroid cancer with RAI been diagnosed or tested for leukemia after? I have had symptoms like weakness and vision problems for about a year and also very low white blood cells (1.8k last week, and normal range is 4-11k). My hematologist informed me at our first appt that people who
Bustamove86
in
Thyroid UK
5 years ago
Toothache after H/A
Hi All, Had a h/a and angioplasty and stent fitted 10 weeks ago, struggled with meds at first constantly visiting drs to review but getting there Discovered I also have an over active thyroid since the op dye used also contains iodine But on top of which I need a tooth extraction does anyone know if
Hi All, Had a h/a and angioplasty and stent fitted 10 weeks ago, struggled with meds at first constantly visiting drs to review but getting there Discovered I also have an over active thyroid since the op dye used also contains iodine But on top of which I need a tooth extraction does anyone know if
Harrison4
in
British Heart Foundation
5 years ago
Cryoglobulins/vasculitis and CLL. Anyone? Please help-LoveCuresCLL
Calling for Help: Has anyone gotten this vasculitis in their skin and been Rai stage 1 pretreated CLL. Anyone tried plasmapharesis or been put on steroids like prednisone for this. Has anyone gotten kidney disease on account of cryoglobulins thanks to CLL. Please advise any thoughts or help appreciated
Calling for Help: Has anyone gotten this vasculitis in their skin and been Rai stage 1 pretreated CLL. Anyone tried plasmapharesis or been put on steroids like prednisone for this. Has anyone gotten kidney disease on account of cryoglobulins thanks to CLL. Please advise any thoughts or help appreciated
LovecuresCLL
in
CLL Support
5 years ago
Read for a laugh
Thyroid cancer TT aug 18 Rai Oct 18 So GP gave me 1st issue of T3 with repeat for 5 months Got a call to say can’t have it now and the gp should not of given it in the 1st place Called gp this morning and he’s said he got into trouble from the practice THe funny thing he said T3 IS A FOOD SUPPLEMENT
Thyroid cancer TT aug 18 Rai Oct 18 So GP gave me 1st issue of T3 with repeat for 5 months Got a call to say can’t have it now and the gp should not of given it in the 1st place Called gp this morning and he’s said he got into trouble from the practice THe funny thing he said T3 IS A FOOD SUPPLEMENT
dodge1979
in
Thyroid UK
5 years ago
Need advice
RAI, to go or Not to go ? Base on the report I attached. So far, don’t experience enlarged gland (goiter) or swelling at neck
RAI, to go or Not to go ? Base on the report I attached. So far, don’t experience enlarged gland (goiter) or swelling at neck
Hidden
in
Thyroid UK
5 years ago
Follow up on Referral Letter
As promised by my Doctor, I picked up my copy referral letter this morning. He had included my biochemistry. Now, something I didn't know, he had listened to me regarding only testing TSH levels (I took him a copy of Dr Tofts article in Pulse Magazine and also a copy of Diogenes "Time for a reassessment
As promised by my Doctor, I picked up my copy referral letter this morning. He had included my biochemistry. Now, something I didn't know, he had listened to me regarding only testing TSH levels (I took him a copy of Dr Tofts article in Pulse Magazine and also a copy of Diogenes "Time for a reassessment
Gingernut44
in
Thyroid UK
5 years ago
Urgent help
Hi all Had TT in aug Had rai in Oct T4 was put up in jan and lost my marbles with anxiety and depression Endo dropped T4 and added T3 for 4 weeks And I am doing a lot better Hospital won’t keep giving me T3 Went to see gp and put my case forward I have a resistance to T4 converting and TSH need
Hi all Had TT in aug Had rai in Oct T4 was put up in jan and lost my marbles with anxiety and depression Endo dropped T4 and added T3 for 4 weeks And I am doing a lot better Hospital won’t keep giving me T3 Went to see gp and put my case forward I have a resistance to T4 converting and TSH need
dodge1979
in
Thyroid UK
5 years ago
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